Stacey Tinianov, MPH
@coffeemommy.bsky.social
Strategic Advocacy Partnerships & Patient Engagement.
Co-Creation & Community Building. 💗
Coffee drinker. Gardener. Wife. Mom. Breast Cancer. 🙃
Advocates for Collaborative Education (@advocatecollab.bsky.social) #MakeCancerLessShitty #PublicHealth
Co-Creation & Community Building. 💗
Coffee drinker. Gardener. Wife. Mom. Breast Cancer. 🙃
Advocates for Collaborative Education (@advocatecollab.bsky.social) #MakeCancerLessShitty #PublicHealth
Pinned
This reality is not hopeless; it's just harder.
We specialize in bringing patient voices to research; we're awesome at connecting dots btwn research & clinical care; we excel at amplifying voices & pushing for equitable access to quality care; we're all about quality-of-life.
And yes, we suck at selfies!
💗 @jillfeldman4.bsky.social #ASTRO25
And yes, we suck at selfies!
💗 @jillfeldman4.bsky.social #ASTRO25
September 30, 2025 at 2:08 AM
We specialize in bringing patient voices to research; we're awesome at connecting dots btwn research & clinical care; we excel at amplifying voices & pushing for equitable access to quality care; we're all about quality-of-life.
And yes, we suck at selfies!
💗 @jillfeldman4.bsky.social #ASTRO25
And yes, we suck at selfies!
💗 @jillfeldman4.bsky.social #ASTRO25
Looking forward to learning "all the things" at my first @astro-org.bsky.social annual meeting. Started off on the right note when the woman at registration said, "Thank you for your advocacy. Go patient advocates!" and literally punched the air! 🥹 #ASTRO25
September 27, 2025 at 5:34 PM
Looking forward to learning "all the things" at my first @astro-org.bsky.social annual meeting. Started off on the right note when the woman at registration said, "Thank you for your advocacy. Go patient advocates!" and literally punched the air! 🥹 #ASTRO25
Looking forward to this conversation on Thursday.
Ultimately, we want to strengthen the role of advocates in the oncology space — ensuring that individuals' lived experiences and professional expertise can help shape the future of research and healthcare. #CanSky #OncSky
Ultimately, we want to strengthen the role of advocates in the oncology space — ensuring that individuals' lived experiences and professional expertise can help shape the future of research and healthcare. #CanSky #OncSky
Patient advocates are generally underutilized in research and definitely under compensated - this will be a topic of discussion and exploration in our next general meeting on September 11th 10amPT/1pmET - invites should be in your inboxes!
September 8, 2025 at 5:01 PM
For those individuals who somehow remain confused or offended by the term "white privilege" - THIS ⬇️
If someone "looks Latino" the government can detain them.
White people don't have to worry about that and THAT lack of concern is a "privilege" in this country today.
If someone "looks Latino" the government can detain them.
White people don't have to worry about that and THAT lack of concern is a "privilege" in this country today.
BREAKING: By an apparent 6–3 vote, the Supreme Court halts an injunction that had prevented immigration agents from racially profiling Latinos in central California.
Sotomayor, dissenting, says the decision is "unconscionably irreconcilable with our nation's constitutional guarantees."
Sotomayor, dissenting, says the decision is "unconscionably irreconcilable with our nation's constitutional guarantees."
September 8, 2025 at 4:48 PM
For those individuals who somehow remain confused or offended by the term "white privilege" - THIS ⬇️
If someone "looks Latino" the government can detain them.
White people don't have to worry about that and THAT lack of concern is a "privilege" in this country today.
If someone "looks Latino" the government can detain them.
White people don't have to worry about that and THAT lack of concern is a "privilege" in this country today.
For those dealing with the treatment-induced, menopause-y side effects of treatment for HR+ breast cancer like hot flashes and REALLY crappy sleep, this is a very interesting (and hopeful!) study
#CanSky #MakeCancerLessShitty #QoL
#CanSky #MakeCancerLessShitty #QoL
Phase 3 #SymptomScience @nejm.org RCT of elinzanetant vs placebo for moderate-to-severe vasomotor symptoms in HR+ #breast cancer (n=474) @ascocancer.bsky.social @cancercaremascc.bsky.social @hoperugo.bsky.social @coffeemommy.bsky.social @stage4kelly.bsky.social www.nejm.org/doi/full/10....
