Bonnielin Swenor
@bonnieswenor.bsky.social
Disability Equity Researcher | Disability Data Justice
Reposted by Bonnielin Swenor
‼️Save the Date!‼️The 2025 #Disability Health #Research Network (DHERN) annual conference, “Global Perspectives on Disability Equity”, will be held September 16 from 10am to 2pm ET. This virtual conference is **free** & open to all! ASL & CART will be provided. Register: jhuson.zoom.us/meeting/regi...
July 29, 2025 at 9:24 PM
‼️Save the Date!‼️The 2025 #Disability Health #Research Network (DHERN) annual conference, “Global Perspectives on Disability Equity”, will be held September 16 from 10am to 2pm ET. This virtual conference is **free** & open to all! ASL & CART will be provided. Register: jhuson.zoom.us/meeting/regi...
Reposted by Bonnielin Swenor
Disabled, impacted by tornadoes need help? Discapacitade, afectade por tornados y necesita ayuda?
Try | Trate 211, 311, 800.733.2767
Call/text (llame) Disability & Disaster Hotline 800-626-4959 o hotline@disasterstrategies.org
Be ready today for more possible tornadoes in the heartland.
Try | Trate 211, 311, 800.733.2767
Call/text (llame) Disability & Disaster Hotline 800-626-4959 o hotline@disasterstrategies.org
Be ready today for more possible tornadoes in the heartland.
April 3, 2025 at 2:59 PM
Disabled, impacted by tornadoes need help? Discapacitade, afectade por tornados y necesita ayuda?
Try | Trate 211, 311, 800.733.2767
Call/text (llame) Disability & Disaster Hotline 800-626-4959 o hotline@disasterstrategies.org
Be ready today for more possible tornadoes in the heartland.
Try | Trate 211, 311, 800.733.2767
Call/text (llame) Disability & Disaster Hotline 800-626-4959 o hotline@disasterstrategies.org
Be ready today for more possible tornadoes in the heartland.
Reposted by Bonnielin Swenor
Our work is far from done—science is still under attack.
We’ve got ideas, but we want to hear from you. What’s worrying you most? What should we do next? How can we grow this movement together?
Fill out this quick form to share your thoughts & stay connected: forms.gle/7EEQMZUveXN9...
We’ve got ideas, but we want to hear from you. What’s worrying you most? What should we do next? How can we grow this movement together?
Fill out this quick form to share your thoughts & stay connected: forms.gle/7EEQMZUveXN9...
How do we keep Standing Up for Science?
A heartfelt thank you for everyone that Stood Up for Science with us on March 7th—whether it be volunteering, donating, sharing, or attending in event, we're forever indebted to people like you who ca...
forms.gle
March 10, 2025 at 2:47 PM
Our work is far from done—science is still under attack.
We’ve got ideas, but we want to hear from you. What’s worrying you most? What should we do next? How can we grow this movement together?
Fill out this quick form to share your thoughts & stay connected: forms.gle/7EEQMZUveXN9...
We’ve got ideas, but we want to hear from you. What’s worrying you most? What should we do next? How can we grow this movement together?
Fill out this quick form to share your thoughts & stay connected: forms.gle/7EEQMZUveXN9...
An honor to be in this speaker line up! Tomorrow is the day to #StandUpForScience2025! Join the fight to help ensure everyone can benefit from and succeed in science. Thank you to this amazing group of organizers who are uniting the scientific community to meet this historic moment.
SPEAKER LINEUP FOR STAND UP FOR SCIENCE ☀️
Here's our list of current speakers—and it's still growing! Come tomorrow to hear some amazing speakers talk about science, their experiences, and the future.
#standupforscience2025
Here's our list of current speakers—and it's still growing! Come tomorrow to hear some amazing speakers talk about science, their experiences, and the future.
#standupforscience2025
March 6, 2025 at 2:20 PM
An honor to be in this speaker line up! Tomorrow is the day to #StandUpForScience2025! Join the fight to help ensure everyone can benefit from and succeed in science. Thank you to this amazing group of organizers who are uniting the scientific community to meet this historic moment.
