CarolG
@cg66.bsky.social
Long COVID warrior, fighting for answers, help, awareness, fair treatment, understanding and respect! #COVID #Long COVID #mask-up #COVID is airborne #clean air #follow the science #not recovered #advocating#LongCOVIDCanadaCollaborative(LC3)
Reposted by CarolG
Earlier this week, the CBC broadcast an interview with Gill Deacon, discussing her Long COVID recovery using brain retraining.
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
CBC’s Flagship Program Platforms “Quackery” for Long COVID
CBC's national broadcast aired an interview with Gill Deacon about her Long COVID recovery. Deacon used an unproven program called the Lightning Process that's been criticized for exploiting patients ...
simonspichak.beehiiv.com
October 31, 2025 at 9:10 PM
Earlier this week, the CBC broadcast an interview with Gill Deacon, discussing her Long COVID recovery using brain retraining.
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.
simonspichak.beehiiv.com/p/cbc-flagsh...
1/n
Reposted by CarolG
How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
Sign the Petition
Demand Federal Action on Biomedical Care for Children Living with Long COVID
chng.it
October 6, 2025 at 2:50 PM
How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
Reposted by CarolG
CCS members Rebecca Lewkowicz and Dr. Susan Kuo are featured in this article about long Covid in children. Rebecca shares her son's extreme pain & nausea from long Covid, and Dr. Kuo discusses the lack of awareness of children's long Covid among doctors.
Gift article: www.thestar.com/news/canada/...
Gift article: www.thestar.com/news/canada/...
Long COVID left her son with debilitating stomach pain. Why it’s an ‘uphill battle’ for so many kids to get treated
Children living with long COVID face an uphill battle to access care or even have their symptoms believed, parents and doctors say. Here’s why.
www.thestar.com
August 21, 2025 at 9:32 PM
CCS members Rebecca Lewkowicz and Dr. Susan Kuo are featured in this article about long Covid in children. Rebecca shares her son's extreme pain & nausea from long Covid, and Dr. Kuo discusses the lack of awareness of children's long Covid among doctors.
Gift article: www.thestar.com/news/canada/...
Gift article: www.thestar.com/news/canada/...
Reposted by CarolG
Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS,
www.beckershospitalreview.com/quality/pati...
1/
www.beckershospitalreview.com/quality/pati...
1/
Mount Sinai publishes 1st US guide for infection-linked chronic illnesses - Becker's Hospital Review | Healthcare News & Analysis
New York City-based Mount Sinai Health System has released the country’s first clinical manual for treating infection-associated chronic illnesses, according to an Aug. 13 news release. The clinical ...
www.beckershospitalreview.com
August 14, 2025 at 12:30 AM
Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS,
www.beckershospitalreview.com/quality/pati...
1/
www.beckershospitalreview.com/quality/pati...
1/
Reposted by CarolG
So grateful to Dr. Putrino and his team @ CoRE for this amazing initiative which I believe to be an historic event in medicine. This is what gives me hope!
#LongCOVID
#MEcfs
#pwME
#LongCOVID
#MEcfs
#pwME
Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS,
www.beckershospitalreview.com/quality/pati...
1/
www.beckershospitalreview.com/quality/pati...
1/
Mount Sinai publishes 1st US guide for infection-linked chronic illnesses - Becker's Hospital Review | Healthcare News & Analysis
New York City-based Mount Sinai Health System has released the country’s first clinical manual for treating infection-associated chronic illnesses, according to an Aug. 13 news release. The clinical ...
www.beckershospitalreview.com
August 14, 2025 at 5:42 AM
So grateful to Dr. Putrino and his team @ CoRE for this amazing initiative which I believe to be an historic event in medicine. This is what gives me hope!
#LongCOVID
#MEcfs
#pwME
#LongCOVID
#MEcfs
#pwME
Reposted by CarolG
I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/
1) The DecodeME study compared DNA of ca. 15,000 ME/CFS patients and 250,000 controls and found significant differences in 8 regions of our genome.
