Dopamine Warriors
@dopaminewarriorsbc.bsky.social
A person with Parkinson's delivering exercise program to fellow Parkies🥊
A huge thank you to the European Federation of Neurological Associations (EFNA) and EAN for this opportunity. See you in Helsinki!
It's an absolute privilege to share my experience and shed light on my diagnosis—one that could have taken much longer had I not been proactive with my #HealthLiteracy. I’m looking forward to discussing how we can refine these processes and ensure better access to vital information for all.
🗓 Date: 22 June 2025
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis
June 9, 2025 at 5:16 PM
A huge thank you to the European Federation of Neurological Associations (EFNA) and EAN for this opportunity. See you in Helsinki!
It's an absolute privilege to share my experience and shed light on my diagnosis—one that could have taken much longer had I not been proactive with my #HealthLiteracy. I’m looking forward to discussing how we can refine these processes and ensure better access to vital information for all.
🗓 Date: 22 June 2025
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis
Four years since my diagnosis this June, and here I am—speaking at the annual #EAN2025! What an incredible journey. Even more exciting, my MDS will also be presenting at the same conference.
#ean2025 #neurology #HomeOfNeurology #EANeurology@worldpdcongress.bsky.social @parkinsonseurope.bsky.social
#ean2025 #neurology #HomeOfNeurology #EANeurology@worldpdcongress.bsky.social @parkinsonseurope.bsky.social
June 9, 2025 at 5:15 PM
It's an absolute privilege to share my experience and shed light on my diagnosis—one that could have taken much longer had I not been proactive with my #HealthLiteracy. I’m looking forward to discussing how we can refine these processes and ensure better access to vital information for all.
🗓 Date: 22 June 2025
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis
Four years since my diagnosis this June, and here I am—speaking at the annual #EAN2025! What an incredible journey. Even more exciting, my MDS will also be presenting at the same conference.
#ean2025 #neurology #HomeOfNeurology #EANeurology@worldpdcongress.bsky.social @parkinsonseurope.bsky.social
#ean2025 #neurology #HomeOfNeurology #EANeurology@worldpdcongress.bsky.social @parkinsonseurope.bsky.social
June 9, 2025 at 5:15 PM
🗓 Date: 22 June 2025
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis
Four years since my diagnosis this June, and here I am—speaking at the annual #EAN2025! What an incredible journey. Even more exciting, my MDS will also be presenting at the same conference.
#ean2025 #neurology #HomeOfNeurology #EANeurology@worldpdcongress.bsky.social @parkinsonseurope.bsky.social
#ean2025 #neurology #HomeOfNeurology #EANeurology@worldpdcongress.bsky.social @parkinsonseurope.bsky.social
June 9, 2025 at 5:11 PM
Four years since my diagnosis this June, and here I am—speaking at the annual #EAN2025! What an incredible journey. Even more exciting, my MDS will also be presenting at the same conference.
#ean2025 #neurology #HomeOfNeurology #EANeurology@worldpdcongress.bsky.social @parkinsonseurope.bsky.social
#ean2025 #neurology #HomeOfNeurology #EANeurology@worldpdcongress.bsky.social @parkinsonseurope.bsky.social
Video 2: Part 2: Health Secretary Wes Streeting & The Baker🥊 @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social #Parkinsonsawareness in
June 6, 2025 at 8:12 PM
Video 2: Part 2: Health Secretary Wes Streeting & The Baker🥊 @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social #Parkinsonsawareness in
Was great to have Health Secretary Wes Streeting not just turn up but joined in - spoke to fellow Parkies wasn't rushed at all thank you🥊 also thank you to Gillian ( Movers & Shakers) & Gaynor Edwards (Spotlight YOPD) turn up and join in🥊 @worldpdcongress.bsky.social @parkinsons.org.uk
June 6, 2025 at 6:06 PM
Was great to have Health Secretary Wes Streeting not just turn up but joined in - spoke to fellow Parkies wasn't rushed at all thank you🥊 also thank you to Gillian ( Movers & Shakers) & Gaynor Edwards (Spotlight YOPD) turn up and join in🥊 @worldpdcongress.bsky.social @parkinsons.org.uk
Age of the AI - maybe this is the way forward? interesting paper on ML & DL and the possibilities @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social eurjmedres.biomedcentral.com/counter/pdf/...
