Arlene Jackson
@arlenejackson.bsky.social
Writer, researcher, PhD student
A real honour to have contributed to @lsereviewofbooks.bsky.social on the important and prescient issue of the social care crisis via this review. #DisabilityHistoryMonth #disability #chronicillness #socialcare
NEW✨ Our social care systems are failing the most vulnerable.
@arlenejackson.bsky.social @manmetuni.bsky.social reviews Care Poverty and Unmet Needs ed. Teppo Kröger, Nicola Brimblecombe @cpeclse.bsky.social, Ricardo Rodrigues and @profkirstein.bsky.social
#DisabilityHistoryMonth #UKDHM
@arlenejackson.bsky.social @manmetuni.bsky.social reviews Care Poverty and Unmet Needs ed. Teppo Kröger, Nicola Brimblecombe @cpeclse.bsky.social, Ricardo Rodrigues and @profkirstein.bsky.social
#DisabilityHistoryMonth #UKDHM
Our social care systems are failing the most vulnerable - LSE Review of Books
Care Poverty and Unmet Needs brings together twenty-seven social policy researchers to analyse “care poverty: inadequate and unequal social care provision.
blogs.lse.ac.uk
December 1, 2025 at 3:14 PM
A real honour to have contributed to @lsereviewofbooks.bsky.social on the important and prescient issue of the social care crisis via this review. #DisabilityHistoryMonth #disability #chronicillness #socialcare
💕 Thank you @fullhouselitmag.bsky.social for supporting this piece.
Time for a Featured Creator piece! Today's fab Featured Creator piece is 'Don’t Forget to Look Up' by @arlenejackson.bsky.social 👏
www.fullhouseliterary.com/prose-script...
www.fullhouseliterary.com/prose-script...
Don’t Forget to Look Up by Arlene Jackson — Full House Literary
www.fullhouseliterary.com
November 14, 2025 at 9:25 PM
💕 Thank you @fullhouselitmag.bsky.social for supporting this piece.
My second #Ekphrasis piece inspired by AshleyCook’s art and my lived experience of #chronicillness #ME is now live on the wonderful #DisabledTales. Involving the myth of the siren, Wolf Larsen and even a Beatles reference! 😌 www.disabledtales.co.uk/essays/the-l...
#pwme #lyrics #greekmyths
#pwme #lyrics #greekmyths
June 26, 2025 at 12:01 PM
My second #Ekphrasis piece inspired by AshleyCook’s art and my lived experience of #chronicillness #ME is now live on the wonderful #DisabledTales. Involving the myth of the siren, Wolf Larsen and even a Beatles reference! 😌 www.disabledtales.co.uk/essays/the-l...
#pwme #lyrics #greekmyths
#pwme #lyrics #greekmyths
So honoured to have contributed to @the-polyphony.bsky.social In Practice series. Thank you so much @alyfixit.bsky.social for your support of this piece 😌
#writing #medicalhumanities #pwme #chronicillness #art #photography
#writing #medicalhumanities #pwme #chronicillness #art #photography
Practice research from @arlenejackson.bsky.social: "Folklore has it that one who wears a wreath of bluebell heads will only speak the truth... my narrative... lands in reality to acknowledge that... Illness is not a comeuppance for slighting the natural world."
thepolyphony.org/2025/05/23/r...
thepolyphony.org/2025/05/23/r...
Refractions of a Relapse Through Ekphrasis
Arlene Jackson reflects on a photomontage created by the artist Ashley Cook, in light of her chronic illness relapse.
thepolyphony.org
May 23, 2025 at 5:17 PM
So honoured to have contributed to @the-polyphony.bsky.social In Practice series. Thank you so much @alyfixit.bsky.social for your support of this piece 😌
#writing #medicalhumanities #pwme #chronicillness #art #photography
#writing #medicalhumanities #pwme #chronicillness #art #photography
Reposted by Arlene Jackson
So sad to see this happening.
#Measels
Through very high levels of vaccination we reached a reasonable level of population immunity
With drastic fall in immunisation, we r not only exposing those who r un-immunised but also reversing the gains @organicbotanic.bsky.social @elhopkins.bsky.social
jamanetwork.com/journals/jam...
