Euan MacDonald Centre for Motor Neuron Disease Research
LightNews LightNews
banner
euanscentre.bsky.social
Euan MacDonald Centre for Motor Neuron Disease Research
@euanscentre.bsky.social
190 followers 180 following 56 posts
We conduct vital research into motor neuron disease. Based at the University of Eidnburgh, we unite over 250 scientists and doctors across Scotland.
Posts Replies Media Videos
euanscentre.bsky.social
A recent publication by Euan MacDonald Centre members explores the links between apathy and quality of life in people with ALS.
#ALS #MND #apathy #research

For more info 👉 edin.ac/43jHx87

@ukdri.ac.uk @schoolofppls.bsky.social @edinunineuro.bsky.social
Self-reported initiation apathy is related to worse quality of life in amyotrophic lateral sclerosis
Nov 2025: New publication explores the links between apathy and quality of life.
edin.ac
November 7, 2025 at 3:49 PM
euanscentre.bsky.social
You can help shape a more accessible future!
The Euan's Guide Access survey is the UKs largest disabled access survey influencing policymakers, businesses, and venues.

Take part today▶️ buff.ly/kqdj1Nv

@euansguide.com #accessibility #survey #disabilityawareness #accessibilitytravel
November 6, 2025 at 9:38 AM
euanscentre.bsky.social
Charity places are now OPEN for the 2026 Edinburgh Marathon Festival

We are thrilled to offer charity places in all major races in the 2026 Edinburgh Marathon Festival (EMF).
More info 👇
www.euanmacdonaldcentre.org/events/edinb...
#Edinburgh_marathon #charity #fundraising #MND #ALS #research
Edinburgh Marathon Festival 2026
Edinburgh is the second largest marathon in the UK. Fast and flat, this course is ideal if it’s your first marathon or you are looking for a PB.
www.euanmacdonaldcentre.org
October 24, 2025 at 9:05 AM
euanscentre.bsky.social
We are delighted to share this article about Angela Brown’s inspiring fundraising efforts in support of the Euan MacDonald Centre. A wonderful contribution to vital MND research.
#mndresearch #inspirational #fundraising
www.euanmacdonaldcentre.org/about/news/a...

#MND #ALS #Research #fundraising
Angela Brown shares her story of strength and fundraising in memory of her brother
Sept 2025: Fundraising spotlight - making a difference with flowers.
www.euanmacdonaldcentre.org
October 22, 2025 at 8:34 AM
euanscentre.bsky.social
On 8–9 Oct 2025, we honoured Euan MacDonald’s incredible legacy in MND research & accessibility at a moving symposium in Edinburgh.
Read our article👉 edin.ac/3WioVBw