September 1, 2025 at 8:01 PM
For those dealing with the treatment-induced, menopause-y side effects of treatment for HR+ breast cancer like hot flashes and REALLY crappy sleep, this is a very interesting (and hopeful!) study
#CanSky #MakeCancerLessShitty #QoL
#CanSky #MakeCancerLessShitty #QoL
Still orienting myself on this platform after 15 yrs on the other one. Looking for my fellow cancer patient advocates / research advocates located in the San Francisco Bay area - who else has made the jump?
#bcsm #crcsm #gyncsm #lcsm #cancer
#CanSky #OncoSky #OncSky #WhatAreTheCorrectHashtagsNow
#bcsm #crcsm #gyncsm #lcsm #cancer
#CanSky #OncoSky #OncSky #WhatAreTheCorrectHashtagsNow
August 21, 2025 at 3:17 PM
"Not the kind of hope that pretends everything’s fine, but a hope that’s laced with determination and innovation through action" ~ Dr. @fumikochino.bsky.social on moving forward in cancer (in life!) under today's reality
Advocates are used to swimming upstream; so are our healthcare teams #CanSky
Advocates are used to swimming upstream; so are our healthcare teams #CanSky
We have agency.
We can speak up. We can show up.
Advocating for cancer care means speaking to legislators, bringing patient stories to the front lines of policymakers, supporting & amplifying each other to continue to do the work that changes outcomes.
➡️ @oncoalert.bsky.social @statnews.com
We can speak up. We can show up.
Advocating for cancer care means speaking to legislators, bringing patient stories to the front lines of policymakers, supporting & amplifying each other to continue to do the work that changes outcomes.
➡️ @oncoalert.bsky.social @statnews.com
Cancer care is in crisis — but I’ve seen what hope can do
“I became a doctor because I lost someone I loved. I stayed because I believe in what we do together,” writes art director turned oncologist Fumiko Chino.
www.statnews.com
August 6, 2025 at 8:33 PM
"Not the kind of hope that pretends everything’s fine, but a hope that’s laced with determination and innovation through action" ~ Dr. @fumikochino.bsky.social on moving forward in cancer (in life!) under today's reality
Advocates are used to swimming upstream; so are our healthcare teams #CanSky
Advocates are used to swimming upstream; so are our healthcare teams #CanSky
Fuck cancer
Fuck treatment toxicities
Missing friends
Mourning an imminent loss
Angry as hell
Yelling into the digital void and searching for peace and acceptance through art and nature 💔
#CanSky #MakeCancerLessShitty
Fuck treatment toxicities
Missing friends
Mourning an imminent loss
Angry as hell
Yelling into the digital void and searching for peace and acceptance through art and nature 💔
#CanSky #MakeCancerLessShitty
August 5, 2025 at 5:11 PM
Fuck cancer
Fuck treatment toxicities
Missing friends
Mourning an imminent loss
Angry as hell
Yelling into the digital void and searching for peace and acceptance through art and nature 💔
#CanSky #MakeCancerLessShitty
Fuck treatment toxicities
Missing friends
Mourning an imminent loss
Angry as hell
Yelling into the digital void and searching for peace and acceptance through art and nature 💔
#CanSky #MakeCancerLessShitty
Wow!
"Down by 1200% Down by 1500%"
I'm so damn excited to start getting paid to fill my prescriptions.
😑
#CanSky
#MathMatters
"Down by 1200% Down by 1500%"
I'm so damn excited to start getting paid to fill my prescriptions.
😑
#CanSky
#MathMatters
August 4, 2025 at 1:58 PM
Wow!
"Down by 1200% Down by 1500%"
I'm so damn excited to start getting paid to fill my prescriptions.
😑
#CanSky
#MathMatters
"Down by 1200% Down by 1500%"
I'm so damn excited to start getting paid to fill my prescriptions.
😑
#CanSky
#MathMatters
Quick visit to Colorado!
Watching my 55-year old husband's wide-eyed excitement as we pulled up and hearing him giggle like a 5-year old all evening long was absolutely worth the online reservation hassle AND the price tag
Thanks @casabonitadenver.com for a successful trip down memory lane!
