Dr. Elli Wilson
@elliwilson.bsky.social
Dr. Elli Wilson - Associate Professor, School of Health Sciences, University of Nottingham. UK.
Qualitative researcher, palliative+end of life care, MND, complex homecare
https://www.nottingham.ac.uk/healthsciences/people/eleanor.wilson
Views are my own
Qualitative researcher, palliative+end of life care, MND, complex homecare
https://www.nottingham.ac.uk/healthsciences/people/eleanor.wilson
Views are my own
Pinned
Are you a homecare worker? working with someone with MND who has equipment in the home such as ventilation, suction, a feeding tube etc? Would you be willing to share your experiences? contact: nicola.turner@nottingham.ac.uk
#CHiMND @rachelkelso.bsky.social @uonresearch.bsky.social
#CHiMND @rachelkelso.bsky.social @uonresearch.bsky.social
Reposted by Dr. Elli Wilson
Vacancy for a Professor of Old Age Psychiatry at University of Oxford. Lead dementia and mental health research shaping future care for older adults. Closing date: 5th January
www.dementiaresearcher.nihr.ac.uk/job/professo...
www.dementiaresearcher.nihr.ac.uk/job/professo...
Professor: Old Age Psychiatry - DEMENTIA RESEARCHER
Professor of Old Age Psychiatry at University of Oxford. Lead dementia and mental health research shaping future care for older adults.
www.dementiaresearcher.nihr.ac.uk
November 12, 2025 at 1:28 PM
Vacancy for a Professor of Old Age Psychiatry at University of Oxford. Lead dementia and mental health research shaping future care for older adults. Closing date: 5th January
www.dementiaresearcher.nihr.ac.uk/job/professo...
www.dementiaresearcher.nihr.ac.uk/job/professo...
'The Association of British Paediatric Nurses (ABPN) expresses serious concerns following the University of Nottingham’s decision to suspend children’s nursing and mental health nursing programmes.'
www.linkedin.com/feed/update/...
www.linkedin.com/feed/update/...
Short term decisions – long term impact | Fiona Smith
Short term decisions – long term impact on children and young people
The Association of British Paediatric Nurses (ABPN) expresses serious concerns following the University of Nottingham’s decision ...
www.linkedin.com
November 11, 2025 at 8:45 AM
'The Association of British Paediatric Nurses (ABPN) expresses serious concerns following the University of Nottingham’s decision to suspend children’s nursing and mental health nursing programmes.'
www.linkedin.com/feed/update/...
www.linkedin.com/feed/update/...
Reposted by Dr. Elli Wilson
"We would never tolerate a government that chose to defund 70% of neonatal services, gambling that charities would fill the gap. Yet this is exactly the situation for end-of-life care."
Please read my piece on the travesty of NHS palliative care underfunding 🙏
www.theguardian.com/commentisfre...
Please read my piece on the travesty of NHS palliative care underfunding 🙏
www.theguardian.com/commentisfre...
As a palliative care specialist, I’ve witnessed the human tragedy of our end-of-life care crisis | Rachel Clarke
While the government debates assisted dying, palliative care is an afterthought. And many more people face death without the care and support they need, says Rachel Clarke
www.theguardian.com
November 10, 2025 at 7:07 PM
"We would never tolerate a government that chose to defund 70% of neonatal services, gambling that charities would fill the gap. Yet this is exactly the situation for end-of-life care."
Please read my piece on the travesty of NHS palliative care underfunding 🙏
www.theguardian.com/commentisfre...
Please read my piece on the travesty of NHS palliative care underfunding 🙏
www.theguardian.com/commentisfre...
Reposted by Dr. Elli Wilson
Quick thread on the BBC and the political and societal significance of recent developments:
One of the main reasons the UK has historically been so much less polarised than the US, is that Britain has a shared source of information, consumed and trusted by most people regardless of their politics.
One of the main reasons the UK has historically been so much less polarised than the US, is that Britain has a shared source of information, consumed and trusted by most people regardless of their politics.
