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hmsacharity.bsky.social
hypermobility.org
@hmsacharity.bsky.social
200 followers 19 following 130 posts
We're a UK, patient-led charity supporting people with all kinds of symptomatic hypermobility to self-manage their condition where possible, educate professionals on how to support patients, and raise awareness generally. We like cake too hypermobility.org
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hmsacharity.bsky.social
The first of our winter 'Ask the OT' sessions & Jo is joined by Joy Mason, of Mast Cell Action. Please note: in the UK clocks went back since last month! Session is at 7:00 GMT/UST on Thursday the 21st of November. Register here: www.hypermobility.org/event-detail... for live/replay link.
Promotional flyer for a free monthly webinar hosted by Hypermobility.org. Occupational Therapist Jo Southall smiles while holding a mug that says “KEEP CALM AND CALL AN O.T.” Text highlights Jo as the “resident bendy Occupational Therapist” and lists topics like planning, pacing, joint protection, mobility aids, and self-management. The webinar runs on the third Thursday of each month at 19:00 GMT via Zoom. A “REGISTER TODAY” button and the URL Hypermobility.org/events are included. The design features a colorful logo and a split light/dark background.
November 15, 2025 at 6:04 PM
hmsacharity.bsky.social
🚨 Overwhelmed by hypermobility referrals?
GPs in the UK are turning to The HMSA's Quick Reference Guide, an essential resource devised by Dr Philip Bull & Kim Clayden with the HMSA.

Clear. Practical. Game-changing.
Support patients to start managing their condition right away.

