Ellen M
@eatsleeplaugh.bsky.social
Ridiculously serious at times, seriously ridiculous at others.
#ActuallyAutistic peer researcher : autism, eating disorders, co-production
#ActuallyAutistic peer researcher : autism, eating disorders, co-production
Pinned
Ellen M
@eatsleeplaugh.bsky.social
· Nov 20
Improving eating disorder services
New guidance for Scotland.
www.gov.scot
Great to see these National Standards for Care published - people with #eatingdisorders in Scotland deserve high-quality care, regardless of diagnosis, throughout their treatment journey 🫶
www.gov.scot/news/improvi...
www.gov.scot/news/improvi...
Reposted by Ellen M
New research paper using photovoice to explore research priorities with autistic individuals with eating disorders onlinelibrary.wiley.com/doi/full/10....
May 3, 2025 at 7:44 PM
New research paper using photovoice to explore research priorities with autistic individuals with eating disorders onlinelibrary.wiley.com/doi/full/10....
Reposted by Ellen M
In-person ECR event for eating disorder researchers in UK on 8th May, focusing on funding applications and co-production.
An optional second day networking event with 4 UKRI-funded ED research.
✍️Register interest here: qualtricsxm8tn52zk86.qualtrics.com/jfe/form/SV_...
An optional second day networking event with 4 UKRI-funded ED research.
✍️Register interest here: qualtricsxm8tn52zk86.qualtrics.com/jfe/form/SV_...
March 15, 2025 at 5:47 PM
In-person ECR event for eating disorder researchers in UK on 8th May, focusing on funding applications and co-production.
An optional second day networking event with 4 UKRI-funded ED research.
✍️Register interest here: qualtricsxm8tn52zk86.qualtrics.com/jfe/form/SV_...
An optional second day networking event with 4 UKRI-funded ED research.
✍️Register interest here: qualtricsxm8tn52zk86.qualtrics.com/jfe/form/SV_...
Reposted by Ellen M
I am so excited to share my first publication, a labor of love! My co-1st author @katerinaldi1.bsky.social and I examined weight related terminology preference within two samples of folks in larger bodies🥰 www.sciencedirect.com/science/arti...
Words are heavy: Weight-related terminology preferences are associated with larger-bodied people’s health behaviors and beliefs
Clinicians and researchers may struggle with appropriate terminology when discussing body size. Pathologizing larger bodies has led to use of medicali…
www.sciencedirect.com
February 22, 2025 at 4:25 PM
I am so excited to share my first publication, a labor of love! My co-1st author @katerinaldi1.bsky.social and I examined weight related terminology preference within two samples of folks in larger bodies🥰 www.sciencedirect.com/science/arti...
Reposted by Ellen M
You’re Not Alone photovoice exhibition with @edaceatingautism.bsky.social continues this week!
Presenting the experiences and priorities of Autistic people with eating disorders through photographs, drawings and digital art.
⏰ 10am-5pm
📅 Until 8 Mar 2025 | Closed Tues/Thurs
🔗 edin.ac/42KbxdI
Presenting the experiences and priorities of Autistic people with eating disorders through photographs, drawings and digital art.
⏰ 10am-5pm
📅 Until 8 Mar 2025 | Closed Tues/Thurs
🔗 edin.ac/42KbxdI
March 3, 2025 at 1:41 PM
You’re Not Alone photovoice exhibition with @edaceatingautism.bsky.social continues this week!
Presenting the experiences and priorities of Autistic people with eating disorders through photographs, drawings and digital art.
⏰ 10am-5pm
📅 Until 8 Mar 2025 | Closed Tues/Thurs
🔗 edin.ac/42KbxdI
Presenting the experiences and priorities of Autistic people with eating disorders through photographs, drawings and digital art.
⏰ 10am-5pm
📅 Until 8 Mar 2025 | Closed Tues/Thurs
🔗 edin.ac/42KbxdI
'I was unseen, even to myself’ – as many as half of people with anorexia are Autistic ... 👇
theconversation.com/friday-essay...
theconversation.com/friday-essay...
Friday essay: ‘I was unseen, even to myself’ – as many as half of people with anorexia are autistic. Fiona Wright is one of them
It wasn’t until she’d been in the medical system for around 17 years, being treated for anorexia, that Fiona Wright was diagnosed as autistic.
theconversation.com
March 1, 2025 at 6:14 PM
'I was unseen, even to myself’ – as many as half of people with anorexia are Autistic ... 👇
theconversation.com/friday-essay...
theconversation.com/friday-essay...
