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Dementia Who!
@dementiawho.bsky.social
🔸 Alzheimer's caregiver
🔸 Unpaidcarer
🔸 Blogger: DementiaWho.com
🔸 Caring for mum with Alzheimer's 10yrs 💜
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**Sunday Blog Post**

Goodbye Mamma

"I knew when I saw the Robin sitting on top of your grave waiting for us to approach before it flew of in the distance that this was sign for me that you were alright."

Thank you everyone for all of your kind messages
#dementia

dementiawho.com/goodbye-mamma/
Goodbye Mamma  - DementiaWho!
I knew when I saw the Robin sitting on top of your grave waiting for us to approach before it flew of in the distance that this was sign for me that you were
dementiawho.com
Beyond excited to listen to this, check out the podcast below!
🎙️ Season two first episode...we're speaking to Sir Ed Davey!

MP for Kingston and Surbiton, leader of @libdems.org.uk , a carer and author of a book ‘Why I care: And why care matters’ @eddavey.libdems.org.uk speaks to Care Fully Considered 🎙️

Listen here player.captivate.fm/episode/0e2c...
1/2
November 12, 2025 at 11:01 AM
Reposted by Dementia Who!
🎙️ Season two first episode...we're speaking to Sir Ed Davey!

MP for Kingston and Surbiton, leader of @libdems.org.uk , a carer and author of a book ‘Why I care: And why care matters’ @eddavey.libdems.org.uk speaks to Care Fully Considered 🎙️

Listen here player.captivate.fm/episode/0e2c...
1/2
November 12, 2025 at 10:30 AM
New issue of Memory Matters Weekly is out.
💡 Walking 3000- 5,000 steps a day linked to slower Alzheimer’s decline
🧠 A discovery that could explain why loved ones are forgotten
👩🏽⚕️ The NHS’s new dementia research nurses

Three stories linking science, care, and hope:
Memory Matters Weekly #9 - DementiaWho!
This week’s dementia research highlights walking and brain health, new insight into memory loss, and the NHS launch of Dementia Research Nurses.
buff.ly
November 10, 2025 at 7:26 AM
I used to think helping meant doing everything. Now I know it also means knowing when to stop.

“Safety without smothering” is a balance every caregiver faces, keeping a loved one with #dementia, safe without taking away who they are.

New Blog : buff.ly/szgSF9R

#Dementia #Caregivers #Independence
Safety Without Smothering: Learning When to Step Back in Dementia Care - DementiaWho!
Discover how to keep your loved one safe without taking over. Learning when to step back in dementia care is one step to support independence with gentle awareness.
buff.ly
November 9, 2025 at 7:35 AM
Show 1451: Rethinking Dementia: Is What We Believed about Alzheimer’s Wrong? | The People's Pharmacy

"Instead of focusing only on amyloid plaque in the brain, should we be rethinking dementia? Multiple interventions could protect cognition" www.peoplespharmacy.com/articles/sho...
Show 1451: Rethinking Dementia: Is What We Believed about Alzheimer’s Wrong?
Instead of focusing only on amyloid plaque in the brain, should we be rethinking dementia? Multiple interventions could protect cognition.
www.peoplespharmacy.com
November 7, 2025 at 8:12 AM
How to keep dementia from robbing your loved ones of their sense of personhood – tips for caregivers theconversation.com/how-to-keep-...
How to keep dementia from robbing your loved ones of their sense of personhood – tips for caregivers
Treating people with dementia as full, thriving human beings requires awareness of stigma and simple communication strategies.
theconversation.com
November 7, 2025 at 8:07 AM
Dedicated national network of Dementia Research Nurses launches

"will get nurses on the ground recruiting people from as many different communities and backgrounds as they can into clinical trials, providing support throughout their research journey" www.ucl.ac.uk/news/2025/no...
Dedicated national network of Dementia Research Nurses launches
The UK Dementia Trials Network, led by a UCL professor of neurology, is establishing a dedicated nationwide network of Dementia Research Nurses.
www.ucl.ac.uk
November 7, 2025 at 8:04 AM
‘Severance’ Actor John Turturro Opens Up About His Caregiving Journey www.aarp.org/caregiving/b...
‘Severance’ Actor John Turturro Opens Up About His Caregiving Journey
He reflects on supporting his brother through mental illness and giving grace to caregivers
www.aarp.org
November 6, 2025 at 9:38 AM
What I Wish I’d Done Differently as a Caregiver www.aarp.org/caregiving/b...
What I Wish I’d Done Differently as a Caregiver
AARP’s family and caregiving expert reflects on a traumatic time of caring for her sister and parents and ultimately losing her mom
www.aarp.org
November 6, 2025 at 9:34 AM
Most willing to accept caregiving robots as solution to long-term care challenge www.ucd.ie/newsandopini...
Most willing to accept caregiving robots as solution to long-term care challenge
Posted 5 November, 2025
www.ucd.ie
November 6, 2025 at 9:33 AM
Dealing with dementia: ‘I’m not a wife anymore, I’m a carer. That’s sad, but once Thomas is happy, that’s all I care about’ www.independent.ie/life/health-...
Dealing with dementia: ‘I’m not a wife anymore, I’m a carer. That’s sad, but once Thomas is happy, that’s all I care about’
You are wearing dark sunglasses, but rather than music, there’s a cacophonous audio mashup of the television, the radio and amplified household sounds ringing in your ears. Meanwhile the place is a…
www.independent.ie
November 5, 2025 at 8:56 AM
Teesside photographers share archive to help dementia patients www.bbc.com/news/article...
Teesside photographers share archive to help dementia patients
The pictures help trigger memories and conversations at the University Hospital of North Tees.
www.bbc.com
November 5, 2025 at 8:49 AM
This Alzheimer’s pill story made me angry
52% slower decline, bullshit, caregivers deserve honesty, not marketing spin

