Tired 🌈🏴☠️✨🔇♿🇵🇸
@flintsponytail.bsky.social
ME/CFS. I like making things out of felt.
Pinned
Time to get my gal, her ghoulfriend and their gourds out again! (yes I posted this last year but I haven't had the energy to make anything since 😔)
#needlefelt #fiberart #crafts
#needlefelt #fiberart #crafts
horrendous PEM. stuck. I'm worried this is permanent. I can't tolerate any light at all, can't move at all without provoking worse PEM. only thing that has helped a little is having very salty instant food & a big bottle of water every couple hours. which obviously i can't afford to keep up.
January 25, 2026 at 3:50 AM
horrendous PEM. stuck. I'm worried this is permanent. I can't tolerate any light at all, can't move at all without provoking worse PEM. only thing that has helped a little is having very salty instant food & a big bottle of water every couple hours. which obviously i can't afford to keep up.
I am never going to manage to take sumpatriptan at the right time. this thing has a 10-20%% success rate for me but GP won't let me try anything else so just have to ride it out as always
January 23, 2026 at 3:21 PM
I am never going to manage to take sumpatriptan at the right time. this thing has a 10-20%% success rate for me but GP won't let me try anything else so just have to ride it out as always
signed into the reddit account i used to ask for advice a couple weeks ago to find DM requests from people calling me a faker, the R slur, posting laughing emojis and "fatigue", telling me to kill myself and that i'm a drain on society. what kind of psychos troll sick people online for fun?
January 23, 2026 at 5:47 AM
signed into the reddit account i used to ask for advice a couple weeks ago to find DM requests from people calling me a faker, the R slur, posting laughing emojis and "fatigue", telling me to kill myself and that i'm a drain on society. what kind of psychos troll sick people online for fun?
really sick again. taking last of the famotidine and cyclizine to see if it helps 🤞🏻
still getting bruises everywhere for no apparent reason 🙄
hopefully getting a few groceries later. wish me luck
still getting bruises everywhere for no apparent reason 🙄
hopefully getting a few groceries later. wish me luck
January 21, 2026 at 1:18 PM
really sick again. taking last of the famotidine and cyclizine to see if it helps 🤞🏻
still getting bruises everywhere for no apparent reason 🙄
hopefully getting a few groceries later. wish me luck
still getting bruises everywhere for no apparent reason 🙄
hopefully getting a few groceries later. wish me luck
Reposted by Tired 🌈🏴☠️✨🔇♿🇵🇸
December Goal: 460/1000 CAD
I'm disabled & queer, living in extreme poverty. I'm in URGENT need of food, hygiene, medication, clothing, etc.
Donate: ko-fi.com/qpthepurples...
Wishes: throne.com/qp_and_valia...
💕 💸 #HelpSky #MutualAid #HelpFolksLive #DisabledCrowdfund #Disabled #Poverty
I'm disabled & queer, living in extreme poverty. I'm in URGENT need of food, hygiene, medication, clothing, etc.
Donate: ko-fi.com/qpthepurples...
Wishes: throne.com/qp_and_valia...
💕 💸 #HelpSky #MutualAid #HelpFolksLive #DisabledCrowdfund #Disabled #Poverty
Support QuyetPawz
Support QuyetPawz
ko-fi.com
January 21, 2026 at 1:07 PM
December Goal: 460/1000 CAD
I'm disabled & queer, living in extreme poverty. I'm in URGENT need of food, hygiene, medication, clothing, etc.
Donate: ko-fi.com/qpthepurples...
Wishes: throne.com/qp_and_valia...
💕 💸 #HelpSky #MutualAid #HelpFolksLive #DisabledCrowdfund #Disabled #Poverty
I'm disabled & queer, living in extreme poverty. I'm in URGENT need of food, hygiene, medication, clothing, etc.
Donate: ko-fi.com/qpthepurples...
Wishes: throne.com/qp_and_valia...
💕 💸 #HelpSky #MutualAid #HelpFolksLive #DisabledCrowdfund #Disabled #Poverty
why won't this patch of eczema go away ;_;
usually it just takes a few days of hydrocortisone cream and jojoba oil
nothing is helping! it's so itchy and so sore. taking all of my willpower not to scratch it til it bleeds
any advice?
usually it just takes a few days of hydrocortisone cream and jojoba oil
nothing is helping! it's so itchy and so sore. taking all of my willpower not to scratch it til it bleeds
any advice?