May 26, 2025 at 11:43 AM
Age of the AI - maybe this is the way forward? interesting paper on ML & DL and the possibilities @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social eurjmedres.biomedcentral.com/counter/pdf/...
@parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social @basbloemink.bsky.social #ParkinsonsAwreness
Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with PD: This recent paper shows the importance of a holistic approach lead by the Nurse specialist:
bmcneurol.biomedcentral.com/articles/10.....
bmcneurol.biomedcentral.com/articles/10.....
Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with Parkinson’s disease - BMC Neurology
Objective This study aimed to evaluate the effectiveness of a comprehensive nursing intervention based on Roy’s Adaptation Model (RAM) in improving quality of life, psychological adaptation, and socia...
bmcneurol.biomedcentral.com
May 25, 2025 at 4:14 PM
Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with PD: This recent paper shows the importance of a holistic approach lead by the Nurse specialist:
bmcneurol.biomedcentral.com/articles/10.....
bmcneurol.biomedcentral.com/articles/10.....
Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with Parkinson’s disease - BMC Neurology
Objective This study aimed to evaluate the effectiveness of a comprehensive nursing intervention based on Roy’s Adaptation Model (RAM) in improving quality of life, psychological adaptation, and socia...
bmcneurol.biomedcentral.com
May 25, 2025 at 4:13 PM
Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with PD: This recent paper shows the importance of a holistic approach lead by the Nurse specialist:
bmcneurol.biomedcentral.com/articles/10.....
bmcneurol.biomedcentral.com/articles/10.....
What we eat is just as important as Exercise Long-Term Consumption of UPS Foods and Prodromal Features of Parkinson Disease | Neurology @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social
www.neurology.org/doi/10.1212/...
www.neurology.org/doi/10.1212/...
Long-Term Consumption of Ultraprocessed Foods and Prodromal Features of Parkinson Disease | Neurology
Background and ObjectivesConsumption of ultraprocessed foods (UPFs) has been associated with a higher risk
of various chronic diseases, but its relation to prodromal Parkinson disease (PD)
remains unc...
www.neurology.org
May 8, 2025 at 1:35 AM
What we eat is just as important as Exercise Long-Term Consumption of UPS Foods and Prodromal Features of Parkinson Disease | Neurology @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social
www.neurology.org/doi/10.1212/...
www.neurology.org/doi/10.1212/...
This paper shows the importance and difference it makes for #Parkinsons people if a interdisciplinary gastrointestinal care is in place: @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net journals.sagepub.com/doi/epub/10....
May 5, 2025 at 4:43 PM
This paper shows the importance and difference it makes for #Parkinsons people if a interdisciplinary gastrointestinal care is in place: @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net journals.sagepub.com/doi/epub/10....
Today the government of UK will be debating on #parkinsons in www.parliamentlive.tv/Commons @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net @worldpdcongress.bsky.social
Parliamentlive.tv - Commons
www.parliamentlive.tv
May 1, 2025 at 6:00 AM
Today the government of UK will be debating on #parkinsons in www.parliamentlive.tv/Commons @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net @worldpdcongress.bsky.social
What a great session today on #WorldParkinsonsDay @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social #Parkinsons
April 11, 2025 at 4:06 PM
What a great session today on #WorldParkinsonsDay @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social #Parkinsons
#parkinsonsawareness
#parkinsons
@parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social @efna.net
#parkinsons
@parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social @efna.net
April 11, 2025 at 12:07 PM
Reposted by Dopamine Warriors
EFNA's 2025 #StrongerConnected workshop is taking place in Brussels today, where representatives of our member organisations, our Community Advisory Board, patient and caregiver advocates, and industry partners have gathered to discuss the topic of #healthliteracy.
