Aiure
@aiure.bsky.social
• cis, she/her • bi/pan • introvert • abstract digital art (NOT AI) • fibromyalgia • CFS/ME • migraine • long covid • osteoarthritis • neurodivergent • settler on unceded syilx lands •
Pinned
He had 2 negative tests today but I'm still going to take precautions til I'm sure it's out of our home. I don't want to have come this far just to have the last remnants weasel their way past my immune system because I chose to get comfortable too early.
We got a bunch of frozen premade stuff delivered because I've had to keep my stress from skyrocketing and causing a crash, which would make me more susceptible to infection. I've chosen to focus on staying covid free and working, instead of making meals.
Trying not to stress too much, and doing my best to keep surfaces clean.
We're mutually masking. My ears hurt, a lot, which happens whenever there's any pressure on them for more than an hour. It's day 4.
I'm ok so far. Desperate to keep it thay way.
We're mutually masking. My ears hurt, a lot, which happens whenever there's any pressure on them for more than an hour. It's day 4.
I'm ok so far. Desperate to keep it thay way.
February 1, 2026 at 10:29 PM
He had 2 negative tests today but I'm still going to take precautions til I'm sure it's out of our home. I don't want to have come this far just to have the last remnants weasel their way past my immune system because I chose to get comfortable too early.
We got a bunch of frozen premade stuff delivered because I've had to keep my stress from skyrocketing and causing a crash, which would make me more susceptible to infection. I've chosen to focus on staying covid free and working, instead of making meals.
Trying not to stress too much, and doing my best to keep surfaces clean.
We're mutually masking. My ears hurt, a lot, which happens whenever there's any pressure on them for more than an hour. It's day 4.
I'm ok so far. Desperate to keep it thay way.
We're mutually masking. My ears hurt, a lot, which happens whenever there's any pressure on them for more than an hour. It's day 4.
I'm ok so far. Desperate to keep it thay way.
In case you think the pandemic is over,
Covid is in my home again. In 2026.
Stop going to work sick.
Stay home.
Rest.
Work from home instead.
If you absolutely cannot be away from work, take precautions.
Don't be a fucking dick.
It's not difficult.
Covid is in my home again. In 2026.
Stop going to work sick.
Stay home.
Rest.
Work from home instead.
If you absolutely cannot be away from work, take precautions.
Don't be a fucking dick.
It's not difficult.
January 29, 2026 at 10:14 PM
We got a bunch of frozen premade stuff delivered because I've had to keep my stress from skyrocketing and causing a crash, which would make me more susceptible to infection. I've chosen to focus on staying covid free and working, instead of making meals.
Day 6
Blessedly mild infection, and he's getting better.
I'm struggling to find the energy to work, but will manage 40hrs this wk. Even so, we're gonna have to turn to fam to make bills next chq. Losing a week (or more) of pay is a massive blow.
Blessedly mild infection, and he's getting better.
I'm struggling to find the energy to work, but will manage 40hrs this wk. Even so, we're gonna have to turn to fam to make bills next chq. Losing a week (or more) of pay is a massive blow.
Trying not to stress too much, and doing my best to keep surfaces clean.
We're mutually masking. My ears hurt, a lot, which happens whenever there's any pressure on them for more than an hour. It's day 4.
I'm ok so far. Desperate to keep it thay way.
We're mutually masking. My ears hurt, a lot, which happens whenever there's any pressure on them for more than an hour. It's day 4.
I'm ok so far. Desperate to keep it thay way.
In case you think the pandemic is over,
Covid is in my home again. In 2026.
Stop going to work sick.
Stay home.
Rest.
Work from home instead.
If you absolutely cannot be away from work, take precautions.
Don't be a fucking dick.
It's not difficult.
Covid is in my home again. In 2026.
Stop going to work sick.
Stay home.
Rest.
Work from home instead.
If you absolutely cannot be away from work, take precautions.
Don't be a fucking dick.
It's not difficult.
January 29, 2026 at 9:40 PM
Day 6
Blessedly mild infection, and he's getting better.
I'm struggling to find the energy to work, but will manage 40hrs this wk. Even so, we're gonna have to turn to fam to make bills next chq. Losing a week (or more) of pay is a massive blow.
Blessedly mild infection, and he's getting better.
I'm struggling to find the energy to work, but will manage 40hrs this wk. Even so, we're gonna have to turn to fam to make bills next chq. Losing a week (or more) of pay is a massive blow.