January 19, 2026 at 7:13 PM
why won't this patch of eczema go away ;_;
usually it just takes a few days of hydrocortisone cream and jojoba oil
nothing is helping! it's so itchy and so sore. taking all of my willpower not to scratch it til it bleeds
any advice?
usually it just takes a few days of hydrocortisone cream and jojoba oil
nothing is helping! it's so itchy and so sore. taking all of my willpower not to scratch it til it bleeds
any advice?
made it downstairs for the first time in days and my mum fucking laughed when she saw me. I had to cling to the wall and beg her to let me have some time in the kitchen to get food and drink and she laughed at me
January 18, 2026 at 12:01 PM
made it downstairs for the first time in days and my mum fucking laughed when she saw me. I had to cling to the wall and beg her to let me have some time in the kitchen to get food and drink and she laughed at me
when I say I haven't had food, I mean a meal. don't want to seen mosleady. I had some cold lentils and little tuna pot yesterday but only few hundreds cals. and now I've run out again. not sure what to do. Splitting headache, constantly , caused by crash + noise + not eating enough
January 17, 2026 at 5:00 PM
when I say I haven't had food, I mean a meal. don't want to seen mosleady. I had some cold lentils and little tuna pot yesterday but only few hundreds cals. and now I've run out again. not sure what to do. Splitting headache, constantly , caused by crash + noise + not eating enough
took 2 weeks as I can only do a few stitches at a time but I made myself a little clown. I hope to make a friend for them.
January 17, 2026 at 4:43 PM
took 2 weeks as I can only do a few stitches at a time but I made myself a little clown. I hope to make a friend for them.
cost of being disabled
January 16, 2026 at 3:04 PM
cost of being disabled
really bad crash still here. still hoping it's not permanent. still can't get a fit note or medical records from health centre, it's ridiculous. they just tell me to submit a request, which i do, and it's never addressed. can't even get an assessment without them. very noisy at home now so pain.
January 16, 2026 at 3:00 PM
really bad crash still here. still hoping it's not permanent. still can't get a fit note or medical records from health centre, it's ridiculous. they just tell me to submit a request, which i do, and it's never addressed. can't even get an assessment without them. very noisy at home now so pain.
submitted my UC claim. I have to commit to looking for work 35 hours per week and also meet job coach at the job centre how is this possible I am housebound and struggle to eat or bathe
I don't understand what to do
I don't understand what to do
January 12, 2026 at 9:09 PM
submitted my UC claim. I have to commit to looking for work 35 hours per week and also meet job coach at the job centre how is this possible I am housebound and struggle to eat or bathe
I don't understand what to do
I don't understand what to do
I desperately need money to buy a wheeled case to put my belongings in. everything is very bad here again & I am in the worst crash of my life. I have to get out of here and I can't carry a bag as I'm too weak. I don't know what to do. after 1 day of normalcy it's back to drama & being berated
January 12, 2026 at 6:00 PM
I desperately need money to buy a wheeled case to put my belongings in. everything is very bad here again & I am in the worst crash of my life. I have to get out of here and I can't carry a bag as I'm too weak. I don't know what to do. after 1 day of normalcy it's back to drama & being berated
Reposted by Tired 🌈🏴☠️✨🔇♿🇵🇸
I need to buy plain soap and some jojoba oil for my eczema. I bought a big jar of coconut oil but that made it worse. it will cost about £11. if people could share this I would be really grateful, thank you ♥️
ko-fi.com/hanslabyrinth
ko-fi.com/hanslabyrinth
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ko-fi.com
January 10, 2026 at 1:01 PM
I need to buy plain soap and some jojoba oil for my eczema. I bought a big jar of coconut oil but that made it worse. it will cost about £11. if people could share this I would be really grateful, thank you ♥️
ko-fi.com/hanslabyrinth
ko-fi.com/hanslabyrinth
still experiencing PEM. not able to do much other than have a bath and get snacks from downstairs once a day. still being asked to do physical things by mum even after I explained multiple times that I can't. makes no difference.