November 10, 2025 at 1:43 PM
Quick thread on the BBC and the political and societal significance of recent developments:
One of the main reasons the UK has historically been so much less polarised than the US, is that Britain has a shared source of information, consumed and trusted by most people regardless of their politics.
One of the main reasons the UK has historically been so much less polarised than the US, is that Britain has a shared source of information, consumed and trusted by most people regardless of their politics.
Reposted by Dr. Elli Wilson
NEW on Wonkhe: Little England’s splendid isolation in European HE looks increasingly absurd bit.ly/4i2SbpV
November 11, 2025 at 7:00 AM
NEW on Wonkhe: Little England’s splendid isolation in European HE looks increasingly absurd bit.ly/4i2SbpV
Reposted by Dr. Elli Wilson
Can you help me out by signing this petition? c.org/SSJG8CkZvB
Sign the Petition
Stop the suspension of Uni of Nottingham Mental Health & Child Nursing + Health Promotion
c.org
November 7, 2025 at 4:03 PM
Can you help me out by signing this petition? c.org/SSJG8CkZvB
Cuts to Mental Health & Child Nursing + Health Promotion courses at the University of Nottingham will have wider implication for the NHS workforce at the time when we need more nurses
www.linkedin.com/posts/paul-g...
www.linkedin.com/posts/paul-g...
As Head of School of Health Sciences and Professor of Nursing at the University of Nottingham, I am devastated about the proposals to suspend courses for 26/27 intake in health promotion and public… |...
As Head of School of Health Sciences and Professor of Nursing at the University of Nottingham, I am devastated about the proposals to suspend courses for 26/27 intake in health promotion and public he...
www.linkedin.com
November 7, 2025 at 3:16 PM
Cuts to Mental Health & Child Nursing + Health Promotion courses at the University of Nottingham will have wider implication for the NHS workforce at the time when we need more nurses
www.linkedin.com/posts/paul-g...
www.linkedin.com/posts/paul-g...
Reposted by Dr. Elli Wilson
Research Associate (Fixed Term, full-time post). Come work with me and amazing colleagues at University of Cambridge. An excellent post for a dynamic post doctoral researcher and thinker...
www.cam.ac.uk/jobs/researc...
www.cam.ac.uk/jobs/researc...
www.cam.ac.uk
October 21, 2025 at 9:07 PM
Research Associate (Fixed Term, full-time post). Come work with me and amazing colleagues at University of Cambridge. An excellent post for a dynamic post doctoral researcher and thinker...
www.cam.ac.uk/jobs/researc...
www.cam.ac.uk/jobs/researc...
📢New publication from the TVLife study: Living with tracheostomy ventilation for MND - Family member perspectives - important to understand both the challenges and joys. Families sharing their experiences on HealthTalk: healthtalk.org/experiences/...
doi.org/10.1080/0963...
doi.org/10.1080/0963...
Living with tracheostomy ventilation for motor neurone disease: a qualitative study of family member perspectives
To examine the experiences of family members caring for people with motor neurone disease (MND) who use tracheostomy ventilation.Drawing on a constructivist interpretivist approach, qualitative int...
doi.org
November 4, 2025 at 10:15 AM
📢New publication from the TVLife study: Living with tracheostomy ventilation for MND - Family member perspectives - important to understand both the challenges and joys. Families sharing their experiences on HealthTalk: healthtalk.org/experiences/...
doi.org/10.1080/0963...
doi.org/10.1080/0963...
Reposted by Dr. Elli Wilson
Here I am in 2020 in the flimsiest, most pitful PPE - like so many other NHS staff, some of whom died from the Covid they caught in their hospitals.
Tory peer Michelle Mone - who today lost her legal case & must repay the govt £122m - dares to claim she’s been ‘scapegoated’.
What, Michelle? 🧵
Tory peer Michelle Mone - who today lost her legal case & must repay the govt £122m - dares to claim she’s been ‘scapegoated’.
What, Michelle? 🧵
October 1, 2025 at 12:22 PM
Here I am in 2020 in the flimsiest, most pitful PPE - like so many other NHS staff, some of whom died from the Covid they caught in their hospitals.
