Institute for Health and Disability Policy Studies
@ihdps.bsky.social
To conduct timely and meaningful research and evaluation to inform health and disability policy, with the goal of improving access and quality of care for all people, particularly for those with disabilities and chronic illnesses.
Pinned
The 2025 National Survey on Health and Disability (NSHD) is now closed!
While we look at the information people have shared, we invite you to sign up for our newsletter to stay in the loop about disability research news, resources, and other opportunities: tinyurl.com/ycxepyzk
While we look at the information people have shared, we invite you to sign up for our newsletter to stay in the loop about disability research news, resources, and other opportunities: tinyurl.com/ycxepyzk
Congrats to @kucdisabilities.bsky.social - KU Center on Disabilities!
They are among five national recipients of the Excellence in Community-Engaged Partnerships Award for work partnering with the disability community as active members of inclusive research and dissemination teams.
They are among five national recipients of the Excellence in Community-Engaged Partnerships Award for work partnering with the disability community as active members of inclusive research and dissemination teams.
KU disability research center nationally recognized for community partnership
The Kansas University Center on Disabilities credits its community partnership with the Self Advocate Coalition of Kansas, which has supported training and technical assistance, information disseminat...
news.ku.edu
February 17, 2026 at 6:17 PM
Congrats to @kucdisabilities.bsky.social - KU Center on Disabilities!
They are among five national recipients of the Excellence in Community-Engaged Partnerships Award for work partnering with the disability community as active members of inclusive research and dissemination teams.
They are among five national recipients of the Excellence in Community-Engaged Partnerships Award for work partnering with the disability community as active members of inclusive research and dissemination teams.
Reposted by Institute for Health and Disability Policy Studies
"Medicaid cuts and immigration raids only make... already pressing issues worse. 32% of the home care workforce is staffed by immigrants, and immigrants make up 21% of staff in nursing homes."
Excellent piece by @racheldl.bsky.social for @aapd.com:
www.aapd.com/recent-immig...
Excellent piece by @racheldl.bsky.social for @aapd.com:
www.aapd.com/recent-immig...
Recent Changes to Immigration Policies Have Disastrous Impacts on Disabled People and Long-Term Care - AAPD
In January 2025, just two weeks before President Trump’s second inauguration, I was approved by the state of Wisconsin to receive Home and Community-Based Services (HCBS), a form of long-term care tha...
www.aapd.com
February 12, 2026 at 3:38 PM
"Medicaid cuts and immigration raids only make... already pressing issues worse. 32% of the home care workforce is staffed by immigrants, and immigrants make up 21% of staff in nursing homes."
Excellent piece by @racheldl.bsky.social for @aapd.com:
www.aapd.com/recent-immig...
Excellent piece by @racheldl.bsky.social for @aapd.com:
www.aapd.com/recent-immig...
Reposted by Institute for Health and Disability Policy Studies
Seeking Participants for NIDILRR Match-Making Sessions
ACL/NIDILRR is hosting matchmaking sessions to connect researchers and developers in the community to share information, discuss common interests, and find research partners.
ACL/NIDILRR is hosting matchmaking sessions to connect researchers and developers in the community to share information, discuss common interests, and find research partners.
Seeking Participants for NIDILRR Match-Making Sessions
ACL/NIDILRR is hosting matchmaking sessions to connect researchers and developers in the community to share information, discuss common interests, and find research partners.
naricspotlight.com
February 5, 2026 at 2:03 PM
Seeking Participants for NIDILRR Match-Making Sessions
ACL/NIDILRR is hosting matchmaking sessions to connect researchers and developers in the community to share information, discuss common interests, and find research partners.
ACL/NIDILRR is hosting matchmaking sessions to connect researchers and developers in the community to share information, discuss common interests, and find research partners.
Reposted by Institute for Health and Disability Policy Studies
Tools to support health and human development in Kansas and across the world at the heart of a 20-year partnership between @who.int and the KU Center for Community Health and Development.
Learn more at: https://loom.ly/pKs0ELI
Learn more at: https://loom.ly/pKs0ELI
From Kansas to the world: KU’s WHO collaboration works to promote global health
By delivering a digital “toolbox” to 300 countries, researchers at the Center for Community Health and Development are bringing life-saving lessons back home to Kansas.
lifespan.ku.edu
February 3, 2026 at 3:05 PM
Tools to support health and human development in Kansas and across the world at the heart of a 20-year partnership between @who.int and the KU Center for Community Health and Development.