April 9, 2025 at 10:14 AM
EFNA's 2025 #StrongerConnected workshop is taking place in Brussels today, where representatives of our member organisations, our Community Advisory Board, patient and caregiver advocates, and industry partners have gathered to discuss the topic of #healthliteracy.
Just waiting for my friend Neil Russell on his epic 100mile run from Oxford to Cambridge in one go 😳, will join him just under halfway mark🥊
@parkinsons.org.uk @parkinsonseurope.bsky.social
@worldpdcongress.bsky.social
Do show your support:
www.neilstillcan.run
@parkinsons.org.uk @parkinsonseurope.bsky.social
@worldpdcongress.bsky.social
Do show your support:
www.neilstillcan.run
April 5, 2025 at 6:08 PM
Just waiting for my friend Neil Russell on his epic 100mile run from Oxford to Cambridge in one go 😳, will join him just under halfway mark🥊
@parkinsons.org.uk @parkinsonseurope.bsky.social
@worldpdcongress.bsky.social
Do show your support:
www.neilstillcan.run
@parkinsons.org.uk @parkinsonseurope.bsky.social
@worldpdcongress.bsky.social
Do show your support:
www.neilstillcan.run
Delighted to be invited to the special screening’Worlds Toughest Drive’ by retd Col Guy Deacon - www.guydeacon.co.uk #Parkinsonsawareness @worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk
April 3, 2025 at 7:14 AM
Delighted to be invited to the special screening’Worlds Toughest Drive’ by retd Col Guy Deacon - www.guydeacon.co.uk #Parkinsonsawareness @worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk
Reposted by Dopamine Warriors
Thank you to The Parliament for bringing us all together for such an inspiring session. 🙌
#Parkinsons #Parkinson #EUParliament 3/3
#Parkinsons #Parkinson #EUParliament 3/3
March 26, 2025 at 12:43 PM
Thank you to The Parliament for bringing us all together for such an inspiring session. 🙌
#Parkinsons #Parkinson #EUParliament 3/3
#Parkinsons #Parkinson #EUParliament 3/3
www.prd-journal.com/article/S135...
Debate on the role of genetic profiling in DBS candidacy assessment in Parkinson’s disease.
Supporters argue genetic profiles predict cognitive decline risk and inform patient decisions.
Debate on the role of genetic profiling in DBS candidacy assessment in Parkinson’s disease.
Supporters argue genetic profiles predict cognitive decline risk and inform patient decisions.
Convention vs. Innovation II: Genetic profiles should be a standard consideration in the assessment for deep brain stimulation candidacy for people with Parkinson’s disease (PSG Debate 2024)
The 10th Annual Symposium on “Shaping the Management of Parkinson’s Disease” in 2024,
hosted by the Parkinson Study Group (PSG) and the Cleveland Clinic, brought together
leading experts to discuss co...
www.prd-journal.com
March 26, 2025 at 9:56 AM
www.prd-journal.com/article/S135...
Debate on the role of genetic profiling in DBS candidacy assessment in Parkinson’s disease.
Supporters argue genetic profiles predict cognitive decline risk and inform patient decisions.
Debate on the role of genetic profiling in DBS candidacy assessment in Parkinson’s disease.
Supporters argue genetic profiles predict cognitive decline risk and inform patient decisions.
Convention vs. Innovation II: Genetic profiles should be a standard consideration in the assessment for deep brain stimulation candidacy for people with Parkinson’s disease (PSG Debate 2024)
The 10th Annual Symposium on “Shaping the Management of Parkinson’s Disease” in 2024,
hosted by the Parkinson Study Group (PSG) and the Cleveland Clinic, brought together
leading experts to discuss co...
www.prd-journal.com
March 26, 2025 at 9:54 AM
www.prd-journal.com/article/S135...