t.co/ROdXJpU8DL
Poster titled “The Hypermobility Syndromes quick reference guide” for GPs, showing Beighton Score criteria, key symptoms and signs, associated conditions like PoTS and MCAS, and diagnostic and management steps.
November 13, 2025 at 2:40 PM
hmsacharity.bsky.social
Trustees’ Week is a time for us to celebrate the achievements of nearly one million trustees across the UK. Thank you for the time, commitment, and effort you bring to your charities to help them thrive. You can find out more about our trustees here: hypermobility.org/team #TrusteesWeek
Alt text: Graphic for Trustees' Week 2025, set against a dark blue background. Top left features the "Trustees' Week" logo—multicolored dots forming a circular burst—next to the event name. Centered is a stylized calendar icon with six squares: two contain simplified human figures (one blue, one pink), and one shows a cluster of multicolored stars matching the logo. Below the calendar, white text reads "3 – 7 November 2025." Bottom right corner displays the hashtag "#TrusteesWeek."
November 7, 2025 at 11:25 AM
hmsacharity.bsky.social
Do you know someone who looks great in Red?
🎅 Run, jog or walk through London dressed as Santa, all in aid of the HMSA!
📅 2nd–4th Dec | 🕖 7PM |
🎽 Santa suits for adults provided!
💜 Support hypermobility awareness
🔗 Sign up: runforcharity.com/hypermobility-syndromes-association/santa-in-the-city
Alt text: Flyer for a charity event hosted by the Hypermobility Syndromes Association. At the top, the HMSA logo and name appear. Centred in large, stylised purple text are the words “CHARITY Walk/Run,” with a red heart graphic to the right. Below is a circular badge featuring a festive illustration of Santa Claus and the words “Santa in the City.” Event details at the bottom read: “2nd, 3rd or 4th Dec 2025 at 7PM. A 4km festive fun run/walk | London.”
November 4, 2025 at 4:32 PM
hmsacharity.bsky.social
Just published: a new study on the Integral Movement Method (IMM) for hypermobility!
Developed by Jeannie Di Bon, IMM offers a gentle, whole-body approach to movement for people with hEDS and HSD.
Participants felt safer, stronger, and more connected.
🔗 www.hypermobility.org/post/moving-...
Purple-themed graphic with text: New Blog -‘Moving With Confidence – What Our New Study Taught Us About IMM for Hypermobility’. Logo for HMSA. Background features abstract movement shapes, at the bottom appears the url hypermobility.org/blog
October 31, 2025 at 7:39 PM
hmsacharity.bsky.social
🌤️ Bluesky
PoTS UK & HMSA team up for a joint webinar Oct 23 at 7:30pm BST!
Learn about links between PoTS & hypermobility, hear from expert panellists, with live Q&A.
Speakers inc: Jo Bullingham, Lisa Bone, Dr Helen Eftekhari, Dr Philip Bull & Kim Clayden.
Register: us02web.zoom.us/webinar/regi...
Promotional flyer for a webinar hosted by PoTS UK and the Hypermobility Syndromes Association (HMSA), scheduled for 21 October 2025 at 7:30 PM. The flyer includes a purple-themed design with a “WEBINAR” label and play button icon at the top. Main text explains the webinar will cover PoTS, Hypermobility, the link between the conditions, charity support, and a Q&A. Logos for PoTS UK and HMSA appear at the bottom.
October 20, 2025 at 3:05 PM
Reposted by hypermobility.org
stickmancomms.bsky.social
Sometimes I look absolutely fine - but I am never symptom free. Understanding my hypermobility and all its effects have helped me build a life that works for me.
This card is from our website - www.stickmancommunications.co.uk/hypermobility - and follow
@hmsacharity.bsky.social for info& support
Hypermobility | Stickman Comms
Home
www.stickmancommunications.co.uk
October 13, 2025 at 4:48 PM
hmsacharity.bsky.social
The HMSA Journal 2025 has arrived for UK members who opted in for printed copies!
This edition covers sleep, Long COVID, lung pathophysiology, pain management, headache disorders, and more.
We’re so grateful to our team and contributors.
Digital version available in the patient members area.
Alt text: A person holds a newly printed copy of the “Hypermobility Syndromes Association – Journal 2025,” shown inside an open cardboard box. The cover features a photo of a child sleeping with a stuffed animal under a colorful blanket. Listed topics include sleep and hypermobility, Long COVID and HSD, lung pathophysiology, pain management priorities, headache disorders in EDS/HSD, associations between POTS, HSD, and MCAS in young patients, and neural links between joint hypermobility and anxiety.
October 10, 2025 at 1:55 PM
hmsacharity.bsky.social
🎤 Ask the Experts: Hypermobility Edition
🆓Event🗓️ 16 Oct⏰ 7pm BST📍 Zoom + ▶️
👩‍⚕️ @Jo Southall (Occupational Therapist) + Reema Chadha (Physio + Bollywood dancer!) share their tips on pacing, joint protection, mobility aids & more
🔗 hypermobility.org/events
#Hypermobility #AskTheExperts #JointWellness
🖼️ Image Description (Alt Text): A promotional graphic for an online event hosted by the Hypermobility Syndromes Association titled "Ask the Experts." The background features a vibrant gradient of purples and blues. At the top, the event title is written in bold white text. Below, two circular speaker portraits are displayed side by side: - Left: Reema Chadha, Clinical Lead Physiotherapist, smiling and wearing a dark top. A small microphone icon overlays the bottom of her photo. - Right: Jo Southall, Independent Occupational Therapist, smiling and wearing glasses, with a similar microphone icon. 🕖 Event Details: - Date: 16 October 2025 - Time: 7:00pm to 8:00pm (UK time) - Website: hypermobility.org/events (displayed at the bottom in white text) 🌳 Logo: In the bottom corner, the Hypermobility Syndromes Association logo features a stylized tree with multicolored leaves, symbolizing diversity and support.
October 8, 2025 at 6:27 PM
hmsacharity.bsky.social
🎤 Ask the Experts: Hypermobility & PT 🆓Event🗓️ 16 Oct⏰ 7pm BST📍 Zoom + ▶️👩‍⚕️