Learn more at: https://loom.ly/pKs0ELI
Learn more at: https://loom.ly/pKs0ELI
The National Rehabilitation Information Center (NARIC) has collected a list of resources for emergency preparedness and recovery from NIDILRR organizations.
Winter Weather: Grantees Share Emergency Preparedness Resources
NIDILRR grantees shared some timely resources to help people with disabilities and others in the community prepare for, and recover from, the winter weather!
naricspotlight.com
January 28, 2026 at 7:10 PM
The National Rehabilitation Information Center (NARIC) has collected a list of resources for emergency preparedness and recovery from NIDILRR organizations.
Reposted by Institute for Health and Disability Policy Studies
Our Year in Review 2025 highlights some of the most significant aspects of our work over the past year. Distinct from our Annual Report (coming soon), this review focuses on the key themes that shaped our activities throughout the year. Explore the review here: zurl.co/mwVwd
January 22, 2026 at 9:10 PM
Our Year in Review 2025 highlights some of the most significant aspects of our work over the past year. Distinct from our Annual Report (coming soon), this review focuses on the key themes that shaped our activities throughout the year. Explore the review here: zurl.co/mwVwd
Reposted by Institute for Health and Disability Policy Studies
Today we celebrate Ed Roberts on what would have been his 87th birthday. Ed Roberts had a huge influence on Berkeley creating the first independent living service and advocacy program run by and for people with disabilities. His impact on the disability rights movement cannot be overstated.
January 23, 2026 at 5:17 PM
Today we celebrate Ed Roberts on what would have been his 87th birthday. Ed Roberts had a huge influence on Berkeley creating the first independent living service and advocacy program run by and for people with disabilities. His impact on the disability rights movement cannot be overstated.
Reposted by Institute for Health and Disability Policy Studies
Community Webinar Alert!
Topic: An Advocate's Toolkit for Broad #Medicaid Exemption Implementation
Date: Wednesday, January 14
Time: 4 - 5pm ET
Free to attend; registration required
Link to register: us02web.zoom.us/meeting/regi...
#disability #disabilityadvocate #selfadvocate #nacdd #disabled
Topic: An Advocate's Toolkit for Broad #Medicaid Exemption Implementation
Date: Wednesday, January 14
Time: 4 - 5pm ET
Free to attend; registration required
Link to register: us02web.zoom.us/meeting/regi...
#disability #disabilityadvocate #selfadvocate #nacdd #disabled
January 7, 2026 at 12:00 PM
Community Webinar Alert!
Topic: An Advocate's Toolkit for Broad #Medicaid Exemption Implementation
Date: Wednesday, January 14
Time: 4 - 5pm ET
Free to attend; registration required
Link to register: us02web.zoom.us/meeting/regi...
#disability #disabilityadvocate #selfadvocate #nacdd #disabled
Topic: An Advocate's Toolkit for Broad #Medicaid Exemption Implementation
Date: Wednesday, January 14
Time: 4 - 5pm ET
Free to attend; registration required
Link to register: us02web.zoom.us/meeting/regi...
#disability #disabilityadvocate #selfadvocate #nacdd #disabled
Reposted by Institute for Health and Disability Policy Studies
Welcome to 2026: What’s New with You?
Throughout the year, members of the NIDILRR grantee community send us updates about their work, like new articles we can add to our library, awards or achievements based on their NIDILRR-funded research, or cool tools or resources that the community can use.…
Throughout the year, members of the NIDILRR grantee community send us updates about their work, like new articles we can add to our library, awards or achievements based on their NIDILRR-funded research, or cool tools or resources that the community can use.…
Welcome to 2026: What’s New with You?
Throughout the year, members of the NIDILRR grantee community send us updates about their work, like new articles we can add to our library, awards or achievements based on their NIDILRR-funded research, or cool tools or resources that the community can use. We highlight many of these in our weekly News and Notes from the NIDILRR Community and Beyond (not a subscriber?
naricspotlight.com
January 7, 2026 at 6:47 PM
Welcome to 2026: What’s New with You?