🎥 A recording of the full session and public will be available soon!
@euansguide.com @mndsmart.bsky.social @edinunineuro.bsky.social
A Tribute to Euan MacDonald Symposium: 8-9 Oct 2025
Oct 2025: On 8th and 9th October, 300 researchers, friends and supporters of the Euan MacDonald Centre gathered in Edinburgh to celebrate the legacy of our founder, the late Euan MacDonald MBE.
edin.ac
October 20, 2025 at 2:09 PM
euanscentre.bsky.social
Thank you to everyone who joined the “Tribute to Euan MacDonald” symposium to celebrate Euan’s legacy—from MND research, accessibility via @euansguide.com, to empowerment through @SpeakUnique. His vision lives on, uniting us to make a lasting difference.
"Euan's legacy is in safe hands!"
Prof Siddharthan Chandran speaking at the symposium. The PowerPoint slide states "Euan's legacy is in safe hands." Euan's Guide information stand at the symposium with volunteer. The poster asks "Where will you go next?" Oliver from Speak Unique talks to the symposium about Health Monitoring using digital voice technology A crowd shot from inside the auditorium at the John McIntyre Conference Centre during the symposium.
October 9, 2025 at 3:15 PM
euanscentre.bsky.social
Sunrises on the final day of "A Tribute to Euan MacDonald" - we're looking forward to another day of showcasing current research into motor neuron disease. @euansguide.com @cmvm-edinburghuni.bsky.social @ukdri.ac.uk
Sunrises in Edinburgh.
October 9, 2025 at 7:25 AM
euanscentre.bsky.social
Thank you to all our guests who joined us as we celebrated our founder Euan MacDonald whose legacies continue to transform lives by pushing forward MND research, making the world more accessible, and giving people their voice @euansguide.com at SpeakUnique @mndsmart.bsky.social @ukdri.ac.uk
Social event at the Celebrating Euan MacDonald public event.
October 8, 2025 at 5:08 PM
euanscentre.bsky.social
This afternoon’s “Celebrating Euan’s Legacy” public session will showcase the legacy of Euan MacDonald, whose vision has brought hope & helped transform lives.
. world class MND research @euanscentre.bsky.social
. disability access reviews @euansguide.com
. voicebanking technology at SpeakUnique
Auditorium set up for "Celebrating Euan's Legacy" public event.
October 8, 2025 at 12:48 PM
euanscentre.bsky.social
We are looking forward to welcoming guests from across the UK and beyond to “A Tribute to Euan MacDonald” – a day to connect and honour a lasting legacy.
@euansguide.com @mndsmart.bsky.social @ukdri.ac.uk @cmvm-edinburghuni.bsky.social
The registration desk ready to welcome guests to "A Tribute to Euan MacDonald" symposium in Edinburgh
October 8, 2025 at 6:45 AM
euanscentre.bsky.social
🔬Science belongs to everyone! It's always inspiring to see that by engaging the public with science, it not only builds understanding, but fuels interest in research & support for ongoing work - breaking down crucial barriers between labs & communities.
www.euanmacdonaldcentre.org/about/news/o...
Opening Doors to Science in Aberdeen
Sept 2025: Inspiring curiosity and connection through science at Aberdeen’s Doors Open Day.
www.euanmacdonaldcentre.org
September 26, 2025 at 1:54 PM
euanscentre.bsky.social
⌛ With just under a week until registration closes, there is still time!
Register before Monday 22nd Sept 9 am to join us for this special event in celebration of our founder, the late Euan MacDonald MBE.
Full details below⬇️
Please share @edinunineuro.bsky.social @ukdri.ac.uk @euansguide.com
euanscentre.bsky.social Euan MacDonald Centre for Motor Neuron Disease Research @euanscentre.bsky.social · Aug 27
🧵1/2 MND ACADEMIC RESEARCH EVENT
Join us in Edinburgh this October for a tribute to our founder, the late Euan MacDonald MBE.
Our academic symposium (8th & 9th Oct) will feature world-class speakers on MND/ALS research. Academics interested in this research are welcome to register. edin.ac/3VlZE8Y
Academic event: A Tribute to Euan MacDonald
A 1.5-day symposium showcasing current research into motor neuron disease, and a celebration of Euan's legacy, including Euan's Guide and SpeakUnique.
edin.ac
September 16, 2025 at 1:43 PM
euanscentre.bsky.social
What are the benefits for early career researchers in attending conferences?
In this short blog (~1 min reading time), Jade Lucas PhD student @edinburgh-uni.bsky.social shares her thoughts & experiences⬇
www.euanmacdonaldcentre.org/about/news/m...
#science #mnd @mndassoc.bsky.social @ukdri.ac.uk
MND EnCouRage UK 2025: More Than a Conference
Sept 2025: Jade Lucas, Edinburgh University PhD student shares her experiences of the MND EnCouRage UK 2025 conference.
www.euanmacdonaldcentre.org
September 12, 2025 at 12:22 PM
euanscentre.bsky.social
This is a lovely quick read at about 4mins, Jade's enthusiasm jumps off the page - we're feeling inspired! #science #sciencecommunication #scienceforall #PhD
annerowlingclinic.bsky.social Anne Rowling Regenerative Neurology Clinic @annerowlingclinic.bsky.social · Sep 1
📑Read the science communication blog by Anne Rowling Clinic PhD student Jade Lucas. In her blog, Jade shares her enthusiasm & experience of science communication and engaging with our local community:
▶️https://edin.ac/4mMrLKE
#sciencecommunication #science #scienceforall #communityengagement #PhD
Science Communication: Breaking down the barriers and opening opportunities for all | Anne Rowling Regenerative Neurology Clinic
www.annerowlingclinic.org
September 2, 2025 at 12:41 PM
euanscentre.bsky.social
🧵1/2 MND ACADEMIC RESEARCH EVENT
Join us in Edinburgh this October for a tribute to our founder, the late Euan MacDonald MBE.
Our academic symposium (8th & 9th Oct) will feature world-class speakers on MND/ALS research. Academics interested in this research are welcome to register. edin.ac/3VlZE8Y
Academic event: A Tribute to Euan MacDonald
A 1.5-day symposium showcasing current research into motor neuron disease, and a celebration of Euan's legacy, including Euan's Guide and SpeakUnique.
edin.ac
August 27, 2025 at 11:56 AM
euanscentre.bsky.social
Thank you to our friends at Euan's Guide for this beautiful tribute to Euan.
euansguide.com euansguide.com @euansguide.com · Aug 14
Today would have been Euan’s 51st birthday 💛

Later this summer, Euan’s Guide will have a gentle refresh - a welcoming, clear and accessible new look. Our new logo features Euan’s handwriting, a lasting tribute to the man who started it all. buff.ly/kFIVyoM

#Accessibility
A graphic design featuring the new Euan's Guide branding with text reading Something new is coming Today, on what would have been Euan's 51st birthday, we want to share the beginning of a new chapter for Euan's Guide. A photograph of Euan MacDonald MBE with the new Euan's Guide logo and branding A graphic design of the new Euan's Guide branding with text reading New Look. Same Purpose. Thank you for being part of the journey.
August 15, 2025 at 9:24 AM
euanscentre.bsky.social
Brilliant news for collaborative #MND research with the appointment of @suvankarpal.bsky.social as a Group Leader at the UK DRI!
ukdri.ac.uk UK Dementia Research Institute @ukdri.ac.uk · Jun 30
We're excited to welcome a new Group Leader to the UK DRI! 🥳

Prof @suvankarpal.bsky.social joins our Edinburgh Centre, where he aims to deliver a streamlined approach to take mechanistic understanding of neurodegeneration into evidence-based trials👉 buff.ly/WOVDlGI
July 1, 2025 at 3:18 PM
euanscentre.bsky.social
This #GlobalMNDAwarenessDay, we honour our remarkable founder Euan MacDonald MBE who passed away just under a year ago.

