Adam R Jones
adamrobertjones.bsky.social
Adam R Jones
@adamrobertjones.bsky.social
Academic. Interested in Physiology, Haemophilia & Related Bleeding Disorders, Patient Advocacy, Gene Therapy, Clinical Trials, Pharmacovigilance
What’s the worst thing about living with a #BleedingDisorder? I don’t think there is one thing above all else, but:

1. #SurvivorGuilt
2. #Depression
3. The long, debilitating march of #Arthritis and #PainManagement

Are all right up there…
February 25, 2025 at 1:17 PM
Reposted by Adam R Jones
@sawherry.bsky.social is presenting findings on the intergenerational impact of the contaminated blood scandal at the #EAHAD2025 AHP Day Nurses Slam session, 15.30 local time. Read her article in The Journal of Haemophilia Practice: doi.org/10.2478/jhp-...
#HemeSky #MedSky #BloodSky
February 4, 2025 at 12:46 PM
If you live with a #BleedingDisorder like #Haemophilia, #VWD, etc., then trying to have a “normal” job, education, relationship, or life in general is an up hill struggle every day of your life.
February 3, 2025 at 12:26 PM
Reposted by Adam R Jones
Will you be at #EAHAD2025 Allied Health Professionals Day tomorrow? @katekhair.bsky.social will present results from our GT360 and VWD360 studies.

#EAHADCongress #GlanzmannThrombasthenia #vonWillebrandDisease
#HemeSky #MedSky #BloodSky
February 3, 2025 at 8:53 AM
The world of #UK #HigherEducation at the moment is dancing on a precipice of disaster. Whole departments closing, subjects wiped from existence, staff lay offs everywhere you look. Hold tight everyone, it’s going to be a bumpy ride!
February 3, 2025 at 12:10 PM
Reposted by Adam R Jones
🎨 In case anyone need…

The NIH BioArt Source is an awesome library of *free* professionally drawn illustrations for scientific presentations or figures. Downloadable in HD. Thank you NIH for this invaluable tool 🙏!

Check it out 👇
bioart.niaid.nih.gov
November 23, 2024 at 3:50 PM
Reposted by Adam R Jones
Solidarity, support, advocacy

#WorldAIDSDay2024
December 1, 2024 at 12:51 PM