Stacey Tinianov, MPH
@coffeemommy.bsky.social
Strategic Advocacy Partnerships & Patient Engagement.
Co-Creation & Community Building. 💗
Coffee drinker. Gardener. Wife. Mom. Breast Cancer. 🙃
Advocates for Collaborative Education (@advocatecollab.bsky.social) #MakeCancerLessShitty #PublicHealth
Co-Creation & Community Building. 💗
Coffee drinker. Gardener. Wife. Mom. Breast Cancer. 🙃
Advocates for Collaborative Education (@advocatecollab.bsky.social) #MakeCancerLessShitty #PublicHealth
We specialize in bringing patient voices to research; we're awesome at connecting dots btwn research & clinical care; we excel at amplifying voices & pushing for equitable access to quality care; we're all about quality-of-life.
And yes, we suck at selfies!
💗 @jillfeldman4.bsky.social #ASTRO25
And yes, we suck at selfies!
💗 @jillfeldman4.bsky.social #ASTRO25
September 30, 2025 at 2:08 AM
We specialize in bringing patient voices to research; we're awesome at connecting dots btwn research & clinical care; we excel at amplifying voices & pushing for equitable access to quality care; we're all about quality-of-life.
And yes, we suck at selfies!
💗 @jillfeldman4.bsky.social #ASTRO25
And yes, we suck at selfies!
💗 @jillfeldman4.bsky.social #ASTRO25
Many butts in seats for "When the Physician Becomes the Patient" by Dr. Bobby Mukkamala, AMA president who was diagnosed with a large temporal lobe tumor in 2024. #ASTRO25
September 29, 2025 at 4:27 PM
Many butts in seats for "When the Physician Becomes the Patient" by Dr. Bobby Mukkamala, AMA president who was diagnosed with a large temporal lobe tumor in 2024. #ASTRO25
Particularly interesting point in light of the profound SE/challenges many individuals face with endocrine therapy. Discussant cautions, "more long term follow-up needed"
#ASTRO25 #CanSky #OncoSky #breastcancer
#ASTRO25 #CanSky #OncoSky #breastcancer
September 28, 2025 at 3:26 PM
Particularly interesting point in light of the profound SE/challenges many individuals face with endocrine therapy. Discussant cautions, "more long term follow-up needed"
#ASTRO25 #CanSky #OncoSky #breastcancer
#ASTRO25 #CanSky #OncoSky #breastcancer
Kicking off Day 2 (or official Day 1) of #ASTRO25 w/ "Breast Science" session. AKA a session highlighting significant breast-related presentations that will be shared at the @astro-org.bsky.social meeting
Theme seems to be "right-sizing" treatments (although presenter still using term de-escalation)
Theme seems to be "right-sizing" treatments (although presenter still using term de-escalation)
September 28, 2025 at 3:20 PM
Kicking off Day 2 (or official Day 1) of #ASTRO25 w/ "Breast Science" session. AKA a session highlighting significant breast-related presentations that will be shared at the @astro-org.bsky.social meeting
Theme seems to be "right-sizing" treatments (although presenter still using term de-escalation)
Theme seems to be "right-sizing" treatments (although presenter still using term de-escalation)
Forgot to take pics during the economics preso and now learning about Extranodal Marginal Zone Lymphoma and associated conditions
Again, learning all kinds of new things here that I did NOT expect to learn at a Radiation Oncology meeting! #ASTRO25
Again, learning all kinds of new things here that I did NOT expect to learn at a Radiation Oncology meeting! #ASTRO25
September 27, 2025 at 11:11 PM
Forgot to take pics during the economics preso and now learning about Extranodal Marginal Zone Lymphoma and associated conditions
Again, learning all kinds of new things here that I did NOT expect to learn at a Radiation Oncology meeting! #ASTRO25
Again, learning all kinds of new things here that I did NOT expect to learn at a Radiation Oncology meeting! #ASTRO25
First up on Day 1