January 10, 2026 at 12:58 PM
still experiencing PEM. not able to do much other than have a bath and get snacks from downstairs once a day. still being asked to do physical things by mum even after I explained multiple times that I can't. makes no difference.
so so stupidly shaky today. ridiculously dizzy and shaky! successfully used relay to make a call. it worked okay this time. I do kind of wish you could type a whole thing out and then enter it
January 8, 2026 at 11:57 AM
so so stupidly shaky today. ridiculously dizzy and shaky! successfully used relay to make a call. it worked okay this time. I do kind of wish you could type a whole thing out and then enter it
it's never going to stop. just endless loop of vague threats to leave, told I'm being kicked out, asking me to explain things, ignoring my explanations, saying "we need to talk" then refusing to talk, punishing me for begging for help just for 1 or 2 days. I have a plan but can't talk about it here
January 6, 2026 at 1:33 PM
it's never going to stop. just endless loop of vague threats to leave, told I'm being kicked out, asking me to explain things, ignoring my explanations, saying "we need to talk" then refusing to talk, punishing me for begging for help just for 1 or 2 days. I have a plan but can't talk about it here
so so tired I'm so tired
January 6, 2026 at 1:32 PM
so so tired I'm so tired
couple days without food. made it downstairs to heat some soup. all my parcels left down here though Id explained why I'd need them upstairs. everything I need deliberately left down here to prove a point.
January 6, 2026 at 1:32 PM
couple days without food. made it downstairs to heat some soup. all my parcels left down here though Id explained why I'd need them upstairs. everything I need deliberately left down here to prove a point.
splitting headache. ate a bit of tinned fish i found in my room now back to bed.what kind of owl goes "woo" and then a kind of wobbly "w-w-w-w-ooooo"? it's been going every night for about a month from 6pm. really hurting my ears. unfortunately i can't reocrd as phone camera won't do that now.
January 5, 2026 at 6:32 PM
splitting headache. ate a bit of tinned fish i found in my room now back to bed.what kind of owl goes "woo" and then a kind of wobbly "w-w-w-w-ooooo"? it's been going every night for about a month from 6pm. really hurting my ears. unfortunately i can't reocrd as phone camera won't do that now.
back to going days without food, forced to smell whatever's being cooked downstairs. all because i sent a message explaining how limited my mobility has become and reiterating that in order to prevent worsening i cannot do the energy-draining things i was being asked to do
punishment for being ill
punishment for being ill
January 5, 2026 at 5:37 PM
back to going days without food, forced to smell whatever's being cooked downstairs. all because i sent a message explaining how limited my mobility has become and reiterating that in order to prevent worsening i cannot do the energy-draining things i was being asked to do
punishment for being ill
punishment for being ill
no money I'm desperate. can't offer anything in return. can't talk about plans openly here
January 5, 2026 at 11:49 AM
no money I'm desperate. can't offer anything in return. can't talk about plans openly here
no energy not improving . crashed againafter moving around yesterday to get snaxks
January 5, 2026 at 11:48 AM
no energy not improving . crashed againafter moving around yesterday to get snaxks
have to try adn stop pushing through the PEM. i guess today is a nothing day like i had so many of in 2023 and early 2024. lie there. do nothing. literally nothing. just lie in the dark with no sound and nothing to look at and then get yelled at and insulted for it
January 4, 2026 at 11:19 AM
have to try adn stop pushing through the PEM. i guess today is a nothing day like i had so many of in 2023 and early 2024. lie there. do nothing. literally nothing. just lie in the dark with no sound and nothing to look at and then get yelled at and insulted for it
now at the point where i can sleep for 8 hours and literally feel like i didn't get any. i feel exactly the same as if i'd pulled an all nighter after an incredibly busy week. even typing this is really really hard. it's so nice out. i cant get food or a hot drink. i cant have the curtains open
January 4, 2026 at 11:05 AM
now at the point where i can sleep for 8 hours and literally feel like i didn't get any. i feel exactly the same as if i'd pulled an all nighter after an incredibly busy week. even typing this is really really hard. it's so nice out. i cant get food or a hot drink. i cant have the curtains open