Trying not to stress too much, and doing my best to keep surfaces clean.
We're mutually masking. My ears hurt, a lot, which happens whenever there's any pressure on them for more than an hour. It's day 4.
I'm ok so far. Desperate to keep it thay way.
We're mutually masking. My ears hurt, a lot, which happens whenever there's any pressure on them for more than an hour. It's day 4.
I'm ok so far. Desperate to keep it thay way.
In case you think the pandemic is over,
Covid is in my home again. In 2026.
Stop going to work sick.
Stay home.
Rest.
Work from home instead.
If you absolutely cannot be away from work, take precautions.
Don't be a fucking dick.
It's not difficult.
Covid is in my home again. In 2026.
Stop going to work sick.
Stay home.
Rest.
Work from home instead.
If you absolutely cannot be away from work, take precautions.
Don't be a fucking dick.
It's not difficult.
January 27, 2026 at 6:26 PM
Trying not to stress too much, and doing my best to keep surfaces clean.
We're mutually masking. My ears hurt, a lot, which happens whenever there's any pressure on them for more than an hour. It's day 4.
I'm ok so far. Desperate to keep it thay way.
We're mutually masking. My ears hurt, a lot, which happens whenever there's any pressure on them for more than an hour. It's day 4.
I'm ok so far. Desperate to keep it thay way.
In case you think the pandemic is over,
Covid is in my home again. In 2026.
Stop going to work sick.
Stay home.
Rest.
Work from home instead.
If you absolutely cannot be away from work, take precautions.
Don't be a fucking dick.
It's not difficult.
Covid is in my home again. In 2026.
Stop going to work sick.
Stay home.
Rest.
Work from home instead.
If you absolutely cannot be away from work, take precautions.
Don't be a fucking dick.
It's not difficult.
January 25, 2026 at 2:27 AM
In case you think the pandemic is over,
Covid is in my home again. In 2026.
Stop going to work sick.
Stay home.
Rest.
Work from home instead.
If you absolutely cannot be away from work, take precautions.
Don't be a fucking dick.
It's not difficult.
Covid is in my home again. In 2026.
Stop going to work sick.
Stay home.
Rest.
Work from home instead.
If you absolutely cannot be away from work, take precautions.
Don't be a fucking dick.
It's not difficult.
Eating timbits at 5am because I haven't slept all night and haven't eaten in about 11hrs and I don't wanna wake up my SO by making food
January 19, 2026 at 1:41 PM
Eating timbits at 5am because I haven't slept all night and haven't eaten in about 11hrs and I don't wanna wake up my SO by making food
Normally I have to deal with SAD around now. When winter catches up with me and the pain & fatigue is too much to escape.
This year, there's a lot of crushing awfulness, and not just from my health.
But the SAD isn't there.
It's the one thing I can be grateful for.
This year, there's a lot of crushing awfulness, and not just from my health.
But the SAD isn't there.
It's the one thing I can be grateful for.
January 15, 2026 at 12:40 AM
Normally I have to deal with SAD around now. When winter catches up with me and the pain & fatigue is too much to escape.
This year, there's a lot of crushing awfulness, and not just from my health.
But the SAD isn't there.
It's the one thing I can be grateful for.
This year, there's a lot of crushing awfulness, and not just from my health.
But the SAD isn't there.
It's the one thing I can be grateful for.
Who needs a mammogram when you have cats that stand on your boobs every day
January 5, 2026 at 5:57 AM
Who needs a mammogram when you have cats that stand on your boobs every day
The fire alarms in my building go off in each unit as well as in the hall, so the last two days of alarm testing have just been HOURS of super loud, jarring beeps every 30 sec or so. It's given me headaches, which I can deal with, but my poor cats are so stressed 😭
December 30, 2025 at 8:23 PM
The fire alarms in my building go off in each unit as well as in the hall, so the last two days of alarm testing have just been HOURS of super loud, jarring beeps every 30 sec or so. It's given me headaches, which I can deal with, but my poor cats are so stressed 😭
Saturday, intense gastro pain caused by who knows what. Spent the day in the fetal position.
Sunday, major persistent headache, and an allergic reaction to gods know what that was so bad I took a covid test.
My body's got zero chill. I hate it here.
Sunday, major persistent headache, and an allergic reaction to gods know what that was so bad I took a covid test.