Randomized control trial (RCT) for prophylactic rads for ASYMPTOMATIC bone mets showed some interesting results. Will now be moving to Phase 3 study and power for OS benefit analysis
#ASTRO25
Randomized control trial (RCT) for prophylactic rads for ASYMPTOMATIC bone mets showed some interesting results. Will now be moving to Phase 3 study and power for OS benefit analysis
#ASTRO25
September 27, 2025 at 6:27 PM
First up on Day 1
Randomized control trial (RCT) for prophylactic rads for ASYMPTOMATIC bone mets showed some interesting results. Will now be moving to Phase 3 study and power for OS benefit analysis
#ASTRO25
Randomized control trial (RCT) for prophylactic rads for ASYMPTOMATIC bone mets showed some interesting results. Will now be moving to Phase 3 study and power for OS benefit analysis
#ASTRO25
Looking forward to learning "all the things" at my first @astro-org.bsky.social annual meeting. Started off on the right note when the woman at registration said, "Thank you for your advocacy. Go patient advocates!" and literally punched the air! 🥹 #ASTRO25
September 27, 2025 at 5:34 PM
Looking forward to learning "all the things" at my first @astro-org.bsky.social annual meeting. Started off on the right note when the woman at registration said, "Thank you for your advocacy. Go patient advocates!" and literally punched the air! 🥹 #ASTRO25
Still orienting myself on this platform after 15 yrs on the other one. Looking for my fellow cancer patient advocates / research advocates located in the San Francisco Bay area - who else has made the jump?
#bcsm #crcsm #gyncsm #lcsm #cancer
#CanSky #OncoSky #OncSky #WhatAreTheCorrectHashtagsNow
#bcsm #crcsm #gyncsm #lcsm #cancer
#CanSky #OncoSky #OncSky #WhatAreTheCorrectHashtagsNow
August 21, 2025 at 3:17 PM
Fuck cancer
Fuck treatment toxicities
Missing friends
Mourning an imminent loss
Angry as hell
Yelling into the digital void and searching for peace and acceptance through art and nature 💔
#CanSky #MakeCancerLessShitty
Fuck treatment toxicities
Missing friends
Mourning an imminent loss
Angry as hell
Yelling into the digital void and searching for peace and acceptance through art and nature 💔
#CanSky #MakeCancerLessShitty
August 5, 2025 at 5:11 PM
Fuck cancer
Fuck treatment toxicities
Missing friends
Mourning an imminent loss
Angry as hell
Yelling into the digital void and searching for peace and acceptance through art and nature 💔
#CanSky #MakeCancerLessShitty
Fuck treatment toxicities
Missing friends
Mourning an imminent loss
Angry as hell
Yelling into the digital void and searching for peace and acceptance through art and nature 💔
#CanSky #MakeCancerLessShitty
Quick visit to Colorado!
Watching my 55-year old husband's wide-eyed excitement as we pulled up and hearing him giggle like a 5-year old all evening long was absolutely worth the online reservation hassle AND the price tag
Thanks @casabonitadenver.com for a successful trip down memory lane!
Watching my 55-year old husband's wide-eyed excitement as we pulled up and hearing him giggle like a 5-year old all evening long was absolutely worth the online reservation hassle AND the price tag
Thanks @casabonitadenver.com for a successful trip down memory lane!
August 2, 2025 at 3:07 PM
Quick visit to Colorado!
Watching my 55-year old husband's wide-eyed excitement as we pulled up and hearing him giggle like a 5-year old all evening long was absolutely worth the online reservation hassle AND the price tag
Thanks @casabonitadenver.com for a successful trip down memory lane!
Watching my 55-year old husband's wide-eyed excitement as we pulled up and hearing him giggle like a 5-year old all evening long was absolutely worth the online reservation hassle AND the price tag
Thanks @casabonitadenver.com for a successful trip down memory lane!
Thank you Sesttle!