Jo Southall and Reema Chadha (Physio + Bollywood dancer!) share their tips on pacing, joint protection, mobility aids & more. Advance questions? @/DM us
🔗 hypermobility.org/events
#Hypermobility #AskTheExperts #JointWellness
🖼️ Image Description (Alt Text): A promotional graphic for an online event hosted by the Hypermobility Syndromes Association titled "Ask the Experts." The background features a vibrant gradient of purples and blues. At the top, the event title is written in bold white text. Below, two circular speaker portraits are displayed side by side: - Left: Reema Chadha, Clinical Lead Physiotherapist, smiling and wearing a dark top. A small microphone icon overlays the bottom of her photo. - Right: Jo Southall, Independent Occupational Therapist, smiling and wearing glasses, with a similar microphone icon. 🕖 Event Details: - Date: 16 October 2025 - Time: 7:00pm to 8:00pm (UK time) - Website: hypermobility.org/events (displayed at the bottom in white text) 🌳 Logo: In the bottom corner, the Hypermobility Syndromes Association logo features a stylized tree with multicolored leaves, symbolizing diversity and support.
October 8, 2025 at 6:10 PM
Reposted by hypermobility.org
csrosbak.bsky.social
The combination of a firm mattress and a body pillow works best for me.
October 2, 2025 at 1:52 PM
hmsacharity.bsky.social
What kind of mattress works for a hypermobile body?
No simple answer, but we ask now and then because tech and trends evolve.

Memory foam, hybrid, futon, smart-bed, or a stack of layers like the princess & the pea?
Share your wins, fails, and top tips.
#BendyBeds #Hypermobility
Promotional graphic for the Hypermobility Syndromes Association. A central photo shows a showroom with various beds and mattresses. Above the photo, the text reads “Hypermobility Syndromes Association” with a colourful tree logo to the right. The top right corner features the hashtag “#BendyBeds.” At the bottom centre, the website “Hypermobility.org” is displayed. The background is purple with white abstract shapes and lines.
October 1, 2025 at 3:39 PM
hmsacharity.bsky.social
ICYMI, Thursday's 'Ask the OT' session is up for replay on the site. We're prepping tonight's session with @stickmancomms on communicating hidden symptoms and disabilities. We face many, which are your most frequently encountered, most annoying and/or most difficult to resolve?
Two people use a toy-style string telephone made from plastic cups. The woman on the left shouts dramatically into her cup, while the man on the right looks shocked, holding his cup to his ear and his cheek in disbelief. Their exaggerated expressions highlight the chaos of miscommunication. Plain grey background.
September 24, 2025 at 4:07 PM
hmsacharity.bsky.social
"My partner listened to the webinar, it really helped him understand.”

Communicating the reality of dynamic chronic illness is tough when others don’t see the shifts.
Join us Wed 24 Sept, 7pm BST to learn how to bridge that gap with clarity and compassion.

Register at: hypermobility.org/events
Image description: Creating understanding of hidden symptoms and disabilities WEBINAR. 3 panel cartoon: panel 1. Stickman 2 saying "Push yourself, you can do it!" Stickman 1 "But..." Stickman 2 "No buts!". Panel 2: Stickman 1 is exhausted and silent, with spinning, crossed eyes. Stickman 2 with much enthusiasm "See, you did it, you can do more than you thought". Panel 3: Stickman 2 has almost exited the frame - stickman 1 gently keels over into an exhausted heap. Text: Tips and strategies for communicating about our disabilities and symptoms,for people who live with pain and/or fatigue.Webinar by Hannah Ensor, 19:00 24th September 2025
September 17, 2025 at 5:53 PM
hmsacharity.bsky.social
"My partner listened to the webinar, it really helped him understand.”

Communicating the reality of dynamic chronic illness is tough when others don’t see the shifts.

Join us Wed 24 Sept, 7pm BST to learn how to bridge that gap with clarity and compassion.

