Heidi La Paglia
@heidilapaglia.bsky.social
Autistic, disabled lived X consultant. Unapologetic rights activist. Feminist. Board member. Mum. Based in Lutruwita.
[1/3] Been a bit quiet on here lately — but a lot’s been happening behind the scenes.
Today I’m speaking at the Parliamentary Thriving Kids hearing on behalf of @everyaustcounts.bsky.social , alongside Nick Avery (1:45–2:30).
🎥 Watch: www.youtube.com/watch?app=de...
Today I’m speaking at the Parliamentary Thriving Kids hearing on behalf of @everyaustcounts.bsky.social , alongside Nick Avery (1:45–2:30).
🎥 Watch: www.youtube.com/watch?app=de...
House Standing Committee on Health, Aged Care and Disability | Melbourne, VIC | 20/10/2025
YouTube video by Australian Parliament House Streaming Portal
www.youtube.com
October 19, 2025 at 11:33 PM
[1/3] Been a bit quiet on here lately — but a lot’s been happening behind the scenes.
Today I’m speaking at the Parliamentary Thriving Kids hearing on behalf of @everyaustcounts.bsky.social , alongside Nick Avery (1:45–2:30).
🎥 Watch: www.youtube.com/watch?app=de...
Today I’m speaking at the Parliamentary Thriving Kids hearing on behalf of @everyaustcounts.bsky.social , alongside Nick Avery (1:45–2:30).
🎥 Watch: www.youtube.com/watch?app=de...
On #Oct27 I’ll be speaking at #ParliamentHouse, #Canberra for #StopTheCuts #MakeTheNDIS #Safe #Fair & #Forever.
#Disabled people, families & allies are saying: #EnoughIsEnough. We deserve an #NDIS for all of us — not one that cherry-picks who gets rights.
#NDIS #StopTheCuts #DisabilityRights
#Disabled people, families & allies are saying: #EnoughIsEnough. We deserve an #NDIS for all of us — not one that cherry-picks who gets rights.
#NDIS #StopTheCuts #DisabilityRights
October 6, 2025 at 4:43 AM
On #Oct27 I’ll be speaking at #ParliamentHouse, #Canberra for #StopTheCuts #MakeTheNDIS #Safe #Fair & #Forever.
#Disabled people, families & allies are saying: #EnoughIsEnough. We deserve an #NDIS for all of us — not one that cherry-picks who gets rights.
#NDIS #StopTheCuts #DisabilityRights
#Disabled people, families & allies are saying: #EnoughIsEnough. We deserve an #NDIS for all of us — not one that cherry-picks who gets rights.
#NDIS #StopTheCuts #DisabilityRights
I’ve not published a #LinkedIn article before, but #misogyny in how #autism is talked about — here & globally — needs air time.
👉 From Trump to Thriving Kids: Misogyny, Autism & the Politics of Blame
www.linkedin.com/pulse/from-t...
#DisabilityRights #GenderEquality #NDIS #HumanRights
👉 From Trump to Thriving Kids: Misogyny, Autism & the Politics of Blame
www.linkedin.com/pulse/from-t...
#DisabilityRights #GenderEquality #NDIS #HumanRights
From Trump to Thriving Kids: Misogyny, Autism, and the Politics of Blame
When Donald Trump stood at a podium last week and claimed that autism is caused by mothers taking Panadol in pregnancy, the reaction from many Australians was disbelief (May, 2025). How could a politi...
www.linkedin.com
September 25, 2025 at 2:49 AM
I’ve not published a #LinkedIn article before, but #misogyny in how #autism is talked about — here & globally — needs air time.
👉 From Trump to Thriving Kids: Misogyny, Autism & the Politics of Blame
www.linkedin.com/pulse/from-t...
#DisabilityRights #GenderEquality #NDIS #HumanRights
👉 From Trump to Thriving Kids: Misogyny, Autism & the Politics of Blame
www.linkedin.com/pulse/from-t...
#DisabilityRights #GenderEquality #NDIS #HumanRights
I’m quoted in this #ABC piece on #Trump’s #autism whack claims.
“We’re framed as a problem to be fixed, instead of people who need support to be included.”
Grateful ABC gave #ActuallyAutistic people a voice.
🔗 www.abc.net.au/news/2025-09...
“We’re framed as a problem to be fixed, instead of people who need support to be included.”
Grateful ABC gave #ActuallyAutistic people a voice.
🔗 www.abc.net.au/news/2025-09...