This week’s Memory Matters Weekly also looks at:
🎵 Music & dementia risk
🧠 Why men’s brains shrink faster with age

#Dementia #caregivers
Read it here →https://buff.ly/0tCAdao
Memory Matters Weekly #8 - DementiaWho!
This week in dementia research: hype around a new Alzheimer’s pill, music linked to lower dementia risk, and why men’s brains shrink faster all in Memory Matters Weekly #8
buff.ly
November 3, 2025 at 7:13 AM
Memory Matters Weekly #7 is out!
🧠 Brain waste-clearance & dementia
🕒 Disrupted circadian rhythms in Alzheimer’s
🤝 Predicting caregiver distress

Read more 👇
dementiawho.com/memory-matte...
Memory Matters Weekly #7 - DementiaWho!
New dementia research highlights brain waste clearance, disrupted sleep rhythms, and early stress detection for caregivers.
dementiawho.com
October 27, 2025 at 8:11 AM
Memory Matters Weekly #6 is out!
What stood out in dementia research this week:
•Referral gaps to allied health for dementia care
•linking smoking cessation to slower cognitive decline
•Why genes matter in Alzheimer’s risk for African Americans
Read it here:
Memory Matters Weekly #6 - DementiaWho!
New dementia research highlights care gaps in allied health referrals, shows how quitting smoking in midlife may lower dementia risk, and uncovers key genetic clues in African American communities.
buff.ly
October 20, 2025 at 7:05 AM
New Blog Post

How To Reduce Fall Risks At Home For Dementia Caregivers
How To Reduce Fall Risks At Home For Dementia Caregivers - DementiaWho!
Practical ways to reduce fall risks at home for dementia caregivers, from lighting and layout to footwear, mobility aids, and daily routines.
buff.ly
October 19, 2025 at 7:08 AM
More people sought to open up homes for dementia

Lovely idea by Filo project to encourage new experiences & friendships for loved ones with dementia www.bbc.com/news/article...
Home-based dementia day care service seeks hosts
The Filo Project needs more paid hosts who take people with a dementia into their own homes.
www.bbc.com
October 16, 2025 at 7:32 AM
Reposted by Dementia Who!
I'm utterly ashamed people fear for their safety on such a wide scale
@ashleydaltonmp.bsky.social successive governments & the usual media suspects continue to fuel this divide
It's an enmeshed mess!
When we stand by fueling any inequality in the end it hurts all communities
#SafePlaceForAll
October 15, 2025 at 6:50 AM
Reposted by Dementia Who!
This week’s Memory Matters Weekly is live.

Three dementia research stories that stood out:
• Creative experiences may delay brain aging
• Nanotech reversed Alzheimer’s in mice
• A new trial centring dignity in advance care planning

Read full issue: dementiawho.com/memory-matte...
Memory Matters Weekly #5 - DementiaWho!
Memory Matters Weekly #5 - Creative experiences may help delay brain ageing, new nanotech shows promise for reversing Alzheimer’s in mice, and a dementia care trial aims to make advance care planning ...
dementiawho.com
October 13, 2025 at 6:19 AM
Another lost soul, gutted to read that D'Angelo has died, I loved his music, anytime you wanted to feel that mellow groove, he was there, many a time I listened to him after a break up. I still have this album on cd from almost 20 yrs. it always make me feel good, RIP
youtu.be/H_WzjiTzZBA?...
D'Angelo - Brown Sugar
YouTube video by DAngeloVEVO
youtu.be
October 14, 2025 at 5:03 PM
Reposted by Dementia Who!
Kat is so right
Grief has a sneaky way of turning up just when you think you've dealt with it
How do you fill that space when your loved one who filled up your days & nights so completely has gone?
This is an honestly raw blog & beautiful for it
#dementia #carers #blog
*New Blog Post*

What happens after the caring ends?

People talk a lot about support during caregiving. But what about the moment after, when everything goes quiet?

That's the question that I was asked that led to this blog, read more below⬇️
Post Caregiving Support: The Gap No One Talks About - DementiaWho!
There is no post caregiving support pathway. It is a gap you have to cross by yourself.
buff.ly
October 13, 2025 at 5:56 AM
Faster MRI scans could help end dementia diagnosis ‘postcode lottery’ www.independent.co.uk/news/health/...
Faster MRI scans could help end dementia diagnosis ‘postcode lottery’
There are currently estimated to be 982,000 people with dementia in the UK, but more than a third of people with the condition do not have a diagnosis
www.independent.co.uk
October 14, 2025 at 7:48 AM