Register at: hypermobility.org/events
Image description: Creating understanding of hidden symptoms and disabilities WEBINAR. 3 panel cartoon: panel 1. Stickman 2 saying "Push yourself, you can do it!" Stickman 1 "But..." Stickman 2 "No buts!". Panel 2: Stickman 1 is exhausted and silent, with spinning, crossed eyes. Stickman 2 with much enthusiasm "See, you did it, you can do more than you thought". Panel 3: Stickman 2 has almost exited the frame - stickman 1 gently keels over into an exhausted heap. Text: Tips and strategies for communicating about our disabilities and symptoms,for people who live with pain and/or fatigue. Webinar by Hannah Ensor, 19:00 24th September 2025
September 17, 2025 at 5:51 PM
hmsacharity.bsky.social
It's September, the wind's howling, fluffy socks and cosy blankets call. On Thursday we'll be live with Jo Southall at 7pm. It's a free show (register oneve nts page), and recorded, so if you've an Occupational Therapyquestion, just let us know! We can't promise to answer them all, but we'll try!
Promotional flyer for a free hypermobility webinar. The flyer features Jo Southall, a smiling person with long red hair and red-tinted glasses, holding a blue mug that reads "KEEP CALM AND CALL AN O.T." Jo is identified as an Occupational Therapist. The flyer includes a colorful logo in the top left corner and text that reads: “Join us for a free webinar with our resident bendy Occupational Therapist Jo Southall. The third Thursday of each month at 19:00 (BST) over on Zoom. REGISTER TODAY – hypermobility.org/events.” Topics listed include planning, pacing, joint protection, mobility aids, and self-management, with a note that advance questions are welcome.
September 15, 2025 at 3:24 PM
hmsacharity.bsky.social
"How do I make them understand?"
It’s one of the top questions we hear — and Hannah’s running a workshop to help you tackle it.
Whether you’re new or just need a refresher, it’s packed with practical insight.
🎟️ Free for members (just log in!)
📹 Yes, it’s recorded
👉 hypermobility.org/events
Presentation slide titled “Creating understanding of hidden symptoms and disabilities” by Hannah Ensor, Founder of Stickman Communications, dated 24th September 2025. The background is green with diagonal stripes. Top left corner features the Hypermobility.org logo—a stylized purple figure with multicolored leaves forming a tree canopy—along with the URL “hypermobility.org” below it. Top right corner displays the Stickman Communications® logo in white on a black background. Bottom right shows a hand-drawn stickman with spiral eyes and a wavy mouth, expressing concern. Text at the bottom reads: “Book your place at hypermobility.org/events.”
September 8, 2025 at 6:04 PM
hmsacharity.bsky.social
Cat is helping me pick which of my WIPs comes to tomorrow evening’s members’ drop-in craft and chat social, anybody want to share a sneak peek of what they’re working on?

Can’t wait to see what our members are all working on!

hypermobility.org/so/eaPZcyK_b...
Cat stirring the Tea - A white polka-dotted tabletop holds stainless steel containers — a teapot, sugar bowl, and canister — arranged neatly. - A white ceramic cup filled with a light brown beverage (likely tea or coffee with milk) sits in the foreground. - A cat reaches up with its paw, touching or holding the cup’s handle, adding a playful and whimsical touch. - The scene blends domestic coziness with a dash of feline mischief Crochet Project in Progress - A purple-handled crochet hook is actively inserted into variegated yarn that shifts through shades of blue and purple. - Beneath the work lies a printed instruction sheet with detailed crochet directions, adding a layer of technical insight. - The visible pattern text includes stitch counts and chaining instructions, hinting at a moderately complex design. - This image beautifully captures the intersection of creativity and precision in crochet Multicolored Yarn Ball with Label - A hand holds a vibrant ball of yarn, showcasing a rich mix of green, blue, purple, and yellow. - In the background, other skeins are visible, one clearly labeled “CYGNET BOHO,” suggesting a specific brand or collection. - The yarn appears soft and slightly fuzzy, ideal for cozy knitting or crochet projects.
August 26, 2025 at 7:07 PM
hmsacharity.bsky.social
We return to our usual schedule this evening with a
@JBOccyTherapy
live Q&A on all things hypermobility, register at hypermobility.org/events and we'll see you later on, and send you the replay too. Questions by message or e-mail titled 'AskJo'.
The left side features a cream background with dark grey text reading: "Join us for a free webinar" "With our resident bendy Occupational Therapist Jo Southall." Below this is a purple button labeled "REGISTER TODAY" and a web address: Hypermobility.org/events. 📅 At the top right, smaller text states: "The third Thursday of each month at 19:00 (BST) over on Zoom." 🧍‍♀️ The right side of the image shows a photo of Jo Southall, a smiling woman with long red hair and red-tinted glasses, holding a blue mug that says "KEEP CALM AND CALL AN O.T." She is framed within a stylized tablet screen with a turquoise border. 📝 At the bottom, additional text reads: "Planning, pacing, joint protection, mobility aids, and self-management – advance questions welcome :)" 🌈 The top left corner features a colorful logo resembling a tree with multicolored leaves and a central figure with raised arms.
August 21, 2025 at 12:30 PM
hmsacharity.bsky.social
We spent the muggy afternoon catching up on last week's heatwave masterclass session in preparation for tomorrow's event with @jboccytherapy, while failing to nap.