Through very high levels of vaccination we reached a reasonable level of population immunity
With drastic fall in immunisation, we r not only exposing those who r un-immunised but also reversing the gains @organicbotanic.bsky.social @elhopkins.bsky.social
jamanetwork.com/journals/jam...
Modeling Reemergence of Vaccine-Eliminated Infectious Diseases Under Declining Vaccination in the US
This study estimates the number of cases and complications in the US under scenarios of declining childhood vaccination for measles, rubella, poliomyelitis, and diphtheria.
jamanetwork.com
April 26, 2025 at 3:55 PM
So sad to see this happening.
Albums of Scotland: The Waterboys - This Is the Sea. Released on the Ensign label in 1985.
April 26, 2025 at 9:17 PM
Reposted by Arlene Jackson
True facts are true
April 18, 2025 at 4:01 PM
True facts are true
Reposted by Arlene Jackson
Reposted by Arlene Jackson
A german charity is planning on building a social housing project for people with severe ME. Tailored vis à vis noise/light reduction, 24hr assistance etc.
Location: Neunkirchen-Seelscheid
They need 5 people interested. So please share. (Requirement to be on German Welfare)
Location: Neunkirchen-Seelscheid
They need 5 people interested. So please share. (Requirement to be on German Welfare)
Wohnprojekt für schwer ME/CFS-Betroffene in Neunkirchen-Seelscheid: Interessenten gesucht! - Sozialhummel gGmbH
In Neunkirchen-Seelscheid ist ein Wohnprojekt speziell für schwer ME/CFS-Betroffene mit 24-Stunden-Assistenz in Planung. Ein Bauträger möchte in Zusammenarbeit mit Sozialhummel in 53819 Neunkirchen-Se...
sozialhummel.de
April 14, 2025 at 3:42 PM
A german charity is planning on building a social housing project for people with severe ME. Tailored vis à vis noise/light reduction, 24hr assistance etc.
Location: Neunkirchen-Seelscheid
They need 5 people interested. So please share. (Requirement to be on German Welfare)
Location: Neunkirchen-Seelscheid
They need 5 people interested. So please share. (Requirement to be on German Welfare)
So happy that my little musing on the effort of meditation has been chosen as prose of the day by the wonderful Ink, Sweat and Tears inksweatandtears.co.uk/arlene-jacks...
#flashfiction #writing #meditation #inksweatandtears
#flashfiction #writing #meditation #inksweatandtears
Arlene Jackson | Ink Sweat and Tears
inksweatandtears.co.uk
April 9, 2025 at 10:46 AM
So happy that my little musing on the effort of meditation has been chosen as prose of the day by the wonderful Ink, Sweat and Tears inksweatandtears.co.uk/arlene-jacks...
#flashfiction #writing #meditation #inksweatandtears
#flashfiction #writing #meditation #inksweatandtears
Reposted by Arlene Jackson
A huge amount of dissatisfaction and not much satisfaction regarding "NHS experience and specialist visits" from people with ME/CFS and to a slightly lesser extent people with long Covid in the UK
From:
bmjopen.bmj.com/content/15/4...
#MEcfs #LongCovid
From:
bmjopen.bmj.com/content/15/4...
#MEcfs #LongCovid
April 3, 2025 at 8:34 PM
A huge amount of dissatisfaction and not much satisfaction regarding "NHS experience and specialist visits" from people with ME/CFS and to a slightly lesser extent people with long Covid in the UK
From:
bmjopen.bmj.com/content/15/4...
#MEcfs #LongCovid
From:
bmjopen.bmj.com/content/15/4...
#MEcfs #LongCovid
Reposted by Arlene Jackson
It turns out that saying 'this is not austerity' while simultaneously making and defending spending cuts... does not work.
🆕 Ahead of the Spring Statement, new polling of public views on the economy finds that the Chancellor faces problems of trust, toughness and tiredness in the public mood. Over half of Brits now say we are returning to austerity or never left it, particularly the elderly.
March 25, 2025 at 12:12 PM
It turns out that saying 'this is not austerity' while simultaneously making and defending spending cuts... does not work.
Reposted by Arlene Jackson
#WelfareNotWarfare
Stop the press 📢
Updated local actions map for the National Day of Action on Wednesday 26th March 2025
Stop the press 📢
Updated local actions map for the National Day of Action on Wednesday 26th March 2025
March 25, 2025 at 2:06 PM
Reposted by Arlene Jackson
“Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it?”
