#ushcommunity
Meet Carol who's delighted to support Usher Syndrome Ireland as our new Company Secretary!

A BIG welcome to the team Carol — we’re so thrilled to have you on board! 💚

#UsherSyndrome #Volunteer #Welcome #USHCommunity #LivedExperiences #InclusiveTech #AssistiveTechnology #TogetherWeCan
April 29, 2025 at 11:56 AM
At its core, the genes related to Usher syndrome are Rare Genes.

But this name is also about reclaiming this diagnosis. Over the years, we've heard countless stories from the #USHCommunity about receiving the USH diagnosis - whether for themselves or a loved one - and what followed.
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April 3, 2025 at 12:00 PM
February 21, 2025 at 8:31 PM