Throughout the year, members of the NIDILRR grantee community send us updates about their work, like new articles we can add to our library, awards or achievements based on their NIDILRR-funded research, or cool tools or resources that the community can use.…
Throughout the year, members of the NIDILRR grantee community send us updates about their work, like new articles we can add to our library, awards or achievements based on their NIDILRR-funded research, or cool tools or resources that the community can use.…
Reposted by Institute for Health and Disability Policy Studies
"As federal officials begin to outline more stringent Medicaid eligibility rules, worries are running high about what the changes will mean for people with disabilitie...
https://www.disabilityscoop.com/2026/01/05/medicaid-changes-could-limit-access-for-people-with-disabilities-advocates-warn/31789/
https://www.disabilityscoop.com/2026/01/05/medicaid-changes-could-limit-access-for-people-with-disabilities-advocates-warn/31789/
Medicaid Changes Could Limit Access For People With Disabilities, Advocates Warn
As federal officials begin to outline more stringent Medicaid eligibility rules, worries are running high about what the changes will mean for people with disabilities.
www.disabilityscoop.com
January 5, 2026 at 7:31 PM
"As federal officials begin to outline more stringent Medicaid eligibility rules, worries are running high about what the changes will mean for people with disabilitie...
https://www.disabilityscoop.com/2026/01/05/medicaid-changes-could-limit-access-for-people-with-disabilities-advocates-warn/31789/
https://www.disabilityscoop.com/2026/01/05/medicaid-changes-could-limit-access-for-people-with-disabilities-advocates-warn/31789/
Reposted by Institute for Health and Disability Policy Studies
“I’m honored to be your ancestor and believe that disabled oracles like us will light the way to the future. Don’t let the bastards grind you down. I love you all.”
Hero of 2025: Alice Wong
The disability justice icon's last message: "Don’t let the bastards grind you down."
www.motherjones.com
December 31, 2025 at 6:32 PM
“I’m honored to be your ancestor and believe that disabled oracles like us will light the way to the future. Don’t let the bastards grind you down. I love you all.”
Reposted by Institute for Health and Disability Policy Studies
"ABLE accounts will be available to Americans with disabilities that onset by age 46 beginning in January. Until now, the age limit has been 26." Read more about 2026 and ABLE accounts here: https://www.disabilityscoop.com/2025/12/18/new-year-brings-big-changes-for-able-accounts/31784/ #ABLE #PwD
New Year Brings Big Changes For ABLE Accounts
Access to accounts that allow individuals with disabilities to save without losing government benefits will expand dramatically and people with the accounts will be able to save more than ever before.
www.disabilityscoop.com
December 31, 2025 at 7:01 PM
"ABLE accounts will be available to Americans with disabilities that onset by age 46 beginning in January. Until now, the age limit has been 26." Read more about 2026 and ABLE accounts here: https://www.disabilityscoop.com/2025/12/18/new-year-brings-big-changes-for-able-accounts/31784/ #ABLE #PwD
Reposted by Institute for Health and Disability Policy Studies
The National Council on Disability is requesting public input to help shape a policy brief on disability clinical care and competency training. Share your perspective by January 6, 2026 at 11:59 PM EST.
Share your input here:
www.ncd.gov/2025/12/01/d...
Share your input here:
www.ncd.gov/2025/12/01/d...
December 20, 2025 at 11:42 PM
The National Council on Disability is requesting public input to help shape a policy brief on disability clinical care and competency training. Share your perspective by January 6, 2026 at 11:59 PM EST.
Share your input here:
www.ncd.gov/2025/12/01/d...
Share your input here:
www.ncd.gov/2025/12/01/d...
We are greatly saddened to learn of the passing of Bob Kafka.
Rest in power Bob.
Rest in power Bob.
Bob Kafka was an organizer with ADAPT (American Disabled for Attendant Programs Today), a group which advocates for policy change to support people with disabilities. n.pr/4pWshr5
Disability rights advocate Bob Kafka dead at 79
Bob Kafka was an organizer with ADAPT (American Disabled for Attendant Programs Today), a group which advocates for policy change to support people with disabilities.
n.pr
December 30, 2025 at 4:00 AM
We are greatly saddened to learn of the passing of Bob Kafka.
Rest in power Bob.
Rest in power Bob.