The 'terrifying' notion underneath Trump's unproven autism claims
The Trump administration's rhetoric only adds to the noise around autism and will make it harder for the community to feel understood and accepted, write Nas Campanella and Evan Young.
www.abc.net.au
September 23, 2025 at 7:13 AM
I’m quoted in this #ABC piece on #Trump’s #autism whack claims.
“We’re framed as a problem to be fixed, instead of people who need support to be included.”
Grateful ABC gave #ActuallyAutistic people a voice.
🔗 www.abc.net.au/news/2025-09...
“We’re framed as a problem to be fixed, instead of people who need support to be included.”
Grateful ABC gave #ActuallyAutistic people a voice.
🔗 www.abc.net.au/news/2025-09...
#Trump says he’s “found the answer to #autism” — blaming women for taking #Tylenol in #pregnancy. 🙄 Same old #misogynist BS!! Autism doesn’t need a cure — #autistic kids & mums need real supports and #HumanRights. What a waste of airtime.
a man with a towel wrapped around his head is asking if we just not
Alt: GIF of David Rose from schitt's creek with a towel wrapped around his head. Text reads; "Can We Just Not?"
media.tenor.com
September 22, 2025 at 11:41 PM
#Trump says he’s “found the answer to #autism” — blaming women for taking #Tylenol in #pregnancy. 🙄 Same old #misogynist BS!! Autism doesn’t need a cure — #autistic kids & mums need real supports and #HumanRights. What a waste of airtime.
Grateful to contribute to the Spring 2025 #CanberraDisabilityReview with @sarahlangston.bsky.social from #ANPA. We unpack the $2B stripped from the NDIS & the risks of block programs. Rights, not retreat. 🔗 advocacyforinclusion.org/cdr/ Starts pg 18. #NDIS #DisabilityRights
» Canberra Disability Review
advocacyforinclusion.org
September 16, 2025 at 3:48 AM
Grateful to contribute to the Spring 2025 #CanberraDisabilityReview with @sarahlangston.bsky.social from #ANPA. We unpack the $2B stripped from the NDIS & the risks of block programs. Rights, not retreat. 🔗 advocacyforinclusion.org/cdr/ Starts pg 18. #NDIS #DisabilityRights
1/5
I was interviewed by @9news.bsky.social about the @ausgov.bsky.social plan to push kids with so-called “mild” or “moderate” #Autism off the #NDIS into the new #ThrivingKids program.
I was interviewed by @9news.bsky.social about the @ausgov.bsky.social plan to push kids with so-called “mild” or “moderate” #Autism off the #NDIS into the new #ThrivingKids program.
'A betrayal of our children': NDIS autism changes slammed by parents, expert
www.9news.com.au
August 27, 2025 at 3:48 AM
1/5
I was interviewed by @9news.bsky.social about the @ausgov.bsky.social plan to push kids with so-called “mild” or “moderate” #Autism off the #NDIS into the new #ThrivingKids program.
I was interviewed by @9news.bsky.social about the @ausgov.bsky.social plan to push kids with so-called “mild” or “moderate” #Autism off the #NDIS into the new #ThrivingKids program.
Reposted by Heidi La Paglia
Autistic children are not driving #NDIS costs. What is driving costs is the explosion of administrative churn, endless reassessments, & ballooning legal expenses [3] as the NDIA fights & polices participants through tribunals & courts. Billions are wasted every year.
#Auspol #Autism
#Auspol #Autism
6/ 📰 And I wrote about them for #EveryAustralianCounts @everyaustcounts.bsky.social: everyaustraliancounts.com.au/opinion/auti...
Autistic Children Don’t Break the Budget. Broken Systems Do - Every Australian Counts
Every Australian Counts is here to make sure the National Disability Insurance Scheme (NDIS) is delivered as promised and is the best it can be. Find out how the NDIS process works and hear real stori...
everyaustraliancounts.com.au
August 21, 2025 at 3:38 AM
Reposted by Heidi La Paglia
The sustainability maths behind this foundational support fantasy just isn't adding up.
#NDIS #Auspol #Autistic #Disability
#NDIS #Auspol #Autistic #Disability
Labor's $2bil fantasy: Socialising autistic kids into thriving neurotypical adults
I wrote most of this piece in early 2024, in reaction to rollout of the Inklings program. Because I know how getting “socialised” into meeting neurotypical standards - in schools, or otherwise - works...
www.linkedin.com
August 21, 2025 at 3:06 AM
The sustainability maths behind this foundational support fantasy just isn't adding up.