There's still time to register, you'll get a catch up link and we'll see you at 7pm (BST). ☺️
July 30, 2025 at 8:37 PM
hmsacharity.bsky.social
Big Angry Sky Ball PSA: You have 24 hours to register for this Heatwave Management course with @JBOccyTherapy it starts tomorrow. If you're busy, register anyway, they'll be recorded, and we'll send the replay link when they go up. www.hypermobility.org/event-detail... (Free to members)!
July 23, 2025 at 11:37 AM
hmsacharity.bsky.social
We've some leftover questions from last month's big weekend to cover, so Jo will be joined this Thursday by Dr Philip Bull. You can drop questions in the comments, message us here or e-mail info at hypermobility dot org and we'll see our LinkFairy gets them across...
Alt text: A promotional flyer for a live webinar hosted by the Hypermobility Syndromes Association. The event is titled “Ask the Experts’ Session” and features two speakers: Dr. Philip Bull, Rheumatologist, and Jo Southall, Occupational Therapist. It is scheduled for 17 July, from 19:00 to 20:00. The flyer includes the website link www.hypermobility.org for more information.
July 16, 2025 at 12:12 PM
hmsacharity.bsky.social
Tonight: MellowMonday Relaxation with Kim for members! Thursday: Jo & Dr Bull host a live, free, public Q&AWant to make sure you never miss a session? Make sure you're subscribed to our e-news - it's easy, just scroll to the bottom of any page on the website and add your email address to the box!
July 14, 2025 at 4:43 PM
hmsacharity.bsky.social
Tonight: MellowMonday Relaxation with Kim for members! Thursday: Jo & Dr Bull host a live, free, public Q&AWant to make sure you never miss a session? Make sure you're subscribed to our e-news - it's easy, just scroll to the bottom of any page on the website and add your email address to the box! >
July 14, 2025 at 4:42 PM
hmsacharity.bsky.social
Our National Lottery Communuity Funded Big Weekend is well underway. Thanks so much to everyone who has volunteered, or registered for these events, it's fantastic to have such enthusiastic interest. Sessions will be available for replay on the website once our team has processed and collated all...
Poster for Hypermobility Awareness Weekend hosted by the Hypermobility Syndromes Association. The top features a bold purple banner with a white calendar icon marking 28 and 29 June. Below, text invites viewers to join free educational webinars throughout June, with a purple arrow pointing right toward the website link: hypermobility.org/events. The arrow and link are positioned on the lower right. In the bottom left corner, the Community Fund’s logo appears — a black smiling hand with crossed fingers. Next to it is the black-and-pink "COMMUNITY FUND" label. Just below the URL, the text "Socials: @HMSACharity" is displayed.
June 28, 2025 at 3:07 PM