My body's got zero chill. I hate it here.
December 29, 2025 at 6:01 PM
Saturday, intense gastro pain caused by who knows what. Spent the day in the fetal position.
Sunday, major persistent headache, and an allergic reaction to gods know what that was so bad I took a covid test.
My body's got zero chill. I hate it here.
Sunday, major persistent headache, and an allergic reaction to gods know what that was so bad I took a covid test.
My body's got zero chill. I hate it here.
Replaced my ancient glass-top corner desk with a nice electric sit/stand. Got creative with most of the cable management so it doesn't look like utter chaos, but now I'm in SO MUCH PAIN holy fuck
December 23, 2025 at 6:12 AM
Replaced my ancient glass-top corner desk with a nice electric sit/stand. Got creative with most of the cable management so it doesn't look like utter chaos, but now I'm in SO MUCH PAIN holy fuck
Canadian healthcare:
Access to a free med procedure
But
It's in 6mo
And in a city 2.5hrs' drive away 🫠
I'm gonna try to get it changed, but I have my trip covered if not. How many others don't have that luxury? Why is this kind of scheduling considered acceptable?
Access to a free med procedure
But
It's in 6mo
And in a city 2.5hrs' drive away 🫠
I'm gonna try to get it changed, but I have my trip covered if not. How many others don't have that luxury? Why is this kind of scheduling considered acceptable?
December 23, 2025 at 4:14 AM
Canadian healthcare:
Access to a free med procedure
But
It's in 6mo
And in a city 2.5hrs' drive away 🫠
I'm gonna try to get it changed, but I have my trip covered if not. How many others don't have that luxury? Why is this kind of scheduling considered acceptable?
Access to a free med procedure
But
It's in 6mo
And in a city 2.5hrs' drive away 🫠
I'm gonna try to get it changed, but I have my trip covered if not. How many others don't have that luxury? Why is this kind of scheduling considered acceptable?
It's my 26th anniversary today and I'm flabbergasted that anyone can put up with me for that long.
December 20, 2025 at 9:04 AM
It's my 26th anniversary today and I'm flabbergasted that anyone can put up with me for that long.
I really shouldn't be able to walk around in mid December in a light hoodie with the zip undone and be TOO WARM.
December 15, 2025 at 8:58 PM
I really shouldn't be able to walk around in mid December in a light hoodie with the zip undone and be TOO WARM.
Forever resting my left fingers on WASD while I'm working 😅
December 11, 2025 at 10:27 PM
Forever resting my left fingers on WASD while I'm working 😅
Scaled back work hrs this week - the weather's really messing with me.
I have vaca days for the week of Christmas but I might need them to compensate for this instead.
I'm grateful sick days are renewed in Jan so I won't have to stress quite so much about makeup time for a bit.
I have vaca days for the week of Christmas but I might need them to compensate for this instead.
I'm grateful sick days are renewed in Jan so I won't have to stress quite so much about makeup time for a bit.
December 10, 2025 at 8:18 PM
Scaled back work hrs this week - the weather's really messing with me.
I have vaca days for the week of Christmas but I might need them to compensate for this instead.
I'm grateful sick days are renewed in Jan so I won't have to stress quite so much about makeup time for a bit.
I have vaca days for the week of Christmas but I might need them to compensate for this instead.
I'm grateful sick days are renewed in Jan so I won't have to stress quite so much about makeup time for a bit.
It's really difficult to make any progress with my treatments when shit keeps popping up to sideline it.
Wait til we do this test
Wait a few months after you move
Oh look another test to do, you gotta wait wait wait
Waiting is doing absolutely nothing to help my fatigue 😮💨
Wait til we do this test
Wait a few months after you move
Oh look another test to do, you gotta wait wait wait
Waiting is doing absolutely nothing to help my fatigue 😮💨
December 9, 2025 at 8:41 PM
It's really difficult to make any progress with my treatments when shit keeps popping up to sideline it.
Wait til we do this test
Wait a few months after you move
Oh look another test to do, you gotta wait wait wait
Waiting is doing absolutely nothing to help my fatigue 😮💨
Wait til we do this test
Wait a few months after you move
Oh look another test to do, you gotta wait wait wait
Waiting is doing absolutely nothing to help my fatigue 😮💨
Last night I experienced mottling all over my skin. I took pics/video (though it doesn't show well) and notes.