Watching my 55-year old husband's wide-eyed excitement as we pulled up and hearing him giggle like a 5-year old all evening long was absolutely worth the online reservation hassle AND the price tag
Thanks @casabonitadenver.com for a successful trip down memory lane!
August 2, 2025 at 3:07 PM
Quick visit to Colorado!
Watching my 55-year old husband's wide-eyed excitement as we pulled up and hearing him giggle like a 5-year old all evening long was absolutely worth the online reservation hassle AND the price tag
Thanks @casabonitadenver.com for a successful trip down memory lane!
Watching my 55-year old husband's wide-eyed excitement as we pulled up and hearing him giggle like a 5-year old all evening long was absolutely worth the online reservation hassle AND the price tag
Thanks @casabonitadenver.com for a successful trip down memory lane!
A pleasure and an honor to join @fumikochino.bsky.social & Dr. Ethan Ludmir in this @ascocancer.bsky.social conversation on incomplete reporting and toxicity- minimizing language in oncology! 💗
“When choosing cancer therapies, people should not have to choose between being alive & living”
Toxicity minimizing language ("safe” & “tolerable”) are subjective & can downplay QOL limiting side effects from treatment.
🚨New @ascocancer.bsky.social Podcast is live today!
@coffeemommy.bsky.social
Toxicity minimizing language ("safe” & “tolerable”) are subjective & can downplay QOL limiting side effects from treatment.
🚨New @ascocancer.bsky.social Podcast is live today!
@coffeemommy.bsky.social
Incomplete Reporting and Toxicity-Minimizing Language in Oncology | Podcast | ASCO Publications
There is often a disconnect in toxicity assessment between what is reported on clinical trials as being “well tolerated” and the lived experience of taking a treatment for patients. Toxicity minimizin...
ascopubs.org
July 28, 2025 at 11:53 PM
A pleasure and an honor to join @fumikochino.bsky.social & Dr. Ethan Ludmir in this @ascocancer.bsky.social conversation on incomplete reporting and toxicity- minimizing language in oncology! 💗
Whether you're a Coach Prime fan or not, super hard not to be a fan of the human in this moment. Cancer sucks & those who openly share their realities not only break down social stigma but also help others feel less alone 💗
All the best to Deion Sanders (and #SkoBuffs) #CanSky #MakeCancerLessShitty
All the best to Deion Sanders (and #SkoBuffs) #CanSky #MakeCancerLessShitty
Deion Sanders jokes he “depends on Depends” and “if you see a Port-a-Potty on the sideline, it’s real.”
He also encourages everyone who is dealing with urinary struggles, and says “let’s stop being ashamed of it”
He also encourages everyone who is dealing with urinary struggles, and says “let’s stop being ashamed of it”
July 28, 2025 at 11:47 PM
Whether you're a Coach Prime fan or not, super hard not to be a fan of the human in this moment. Cancer sucks & those who openly share their realities not only break down social stigma but also help others feel less alone 💗
All the best to Deion Sanders (and #SkoBuffs) #CanSky #MakeCancerLessShitty
All the best to Deion Sanders (and #SkoBuffs) #CanSky #MakeCancerLessShitty
Hope to see many of you on the call later this week! ♥️
@bobriter.bsky.social @gotchascaccia.bsky.social @gitteilc.bsky.social @raalbany.bsky.social @stageivsurvivor.bsky.social @arosen380.bsky.social @jillfeldman4.bsky.social @terrylynnarnold.bsky.social @barbarasegarra.bsky.social
@bobriter.bsky.social @gotchascaccia.bsky.social @gitteilc.bsky.social @raalbany.bsky.social @stageivsurvivor.bsky.social @arosen380.bsky.social @jillfeldman4.bsky.social @terrylynnarnold.bsky.social @barbarasegarra.bsky.social
Join us for a mid-summer update on our projects, our publications & presentations, our sponsors, and ways you can become more involved in @advocatecollab.bsky.social
All members should have an invite for July 17th at 10amPT / 1pmET. If you're not yet a member, join us here forms.gle/VWT7MZHEc5qh...
All members should have an invite for July 17th at 10amPT / 1pmET. If you're not yet a member, join us here forms.gle/VWT7MZHEc5qh...