Debate on the role of genetic profiling in DBS candidacy assessment in Parkinson’s disease.
Supporters argue genetic profiles predict cognitive decline risk and inform patient decisions.
Debate on the role of genetic profiling in DBS candidacy assessment in Parkinson’s disease.
Supporters argue genetic profiles predict cognitive decline risk and inform patient decisions.
AI tech improves #parkinsons diagnosis @worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk @michaelokun.bsky.social
www.sciencedaily.com/releases/202...
www.sciencedaily.com/releases/202...
March 20, 2025 at 12:47 PM
Parkinsonism & Related Disorders:
Conclusions
Our observations suggest that aerobic-based combined exercise and exercise sessions lasting 60 minutes or longer may be associated with greater improvements in motor symptoms in patients with PD.
www.prd-journal.com/article/S135...
@parkinsons.org.uk
Conclusions
Our observations suggest that aerobic-based combined exercise and exercise sessions lasting 60 minutes or longer may be associated with greater improvements in motor symptoms in patients with PD.
www.prd-journal.com/article/S135...
@parkinsons.org.uk
Moderators of Aerobic Exercise Effects on Motor Symptoms in Patients with Parkinson's Disease: A Systematic Review and Meta-analysis
Although growing evidence suggests that aerobic exercise has beneficial effects on
motor symptoms in patients with Parkinson’s disease (PD), it remains unclear which
specific aerobic exercise regimen ...
www.prd-journal.com
March 17, 2025 at 5:55 PM
Parkinsonism & Related Disorders:
Conclusions
Our observations suggest that aerobic-based combined exercise and exercise sessions lasting 60 minutes or longer may be associated with greater improvements in motor symptoms in patients with PD.
www.prd-journal.com/article/S135...
@parkinsons.org.uk
Conclusions
Our observations suggest that aerobic-based combined exercise and exercise sessions lasting 60 minutes or longer may be associated with greater improvements in motor symptoms in patients with PD.
www.prd-journal.com/article/S135...
@parkinsons.org.uk
Moderators of Aerobic Exercise Effects on Motor Symptoms in Patients with Parkinson's Disease: A Systematic Review and Meta-analysis
Although growing evidence suggests that aerobic exercise has beneficial effects on
motor symptoms in patients with Parkinson’s disease (PD), it remains unclear which
specific aerobic exercise regimen ...
www.prd-journal.com
March 17, 2025 at 5:55 PM
Parkinsonism & Related Disorders:
Conclusions
Our observations suggest that aerobic-based combined exercise and exercise sessions lasting 60 minutes or longer may be associated with greater improvements in motor symptoms in patients with PD.
www.prd-journal.com/article/S135...
@parkinsons.org.uk
Conclusions
Our observations suggest that aerobic-based combined exercise and exercise sessions lasting 60 minutes or longer may be associated with greater improvements in motor symptoms in patients with PD.
www.prd-journal.com/article/S135...
@parkinsons.org.uk
Has your ability to work or maintain employment been affected by a neurological condition? Share your experience in the comments. @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social
March 16, 2025 at 7:40 AM
Has your ability to work or maintain employment been affected by a neurological condition? Share your experience in the comments. @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social
According to a recent survey, 71% of people with a #neurologicalcondition have had to adjust their role or work schedule because of their condition, of which only 35% report that their employer was accommodating of this change. #BrainAwarenessWeek #BAW2025 #invisibleillness #neurology @efna.net
March 16, 2025 at 7:38 AM
According to a recent survey, 71% of people with a #neurologicalcondition have had to adjust their role or work schedule because of their condition, of which only 35% report that their employer was accommodating of this change. #BrainAwarenessWeek #BAW2025 #invisibleillness #neurology @efna.net