Reposted by Ellen M
Men are consistently under-represented in eating disorder research. We would love to change this!
If you identify as a man, live in England, and have lived experience of eating disorders symptoms (no formal diagnosis needed!), please consider taking part in our study on calorie labels 👇 #EDAW
If you identify as a man, live in England, and have lived experience of eating disorders symptoms (no formal diagnosis needed!), please consider taking part in our study on calorie labels 👇 #EDAW
We are still recruiting for a survey of people with eating disorders experience of calories on menus
We would love to hear from more people who identify as men.
Please RT and share with your networks! 🙏 tinyurl.com/yt6xjzx5
We would love to hear from more people who identify as men.
Please RT and share with your networks! 🙏 tinyurl.com/yt6xjzx5
February 27, 2025 at 9:17 AM
Men are consistently under-represented in eating disorder research. We would love to change this!
If you identify as a man, live in England, and have lived experience of eating disorders symptoms (no formal diagnosis needed!), please consider taking part in our study on calorie labels 👇 #EDAW
If you identify as a man, live in England, and have lived experience of eating disorders symptoms (no formal diagnosis needed!), please consider taking part in our study on calorie labels 👇 #EDAW
Reposted by Ellen M
We are recruiting UK based clinicians in eating disorder services to think about barriers & enablers for implementing autism affirming care, for example PEACE pathway. If you would be willing to be interviewed over TEAMS there is more information here! edinburgh.eu.qualtrics.com/jfe/form/SV_...
February 27, 2025 at 6:02 PM
We are recruiting UK based clinicians in eating disorder services to think about barriers & enablers for implementing autism affirming care, for example PEACE pathway. If you would be willing to be interviewed over TEAMS there is more information here! edinburgh.eu.qualtrics.com/jfe/form/SV_...
Reposted by Ellen M
🧠 Eating disorders often co-exist with autism, yet research in this area remains limited.
Foundation-funded Dr Fiona Duffy & Dr Karri Gillespie-Smith are working to change that.
Through @edaceatingautism.bsky.social, they’ve shared best-practice research guidelines. Read more: bit.ly/4k8JN8W #EDAW
Foundation-funded Dr Fiona Duffy & Dr Karri Gillespie-Smith are working to change that.
Through @edaceatingautism.bsky.social, they’ve shared best-practice research guidelines. Read more: bit.ly/4k8JN8W #EDAW
Medical Research Foundation | Eating disorders and autism -…
www.medicalresearchfoundation.org.uk
February 26, 2025 at 11:29 AM
🧠 Eating disorders often co-exist with autism, yet research in this area remains limited.
Foundation-funded Dr Fiona Duffy & Dr Karri Gillespie-Smith are working to change that.
Through @edaceatingautism.bsky.social, they’ve shared best-practice research guidelines. Read more: bit.ly/4k8JN8W #EDAW
Foundation-funded Dr Fiona Duffy & Dr Karri Gillespie-Smith are working to change that.
Through @edaceatingautism.bsky.social, they’ve shared best-practice research guidelines. Read more: bit.ly/4k8JN8W #EDAW
Reposted by Ellen M
We are still recruiting for a survey of people with eating disorders experience of calories on menus
We would love to hear from more people who identify as men.
Please RT and share with your networks! 🙏 tinyurl.com/yt6xjzx5
We would love to hear from more people who identify as men.
Please RT and share with your networks! 🙏 tinyurl.com/yt6xjzx5
February 27, 2025 at 7:05 AM
We are still recruiting for a survey of people with eating disorders experience of calories on menus
We would love to hear from more people who identify as men.
Please RT and share with your networks! 🙏 tinyurl.com/yt6xjzx5
We would love to hear from more people who identify as men.