July 15, 2025 at 9:59 PM
Hope to see many of you on the call later this week! ♥️
@bobriter.bsky.social @gotchascaccia.bsky.social @gitteilc.bsky.social @raalbany.bsky.social @stageivsurvivor.bsky.social @arosen380.bsky.social @jillfeldman4.bsky.social @terrylynnarnold.bsky.social @barbarasegarra.bsky.social
@bobriter.bsky.social @gotchascaccia.bsky.social @gitteilc.bsky.social @raalbany.bsky.social @stageivsurvivor.bsky.social @arosen380.bsky.social @jillfeldman4.bsky.social @terrylynnarnold.bsky.social @barbarasegarra.bsky.social
Bringing this one back out and putting it on repeat because, while nature soothes me, I realistically can't stand next to the ocean every waking minute
TY Avett Brothers for the anthem 💗
m.youtube.com/watch?v=zz0J...
TY Avett Brothers for the anthem 💗
m.youtube.com/watch?v=zz0J...
The Avett Brothers - Ain’t No Man (Official Video)
YouTube video by theavettbrothersVEVO
m.youtube.com
July 3, 2025 at 8:06 PM
Bringing this one back out and putting it on repeat because, while nature soothes me, I realistically can't stand next to the ocean every waking minute
TY Avett Brothers for the anthem 💗
m.youtube.com/watch?v=zz0J...
TY Avett Brothers for the anthem 💗
m.youtube.com/watch?v=zz0J...
Thank you Sesttle!
After a fabulous time at #MASCC25, I'm heading home with a full heart & mind. Grateful to all those working to improve supportive care in cancer & thrilled to have had yet another opportunity to share our advocate-led research on the main stages!
Safe travels to all 💗
After a fabulous time at #MASCC25, I'm heading home with a full heart & mind. Grateful to all those working to improve supportive care in cancer & thrilled to have had yet another opportunity to share our advocate-led research on the main stages!
Safe travels to all 💗
June 28, 2025 at 4:01 PM
Thank you Sesttle!
After a fabulous time at #MASCC25, I'm heading home with a full heart & mind. Grateful to all those working to improve supportive care in cancer & thrilled to have had yet another opportunity to share our advocate-led research on the main stages!
Safe travels to all 💗
After a fabulous time at #MASCC25, I'm heading home with a full heart & mind. Grateful to all those working to improve supportive care in cancer & thrilled to have had yet another opportunity to share our advocate-led research on the main stages!
Safe travels to all 💗
We start anti-cancer therapies at the highest dose but start supportive care interventions at the lowest dose... WHY? asks @evaschumacherwulf.bsky.social
#MASCC25 #QoL
#MASCC25 #QoL
June 27, 2025 at 8:23 PM
We start anti-cancer therapies at the highest dose but start supportive care interventions at the lowest dose... WHY? asks @evaschumacherwulf.bsky.social
#MASCC25 #QoL
#MASCC25 #QoL
"Common and uncommon toxicities: Perspectives and solutions from patient partners"
Excited to hear from @scottcapozza.bsky.social @evaschumacherwulf.bsky.social @doublewhammied.bsky.social & others
And then to share our @advocatecollab.bsky.social research #MASCC25
Excited to hear from @scottcapozza.bsky.social @evaschumacherwulf.bsky.social @doublewhammied.bsky.social & others
And then to share our @advocatecollab.bsky.social research #MASCC25
June 27, 2025 at 4:11 PM
"Common and uncommon toxicities: Perspectives and solutions from patient partners"
Excited to hear from @scottcapozza.bsky.social @evaschumacherwulf.bsky.social @doublewhammied.bsky.social & others
And then to share our @advocatecollab.bsky.social research #MASCC25
Excited to hear from @scottcapozza.bsky.social @evaschumacherwulf.bsky.social @doublewhammied.bsky.social & others
And then to share our @advocatecollab.bsky.social research #MASCC25
Kicking off Day 2 of #MASCC25 with "Workshop 3: Beyond Survivorship 101: Building advanced skills in survivorship care" led by Dr Larissa Nekhlyudov,
@darcyburbage.bsky.social and @michael-jefford.bsky.social
@darcyburbage.bsky.social and @michael-jefford.bsky.social
June 27, 2025 at 3:13 PM
Kicking off Day 2 of #MASCC25 with "Workshop 3: Beyond Survivorship 101: Building advanced skills in survivorship care" led by Dr Larissa Nekhlyudov,
@darcyburbage.bsky.social and @michael-jefford.bsky.social
@darcyburbage.bsky.social and @michael-jefford.bsky.social
Shout out to @stage4kelly.bsky.social on her e-poster presentation on the Patient Centered Dosing Initiative at
#MASCC25
And kudos to all co-authors and supporters of PCDI
#MASCC25
And kudos to all co-authors and supporters of PCDI
June 26, 2025 at 10:36 PM
Shout out to @stage4kelly.bsky.social on her e-poster presentation on the Patient Centered Dosing Initiative at
#MASCC25
And kudos to all co-authors and supporters of PCDI
#MASCC25
And kudos to all co-authors and supporters of PCDI
The indomitable @fumikochino.bsky.social highlighting Financial Toxicity: From Data to Practice and Policy Change in Plenary Session 1.