Tory peer Michelle Mone - who today lost her legal case & must repay the govt £122m - dares to claim she’s been ‘scapegoated’.
What, Michelle? 🧵
Tory peer Michelle Mone - who today lost her legal case & must repay the govt £122m - dares to claim she’s been ‘scapegoated’.
What, Michelle? 🧵
Reposted by Dr. Elli Wilson
Superb news showcasing the wonder of medical science.
Huntingdon's is a brutal terminal disease.
This new gene therapy slows the disease's advance by 75%.
One medically retired patient has now returned to work.
Others, expected to need wheelchairs, are walking.
www.bbc.co.uk/news/article...
Huntingdon's is a brutal terminal disease.
This new gene therapy slows the disease's advance by 75%.
One medically retired patient has now returned to work.
Others, expected to need wheelchairs, are walking.
www.bbc.co.uk/news/article...
Huntington's disease successfully treated for first time
One of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC.
www.bbc.co.uk
September 24, 2025 at 1:48 PM
Superb news showcasing the wonder of medical science.
Huntingdon's is a brutal terminal disease.
This new gene therapy slows the disease's advance by 75%.
One medically retired patient has now returned to work.
Others, expected to need wheelchairs, are walking.
www.bbc.co.uk/news/article...
Huntingdon's is a brutal terminal disease.
This new gene therapy slows the disease's advance by 75%.
One medically retired patient has now returned to work.
Others, expected to need wheelchairs, are walking.
www.bbc.co.uk/news/article...
Reposted by Dr. Elli Wilson
In @dailymirrornews.bsky.social today - with thanks to @martinbagot.bsky.social
www.mirror.co.uk/news/uk-news...
www.mirror.co.uk/news/uk-news...
'I'm a full-time carer - people don't realise they're one accident from my life'
Katy Styles, a full-time carer from Canterbury, has warned people
www.mirror.co.uk
September 19, 2025 at 12:15 PM
In @dailymirrornews.bsky.social today - with thanks to @martinbagot.bsky.social
www.mirror.co.uk/news/uk-news...
www.mirror.co.uk/news/uk-news...
Reposted by Dr. Elli Wilson
Thank you so much to all who have taken part in the EMPOWER survey to date! Only more day to go to register your views. We particularly want to hear from midwives and health visitors 👇
@rcn.org.uk @rcm.org.uk @nihrspcr.bsky.social @nihr.bsky.social @arc-em.bsky.social
t.ly/pDJPH
@rcn.org.uk @rcm.org.uk @nihrspcr.bsky.social @nihr.bsky.social @arc-em.bsky.social
t.ly/pDJPH
March 30, 2025 at 11:56 AM
Thank you so much to all who have taken part in the EMPOWER survey to date! Only more day to go to register your views. We particularly want to hear from midwives and health visitors 👇
@rcn.org.uk @rcm.org.uk @nihrspcr.bsky.social @nihr.bsky.social @arc-em.bsky.social
t.ly/pDJPH
@rcn.org.uk @rcm.org.uk @nihrspcr.bsky.social @nihr.bsky.social @arc-em.bsky.social
t.ly/pDJPH
Reposted by Dr. Elli Wilson
Reframing resilience in community healthcare. Our latest piece in BJCN
magonlinelibrary.com/doi/abs/10.1...
magonlinelibrary.com/doi/abs/10.1...
August 3, 2025 at 6:05 PM
Reframing resilience in community healthcare. Our latest piece in BJCN
magonlinelibrary.com/doi/abs/10.1...
magonlinelibrary.com/doi/abs/10.1...
New paper from the TVLife study - Tracheostomy ventilation in ALS: healthcare practitioner perspectives on quality of life and implications for decision-making. @mndassoc.bsky.social @silvah-uk.bsky.social
doi.org/10.1080/2167...
doi.org/10.1080/2167...