The Manhattan plot below shows the genes and chromosomes involved.
Let’s unpack the results 🧵
The Manhattan plot below shows the genes and chromosomes involved.
Let’s unpack the results 🧵
August 7, 2025 at 6:19 PM
I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/
Reposted by CarolG
Mount Sinai Creates First Manual for Treating Infection-Associated Chronic Illness for Clinicians
Brilliant work - huge thanks to all involved 👏🏽👏🏽👏🏽
www.mountsinai.org/about/newsro...
Brilliant work - huge thanks to all involved 👏🏽👏🏽👏🏽
www.mountsinai.org/about/newsro...
Mount Sinai Creates First Manual for Treating Infection-Associated Chronic Illness for Clinicians
www.mountsinai.org
August 14, 2025 at 7:31 AM
Mount Sinai Creates First Manual for Treating Infection-Associated Chronic Illness for Clinicians
Brilliant work - huge thanks to all involved 👏🏽👏🏽👏🏽
www.mountsinai.org/about/newsro...
Brilliant work - huge thanks to all involved 👏🏽👏🏽👏🏽
www.mountsinai.org/about/newsro...
Reposted by CarolG
Canada: Walk away from negotiations. Don't retaliate. Diversify. Find new markets. Buy European military equipment. Reinstate the digital services tax. Let Americans pay more for the things they want from us. Keep up the public boycott. Welcome American refugee talent. Be Canadian. #cdnpoli #USpoli
August 1, 2025 at 12:29 PM
Reposted by CarolG
Here's the summary of the article from Simon
Source: The Sick Times
Share share share, this is ridiculous.
#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada
www.instagram.com/p/DL5VNUVMLp...
Source: The Sick Times
Share share share, this is ridiculous.
#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada
www.instagram.com/p/DL5VNUVMLp...
Login • Instagram
Welcome back to Instagram. Sign in to check out what your friends, family & interests have been capturing & sharing around the world.
www.instagram.com
July 9, 2025 at 9:03 PM
Here's the summary of the article from Simon
Source: The Sick Times
Share share share, this is ridiculous.
#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada
www.instagram.com/p/DL5VNUVMLp...
Source: The Sick Times
Share share share, this is ridiculous.
#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada
www.instagram.com/p/DL5VNUVMLp...
Reposted by CarolG
@thesicktimes.bsky.social
July 8, 2025
This is an extremely informative piece by Simon Spichak, a Canadian journalist, science communicator and neuroscientist, who has done an absolutely brilliant job on this piece bringing to light the “behind the scenes events
July 8, 2025
This is an extremely informative piece by Simon Spichak, a Canadian journalist, science communicator and neuroscientist, who has done an absolutely brilliant job on this piece bringing to light the “behind the scenes events
Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning” - The Sick Times
Guidelines recommend exercise and therapy as treatments, following attempted influence from Paul Garner.
thesicktimes.org
July 8, 2025 at 8:26 PM
@thesicktimes.bsky.social
July 8, 2025
This is an extremely informative piece by Simon Spichak, a Canadian journalist, science communicator and neuroscientist, who has done an absolutely brilliant job on this piece bringing to light the “behind the scenes events
July 8, 2025
This is an extremely informative piece by Simon Spichak, a Canadian journalist, science communicator and neuroscientist, who has done an absolutely brilliant job on this piece bringing to light the “behind the scenes events
Reposted by CarolG
‼️🔥THANK YOU MR. ANGUS FOR SPEAKING OUT AGAINST THIS LAWLESS REGIME🔥‼️😈
Kristi Noem says the Canadian border is swamping the US with El Salvadorean gangs.
Kash Patel claims terrorists are based in Canada.
And a Canadian died in ICE Captivity.
South Park was a funny movie. It's a dismal regime.
Please watch my latest press conference.
www.youtube.com/watch?v=rhWN...
Kash Patel claims terrorists are based in Canada.
And a Canadian died in ICE Captivity.
South Park was a funny movie. It's a dismal regime.