Please RT and share with your networks! 🙏 tinyurl.com/yt6xjzx5
Reposted by Ellen M
Day 4 of #EDAW updates from Edinburgh University. @fionaduffy.bsky.social, @eatsleeplaugh.bsky.social and @drhelensharpe.bsky.social are working on an NIHR project led by Dr Tom Jewell on the impact of the introduction of calories on menus in England on individuals with eating disorders
February 27, 2025 at 7:05 AM
Day 4 of #EDAW updates from Edinburgh University. @fionaduffy.bsky.social, @eatsleeplaugh.bsky.social and @drhelensharpe.bsky.social are working on an NIHR project led by Dr Tom Jewell on the impact of the introduction of calories on menus in England on individuals with eating disorders
Reposted by Ellen M
Announcing You’re Not Alone exhibition showcasing the creative work resulting from participatory community research project with @edaceatingautism.bsky.social using photos and storytelling as the tools to connect and share perspectives
⏰ 10am-5pm
📅 1-8 Mar
📍 Inspace, EH8 9AB
🔗 edin.ac/42KbxdI
⏰ 10am-5pm
📅 1-8 Mar
📍 Inspace, EH8 9AB
🔗 edin.ac/42KbxdI
February 10, 2025 at 2:42 PM
Announcing You’re Not Alone exhibition showcasing the creative work resulting from participatory community research project with @edaceatingautism.bsky.social using photos and storytelling as the tools to connect and share perspectives
⏰ 10am-5pm
📅 1-8 Mar
📍 Inspace, EH8 9AB
🔗 edin.ac/42KbxdI
⏰ 10am-5pm
📅 1-8 Mar
📍 Inspace, EH8 9AB
🔗 edin.ac/42KbxdI
Why is it that we say, "Can't imagine it" ('unimagineable') or, "Wouldn't think of it" ('unthinkable') but even though we say, "Wouldn't dream of it" we don't say 'undreamable'?
February 24, 2025 at 9:48 AM
Why is it that we say, "Can't imagine it" ('unimagineable') or, "Wouldn't think of it" ('unthinkable') but even though we say, "Wouldn't dream of it" we don't say 'undreamable'?
Every time I need to cancel plans due to Autistic overwhelm, I think about the psychologist who, committed to the BPD framework, insisted that I experienced myself as unpredictable and unstable and could not maintain routine or relationships due to PD.
February 22, 2025 at 12:50 PM
Every time I need to cancel plans due to Autistic overwhelm, I think about the psychologist who, committed to the BPD framework, insisted that I experienced myself as unpredictable and unstable and could not maintain routine or relationships due to PD.
Reposted by Ellen M
Are you a health care professional working in #EatingDisorders?
KateTchanturia and her team’s workshop ‘Link between Eating disorders and #Autism: PEACE pathway Conference’ will share specially developed resources to take back to your clinic.
#MedSky #AcademicSky
Register: bit.ly/3Sk2Xgl
KateTchanturia and her team’s workshop ‘Link between Eating disorders and #Autism: PEACE pathway Conference’ will share specially developed resources to take back to your clinic.
#MedSky #AcademicSky
Register: bit.ly/3Sk2Xgl
Link between Eating disorders and Autism: PEACE pathway Conference | King's College London eStore
We will be presenting an overview of our work, including outcomes, learning points and specially developed resources for clinicians and teams of health pro
bit.ly
February 12, 2025 at 4:24 PM
Are you a health care professional working in #EatingDisorders?
KateTchanturia and her team’s workshop ‘Link between Eating disorders and #Autism: PEACE pathway Conference’ will share specially developed resources to take back to your clinic.
#MedSky #AcademicSky
Register: bit.ly/3Sk2Xgl
KateTchanturia and her team’s workshop ‘Link between Eating disorders and #Autism: PEACE pathway Conference’ will share specially developed resources to take back to your clinic.
#MedSky #AcademicSky
Register: bit.ly/3Sk2Xgl
Reposted by Ellen M
Excellent podcast on the harms of the borderline personality disorder construct. Must listen: tinyurl.com/mbumjjr9 #AutismNotPD
Episode 3: Borderline Personality Disorder with Eleanor Higgins
EDAC Table Talk Podcast · Episode
tinyurl.com
February 13, 2025 at 11:22 AM
Excellent podcast on the harms of the borderline personality disorder construct. Must listen: tinyurl.com/mbumjjr9 #AutismNotPD
Reposted by Ellen M
NEW PAPER: What do teenage girls think is causing the rise in depression & anxiety in their demographic?
I was struck, during the analysis, about how often 'pressure' came up. Girls are under so much pressure to look and behave in certain ways 😔
Well done to Ola on her thoughtful leadership here
I was struck, during the analysis, about how often 'pressure' came up. Girls are under so much pressure to look and behave in certain ways 😔
Well done to Ola on her thoughtful leadership here
We talk a lot about why adolescent girls report more low mood and anxiety, and why this might be getting worse.
But what do girls themselves think might explain this? As you might have guessed, we don’t really know.