My col. for the people who are still in their own personal lockdown - and those in power who must finally help them. www.theguardian.com/commentisfre...
My col. for the people who are still in their own personal lockdown - and those in power who must finally help them. www.theguardian.com/commentisfre...
Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
www.theguardian.com
March 17, 2025 at 8:16 PM
“Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it?”
My col. for the people who are still in their own personal lockdown - and those in power who must finally help them. www.theguardian.com/commentisfre...
My col. for the people who are still in their own personal lockdown - and those in power who must finally help them. www.theguardian.com/commentisfre...
Thank you to @sensecharity.bsky.social for providing an accessible campaign template, enabling me to write to my MP @gordonmckee.bsky.social re #disabiltycuts more swiftly than I would otherwise be able. The fact we have to do this at all is shameful.
March 16, 2025 at 5:11 PM
Thank you to @sensecharity.bsky.social for providing an accessible campaign template, enabling me to write to my MP @gordonmckee.bsky.social re #disabiltycuts more swiftly than I would otherwise be able. The fact we have to do this at all is shameful.
Reposted by Arlene Jackson
The government is planning to cut disability benefits. This could have a devastating impact on disabled people.
We need as many MPs as possible to speak out against disability benefits cuts before they're announced as early as Monday.
Ask your MP now: action.sense.org.uk/page/167765/...
We need as many MPs as possible to speak out against disability benefits cuts before they're announced as early as Monday.
Ask your MP now: action.sense.org.uk/page/167765/...
Stop cuts to disability benefits | Sense
action.sense.org.uk
March 13, 2025 at 3:06 PM
The government is planning to cut disability benefits. This could have a devastating impact on disabled people.
We need as many MPs as possible to speak out against disability benefits cuts before they're announced as early as Monday.
Ask your MP now: action.sense.org.uk/page/167765/...
We need as many MPs as possible to speak out against disability benefits cuts before they're announced as early as Monday.
Ask your MP now: action.sense.org.uk/page/167765/...
Reposted by Arlene Jackson
There's still time to book your free ticket for tomorrow's Story Café.
From awe-inspiring adventures to tales of love and longing, wonder and wanderlust, our Story Café is the perfect way to relax over lunchtime.
Book here:
womenslibrary.org.uk/event/story-...
From awe-inspiring adventures to tales of love and longing, wonder and wanderlust, our Story Café is the perfect way to relax over lunchtime.
Book here:
womenslibrary.org.uk/event/story-...
Story Café | Glasgow Women's Library
Rediscover the joy of being read to, as we dip into stories and poems by some of the best women writers around.
womenslibrary.org.uk
March 12, 2025 at 10:50 AM
There's still time to book your free ticket for tomorrow's Story Café.
From awe-inspiring adventures to tales of love and longing, wonder and wanderlust, our Story Café is the perfect way to relax over lunchtime.
Book here:
womenslibrary.org.uk/event/story-...
From awe-inspiring adventures to tales of love and longing, wonder and wanderlust, our Story Café is the perfect way to relax over lunchtime.
Book here:
womenslibrary.org.uk/event/story-...
Reposted by Arlene Jackson
🗞️ Article in @theguardian.com -includes section on #LongCovid
“People don’t want to be reminded of what happened, which I understand,” said Jade. “But we are not postpandemic, we’re post-precautions. Covid is still here.”
Full article: tinyurl.com/2u6xe8jx
“People don’t want to be reminded of what happened, which I understand,” said Jade. “But we are not postpandemic, we’re post-precautions. Covid is still here.”
Full article: tinyurl.com/2u6xe8jx
March 11, 2025 at 4:22 PM
🗞️ Article in @theguardian.com -includes section on #LongCovid
“People don’t want to be reminded of what happened, which I understand,” said Jade. “But we are not postpandemic, we’re post-precautions. Covid is still here.”
Full article: tinyurl.com/2u6xe8jx
“People don’t want to be reminded of what happened, which I understand,” said Jade. “But we are not postpandemic, we’re post-precautions. Covid is still here.”
Full article: tinyurl.com/2u6xe8jx
Reposted by Arlene Jackson
“Every time you see a headline on “the cost of the benefits bill”, what you are really reading is “the cost of disabled people”.