Please watch my latest press conference.
www.youtube.com/watch?v=rhWN...
CHARLIE ANGUS CALLS OUT KRISTI NOEM OVER BORDER THREAT
YouTube video by Charlie Angus
www.youtube.com
June 28, 2025 at 11:56 AM
‼️🔥THANK YOU MR. ANGUS FOR SPEAKING OUT AGAINST THIS LAWLESS REGIME🔥‼️😈
Reposted by CarolG
Reposted by CarolG
On the day that millions march in the streets.
When police threaten to shoot protesters "graveyard dead".
On the day that we witness horrific political assassinations it's time to talk about the rise of fascist threat in the United States.
www.youtube.com/watch?v=o3Gl...
When police threaten to shoot protesters "graveyard dead".
On the day that we witness horrific political assassinations it's time to talk about the rise of fascist threat in the United States.
www.youtube.com/watch?v=o3Gl...
CHARLIE ANGUS - AMERICAN FASCISM CAUSES POLITICAL VIOLENCE
YouTube video by Charlie Angus
www.youtube.com
June 14, 2025 at 5:44 PM
On the day that millions march in the streets.
When police threaten to shoot protesters "graveyard dead".
On the day that we witness horrific political assassinations it's time to talk about the rise of fascist threat in the United States.
www.youtube.com/watch?v=o3Gl...
When police threaten to shoot protesters "graveyard dead".
On the day that we witness horrific political assassinations it's time to talk about the rise of fascist threat in the United States.
www.youtube.com/watch?v=o3Gl...
Reposted by CarolG
#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada #britishcolumbia #pem
June 13, 2025 at 5:36 PM
Reposted by CarolG
NEW
Headline: Severe COVID causes long-lasting coronary microvascular dysfunction, new data show.
Headline: Immune Dysregulation Could be the Tipping Point for Long COVID.
Headline: Study suggests kids with severe COVID-19 have lasting metabolic changes.
docs.google.com/document/d/1...
Headline: Severe COVID causes long-lasting coronary microvascular dysfunction, new data show.
Headline: Immune Dysregulation Could be the Tipping Point for Long COVID.
Headline: Study suggests kids with severe COVID-19 have lasting metabolic changes.
docs.google.com/document/d/1...
LONG COVID CANADA COLLABORATIVE (LC3) LINK LIBRARY
LONG COVID CANADA COLLABORATIVE (LC3) LINK LIBRARY Date: June 12, 2025 Headline: Severe COVID causes long-lasting coronary microvascular dysfunction, new data show. Keywords: Link:https:/...
docs.google.com
June 13, 2025 at 5:35 PM
NEW
Headline: Severe COVID causes long-lasting coronary microvascular dysfunction, new data show.
Headline: Immune Dysregulation Could be the Tipping Point for Long COVID.
Headline: Study suggests kids with severe COVID-19 have lasting metabolic changes.
docs.google.com/document/d/1...
Headline: Severe COVID causes long-lasting coronary microvascular dysfunction, new data show.
Headline: Immune Dysregulation Could be the Tipping Point for Long COVID.
Headline: Study suggests kids with severe COVID-19 have lasting metabolic changes.
docs.google.com/document/d/1...
Reposted by CarolG
Angus: Canada can no longer view the United States as an ally. We know that Donald Trump doesn’t believe in liberal democracy—he doesn’t believe in the rule of law.
Prime Minister Carney is not welcoming the leader of the free world to Canada.
He is welcoming Vladimir Putin’s sock puppet.
Prime Minister Carney is not welcoming the leader of the free world to Canada.
He is welcoming Vladimir Putin’s sock puppet.
June 11, 2025 at 7:40 PM
Angus: Canada can no longer view the United States as an ally. We know that Donald Trump doesn’t believe in liberal democracy—he doesn’t believe in the rule of law.
Prime Minister Carney is not welcoming the leader of the free world to Canada.
He is welcoming Vladimir Putin’s sock puppet.
Prime Minister Carney is not welcoming the leader of the free world to Canada.