Reposted by Institute for Health and Disability Policy Studies
AN NPR survey finds that people with disability still find hotels unaccommodating, even 35 years after passage of the Americans with Disabilities Act. n.pr/48VPxj2
35 years after ADA, people with disabilities still find hotels unaccommodating
AN NPR survey finds that people with disability still find hotels unaccommodating, even 35 years after passage of the Americans with Disabilities Act.
n.pr
December 24, 2025 at 11:24 AM
AN NPR survey finds that people with disability still find hotels unaccommodating, even 35 years after passage of the Americans with Disabilities Act. n.pr/48VPxj2
Reposted by Institute for Health and Disability Policy Studies
Our final #PolicyBlog of 2025 reviews the legal protections that help combat discrimination against people with disabilities, with a focus on healthcare:
aahd.us/2025/12/heal...
Sign up for our newsletters to follow our policy work in 2026:
bit.ly/AAHD-Subscribe
#PolicyFocus #DisabilitySky
aahd.us/2025/12/heal...
Sign up for our newsletters to follow our policy work in 2026:
bit.ly/AAHD-Subscribe
#PolicyFocus #DisabilitySky
Health Equity - AAHD
Health equity becomes more possible when every person with a disability can access the supports and services they need to live a full life. Through legal and policy approaches, US public health…
aahd.us
December 17, 2025 at 4:53 PM
Our final #PolicyBlog of 2025 reviews the legal protections that help combat discrimination against people with disabilities, with a focus on healthcare:
aahd.us/2025/12/heal...
Sign up for our newsletters to follow our policy work in 2026:
bit.ly/AAHD-Subscribe
#PolicyFocus #DisabilitySky
aahd.us/2025/12/heal...
Sign up for our newsletters to follow our policy work in 2026:
bit.ly/AAHD-Subscribe
#PolicyFocus #DisabilitySky
Reposted by Institute for Health and Disability Policy Studies
Particularly looking for more mentees and mentors in the following time zones: UTC+0, UTC+1, UTC+3, UTC+10! #DisabledInSTEM
It's that time of year again... time for #DisabledInSTEM 2026 Mentorship applications! I'm so excited to be running this program for the sixth year and seeing the growth over the years!
Mentee form: forms.gle/um5DvYnBi3tn...
Mentor form: forms.gle/BvaxnQm8uhUR...
Applications due December 5th!
Mentee form: forms.gle/um5DvYnBi3tn...
Mentor form: forms.gle/BvaxnQm8uhUR...
Applications due December 5th!
December 6, 2025 at 1:39 AM
Particularly looking for more mentees and mentors in the following time zones: UTC+0, UTC+1, UTC+3, UTC+10! #DisabledInSTEM
Reposted by Institute for Health and Disability Policy Studies
A KU study to increase access to fitness for people with disabilities is expanding. In #Lawrence, so is Kaw Valley CrossFit, with increased space for adapted equipment and training. The public is invited to a ribbon cutting at 4 p.m. Dec. 19 to learn more. https://loom.ly/htRwLhs
Grant to expand community-based research project focused on people with mobility disabilities
With new federal funding, a University of Kansas project is expanding access to exercise for people with disabilities. Life Span Institute researcher Lyndsie Koon says the community-based functional fitness program has shown strong results.
lifespan.ku.edu
December 18, 2025 at 6:03 PM
A KU study to increase access to fitness for people with disabilities is expanding. In #Lawrence, so is Kaw Valley CrossFit, with increased space for adapted equipment and training. The public is invited to a ribbon cutting at 4 p.m. Dec. 19 to learn more. https://loom.ly/htRwLhs
Reposted by Institute for Health and Disability Policy Studies
New court documents reveal a list of nearly 200 words or phrases the Trump administration told Head Start programs it does not want to see in their funding requests. n.pr/497P6C4
Head Start centers told to avoid 'disability,' 'women' and more in funding requests
New court documents reveal a list of nearly 200 words or phrases the Trump administration told Head Start programs it does not want to see in their funding requests.
