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dementiawho.bsky.social
Dementia Who!
@dementiawho.bsky.social
🔸 Alzheimer's caregiver
🔸 Unpaidcarer
🔸 Blogger: DementiaWho.com
🔸 Caring for mum with Alzheimer's 10yrs 💜
The govt says Carer’s Allowance is safe, but when the person you care for loses their PIP under new reforms, you lose your Carer’s Allowance, because an assessment decided your loved one no longer qualifies. It’s a quiet way to cut support.

Protect the benefits that keep us going! #carersweek
June 10, 2025 at 6:03 AM
#CarersWeek -The theme is Caring About Equality.

But there’s nothing equal about doing full-time care for £83.30 and losing it if your loved one’s benefits change

I’m not caring now, but I'd be so worried, & anxious now.

Equality must mean protecting carers.
June 9, 2025 at 7:37 AM
Been craving this, so finally made it, my attempt at a shakshouka. Not bad, over cooked the eggs, but made a massive batch of the sauce to freeze so I can practise the egg timing. The Turkish restaurant we have this in adds aubergine so I did too. Eat straight from the pan 😋.
April 21, 2025 at 1:11 PM
Eid Mubarak to you all.

I wish you all nothing but happiness this Eid 💜
March 30, 2025 at 8:41 AM
When Caring Ends

You're stuck in this void of grief and emptiness trying to deal with the crazy death admin that needs to happen when you just want to curl up in bed and do nothing #grief #dementia #caregiver
February 10, 2025 at 11:19 AM
When Caring Ends Tips

MOTABILITY
Let them know before using Tell It Once if you shared the car to keep it up to 2 wks or get a hire car

Our registrar completed our Tell It Once & almost lost our car a day before the funeral. Advise them you use it so tax is not cancelled
#grief
February 7, 2025 at 9:04 AM
Mum's been in hospital for 10 days now & I've not eaten or eaten junk food. Today decided cook the Christmas delivery I forgot to cancel, it's just me mind you & I forgot to cook the broccoli

The chicken is peri peri, made the gravy spicy, yum, going for a snooze now 😂 & still have mince pies to go
December 28, 2024 at 4:07 PM
Mum not well again, another UTI, did i mention that i hate catheters🤬🤬

She's not well, but being very vocal today, compared to the last few days of quiet & sleeping more. Grateful for her brightness this morning.

Hope your loved ones are doing well, have a good weekend #dementia
December 6, 2024 at 10:11 AM
Morning all, the sun is shining finally after all that rain!

Breakfast treat today of croissants & lovely cup of Redbush tea in my travel mug as every caregiver knows you never get to finish still hot when your loved one with dementia needs you, so travel mug works for me!

Have a lovely Tuesday 💜
November 26, 2024 at 9:30 AM
Difficult morning today, mum won't open her eyes, refused brekkie & meds. Gave up left her to sleep. Roused her & moved her to the recliner

Different person, brought an easy to eat dhal lunch for her dysphagia, demolished the lot even the greens she hates & promptly fell back to sleep 🤷
#dementia
November 22, 2024 at 2:11 PM
When you're decluttering your mum's stuff & find she trained as a seamstress, one of her first pieces is still intact, never used peg bag + competence assessment sheet dating back to 1990

She made all our clothes, curtains &, more when we were younger 💜💜💜 #stuffoflife #dementia
November 21, 2024 at 11:52 AM
Omg, it's now SNOWING in South Wales, love it, but what the hell 💜🌨️
November 19, 2024 at 10:02 AM
My messy lunch, mum had the same no green veg, was planning a plain chicken & rice for her tummy, but couldn't do it, jazzed up the chicken with honey, garlic, soy, ginger marinade!

How did I not the joys of crispy chicken skin before now?!?

What did you have?

#dementia #caregiver
November 18, 2024 at 2:35 PM