He is welcoming Vladimir Putin’s sock puppet.
Reposted by CarolG
The province is asking British Columbians for our ideas for Budget 2026. We think they should include:
💨 Clean air measures
💉 Vaccine access including Novavax
😷 N95s and tests
🩺 Better care for Long COVID (and other complex chronic illnesses)
#covid #covid19 #longcovid #longcovidawareness #me #cfs
💨 Clean air measures
💉 Vaccine access including Novavax
😷 N95s and tests
🩺 Better care for Long COVID (and other complex chronic illnesses)
#covid #covid19 #longcovid #longcovidawareness #me #cfs
BC Government 2026 Budget Consultation: Submit Your Ideas
The BC Government 2026 Budget Consultation comment period is open and looking for public input. Here's how to submit your ideas.
donoharmbc.ca
June 7, 2025 at 3:14 PM
The province is asking British Columbians for our ideas for Budget 2026. We think they should include:
💨 Clean air measures
💉 Vaccine access including Novavax
😷 N95s and tests
🩺 Better care for Long COVID (and other complex chronic illnesses)
#covid #covid19 #longcovid #longcovidawareness #me #cfs
💨 Clean air measures
💉 Vaccine access including Novavax
😷 N95s and tests
🩺 Better care for Long COVID (and other complex chronic illnesses)
#covid #covid19 #longcovid #longcovidawareness #me #cfs
Reposted by CarolG
Reminder: Our AGM is tonight — join us!
Join us on June 3rd for the Canadian Covid Society's Annual General Meeting, featuring guest speaker @zalaly.bsky.social, a medical doctor and clinical epidemiologist who's recognized for his research on long Covid.
Register today: us02web.zoom.us/webinar/regi...
Register today: us02web.zoom.us/webinar/regi...
June 3, 2025 at 1:04 PM
Reminder: Our AGM is tonight — join us!
Reposted by CarolG
🏥Advocating for Formal Recognition of pediatric Long COVID as a significant health concern in Canada.
🤝Building an Interdisciplinary based collaborative to parents, clinicians, and researchers
🧪 Engaging as a collaborator in Clinical Trials aimed at understanding and treating pediatric Long COVID.
🤝Building an Interdisciplinary based collaborative to parents, clinicians, and researchers
🧪 Engaging as a collaborator in Clinical Trials aimed at understanding and treating pediatric Long COVID.
June 3, 2025 at 6:37 PM
🏥Advocating for Formal Recognition of pediatric Long COVID as a significant health concern in Canada.
🤝Building an Interdisciplinary based collaborative to parents, clinicians, and researchers
🧪 Engaging as a collaborator in Clinical Trials aimed at understanding and treating pediatric Long COVID.
🤝Building an Interdisciplinary based collaborative to parents, clinicians, and researchers
🧪 Engaging as a collaborator in Clinical Trials aimed at understanding and treating pediatric Long COVID.
Reposted by CarolG
As a parent of a teen who has been living with LC for 4 years and the founder of the Children's LC Network (CLCN), I have been serving as their voice on national working groups, striving to ensure that their experiences are recognized and that meaningful actions are taken to support them. CLCN is:
June 3, 2025 at 6:37 PM
As a parent of a teen who has been living with LC for 4 years and the founder of the Children's LC Network (CLCN), I have been serving as their voice on national working groups, striving to ensure that their experiences are recognized and that meaningful actions are taken to support them. CLCN is:
Reposted by CarolG
If you are a Canadian parent of a child living with Long COVID, you are warmly invited to join the Children's LC Network.
Via CLCN FB group- www.facebook.com/share/g/15Mp...
LinkedIn- www.linkedin.com/in/nandini-raj-04628931
Via CLCN FB group- www.facebook.com/share/g/15Mp...
LinkedIn- www.linkedin.com/in/nandini-raj-04628931
June 3, 2025 at 6:37 PM
If you are a Canadian parent of a child living with Long COVID, you are warmly invited to join the Children's LC Network.
Via CLCN FB group- www.facebook.com/share/g/15Mp...