My col. on Labour’s reported benefit cuts and the toxic narrative of the “moral” virtue of work. www.theguardian.com/commentisfre...
My col. on Labour’s reported benefit cuts and the toxic narrative of the “moral” virtue of work. www.theguardian.com/commentisfre...
There is a shameful tradition of demonising disabled people. Why is Labour reigniting it? | Frances Ryan
Ministers run away from a wealth tax and then concoct a punitive benefits system. They have made that choice and it’s immoral, says Guardian columnist Frances Ryan
www.theguardian.com
March 11, 2025 at 8:34 AM
“Every time you see a headline on “the cost of the benefits bill”, what you are really reading is “the cost of disabled people”.
My col. on Labour’s reported benefit cuts and the toxic narrative of the “moral” virtue of work. www.theguardian.com/commentisfre...
My col. on Labour’s reported benefit cuts and the toxic narrative of the “moral” virtue of work. www.theguardian.com/commentisfre...
Hopeful! Potentially not only to harvest new antibiotics (as in article) but to further understand immune related conditions (my optimism!)
#research #health #chronicillness
www.bbc.co.uk/news/article...
#research #health #chronicillness
www.bbc.co.uk/news/article...
Scientists discover new part of the immune system
New part of the immune system - hidden inside our bodies - could be used to make new antibiotics.
www.bbc.co.uk
March 6, 2025 at 12:55 PM
Hopeful! Potentially not only to harvest new antibiotics (as in article) but to further understand immune related conditions (my optimism!)
#research #health #chronicillness
www.bbc.co.uk/news/article...
#research #health #chronicillness
www.bbc.co.uk/news/article...
The first page of an article reporting the outcomes of the Glasgow Disability Alliance campaign I was involved in says it all on a day when this current incarnation of the Labour Party abandon their founding ethos YET AGAIN #disabled #activism #austerity #disabilitycampaign
March 5, 2025 at 6:12 PM
The first page of an article reporting the outcomes of the Glasgow Disability Alliance campaign I was involved in says it all on a day when this current incarnation of the Labour Party abandon their founding ethos YET AGAIN #disabled #activism #austerity #disabilitycampaign
Reposted by Arlene Jackson
RSVP for our closing event with photographer Rayna Carruthers on Saturday 22 March
Hear Rayna speak about her photography, the process and some of the ways she considers ethics within her practice.
All welcome.
RSVP here:
womenslibrary.org.uk/event/while-...
Hear Rayna speak about her photography, the process and some of the ways she considers ethics within her practice.
All welcome.
RSVP here:
womenslibrary.org.uk/event/while-...
While We Wait: Closing Event with Rayna Carruthers | Glasgow Women's Library
An opportunity to see this beautiful exhibition a week before it closes and to hear Rayna Carruthers speak about her photography, the process and some of the ways she considers ethics within her…
womenslibrary.org.uk
March 3, 2025 at 4:50 PM
RSVP for our closing event with photographer Rayna Carruthers on Saturday 22 March
Hear Rayna speak about her photography, the process and some of the ways she considers ethics within her practice.
All welcome.
RSVP here:
womenslibrary.org.uk/event/while-...
Hear Rayna speak about her photography, the process and some of the ways she considers ethics within her practice.
All welcome.
RSVP here:
womenslibrary.org.uk/event/while-...
😂
I’m so glad I wrote that paper so that one guy could read it and misinterpret it.
February 23, 2025 at 6:18 PM
😂
Reading Intermezzo by S Rooney and dismayed by the overt ableism, esp re sexuality. Decided to repost my piece for The Polyphony as a riposte - a close reading of Samatha Renke’s memoir to discuss disabled sexuality through a lens of self-worth #disability #writing #medicalhumanities #booksky
Reclaiming the Disabled Sexual Self
Arlene Jackson reflects on sexuality, empowerment and discrimination in Samantha Renke’s 2022 memoir ‘You are the Best Thing Since Sliced Bread’. Amongst the many themes in Samantha Renke’s memoir,…
thepolyphony.org
February 19, 2025 at 5:54 PM
Reading Intermezzo by S Rooney and dismayed by the overt ableism, esp re sexuality. Decided to repost my piece for The Polyphony as a riposte - a close reading of Samatha Renke’s memoir to discuss disabled sexuality through a lens of self-worth #disability #writing #medicalhumanities #booksky