Tracheostomy ventilation in ALS: healthcare practitioner perspectives on quality of life and implications for decision-making
Objectives: This qualitative study aimed to increase understanding of how healthcare practitioners (HCPs) perceive quality of life for people with ALS who use tracheostomy ventilation (TV) and the ...
doi.org
July 23, 2025 at 3:18 PM
New paper from the TVLife study - Tracheostomy ventilation in ALS: healthcare practitioner perspectives on quality of life and implications for decision-making. @mndassoc.bsky.social @silvah-uk.bsky.social
doi.org/10.1080/2167...
doi.org/10.1080/2167...
Reposted by Dr. Elli Wilson
📢Publication alert! Delighted to have this available to read in full: Providing life-sustaining treatments at home for those with Motor Neurone Disease: A qualitative study of bereaved family members’ experiences of responsibility #VentMND
doi.org/10.1177/0269...
doi.org/10.1177/0269...
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
doi.org
March 24, 2025 at 12:44 PM
📢Publication alert! Delighted to have this available to read in full: Providing life-sustaining treatments at home for those with Motor Neurone Disease: A qualitative study of bereaved family members’ experiences of responsibility #VentMND
doi.org/10.1177/0269...
doi.org/10.1177/0269...
Reposted by Dr. Elli Wilson
Ensuring nutrition & hydration in people with #MND is crucial for their wellbeing & to prevent complications, but can be challenging
Our revised infographic on dietetics & nutrition is a practical tool for HSCPs with a quick summary of NICE guidelines👇
mndassociation.org/propublicati...
Our revised infographic on dietetics & nutrition is a practical tool for HSCPs with a quick summary of NICE guidelines👇
mndassociation.org/propublicati...
July 11, 2025 at 7:16 AM
Ensuring nutrition & hydration in people with #MND is crucial for their wellbeing & to prevent complications, but can be challenging
Our revised infographic on dietetics & nutrition is a practical tool for HSCPs with a quick summary of NICE guidelines👇
mndassociation.org/propublicati...
Our revised infographic on dietetics & nutrition is a practical tool for HSCPs with a quick summary of NICE guidelines👇
mndassociation.org/propublicati...
Reposted by Dr. Elli Wilson
We're thrilled to share our revised infosheet for HSCPs on dysphagia in #MND!
It's designed to offer practical guidance to manage swallowing issues, prevent malnutrition & support decision-making
Thank you to all the experts who helped us review it!
Visit: www.mndassociation.org/propublications
It's designed to offer practical guidance to manage swallowing issues, prevent malnutrition & support decision-making
Thank you to all the experts who helped us review it!
Visit: www.mndassociation.org/propublications
July 4, 2025 at 7:59 AM
We're thrilled to share our revised infosheet for HSCPs on dysphagia in #MND!
It's designed to offer practical guidance to manage swallowing issues, prevent malnutrition & support decision-making
Thank you to all the experts who helped us review it!
Visit: www.mndassociation.org/propublications
It's designed to offer practical guidance to manage swallowing issues, prevent malnutrition & support decision-making
Thank you to all the experts who helped us review it!
Visit: www.mndassociation.org/propublications
Reposted by Dr. Elli Wilson
Calling all dads! Click on the link below to say what your top 10 questions are for research in childhood food allergy. Don't miss the last chance to have your say! Survey closes 31 July.
btcsurvey.bristol.ac.uk/redcap/surve...
@nihrspcr.bsky.social
@capcbristol.bsky.social
@riddmj.bsky.social
btcsurvey.bristol.ac.uk/redcap/surve...
@nihrspcr.bsky.social
@capcbristol.bsky.social
@riddmj.bsky.social
July 2, 2025 at 1:26 PM
Calling all dads! Click on the link below to say what your top 10 questions are for research in childhood food allergy. Don't miss the last chance to have your say! Survey closes 31 July.
btcsurvey.bristol.ac.uk/redcap/surve...
@nihrspcr.bsky.social
@capcbristol.bsky.social
@riddmj.bsky.social
btcsurvey.bristol.ac.uk/redcap/surve...
@nihrspcr.bsky.social
@capcbristol.bsky.social
@riddmj.bsky.social
interested in Home Care and MND? Check out the CHiMND study on the home care research engagement portal.