LinkedIn- www.linkedin.com/in/nandini-raj-04628931
Via CLCN FB group- www.facebook.com/share/g/15Mp...
LinkedIn- www.linkedin.com/in/nandini-raj-04628931
Reposted by CarolG
ANNOUNCEMENT:
The @cancovsoc.bsky.social Canadian Covid Society's first AGM with special guest Dr. Ziyad Al-Aly (long covid specialist/ researcher).
Tomorrow at 7 pm EDT. Virtual.
AGM for first hour followed by special guest.
Sign up here:
sh1.sendinblue.com/adv0drfon9pf...
The @cancovsoc.bsky.social Canadian Covid Society's first AGM with special guest Dr. Ziyad Al-Aly (long covid specialist/ researcher).
Tomorrow at 7 pm EDT. Virtual.
AGM for first hour followed by special guest.
Sign up here:
sh1.sendinblue.com/adv0drfon9pf...
Join us for our AGM, Jun 3, feat. Dr. Ziyad Al-Aly
sh1.sendinblue.com
June 2, 2025 at 3:34 PM
ANNOUNCEMENT:
The @cancovsoc.bsky.social Canadian Covid Society's first AGM with special guest Dr. Ziyad Al-Aly (long covid specialist/ researcher).
Tomorrow at 7 pm EDT. Virtual.
AGM for first hour followed by special guest.
Sign up here:
sh1.sendinblue.com/adv0drfon9pf...
The @cancovsoc.bsky.social Canadian Covid Society's first AGM with special guest Dr. Ziyad Al-Aly (long covid specialist/ researcher).
Tomorrow at 7 pm EDT. Virtual.
AGM for first hour followed by special guest.
Sign up here:
sh1.sendinblue.com/adv0drfon9pf...
Reposted by CarolG
I would like to extend you all an invite to join us next week at our first annual AGM!
Come see what we’ve accomplished, what we have planned, and most importantly, to come together. We also will be having the honor of having Dr. Al-Aly as our guest speaker!
us02web.zoom.us/webinar/regi...
Come see what we’ve accomplished, what we have planned, and most importantly, to come together. We also will be having the honor of having Dr. Al-Aly as our guest speaker!
us02web.zoom.us/webinar/regi...
May 27, 2025 at 11:38 PM
I would like to extend you all an invite to join us next week at our first annual AGM!
Come see what we’ve accomplished, what we have planned, and most importantly, to come together. We also will be having the honor of having Dr. Al-Aly as our guest speaker!
us02web.zoom.us/webinar/regi...
Come see what we’ve accomplished, what we have planned, and most importantly, to come together. We also will be having the honor of having Dr. Al-Aly as our guest speaker!
us02web.zoom.us/webinar/regi...
Reposted by CarolG
We’re pleased to announce our first virtual Town Hall Meeting of 2025. Join us for updates on our activities, impact, research, and more.
Date: Thu, June 5, 2025
Time: 12:00 PM – 1:00 PM ET
Register: bit.ly/4dzof2h
#LongCOVID #LongCOVIDWeb
#covid #m #me #cfs #health #canada #britishcolumbia
Date: Thu, June 5, 2025
Time: 12:00 PM – 1:00 PM ET
Register: bit.ly/4dzof2h
#LongCOVID #LongCOVIDWeb
#covid #m #me #cfs #health #canada #britishcolumbia
May 27, 2025 at 12:48 AM
We’re pleased to announce our first virtual Town Hall Meeting of 2025. Join us for updates on our activities, impact, research, and more.
Date: Thu, June 5, 2025
Time: 12:00 PM – 1:00 PM ET
Register: bit.ly/4dzof2h
#LongCOVID #LongCOVIDWeb
#covid #m #me #cfs #health #canada #britishcolumbia
Date: Thu, June 5, 2025
Time: 12:00 PM – 1:00 PM ET
Register: bit.ly/4dzof2h
#LongCOVID #LongCOVIDWeb
#covid #m #me #cfs #health #canada #britishcolumbia