Euan's legacy not only includes our research centre but also disabled access charity @euansguide.com and speech technology company SpeakUnique.

www.youtube.com/watch?v=2s7g...
This MND Awareness Day, We Celebrate our founder, Euan MacDonald MBE
A blog post by disabled access charity Euan's Guide on Motor Neuron Disease Awareness Day, to honour their late founder, Euan MacDonald MBE, an incredibly special man who turned a life-changing diagno...
www.euansguide.com
June 21, 2025 at 9:50 AM
euanscentre.bsky.social
⬇️ A new drug is now being tested in the MND-SMART clinical trial.

#MND #ALS #clinicaltrials
#GlobalMNDAwarenessDay #ALSMNDWithoutBorders

@edinunineuro.bsky.social
mndsmart.bsky.social MND-SMART @mndsmart.bsky.social · Jun 20
Tacrolimus added as the fourth investigational arm in MND-SMART

MND-SMART uses an innovative #MAMS design to evaluate several potential treatments simultaneously, speeding up the time to identify effective therapies

Read more about this milestone here 👉 edin.ac/4jWf0uM

#GlobalMNDAwarenessDay #ALS
June 20, 2025 at 2:34 PM
euanscentre.bsky.social
⬇️Super to see #York #Scarborough joining the @mndsmart.bsky.social clinical trial and further improving access to drug trials for people with #MND #ALS.
mndsmart.bsky.social MND-SMART @mndsmart.bsky.social · Jun 18
🔔 New Trial Centre Open 🔔

Led by Principal Investigator Dr Malcolm Proudfoot, York & Scarborough Teaching Hospitals have joined the MND-SMART team.

Read more here 👉 mnd-smart.org/news/mnd-sma...

#MND #ALS #MND-SMART #MAMS
York and Scarborough Research Team pictured with Principal Investigator Malcolm
June 18, 2025 at 2:49 PM
euanscentre.bsky.social
On May 25th, our runners tackled the Edinburgh Half Marathon or Marathon Relay, raising funds for #MND research. Thanks to their effort & YOUR support, we’re making strides towards better treatments.

You can still donate today: justgiving.com/campaign/emf...

@edinunineuro.bsky.social
June 5, 2025 at 10:44 AM
euanscentre.bsky.social
Good luck to all our early-career researchers presenting over the next few days at the European Network to Cure ALS (ENCALS) meeting 2025 in Turin! 🏴󠁧󠁢󠁳󠁣󠁴󠁿 🇮🇹

Find out more about their presentations here:
euanmacdonaldcentre.org/about/news/p...

#encals2025
Presentations at the 2025 ENCALS scientific conference
Jun 2025: Highlighting our early-career researchers who are presenting their work at this year's European Network to Cure ALS conference.
euanmacdonaldcentre.org
June 3, 2025 at 9:51 AM
euanscentre.bsky.social
Many congrats to Hazel Allardyce, Nikky Huang and Bev Notman who are recipients of the 2025 Hampton Awards!🏆

We present these annually to superstar members who go 'above and beyond' in the time and effort they give to fellow researchers & our community. 🙏
www.euanmacdonaldcentre.org/about/news/c...
www.euanmacdonaldcentre.org
June 2, 2025 at 10:03 AM
euanscentre.bsky.social
TOMORROW is race day! 🏃‍♂️💙 Our runners have trained, fundraised, and dedicated themselves to this cause—let’s show them our support! Every donation helps fuel MND research!

www.justgiving.com/campaign/emf...

#RaceDayTomorrow #RunForMND #EuanMacDonaldCentre #EMF
David Thomson, standing outside wearing a Euan MacDonald Centre T-shirt and doing a double thumbs up!
May 24, 2025 at 11:52 AM
euanscentre.bsky.social
🔊 An opportunity for a post-doctoral psychology researcher with a strong interest in clinical neuropsychological research, to join the cognition in MND research team @edinburgh-uni.bsky.social, supervised by Prof Sharon Abrahams @schoolofppls.bsky.social
Project details & apply➡️ edin.ac/43AKKRb
Postdoctoral Research Assistant
The Psychology Department is seeking a PDRA with an interest in neuropsychology, clinical psychology or clinical health research to investigate decision making and mental capacity to consent to assist...
edin.ac
May 21, 2025 at 10:19 AM