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ibdsuperheroes.bsky.social
IBDSuperHeroes
@ibdsuperheroes.bsky.social
71 followers 82 following 190 posts
#CrohnsDisease & #UlcerativeColitis support, #IBDawareness & fundraising 💜 https://linktr.ee/ibdsuperheroes 💜

🧫 We fund #IBDresearch via Bowel Research UK 🧬

💜 #IBD #Crohns #Colitis #Ostomy #Stoma #PatientAdvocacy #IBDAdvocacy 💜
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ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek 💜

Ill for more than half her life, Lowri shows incredible resilience. She focuses on what she can control and makes the most of her good days.

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
December 7, 2025 at 11:30 AM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek 💜

#IBD means never knowing what each day will bring. Michael’s honesty helps others feel less alone.

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
December 6, 2025 at 7:01 PM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek 💜

Community makes a world of difference. Brenda’s story reminds us how powerful support can be. If you'd like to join the #IBDSuperHeroes Facebook group, we'd love to have you www.facebook.com/groups/ibdsuperheroes ✨

#IBDAwarenessWeek #Crohns #Colitis #IBD
December 6, 2025 at 3:50 PM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek 💜

Tracy shows how a #stoma can open doors, from festivals to everyday freedom.

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible #InflammatoryBowelDisease
December 6, 2025 at 11:30 AM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek 💜

Lloyd’s #ileostomy gave him back independence, confidence, and quality of life.

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
December 5, 2025 at 8:15 PM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek 💜

Two decades of #IBD have taken a huge toll on Lowri’s mental wellbeing. Thank you for being so open about the emotional side of #ChronicIllness 🙏

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
December 5, 2025 at 8:01 AM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek 💜

Stephen speaks about the invisible weight of #fatigue and #BrainFog, and how deeply they affect daily life.

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders
December 4, 2025 at 7:30 PM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek

Waiting years for treatment has taken a huge toll on Michael’s mental wellbeing. Thank you for speaking so openly 🙏

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders
December 4, 2025 at 3:19 PM
ibdsuperheroes.bsky.social
💜 #CrohnsAndColitisAwarenessWeek

Fitness helps Tracy stay strong, both physically and mentally, through everything #IBD brings 💪

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
December 4, 2025 at 9:30 AM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek

Matthew highlights how exhausting it is to keep asking for help when you’re not always believed 💤😩

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
December 3, 2025 at 4:01 PM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek 💜

Lowri shares the reality of living with #IBD — unpredictable days, invisible symptoms, and the strength it takes just to show up.

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders
December 3, 2025 at 11:46 AM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek

💜 #IBD is far more common than people realise. Lloyd reminds us why talking about it matters.

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
December 2, 2025 at 6:45 PM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek

💜Michael shares the reality of living with #IBD - far beyond “just going to the toilet a lot.”

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
December 2, 2025 at 2:50 PM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek

💜Brenda shares how unpredictable #IBD can be, especially when you're newly diagnosed.

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
December 2, 2025 at 9:52 AM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek

Lloyd shares the misconceptions he faces - and the reality behind living with an #ileostomy.

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
December 1, 2025 at 4:13 PM
ibdsuperheroes.bsky.social
Today marks the start of #CrohnsAndColitisAwarenessWeek.

Throughout the week, we’re sharing honest voices from our own community. Real stories that show the strength, resilience, humour, frustration, and hope behind life with #IBD.

#IBDSuperHeroes #Crohns #Colitis #IBDAwarenessWeek
December 1, 2025 at 9:52 AM
ibdsuperheroes.bsky.social
#CrohnsAndColitisAwarenessWeek

💜 Tracy wants people to know that having a #stoma can give you your life back - not take it away.

#IBDAwarenessWeek #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible
November 28, 2025 at 4:13 PM
ibdsuperheroes.bsky.social
Donations to #IBDSuperHeroes or fundraising efforts for Team IBDSuperHeroes, directly fuel #IBDresearch to improve the quality of life for people with #Crohns & #Colitis. 💜

Your support contributes to tangible progress in the fight against #IBD!🔬 buff.ly/KIqjXNn

#CrohnsDisease #UlcerativeColitis
November 25, 2025 at 9:52 AM
ibdsuperheroes.bsky.social
#IBDSuperHeroes mid-morning cuppa & catch-up, every Saturday, 10.30am!

Pop over to the Facebook group & the events section for joining info!

#Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDVisible #IBDHasNoBorders #MakingTheInvisibleVisible
November 23, 2025 at 4:13 PM
ibdsuperheroes.bsky.social
Fundraising inspiration can be hard to come by; that’s why we created a list of in-person AND virtual fundraising ideas! buff.ly/Fbay8K7 🍩🧘♀️🧶

Join us in fundraising for Bowel Research UK: buff.ly/KIqjXNn 🧬

#Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDVisible
November 21, 2025 at 4:13 PM
ibdsuperheroes.bsky.social
Head over to our website to learn more about #InflammatoryBowelDisease, more commonly known as #IBD 💻 buff.ly/YzKGjo3

#IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders #MakingTheInvisibleVisible #IBDWarrior #CrohnsColitis
November 19, 2025 at 4:13 PM
ibdsuperheroes.bsky.social
Any help, #IBDSuperHeroes?
leedsjohnlufc.bsky.social Boiled Like Frogs @leedsjohnlufc.bsky.social · 26d
Can I ask any fellow UK colitis sufferers, if they have been able to get put onto the new biologic medications, or Imuran?

I was on Imuran for 10 years, 10 years ago, came off for other health reasons, and now ill, but apparently not ill enough to get put back onto imuran!

thanks.
November 19, 2025 at 12:16 PM
ibdsuperheroes.bsky.social
Meet the #IBDSuperHeroes team!
Stephen Gomm | #CrohnsDisease | East Riding of Yorkshire, England
Fave food: Lasagne is always number one on the list with a decent garlic bread
Tea or coffee: Tea, tea and then more tea
Find us ALL over in the IBDSuperHeroes Facebook group! buff.ly/AVg15U2
November 15, 2025 at 9:52 AM
ibdsuperheroes.bsky.social
#ThursdayThoughts #ThankfulThursday #ThoughtfulThursday

We must be willing to let go of the life we planned so as to have the life that is waiting for us.

Learn more about #IBDSuperHeroes 💜 buff.ly/uH5kT5P

#Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap
November 13, 2025 at 4:13 PM
ibdsuperheroes.bsky.social
Today, we take a moment to honour those who have served, and continue to serve, with courage and compassion.

On #RemembranceDay, we reflect on the power of community and resilience, qualities that also drive our work within the #IBD community.
November 11, 2025 at 9:52 AM