Allie Signorelli
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alliesiggy.bsky.social
Allie Signorelli
@alliesiggy.bsky.social
Young Onset Parkinson’s Patient & Advocate | Writer | Storyteller | Mildly Funny | Always Feisty | Tragically Hopeful
Had a great time chatting with Jamie-Lynn Sigler and Christina Applegate. Check it out here or wherever you listen to pods.

open.spotify.com/episode/2QGi...
How to Make Your Own Community with Allie Signorelli
MeSsy with Christina Applegate & Jamie-Lynn Sigler · Episode
open.spotify.com
February 26, 2025 at 12:55 AM
Reposted by Allie Signorelli
‘Are you going to have dementia’? Parkinson’s community struggles to overcome stigma healthydebate.ca/2025/01/topi... @drisubramanian.bsky.social @healthydebate.bsky.social

Get weekly updates: CanadaHealthwatch.ca/newsletter 🍁
January 24, 2025 at 4:05 PM
This Netflix movie where Pentatonix is dragging themselves is amazing 😂

Meet Me Next Christmas for those who need a cute movie tonight! 🎄
December 1, 2024 at 2:28 AM
Have added tinnitus to my list of Parkinson’s symptoms which sounds like a baby goat screaming inside my ears - especially at night. Slightly less than enjoyable, though not as bad as a screeching monkey would be, I think. Hard to say really.
November 28, 2024 at 5:26 AM
This show 😭 I am him. He is me. Just the best.

#shrinking #parkinsons
November 28, 2024 at 3:36 AM
@katiecouric.bsky.social welcome! People are nicer here (so far 😂)
November 26, 2024 at 3:21 PM
TONIGHT!! See ya at 6 pm ET to learn more about what Ai-jen and @caringacrossgen.bsky.social are doing for caregivers everywhere. See ya soon!
Calling all caregivers…and those that love them! Join me and @aijenpoo.bsky.social tomorrow for a conversation all about caregiving.

6pm ET on @imstillallie on Instagram. See ya then!💕

@caringacrossgen.bsky.social
November 25, 2024 at 8:42 PM
Calling all caregivers…and those that love them! Join me and @aijenpoo.bsky.social tomorrow for a conversation all about caregiving.

6pm ET on @imstillallie on Instagram. See ya then!💕

@caringacrossgen.bsky.social
November 24, 2024 at 5:17 PM
Reposted by Allie Signorelli
The life of the caregiver is a hard one and I am so grateful to all caregivers.
November 21, 2024 at 9:33 PM
I don’t know the difference between lists, hashtags, starter packs, pack animals or animal crackers at this point. But here we are…

#parkinsons
November 21, 2024 at 2:31 AM
Are people actually nicer here than they are on Twitter or have I just not found the meanies yet?

(And did I just summon the meanies?)
November 21, 2024 at 2:22 AM
My convo with Katie Couric about what it’s like to live with YOPD and the importance of advocacy
Diagnosed with Parkinson's at 47, Allie Signorelli is now a tireless advocate
YouTube video by Katie Couric
youtu.be
November 18, 2024 at 1:03 PM
This! 👏
We are already at ~12 million cases worldwide w/ Parkinson's which is approaching where we thought we would be in 2040. Can we double down and spend some money and time on preventing cases and lifting the living? Only a few pennies on the dollar go to prevention research.
November 18, 2024 at 12:48 PM
Any other of my Parkie friends on here wake up with pain in one spot every day? My right foot really hurts and burns every morning when I wake up. Any advice on how to deal - other than acting out stretching or yoga in my dreams? 😝
November 18, 2024 at 12:12 PM
Very proud to be part of this amazing climbing group!!
Combating Parkinson's with rock climbing
There is currently no cure for Parkinson's Disease. But some with Parkinson's are finding that an unusual therapy – rock climbing – is helping them improve their balance, mobility, strength and cognit...
www.cbsnews.com
November 17, 2024 at 6:37 PM
Got all dressed up and went to the Michael J. Fox Foundation Gala last night!
Heard Stevie Nicks sing Landslide and cried. So good!
November 17, 2024 at 12:18 PM
My tremor has been less active since I stopped watching the news.

Could this be the Parkinson’s cure we’ve all been waiting for? 😂
November 16, 2024 at 12:54 PM
Reposted by Allie Signorelli
Here we go!

I’m working on finding every pro sports team on Bluesky.

Comment if you find one I missed, and feel free to share this with the sports fans in your life.

(My first job in journalism was as a Division I football reporter, and my second was as a Division I basketball color commentator.)
November 15, 2024 at 12:45 AM
Read my newest Substack article on why Parkinson’s went viral this summer…but for all the wrong reasons. 👇🏻
#parkinsons
Parkinson's Went Viral This Summer...But For All the Wrong Reasons
It's Time to End the Use of Neurodegenerative Diseases as Political Insults
open.substack.com
November 15, 2024 at 3:46 PM
Just passed by the cemetery where one of my besties is buried. She was 38 and didn’t beat breast cancer. When people ask me why I have a good outlook despite having Parkinson’s, I always think of her and how’d she’d literally give anything to still be here with her girls. I appreciate every damn day
November 15, 2024 at 12:10 PM
Late night packing for a trip used to be shoes….
November 15, 2024 at 5:17 AM
The National Parkinson’s Plan (NPP) must not be forgotten in the transition. If you haven’t contacted your MOC about it, check in and see if the can provide an update. We can’t afford to lose any more time. #nationalparkinsonsplan #npp #parkinsons
November 15, 2024 at 5:07 AM
Wohooooo!!! The party on BlueSky keeps getting better and better!!!!
Once an activist, always an activist.
November 15, 2024 at 4:33 AM
Reposted by Allie Signorelli
it's official — 1,000,000 people have joined Bluesky in just the last day!!!

welcome and thank you for being here 🥳
November 15, 2024 at 12:53 AM