Calling out practical solutions to a huge issue (like free patient parking, streamlined visits and appropriate telemedicine that limit time off from work) #MASCC25
Calling out practical solutions to a huge issue (like free patient parking, streamlined visits and appropriate telemedicine that limit time off from work) #MASCC25
June 26, 2025 at 8:34 PM
The indomitable @fumikochino.bsky.social highlighting Financial Toxicity: From Data to Practice and Policy Change in Plenary Session 1.
Calling out practical solutions to a huge issue (like free patient parking, streamlined visits and appropriate telemedicine that limit time off from work) #MASCC25
Calling out practical solutions to a huge issue (like free patient parking, streamlined visits and appropriate telemedicine that limit time off from work) #MASCC25
Kudos and gratitude to the organizers, attendees, and fellow faculty members for today's Workshop 1: Partnering with patients in managing chronic toxicities of cancer and its treatment #MASCC25
@maryamlustberg.bsky.social @tingtingzhang.bsky.social @ericroeland.bsky.social @brueraeduardo.bsky.social
@maryamlustberg.bsky.social @tingtingzhang.bsky.social @ericroeland.bsky.social @brueraeduardo.bsky.social
June 26, 2025 at 8:29 PM
Kudos and gratitude to the organizers, attendees, and fellow faculty members for today's Workshop 1: Partnering with patients in managing chronic toxicities of cancer and its treatment #MASCC25
@maryamlustberg.bsky.social @tingtingzhang.bsky.social @ericroeland.bsky.social @brueraeduardo.bsky.social
@maryamlustberg.bsky.social @tingtingzhang.bsky.social @ericroeland.bsky.social @brueraeduardo.bsky.social
A wildfire sunrise - easily recognizable after two decades of California living
Beautiful but so much destruction behind (and in front of) it
Safe travels to those leaving #ASCO25 & good energy to those dealing with the wildfires in Canada 💗
Beautiful but so much destruction behind (and in front of) it
Safe travels to those leaving #ASCO25 & good energy to those dealing with the wildfires in Canada 💗
June 3, 2025 at 1:54 PM
A wildfire sunrise - easily recognizable after two decades of California living
Beautiful but so much destruction behind (and in front of) it
Safe travels to those leaving #ASCO25 & good energy to those dealing with the wildfires in Canada 💗
Beautiful but so much destruction behind (and in front of) it
Safe travels to those leaving #ASCO25 & good energy to those dealing with the wildfires in Canada 💗
Outgoing @ascocancer.bsky.social president Dr. Robin Zon and incoming president Dr. Eric Small in the advocacy lounge discussing next year's theme and importance of advocacy in oncology #ASCO25
June 1, 2025 at 9:40 PM
Outgoing @ascocancer.bsky.social president Dr. Robin Zon and incoming president Dr. Eric Small in the advocacy lounge discussing next year's theme and importance of advocacy in oncology #ASCO25
Kicked off Day 2 of #ASCO25 with coffee in the Advocate Lounge
Now looking forward to this session on facilitating informed discussions around evidence-based supportive care
Now looking forward to this session on facilitating informed discussions around evidence-based supportive care
May 31, 2025 at 1:17 PM
Kicked off Day 2 of #ASCO25 with coffee in the Advocate Lounge
Now looking forward to this session on facilitating informed discussions around evidence-based supportive care
Now looking forward to this session on facilitating informed discussions around evidence-based supportive care