#NDIS #Auspol #Autistic #Disability
#NDIS #Auspol #Autistic #Disability
1/ The govt’s Thriving Kids plan risks dismantling what makes the NDIS work. RAEN and ANPA are leading a campaign against these harmful reforms ⬇️
August 21, 2025 at 3:27 AM
1/ The govt’s Thriving Kids plan risks dismantling what makes the NDIS work. RAEN and ANPA are leading a campaign against these harmful reforms ⬇️
[1/6] The federal Economic Reform Roundtable starts today. According to the @abc-news.bsky.social, the #NDIS is on the chopping block, with cost-cutting high on the agenda. See: www.abc.net.au/news/2025-08... yet, not a single #disability advocate has been invited. #Zero #NothingAboutUsWithoutUs
www.abc.net.au
August 19, 2025 at 12:51 AM
[1/6] The federal Economic Reform Roundtable starts today. According to the @abc-news.bsky.social, the #NDIS is on the chopping block, with cost-cutting high on the agenda. See: www.abc.net.au/news/2025-08... yet, not a single #disability advocate has been invited. #Zero #NothingAboutUsWithoutUs
1/2
Just filmed my promo for the 5th #WorldConferenceOfWomen’sShelters #5WCWS 💜 I’ll be doing a keynote on #GBV against #disabled women & #gender-diverse people & the urgent need for inclusive, rights-based responses. #5WCWS #DisabilityJustice
Just filmed my promo for the 5th #WorldConferenceOfWomen’sShelters #5WCWS 💜 I’ll be doing a keynote on #GBV against #disabled women & #gender-diverse people & the urgent need for inclusive, rights-based responses. #5WCWS #DisabilityJustice
July 28, 2025 at 1:23 AM
1/2
Just filmed my promo for the 5th #WorldConferenceOfWomen’sShelters #5WCWS 💜 I’ll be doing a keynote on #GBV against #disabled women & #gender-diverse people & the urgent need for inclusive, rights-based responses. #5WCWS #DisabilityJustice
Just filmed my promo for the 5th #WorldConferenceOfWomen’sShelters #5WCWS 💜 I’ll be doing a keynote on #GBV against #disabled women & #gender-diverse people & the urgent need for inclusive, rights-based responses. #5WCWS #DisabilityJustice
1/7 I've een quiet on here lately (and in general)... life’s been full. I've barely looked up Between running #Neurodiversity training, #advisory meetings, a quick Melbourne trip that was well overdue & a state election campaign (!), I’ve also been deep in #NDIS policy submissions 👇
July 28, 2025 at 1:19 AM
1/7 I've een quiet on here lately (and in general)... life’s been full. I've barely looked up Between running #Neurodiversity training, #advisory meetings, a quick Melbourne trip that was well overdue & a state election campaign (!), I’ve also been deep in #NDIS policy submissions 👇
Relatable!
July 12, 2025 at 4:38 AM
Relatable!
Reposted by Heidi La Paglia
New Section 10 rules are already shaping what the NDIS funds.
Some participants are seeing changes to supports or funding decisions.
We’re preparing a submission to government and want to hear your experience.
Survey: forms.office.com/r/N8H4hxGdmR
#ProtectOurNDIS #EveryAustralianCounts
Some participants are seeing changes to supports or funding decisions.
We’re preparing a submission to government and want to hear your experience.
Survey: forms.office.com/r/N8H4hxGdmR
#ProtectOurNDIS #EveryAustralianCounts
July 2, 2025 at 5:24 AM
New Section 10 rules are already shaping what the NDIS funds.
Some participants are seeing changes to supports or funding decisions.
We’re preparing a submission to government and want to hear your experience.
Survey: forms.office.com/r/N8H4hxGdmR
#ProtectOurNDIS #EveryAustralianCounts
Some participants are seeing changes to supports or funding decisions.
We’re preparing a submission to government and want to hear your experience.
Survey: forms.office.com/r/N8H4hxGdmR
#ProtectOurNDIS #EveryAustralianCounts
Reposted by Heidi La Paglia
Help power the campaign for a fairer NDIS.
Every Australian Counts is community-led and community-funded.
Donations over $2 are tax deductible.
Donate now: everyaustraliancounts.com.au/donate/
#EveryAustralianCounts #ProtectOurNDIS
Every Australian Counts is community-led and community-funded.
Donations over $2 are tax deductible.
Donate now: everyaustraliancounts.com.au/donate/
#EveryAustralianCounts #ProtectOurNDIS
July 4, 2025 at 7:37 AM
Help power the campaign for a fairer NDIS.
Every Australian Counts is community-led and community-funded.
Donations over $2 are tax deductible.