Huge kudos to @standupforscience.bsky.social for many reasons, including that the DC event will have "accessible restroom facilities, seating areas, and ASL interpretation throughout the event." Thank you to all the amazing organizers and all putting in time to fight for science!
Welcome to the Bluesky account for Stand Up for Science 2025!
Keep an eye on this space for updates, event information, and ways to get involved. We can't wait to see everyone #standupforscience2025 on March 7th, both in DC and locations nationwide!
#scienceforall #sciencenotsilence
Keep an eye on this space for updates, event information, and ways to get involved. We can't wait to see everyone #standupforscience2025 on March 7th, both in DC and locations nationwide!
#scienceforall #sciencenotsilence
February 28, 2025 at 3:51 PM
Huge kudos to @standupforscience.bsky.social for many reasons, including that the DC event will have "accessible restroom facilities, seating areas, and ASL interpretation throughout the event." Thank you to all the amazing organizers and all putting in time to fight for science!
"Scientists with disabilities are also worried about what the clampdown on accessibility will mean for both their own careers and those of the next generation." Quotes from @kimkdc.bsky.social, @bakingsodavolc.bsky.social, Alyssa Paparellal on this important issue: www.nytimes.com/2025/02/22/s...
Accessibility Is Taking a Hit Across the Sciences (Gift Article)
Confusion has ensued about the future of programs and research supporting people with disabilities as a result of President Trump’s executive order.
www.nytimes.com
February 22, 2025 at 4:50 PM
"Scientists with disabilities are also worried about what the clampdown on accessibility will mean for both their own careers and those of the next generation." Quotes from @kimkdc.bsky.social, @bakingsodavolc.bsky.social, Alyssa Paparellal on this important issue: www.nytimes.com/2025/02/22/s...
Reposted by Bonnielin Swenor
@altnih4science.bsky.social if you are a probationary NIH employee who is losing your job today, reach out to me on Signal meredithwadman.13 to help @science.org tell this important story.
February 14, 2025 at 7:11 PM
@altnih4science.bsky.social if you are a probationary NIH employee who is losing your job today, reach out to me on Signal meredithwadman.13 to help @science.org tell this important story.
The future of disability health equity research is uncertain, but philanthropy has an opportunity to keep this essential work moving forward. Too often funders invest in academic centers & efforts not led by disabled people - that must change to address layered inequities disabled people face.
Thank you @metrauxjulia.bsky.social! Our work, and that of so many others, is in jeopardy. It is time for philanthropic orgs to commit to funding disability-led health equity efforts, especially in academia where attacks are coming from all sides.
January 26, 2025 at 2:20 PM
The future of disability health equity research is uncertain, but philanthropy has an opportunity to keep this essential work moving forward. Too often funders invest in academic centers & efforts not led by disabled people - that must change to address layered inequities disabled people face.
Reposted by Bonnielin Swenor
NEW: The Census Bureau is adding five members to its Census Scientific Advisory Committee, which is set to meet next in March 2025
www.census.gov/newsroom/pre...
www.census.gov/newsroom/pre...
December 19, 2024 at 10:01 PM
NEW: The Census Bureau is adding five members to its Census Scientific Advisory Committee, which is set to meet next in March 2025
www.census.gov/newsroom/pre...
www.census.gov/newsroom/pre...
Reposted by Bonnielin Swenor
Data can drive justice or deepen inequities. Join CRDJ Director of Research & Policy, Kate Caldwell, and a powerhouse panel featuring Bonnielin Swenor, Rylin Rodgers, Elizabeth Lockwood, Charlotte McClain-Nhlapo to discuss the intersection of disability data justice, AI, and global technology.
December 4, 2024 at 7:32 PM
Data can drive justice or deepen inequities. Join CRDJ Director of Research & Policy, Kate Caldwell, and a powerhouse panel featuring Bonnielin Swenor, Rylin Rodgers, Elizabeth Lockwood, Charlotte McClain-Nhlapo to discuss the intersection of disability data justice, AI, and global technology.
📣 Disability Community: The Government Accountability Office (GAO) is conducting a survey to understand the barriers to accessing healthcare that disabled people experience. These stories will inform a forthcoming GAO report! The survey is open until Nov 30th. gaosurvey.gao.gov/jfe/form/SV_...
