Betty Roggenkamp
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bettyroggenkamp.bsky.social
Betty Roggenkamp
@bettyroggenkamp.bsky.social
Oncology Care QI⎪Consultant⎪Project Management⎪Collaborating on All Things AYA
This 👇🏾 is for every #oncology clinician who treats #AYA.

Seriously actionable practical education and care offered in this piece. BRAVO @lailaagrawalmd.bsky.social et. al

#AYACSM #sexualhealth #lateandlongterm
Sexual health concerns after cancer are common, but too often go unaddressed. Authors discuss for #ASCOEdBook: brnw.ch/21wSNMs
May 21, 2025 at 5:58 PM
Cancer and its treatment can financially can produce side effects that result in the inability to work or work at a level once had.

Health insurance is imperative to surviving #cancer.

#AYACSM
Congress is considering cuts to Medicaid during its budget reconciliation process. 70 million ppl receive health coverage under Medicaid, including those w/ cancer. We must #ProtectMedicaid! #ASCOAdvocacy

Urge members of congress to safeguard Medicaid➡️ brnw.ch/21wSxGD
May 12, 2025 at 4:56 PM
April 11, 2025 at 5:11 PM
April 9, 2025 at 9:43 PM
April 7, 2025 at 3:47 PM
In my city, with my people! Thursday April 3, 2025, 6-9pm

If you know of anyone diagnosed with cancer, 15 - 39 years of age...they should come to 👇🏾

#cancer #AYACSM #Chicago #oncology #oncsky
March 20, 2025 at 9:44 PM
Brilliant visual story telling! Very effective #communication to grasping the #cancer experience.

#AYACSM #cancerstinks #oncology #treatmentisnotenough #supportiveonocology
Tell me your cancer story in emojis.

Here’s mine:

🏩👩🏽‍⚕️🕵🏽‍♀️ 🩻🩻🩻❓❔❓❔💉🏩 😳😖😫😭
💉💉💉🪺🪺🪺 💊💊
🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮 🧪☠️💊💊🤮
🪚🥥🤕
☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️☢️
💊💊💊💊
🪚🍈
🛌
👌❤️‍🩹 🤷🏻‍♀️
💊💊💊💊
🥹🙃😶‍🌫️🫠🫥

#cansky #oncsky #oncosky
January 29, 2025 at 3:49 PM
Best explanation of financial issues & barriers to care access due to being dx'd with #cancer as a young adult, right here👇🏻.
An existing intervention is low cost single payor health insurance for life, w/ all providers in network: #AYA Medicare-esque right?

ascopubs.org/doi/10.1200/...
#AYACSM
Business of Health Care and the Personal Cost of Cancer Care | JCO Oncology Practice
ascopubs.org
January 27, 2025 at 12:48 PM
With uptick #AYAs diagnosed w/ #cancer, #clinicaltrials need to include <40 as a population within and have its own data be accessible.

That shouldn't be that hard to do in 2025.

I know a lot of people who need this to be so.

#AYACSM
January 19, 2025 at 2:41 PM
A picture, or graph, says so much...

Thanks @wsj.com for this article on #AYA #cancer

lnkd.in/gxVPCccB

#AYACSM
January 6, 2025 at 12:39 PM
Know any women w/ sex life issues post #cancer diagnosis? Any clinicians want to/need to learn more about women's sex life issues post cancer dx/tx?
Who else needs to/should learn on this topic?

Agenda is impressive.
events.lifewithcancer.org/class/106239

#AYACSM @inovahealth.bsky.social
Women's Sexual Health Series - Managing Medically Induced Menopause After Cancer - Life With Cancer Events
Throughout the series, hear from expert speakers from around the country on various topics of cancer and sexual health.
events.lifewithcancer.org
January 2, 2025 at 3:10 PM
#giveblood is a super power I can do, how I’m starting the new year. Might be one system in our “health” care not broken.

#cancer
January 1, 2025 at 1:17 PM
Takes more than #cancertreatment for #AYAs to survive #cancer.

Cancer Survivorship Provider Network's 2025 focus w/ Coffee Talk, Adventures in AYA Tues Jan 7, 12pm ET, w/ Scott Capozza PT @ Smilow Cancer Hospital. Scott's story
ascopubs.org/doi/10.1200/...

Join thecspn.org to learn more.
#AYACSM
Cancer Survivorship Provider Network - CSPN
About CSPN The CSPN provides peer support for comprehensive, equitable, and high-quality survivorship care through education, networking, and research. LEarn More Join CSPN Members gain exclusive acce...
thecspn.org
December 30, 2024 at 4:38 PM
The best cancer care, is preventing it. 2nd Childhood Cancer Prevention Symposium in Houston at Texas Children's. February 10-13, 2025
Topics in Comments.
#AYACSM #Childhoodcancer #Cancer #lateandlongterm #cancerprevention
lnkd.in/g6wxb8Dk
December 20, 2024 at 9:22 PM
"Patients often are viewed less as humans in need of care than consumers who generate profit." What I do in #oncology is figure out how the person dx w/ #cancer can be cared for beyond & as a result of the tx. In a better world, I wouldn't have this job. #survonc

www.newyorker.com/culture/2024...
The Gilded Age of Medicine Is Here
Health insurers and hospitals increasingly treat patients less as humans in need of care than consumers who generate profit.
www.newyorker.com
December 13, 2024 at 1:16 PM
Wait, #ASH24 had puppies and pickleball? I think I need to attend #ASH25.

#AYACSM
December 9, 2024 at 11:57 PM

Standing O! Have to learn the language, do the math equations, determine if your providers are in/out of network every year unfortunately for #AYAs who have a plan choice. Insurance Churn is real, even employers change carriers, policies from year - year. 1+

ashpublications.org/blood/articl...
Churn, Churn Churn! a Mixed Methods Analysis of Young Adult Leukemia and Lymphoma Survivors' Experience Navigating the Insurance Landscape in a Post Affordable Care Act Era
Disclosures. Parsons:Seagen: Consultancy.
ashpublications.org
December 9, 2024 at 11:51 PM
Just when I think I have a solid collection of resources for those with a *&^*$@# cancer diagnosis, along comes a new one that is AMAZING.

It's from experts in the field: the people diagnosed & experienced. community.wegotthis.org
#AYACSM
THRIVE BLOG - We Got This.
THRIVE BLOG THE LATEST NEWS FROM THE WGT COMMUNITY
community.wegotthis.org
December 2, 2024 at 4:41 PM
This, this, this...and even for those on immunotherapy...this 👇🏻
"The Value of Offering #Oncofertility Counseling in Young Patients With Newly Diagnosed Cancer Is Unquestionable"

🫳🎤The name says it all.

🙏 Authors and #JCOOP journal #ASCO #AYACsm #AYAc #oncSky #canSky

ascopubs.org/doi/10.1200/...
November 25, 2024 at 6:15 PM
More young people are surviving cancer, BUT they they face a life altered by it. Learn what AYAs experience today post cancer tx, read/listen to 👇 NPR piece then read the comments on Stupid Cancer’s Instagram www.npr.org/2024/11/11/n...

#AYACSM #Survivorship

www.instagram.com/p/DCXRCqByTz...
November 20, 2024 at 10:02 PM