📢seeking homecare workers working with people with MND
sites.google.com/nihr.ac.uk/h...
📢seeking homecare workers working with people with MND
sites.google.com/nihr.ac.uk/h...
Home Care Research Engagement Portal - Study Spotlight
What is the Study Spotlight?
On this page, you can scroll down to find examples of studies related to domiciliary/home care.
Some of the studies may still be open, and you can register your interest ...
sites.google.com
July 1, 2025 at 9:58 AM
interested in Home Care and MND? Check out the CHiMND study on the home care research engagement portal.
📢seeking homecare workers working with people with MND
sites.google.com/nihr.ac.uk/h...
📢seeking homecare workers working with people with MND
sites.google.com/nihr.ac.uk/h...
Reposted by Dr. Elli Wilson
Here is the evidence base for anticipatory prescribing in one place. It feels apt to share right now - what can be done to help with effective end-of-life symptom control too! new.express.adobe.com/webpage/8yok...
@arceastofengland.bsky.social @pcucambridge.bsky.social @mariecurieuk.bsky.social
@arceastofengland.bsky.social @pcucambridge.bsky.social @mariecurieuk.bsky.social
Anticipatory Prescribing at the End of Life
A story told with Adobe Express
new.express.adobe.com
June 22, 2025 at 12:15 PM
Here is the evidence base for anticipatory prescribing in one place. It feels apt to share right now - what can be done to help with effective end-of-life symptom control too! new.express.adobe.com/webpage/8yok...
@arceastofengland.bsky.social @pcucambridge.bsky.social @mariecurieuk.bsky.social
@arceastofengland.bsky.social @pcucambridge.bsky.social @mariecurieuk.bsky.social
Reposted by Dr. Elli Wilson
Our must read research is out - "We've Taken on a More Advanced Clinical Role": Community Nurses' Extended Roles in Palliative Care. @jadvnursing.bsky.social
Pls share! Open access:
onlinelibrary.wiley.com/doi/10.1111/...
@theqicn.bsky.social @crystaloldman.bsky.social @alisonleary1.bsky.social
Pls share! Open access:
onlinelibrary.wiley.com/doi/10.1111/...
@theqicn.bsky.social @crystaloldman.bsky.social @alisonleary1.bsky.social
‘We've Taken on a More Advanced Clinical Role’: A Multimethod Study of Community Nurses' Extended Roles in Palliative Care
Aim To explore community nurses' experiences of changes to their roles in palliative and end-of-life care. Design An e-survey was followed by focus groups. Methods Fifty-one community nurses wit...
onlinelibrary.wiley.com
June 19, 2025 at 7:34 AM
Our must read research is out - "We've Taken on a More Advanced Clinical Role": Community Nurses' Extended Roles in Palliative Care. @jadvnursing.bsky.social
Pls share! Open access:
onlinelibrary.wiley.com/doi/10.1111/...
@theqicn.bsky.social @crystaloldman.bsky.social @alisonleary1.bsky.social
Pls share! Open access:
onlinelibrary.wiley.com/doi/10.1111/...
@theqicn.bsky.social @crystaloldman.bsky.social @alisonleary1.bsky.social
Important & useful special issue:
"When we do not include, or account for difference, in qualitative research studies, outcomes create insufficient data that limits innovations in practice, policy or legislation development." journals.sagepub.com/doi/10.1177/...
"When we do not include, or account for difference, in qualitative research studies, outcomes create insufficient data that limits innovations in practice, policy or legislation development." journals.sagepub.com/doi/10.1177/...
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
June 6, 2025 at 8:14 AM
Important & useful special issue:
"When we do not include, or account for difference, in qualitative research studies, outcomes create insufficient data that limits innovations in practice, policy or legislation development." journals.sagepub.com/doi/10.1177/...
"When we do not include, or account for difference, in qualitative research studies, outcomes create insufficient data that limits innovations in practice, policy or legislation development." journals.sagepub.com/doi/10.1177/...