GAO Survey on Disabilities and Health Care
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
gaosurvey.gao.gov
October 31, 2024 at 7:33 PM
📣 Disability Community: The Government Accountability Office (GAO) is conducting a survey to understand the barriers to accessing healthcare that disabled people experience. These stories will inform a forthcoming GAO report! The survey is open until Nov 30th. gaosurvey.gao.gov/jfe/form/SV_...
🎉Big news from NIH to advance disability-inclusive research:
-Develop agency-wide NIH Strategic Plan for Disability Research
-Engage with disability community to discuss needs, challenges, and goals
-Establish Council of Councils Disability Research Working Group
dpcpsi.nih.gov/sites/defaul...
-Develop agency-wide NIH Strategic Plan for Disability Research
-Engage with disability community to discuss needs, challenges, and goals
-Establish Council of Councils Disability Research Working Group
dpcpsi.nih.gov/sites/defaul...
dpcpsi.nih.gov
September 13, 2024 at 2:28 PM
🎉Big news from NIH to advance disability-inclusive research:
-Develop agency-wide NIH Strategic Plan for Disability Research
-Engage with disability community to discuss needs, challenges, and goals
-Establish Council of Councils Disability Research Working Group
dpcpsi.nih.gov/sites/defaul...
-Develop agency-wide NIH Strategic Plan for Disability Research
-Engage with disability community to discuss needs, challenges, and goals
-Establish Council of Councils Disability Research Working Group
dpcpsi.nih.gov/sites/defaul...
Disabled people face profound inequities, but disability data gaps have erased opportunities to make change for far too long. Now is your chance to inform a Federal Evidence Agenda on Disability Equity & improve disability data!
www.federalregister.gov/d/2024-11838
RFI responses are due July 15th.
www.federalregister.gov/d/2024-11838
RFI responses are due July 15th.
May 30, 2024 at 7:42 PM
Disabled people face profound inequities, but disability data gaps have erased opportunities to make change for far too long. Now is your chance to inform a Federal Evidence Agenda on Disability Equity & improve disability data!
www.federalregister.gov/d/2024-11838
RFI responses are due July 15th.
www.federalregister.gov/d/2024-11838
RFI responses are due July 15th.
Reposted by Bonnielin Swenor
Major shout-out to @bonnieswenor.bsky.social (and the Disability Health Equity Research Network folks who *aren't* on Bsky) for their fierce advocacy and leadership around both this and the NIH's designation of people with disabilities as a population experiencing health inequities.
February 6, 2024 at 8:10 PM
Major shout-out to @bonnieswenor.bsky.social (and the Disability Health Equity Research Network folks who *aren't* on Bsky) for their fierce advocacy and leadership around both this and the NIH's designation of people with disabilities as a population experiencing health inequities.
Reposted by Bonnielin Swenor
BREAKING: The Census Bureau is not moving forward with a proposed change to the American Community Survey's disability questions that could've shrunk a key estimated rate of disability in the U.S. by about 40%, Director Robert Santos says in a blog post
www.census.gov/newsroom/blo...
www.census.gov/newsroom/blo...
February 6, 2024 at 5:55 PM
BREAKING: The Census Bureau is not moving forward with a proposed change to the American Community Survey's disability questions that could've shrunk a key estimated rate of disability in the U.S. by about 40%, Director Robert Santos says in a blog post
www.census.gov/newsroom/blo...
www.census.gov/newsroom/blo...
Reposted by Bonnielin Swenor
A controversial Census Bureau proposal could shrink the rate of disability in the U.S. by about 40%. Public comments on this potential change are due Tuesday, Dec. 19, but NPR has confirmed there will be another opportunity to give feedback in the spring…
www.npr.org/2023/12/18/1...
www.npr.org/2023/12/18/1...
December 19, 2023 at 2:04 AM
A controversial Census Bureau proposal could shrink the rate of disability in the U.S. by about 40%. Public comments on this potential change are due Tuesday, Dec. 19, but NPR has confirmed there will be another opportunity to give feedback in the spring…
www.npr.org/2023/12/18/1...
www.npr.org/2023/12/18/1...