n.pr
December 11, 2025 at 9:45 PM
New court documents reveal a list of nearly 200 words or phrases the Trump administration told Head Start programs it does not want to see in their funding requests. n.pr/497P6C4
Reposted by Institute for Health and Disability Policy Studies
Accessing disaster aid can be overwhelming, especially for disabled people, elders, people of color, & low-income communities. FEMA is often the main system people are directed to after a disaster, but navigating it is not always transparent or easy. This guide breaks down the real steps. [1/7]
December 4, 2025 at 7:57 PM
Accessing disaster aid can be overwhelming, especially for disabled people, elders, people of color, & low-income communities. FEMA is often the main system people are directed to after a disaster, but navigating it is not always transparent or easy. This guide breaks down the real steps. [1/7]
Reposted by Institute for Health and Disability Policy Studies
We’re now accepting applications for our 2026 Scholarship on Health & Disability! This award is made each year to undergraduate/ graduate students pursuing studies in the broad field of #DisabilityHealth. Due: March 6, 2026
Share this opportunity: aahd.us/initiatives/...
#Disability #DisabilitySky
Share this opportunity: aahd.us/initiatives/...
#Disability #DisabilitySky
December 9, 2025 at 5:47 PM
We’re now accepting applications for our 2026 Scholarship on Health & Disability! This award is made each year to undergraduate/ graduate students pursuing studies in the broad field of #DisabilityHealth. Due: March 6, 2026
Share this opportunity: aahd.us/initiatives/...
#Disability #DisabilitySky
Share this opportunity: aahd.us/initiatives/...
#Disability #DisabilitySky
Reposted by Institute for Health and Disability Policy Studies
The U.S. #SupremeCourt is set to hear arguments in a case that advocates say could have major implications for how #IntellectualDisability is defined. #disabilities #SCOTUS
Supreme Court To Hear Case On Intellectual Disability
The U.S. Supreme Court is set to hear arguments in a case that advocates say could have major implications for how intellectual disability is defined.
www.disabilityscoop.com
December 8, 2025 at 5:17 AM
The U.S. #SupremeCourt is set to hear arguments in a case that advocates say could have major implications for how #IntellectualDisability is defined. #disabilities #SCOTUS
This project from the @center4ds.bsky.social documented the experiences of disabled and chronically ill people during the COVID-19 pandemic.
disabilitycovidchronicles.nyu.edu
#Covid19 #LongCovid #disability
disabilitycovidchronicles.nyu.edu
#Covid19 #LongCovid #disability
Disability Covid Chronicles
Documenting the experiences of disabled and chronically ill people during the current COVID-19 pandemic, organized by the NYU Center for Disability Studies
disabilitycovidchronicles.nyu.edu
December 3, 2025 at 7:25 PM
This project from the @center4ds.bsky.social documented the experiences of disabled and chronically ill people during the COVID-19 pandemic.
disabilitycovidchronicles.nyu.edu
#Covid19 #LongCovid #disability
disabilitycovidchronicles.nyu.edu
#Covid19 #LongCovid #disability
The @bazeloncenter.bsky.social has released a short guide for states to support people with disabilities in light of impending changes to Medicaid.
Read more at:
Guide:
www.bazelon.org/wp-content/u...
Bazelon's site:
www.bazelon.org
Read more at:
Guide:
www.bazelon.org/wp-content/u...
Bazelon's site:
www.bazelon.org
www.bazelon.org
December 2, 2025 at 9:15 PM
The @bazeloncenter.bsky.social has released a short guide for states to support people with disabilities in light of impending changes to Medicaid.
Read more at:
Guide:
www.bazelon.org/wp-content/u...
Bazelon's site:
www.bazelon.org
Read more at:
Guide:
www.bazelon.org/wp-content/u...
Bazelon's site:
www.bazelon.org
Reposted by Institute for Health and Disability Policy Studies
UK’s Human Development Institute (HDI) received $3.2 million in funding from the U.S. Department of Education to support a nationwide effort to engage employers and improve job opportunities for people with disabilities.
Learn more: https://bit.ly/3MAklNd
Learn more: https://bit.ly/3MAklNd
HDI grant to advance employer engagement strategies in vocational rehabilitation | UK Research
The UK Human Development Institute received $3.2 million in funding from the U.S. Department of Education to support a nationwide effort to engage employers and improve job opportunities for people wi...
bit.ly
December 2, 2025 at 6:20 PM
UK’s Human Development Institute (HDI) received $3.2 million in funding from the U.S. Department of Education to support a nationwide effort to engage employers and improve job opportunities for people with disabilities.
Learn more: https://bit.ly/3MAklNd
Learn more: https://bit.ly/3MAklNd