After a fabulous time at #MASCC25, I'm heading home with a full heart & mind. Grateful to all those working to improve supportive care in cancer & thrilled to have had yet another opportunity to share our advocate-led research on the main stages!
Safe travels to all 💗
After a fabulous time at #MASCC25, I'm heading home with a full heart & mind. Grateful to all those working to improve supportive care in cancer & thrilled to have had yet another opportunity to share our advocate-led research on the main stages!
Safe travels to all 💗
June 28, 2025 at 4:01 PM
Thank you Sesttle!
After a fabulous time at #MASCC25, I'm heading home with a full heart & mind. Grateful to all those working to improve supportive care in cancer & thrilled to have had yet another opportunity to share our advocate-led research on the main stages!
Safe travels to all 💗
After a fabulous time at #MASCC25, I'm heading home with a full heart & mind. Grateful to all those working to improve supportive care in cancer & thrilled to have had yet another opportunity to share our advocate-led research on the main stages!
Safe travels to all 💗
We start anti-cancer therapies at the highest dose but start supportive care interventions at the lowest dose... WHY? asks @evaschumacherwulf.bsky.social
#MASCC25 #QoL
#MASCC25 #QoL
June 27, 2025 at 8:23 PM
We start anti-cancer therapies at the highest dose but start supportive care interventions at the lowest dose... WHY? asks @evaschumacherwulf.bsky.social
#MASCC25 #QoL
#MASCC25 #QoL
#WordsMatter
Discussion around the word "Survivor" in cancer circles. The moniker doesn't resonate with many - ask how people want to be labeled or even IF they want a label. #MASCC25
Discussion around the word "Survivor" in cancer circles. The moniker doesn't resonate with many - ask how people want to be labeled or even IF they want a label. #MASCC25
June 27, 2025 at 4:54 PM
#WordsMatter
Discussion around the word "Survivor" in cancer circles. The moniker doesn't resonate with many - ask how people want to be labeled or even IF they want a label. #MASCC25
Discussion around the word "Survivor" in cancer circles. The moniker doesn't resonate with many - ask how people want to be labeled or even IF they want a label. #MASCC25
Nuances of changing therapies from @evaschumacherwulf.bsky.social includes education, options, encouragement, flexibility, and need for multidisciplinary support #MASCC25
June 27, 2025 at 4:18 PM
Nuances of changing therapies from @evaschumacherwulf.bsky.social includes education, options, encouragement, flexibility, and need for multidisciplinary support #MASCC25
"Common and uncommon toxicities: Perspectives and solutions from patient partners"
Excited to hear from @scottcapozza.bsky.social @evaschumacherwulf.bsky.social @doublewhammied.bsky.social & others
And then to share our @advocatecollab.bsky.social research #MASCC25
Excited to hear from @scottcapozza.bsky.social @evaschumacherwulf.bsky.social @doublewhammied.bsky.social & others
And then to share our @advocatecollab.bsky.social research #MASCC25
June 27, 2025 at 4:11 PM
"Common and uncommon toxicities: Perspectives and solutions from patient partners"
Excited to hear from @scottcapozza.bsky.social @evaschumacherwulf.bsky.social @doublewhammied.bsky.social & others
And then to share our @advocatecollab.bsky.social research #MASCC25
Excited to hear from @scottcapozza.bsky.social @evaschumacherwulf.bsky.social @doublewhammied.bsky.social & others
And then to share our @advocatecollab.bsky.social research #MASCC25
All, Many, Some, Few framework describing capabilities for discussing and guiding individuals providing survivorship care shared by @michael-jefford.bsky.social
Love this framework and see @advocatecollab.bsky.social opportunities to modify for advocate audience! #MASCC25
Love this framework and see @advocatecollab.bsky.social opportunities to modify for advocate audience! #MASCC25
June 27, 2025 at 3:26 PM