So, we asked them: doi.org/10.1186/s129...
1/8
But what do girls themselves think might explain this? As you might have guessed, we don’t really know.
So, we asked them: doi.org/10.1186/s129...
1/8
Adolescent girls’ explanations of high rates of low mood and anxiety in their population: a co-produced qualitative study - BMC Women's Health
Background From early adolescence, girls face greater risk of experiencing low mood and anxiety relative to boys, with recent evidence that this may be worsening. There is a paucity of mental health r...
doi.org
February 5, 2025 at 3:24 PM
NEW PAPER: What do teenage girls think is causing the rise in depression & anxiety in their demographic?
I was struck, during the analysis, about how often 'pressure' came up. Girls are under so much pressure to look and behave in certain ways 😔
Well done to Ola on her thoughtful leadership here
I was struck, during the analysis, about how often 'pressure' came up. Girls are under so much pressure to look and behave in certain ways 😔
Well done to Ola on her thoughtful leadership here
Reposted by Ellen M
EDAC is proud to host an exhibition of photographs, drawings and digital art on the experience and research priorities of autistic people with eating disorders . inspace.ed.ac.uk/youre-not-al.... 1st to 8th march (closed Sunday Tuesday and Thursday, free drop in 10-5 quiet hour on sat.
February 3, 2025 at 1:27 PM
EDAC is proud to host an exhibition of photographs, drawings and digital art on the experience and research priorities of autistic people with eating disorders . inspace.ed.ac.uk/youre-not-al.... 1st to 8th march (closed Sunday Tuesday and Thursday, free drop in 10-5 quiet hour on sat.
Reposted by Ellen M
New research. A team tries to work out if self-identity as autistic is valid.
www.nature.com/articles/s44... is the paper.
I'll do a thread on some of their peculiar statements in it, and on the Broad Autism Phenotype Questionnaire (BAPQ) that they use to try to make a point. Here we go../
www.nature.com/articles/s44... is the paper.
I'll do a thread on some of their peculiar statements in it, and on the Broad Autism Phenotype Questionnaire (BAPQ) that they use to try to make a point. Here we go../
Phenotypic divergence between individuals with self-reported autistic traits and clinically ascertained autism - Nature Mental Health
Comparing clinically diagnosed adults with autism spectrum disorder (ASD) with online participants with self-reported high autistic traits, this study detected higher rates of social anxiety and avoid...
www.nature.com
February 8, 2025 at 10:30 AM
New research. A team tries to work out if self-identity as autistic is valid.
www.nature.com/articles/s44... is the paper.
I'll do a thread on some of their peculiar statements in it, and on the Broad Autism Phenotype Questionnaire (BAPQ) that they use to try to make a point. Here we go../
www.nature.com/articles/s44... is the paper.
I'll do a thread on some of their peculiar statements in it, and on the Broad Autism Phenotype Questionnaire (BAPQ) that they use to try to make a point. Here we go../
Reposted by Ellen M
New research project ☺️
Have you had anorexia nervosa yourself and have you also held a role where you provide treatment to others with anorexia? Have you also experienced your own treatment for anorexia ending early?
Please expand the poster below for more information-
Have you had anorexia nervosa yourself and have you also held a role where you provide treatment to others with anorexia? Have you also experienced your own treatment for anorexia ending early?
Please expand the poster below for more information-
February 7, 2025 at 3:29 PM
New research project ☺️
Have you had anorexia nervosa yourself and have you also held a role where you provide treatment to others with anorexia? Have you also experienced your own treatment for anorexia ending early?
Please expand the poster below for more information-
Have you had anorexia nervosa yourself and have you also held a role where you provide treatment to others with anorexia? Have you also experienced your own treatment for anorexia ending early?
Please expand the poster below for more information-
Reposted by Ellen M
We just published a systematic review on the impact of the out-of-home nutritional labels (i.e., restaurants, cafes) on people with eating disorders. Key points and next steps below 👇
bmjpublichealth.bmj.com/content/3/1/...
bmjpublichealth.bmj.com/content/3/1/...
Impact of out-of-home nutrition labelling on people with eating disorders: a systematic review and meta-synthesis
Objectives Mandatory nutrition labels for out-of-home food consumption have been introduced in several countries to curb rising obesity levels. However, concerns have been raised about the potential n...
bmjpublichealth.bmj.com
January 29, 2025 at 7:36 PM
We just published a systematic review on the impact of the out-of-home nutritional labels (i.e., restaurants, cafes) on people with eating disorders. Key points and next steps below 👇
bmjpublichealth.bmj.com/content/3/1/...
bmjpublichealth.bmj.com/content/3/1/...