Mottling on my arms has been present since I got covid last May, so I felt the need to document. And while it's super common with my fibro, it's never been so intense.
Mottling on my arms has been present since I got covid last May, so I felt the need to document. And while it's super common with my fibro, it's never been so intense.
December 7, 2025 at 4:52 AM
Last night I experienced mottling all over my skin. I took pics/video (though it doesn't show well) and notes.
Mottling on my arms has been present since I got covid last May, so I felt the need to document. And while it's super common with my fibro, it's never been so intense.
Mottling on my arms has been present since I got covid last May, so I felt the need to document. And while it's super common with my fibro, it's never been so intense.
These stats are wild.
I'm glad there's new mods working on unfucking the sub. Good mods don't get enough recognition and I think this team definitely deserves it.
I'm glad there's new mods working on unfucking the sub. Good mods don't get enough recognition and I think this team definitely deserves it.
December 3, 2025 at 6:16 AM
These stats are wild.
I'm glad there's new mods working on unfucking the sub. Good mods don't get enough recognition and I think this team definitely deserves it.
I'm glad there's new mods working on unfucking the sub. Good mods don't get enough recognition and I think this team definitely deserves it.
In the 7 months we had a roommate we went thru FOUR bottles of Dawn.
In the 6 months we've been at our new place, we still haven't finished our first bottle.
I know it was being used for cleaning other things too but I can't fathom why that much would have ever been necessary.
In the 6 months we've been at our new place, we still haven't finished our first bottle.
I know it was being used for cleaning other things too but I can't fathom why that much would have ever been necessary.
December 1, 2025 at 5:22 AM
In the 7 months we had a roommate we went thru FOUR bottles of Dawn.
In the 6 months we've been at our new place, we still haven't finished our first bottle.
I know it was being used for cleaning other things too but I can't fathom why that much would have ever been necessary.
In the 6 months we've been at our new place, we still haven't finished our first bottle.
I know it was being used for cleaning other things too but I can't fathom why that much would have ever been necessary.
Funny how the first day we get snow in the valley is the first day I've taken an unplanned sick day in several months. I took a vacation day so at least I'm not missing out on any pay.
I hate winter so much 😫
I hate winter so much 😫
November 27, 2025 at 8:19 PM
Funny how the first day we get snow in the valley is the first day I've taken an unplanned sick day in several months. I took a vacation day so at least I'm not missing out on any pay.
I hate winter so much 😫
I hate winter so much 😫
Drinking less caffeine than ever yet feeling some of my worst pain and fatigue days means, as usual, one size fits all treatments are bullshit.
I've also lost 20lbs in 1.5yrs and am more active overall. Fuck your weight loss theories, that's not some magical cure either.
I've also lost 20lbs in 1.5yrs and am more active overall. Fuck your weight loss theories, that's not some magical cure either.
November 25, 2025 at 5:34 PM
Drinking less caffeine than ever yet feeling some of my worst pain and fatigue days means, as usual, one size fits all treatments are bullshit.
I've also lost 20lbs in 1.5yrs and am more active overall. Fuck your weight loss theories, that's not some magical cure either.
I've also lost 20lbs in 1.5yrs and am more active overall. Fuck your weight loss theories, that's not some magical cure either.
I've been catching myself making pained frowny faces the last few months and I think I just need to suck it up and start taking more cannabis during the day.
Switching to edibles has made me much more aware of the cost and I've been avoiding taking as much as I did when I vaped.
Switching to edibles has made me much more aware of the cost and I've been avoiding taking as much as I did when I vaped.
November 20, 2025 at 6:25 AM
I've been catching myself making pained frowny faces the last few months and I think I just need to suck it up and start taking more cannabis during the day.
Switching to edibles has made me much more aware of the cost and I've been avoiding taking as much as I did when I vaped.
Switching to edibles has made me much more aware of the cost and I've been avoiding taking as much as I did when I vaped.
Took 20min to clean the shower earlier then crashed horribly and slept for 3hrs. Instant post-exertional malaise is normal for me, but even with so little activity, I can't predict if it'll last only a few hours, a few days, or a few weeks.
November 16, 2025 at 9:09 AM
Took 20min to clean the shower earlier then crashed horribly and slept for 3hrs. Instant post-exertional malaise is normal for me, but even with so little activity, I can't predict if it'll last only a few hours, a few days, or a few weeks.