All, Many, Some, Few framework describing capabilities for discussing and guiding individuals providing survivorship care shared by @michael-jefford.bsky.social
Love this framework and see @advocatecollab.bsky.social opportunities to modify for advocate audience! #MASCC25
Love this framework and see @advocatecollab.bsky.social opportunities to modify for advocate audience! #MASCC25
Kicking off Day 2 of #MASCC25 with "Workshop 3: Beyond Survivorship 101: Building advanced skills in survivorship care" led by Dr Larissa Nekhlyudov,
@darcyburbage.bsky.social and @michael-jefford.bsky.social
@darcyburbage.bsky.social and @michael-jefford.bsky.social
June 27, 2025 at 3:13 PM
Kicking off Day 2 of #MASCC25 with "Workshop 3: Beyond Survivorship 101: Building advanced skills in survivorship care" led by Dr Larissa Nekhlyudov,
@darcyburbage.bsky.social and @michael-jefford.bsky.social
@darcyburbage.bsky.social and @michael-jefford.bsky.social
Shout out to @stage4kelly.bsky.social on her e-poster presentation on the Patient Centered Dosing Initiative at
#MASCC25
And kudos to all co-authors and supporters of PCDI
#MASCC25
And kudos to all co-authors and supporters of PCDI
June 26, 2025 at 10:36 PM
Shout out to @stage4kelly.bsky.social on her e-poster presentation on the Patient Centered Dosing Initiative at
#MASCC25
And kudos to all co-authors and supporters of PCDI
#MASCC25
And kudos to all co-authors and supporters of PCDI
The indomitable @fumikochino.bsky.social highlighting Financial Toxicity: From Data to Practice and Policy Change in Plenary Session 1.
Calling out practical solutions to a huge issue (like free patient parking, streamlined visits and appropriate telemedicine that limit time off from work) #MASCC25
Calling out practical solutions to a huge issue (like free patient parking, streamlined visits and appropriate telemedicine that limit time off from work) #MASCC25
June 26, 2025 at 8:34 PM
The indomitable @fumikochino.bsky.social highlighting Financial Toxicity: From Data to Practice and Policy Change in Plenary Session 1.
Calling out practical solutions to a huge issue (like free patient parking, streamlined visits and appropriate telemedicine that limit time off from work) #MASCC25
Calling out practical solutions to a huge issue (like free patient parking, streamlined visits and appropriate telemedicine that limit time off from work) #MASCC25
Kudos and gratitude to the organizers, attendees, and fellow faculty members for today's Workshop 1: Partnering with patients in managing chronic toxicities of cancer and its treatment #MASCC25
@maryamlustberg.bsky.social @tingtingzhang.bsky.social @ericroeland.bsky.social @brueraeduardo.bsky.social
@maryamlustberg.bsky.social @tingtingzhang.bsky.social @ericroeland.bsky.social @brueraeduardo.bsky.social
June 26, 2025 at 8:29 PM
Kudos and gratitude to the organizers, attendees, and fellow faculty members for today's Workshop 1: Partnering with patients in managing chronic toxicities of cancer and its treatment #MASCC25
@maryamlustberg.bsky.social @tingtingzhang.bsky.social @ericroeland.bsky.social @brueraeduardo.bsky.social
@maryamlustberg.bsky.social @tingtingzhang.bsky.social @ericroeland.bsky.social @brueraeduardo.bsky.social
A wildfire sunrise - easily recognizable after two decades of California living
Beautiful but so much destruction behind (and in front of) it
Safe travels to those leaving #ASCO25 & good energy to those dealing with the wildfires in Canada 💗
Beautiful but so much destruction behind (and in front of) it
Safe travels to those leaving #ASCO25 & good energy to those dealing with the wildfires in Canada 💗
June 3, 2025 at 1:54 PM
A wildfire sunrise - easily recognizable after two decades of California living
Beautiful but so much destruction behind (and in front of) it
Safe travels to those leaving #ASCO25 & good energy to those dealing with the wildfires in Canada 💗
Beautiful but so much destruction behind (and in front of) it
Safe travels to those leaving #ASCO25 & good energy to those dealing with the wildfires in Canada 💗