Reposted by Ellen M
Calorie labels on menus are negatively impacting people with eating disorders.
A new study from @kingsnmpc.bsky.social published in the BMJ Public Health found that people with eating disorders changed their behaviours if presented with calorie labels on a menu.
www.kcl.ac.uk/news/calorie...
A new study from @kingsnmpc.bsky.social published in the BMJ Public Health found that people with eating disorders changed their behaviours if presented with calorie labels on a menu.
www.kcl.ac.uk/news/calorie...
Calorie labels on menus could make eating disorders worse
Calorie labels on restaurant menus are negatively impacting people with eating disorders, according to a new study.
www.kcl.ac.uk
January 29, 2025 at 10:38 AM
Calorie labels on menus are negatively impacting people with eating disorders.
A new study from @kingsnmpc.bsky.social published in the BMJ Public Health found that people with eating disorders changed their behaviours if presented with calorie labels on a menu.
www.kcl.ac.uk/news/calorie...
A new study from @kingsnmpc.bsky.social published in the BMJ Public Health found that people with eating disorders changed their behaviours if presented with calorie labels on a menu.
www.kcl.ac.uk/news/calorie...
Reposted by Ellen M
New publication! systematic review exploring the impact if calories on menus with people with ED's from @drhelensharpe.bsky.social @fionaduffy.bsky.social @eatsleeplaugh.bsky.social and Imogen Peebles, led by @ntrompeter.bsky.social and @tomjewell.bsky.social bmjpublichealth.bmj.com/content/3/1/...
Impact of out-of-home nutrition labelling on people with eating disorders: a systematic review and meta-synthesis
Objectives Mandatory nutrition labels for out-of-home food consumption have been introduced in several countries to curb rising obesity levels. However, concerns have been raised about the potential n...
bmjpublichealth.bmj.com
January 29, 2025 at 6:27 PM
New publication! systematic review exploring the impact if calories on menus with people with ED's from @drhelensharpe.bsky.social @fionaduffy.bsky.social @eatsleeplaugh.bsky.social and Imogen Peebles, led by @ntrompeter.bsky.social and @tomjewell.bsky.social bmjpublichealth.bmj.com/content/3/1/...
Reposted by Ellen M
We are still recruiting parents/carers for parallel interviews of their experience of FBT/FT-AN for anorexia or bulimia with an autistic young person.... more info here edinburgh.eu.qualtrics.com/jfe/form/SV_...
January 21, 2025 at 10:47 AM
We are still recruiting parents/carers for parallel interviews of their experience of FBT/FT-AN for anorexia or bulimia with an autistic young person.... more info here edinburgh.eu.qualtrics.com/jfe/form/SV_...
Reposted by Ellen M
🗣️ Participants needed for my student's study
We are looking for UK-based folks (18+ years) to take part in an online experimental survey to explore the effects of social media content on body image and eating attitudes.
To learn more and take part, click here: bit.ly/eatsocialmedia
We are looking for UK-based folks (18+ years) to take part in an online experimental survey to explore the effects of social media content on body image and eating attitudes.
To learn more and take part, click here: bit.ly/eatsocialmedia
January 23, 2025 at 1:58 PM
🗣️ Participants needed for my student's study
We are looking for UK-based folks (18+ years) to take part in an online experimental survey to explore the effects of social media content on body image and eating attitudes.
To learn more and take part, click here: bit.ly/eatsocialmedia
We are looking for UK-based folks (18+ years) to take part in an online experimental survey to explore the effects of social media content on body image and eating attitudes.
To learn more and take part, click here: bit.ly/eatsocialmedia
Reposted by Ellen M
Allegations of physical, emotional and verbal abuse suffered by children in secure care in Edinburgh were "brushed under the carpet" for more than a decade by senior council managers, the Scottish Child Abuse Inquiry has heard
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Abuse claims were 'brushed under the carpet'
A retired social worker says she
www.bbc.co.uk
January 24, 2025 at 7:10 PM
Allegations of physical, emotional and verbal abuse suffered by children in secure care in Edinburgh were "brushed under the carpet" for more than a decade by senior council managers, the Scottish Child Abuse Inquiry has heard
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...