Donate now: everyaustraliancounts.com.au/donate/
#EveryAustralianCounts #ProtectOurNDIS
Every Australian Counts is community-led and community-funded.
Donations over $2 are tax deductible.
Donate now: everyaustraliancounts.com.au/donate/
#EveryAustralianCounts #ProtectOurNDIS
🖤💛❤️💚💙🤍
Happy NAIDOC Week 2025!
This year marks 50 years of #NAIDOC, a time to honour the strength, culture & resistance of First Nations peoples.
#NAIDOCWeek2025 #50YearsofNAIDOC
Happy NAIDOC Week 2025!
This year marks 50 years of #NAIDOC, a time to honour the strength, culture & resistance of First Nations peoples.
#NAIDOCWeek2025 #50YearsofNAIDOC
July 7, 2025 at 12:35 AM
🖤💛❤️💚💙🤍
Happy NAIDOC Week 2025!
This year marks 50 years of #NAIDOC, a time to honour the strength, culture & resistance of First Nations peoples.
#NAIDOCWeek2025 #50YearsofNAIDOC
Happy NAIDOC Week 2025!
This year marks 50 years of #NAIDOC, a time to honour the strength, culture & resistance of First Nations peoples.
#NAIDOCWeek2025 #50YearsofNAIDOC
1/3
Deeply disturbed by today’s @Satpaper report: the #NDIA CEO personally intervened to remove a #disabled person from the #NDIS after they spoke on talkback radio. No due process. Just 7 days to respond. It took 10 months to get support back.
🔗 bit.ly/3XDzdJD
Deeply disturbed by today’s @Satpaper report: the #NDIA CEO personally intervened to remove a #disabled person from the #NDIS after they spoke on talkback radio. No due process. Just 7 days to respond. It took 10 months to get support back.
🔗 bit.ly/3XDzdJD
bit.ly
July 5, 2025 at 1:48 PM
1/3
Deeply disturbed by today’s @Satpaper report: the #NDIA CEO personally intervened to remove a #disabled person from the #NDIS after they spoke on talkback radio. No due process. Just 7 days to respond. It took 10 months to get support back.
🔗 bit.ly/3XDzdJD
Deeply disturbed by today’s @Satpaper report: the #NDIA CEO personally intervened to remove a #disabled person from the #NDIS after they spoke on talkback radio. No due process. Just 7 days to respond. It took 10 months to get support back.
🔗 bit.ly/3XDzdJD
1/5 It’s Disability Pride Month.
But this year, pride feels harder than it should.
NDIS reform is being sold as a “reset” — but for many of us, it’s a slow narrowing of who is seen as deserving of support.
#DisabilityPrideMonth #NDISReform
But this year, pride feels harder than it should.
NDIS reform is being sold as a “reset” — but for many of us, it’s a slow narrowing of who is seen as deserving of support.
#DisabilityPrideMonth #NDISReform
July 1, 2025 at 12:42 AM
1/5 It’s Disability Pride Month.
But this year, pride feels harder than it should.
NDIS reform is being sold as a “reset” — but for many of us, it’s a slow narrowing of who is seen as deserving of support.
#DisabilityPrideMonth #NDISReform
But this year, pride feels harder than it should.
NDIS reform is being sold as a “reset” — but for many of us, it’s a slow narrowing of who is seen as deserving of support.
#DisabilityPrideMonth #NDISReform
(1/7)
A few people have asked for my thoughts on the #GrattanInstitute #NDIS report that dropped today. While I haven’t read every page, here are some initial concerns based on what I’ve seen.
#NDIS #DisabilityRights #NothingAboutUsWithoutUs
A few people have asked for my thoughts on the #GrattanInstitute #NDIS report that dropped today. While I haven’t read every page, here are some initial concerns based on what I’ve seen.
#NDIS #DisabilityRights #NothingAboutUsWithoutUs
June 30, 2025 at 6:12 AM
(1/7)
A few people have asked for my thoughts on the #GrattanInstitute #NDIS report that dropped today. While I haven’t read every page, here are some initial concerns based on what I’ve seen.
#NDIS #DisabilityRights #NothingAboutUsWithoutUs
A few people have asked for my thoughts on the #GrattanInstitute #NDIS report that dropped today. While I haven’t read every page, here are some initial concerns based on what I’ve seen.
#NDIS #DisabilityRights #NothingAboutUsWithoutUs
(1/2)
And here it is. The NDIS has officially been moved into the Department of Health, Disability and Ageing.
www.pmc.gov.au/resources/aa...
#NDIS #DisabilityRights #NothingAboutUsWithoutUs
And here it is. The NDIS has officially been moved into the Department of Health, Disability and Ageing.
www.pmc.gov.au/resources/aa...
#NDIS #DisabilityRights #NothingAboutUsWithoutUs
May 14, 2025 at 4:16 AM
(1/2)
And here it is. The NDIS has officially been moved into the Department of Health, Disability and Ageing.
www.pmc.gov.au/resources/aa...
#NDIS #DisabilityRights #NothingAboutUsWithoutUs
And here it is. The NDIS has officially been moved into the Department of Health, Disability and Ageing.
www.pmc.gov.au/resources/aa...
#NDIS #DisabilityRights #NothingAboutUsWithoutUs
Welcoming Jenny McAllister & Mark Butler MP to NDIS & disability roles. Broader oversight beyond the NDIS is vital—most disabled people aren’t on the Scheme.
But PM’s comments on moving NDIS into health portfolio are deeply concerning. www.pm.gov.au/media/press-...
#NDIS #NothingAboutUsWithoutUs
But PM’s comments on moving NDIS into health portfolio are deeply concerning. www.pm.gov.au/media/press-...
#NDIS #NothingAboutUsWithoutUs
May 13, 2025 at 1:01 AM
Welcoming Jenny McAllister & Mark Butler MP to NDIS & disability roles. Broader oversight beyond the NDIS is vital—most disabled people aren’t on the Scheme.
But PM’s comments on moving NDIS into health portfolio are deeply concerning. www.pm.gov.au/media/press-...
#NDIS #NothingAboutUsWithoutUs
But PM’s comments on moving NDIS into health portfolio are deeply concerning. www.pm.gov.au/media/press-...
#NDIS #NothingAboutUsWithoutUs
(1/4) #WorldAutismDay 2025: Advancing #Neurodiversity & the #UN #SDGs
Since 2007, World Autism Day has been a reminder that awareness isn’t enough. Real inclusion is dismantling systemic barriers & ensuring #Autistic people are actively shaping the policies that affect us.
Since 2007, World Autism Day has been a reminder that awareness isn’t enough. Real inclusion is dismantling systemic barriers & ensuring #Autistic people are actively shaping the policies that affect us.
April 2, 2025 at 3:15 AM
(1/4) #WorldAutismDay 2025: Advancing #Neurodiversity & the #UN #SDGs
Since 2007, World Autism Day has been a reminder that awareness isn’t enough. Real inclusion is dismantling systemic barriers & ensuring #Autistic people are actively shaping the policies that affect us.
Since 2007, World Autism Day has been a reminder that awareness isn’t enough. Real inclusion is dismantling systemic barriers & ensuring #Autistic people are actively shaping the policies that affect us.
(1/4) Today is #NationalCloseTheGapDay—a time to act on the inequities #FirstNations people face in every setting. It’s also #NeurodiversityCelebration Week, making it critical to highlight the experiences of #FirstNations neurodivergent and #disabled people.
#CloseTheGap #NeurodiversityWeek
#CloseTheGap #NeurodiversityWeek
March 20, 2025 at 3:12 AM
(1/4) Today is #NationalCloseTheGapDay—a time to act on the inequities #FirstNations people face in every setting. It’s also #NeurodiversityCelebration Week, making it critical to highlight the experiences of #FirstNations neurodivergent and #disabled people.
#CloseTheGap #NeurodiversityWeek
#CloseTheGap #NeurodiversityWeek
Newly out! A new Reasonable & Necessary podcast episode with #NDISCommission leaders Louise Glanville & Natalie Wade.
They dive deep into the future of the #NDIS #Commission, the upcoming changes to NDIS regulation and more.
🎧 Listen now: www.youtube.com/watch?v=H3qS...
They dive deep into the future of the #NDIS #Commission, the upcoming changes to NDIS regulation and more.
🎧 Listen now: www.youtube.com/watch?v=H3qS...
Exclusive first interview with NDIS Commissioners Louise Glanville and Natalie Wade
YouTube video by Summer Foundation
www.youtube.com
March 20, 2025 at 2:46 AM
Newly out! A new Reasonable & Necessary podcast episode with #NDISCommission leaders Louise Glanville & Natalie Wade.
They dive deep into the future of the #NDIS #Commission, the upcoming changes to NDIS regulation and more.
🎧 Listen now: www.youtube.com/watch?v=H3qS...
They dive deep into the future of the #NDIS #Commission, the upcoming changes to NDIS regulation and more.
🎧 Listen now: www.youtube.com/watch?v=H3qS...