This graphic holds the names of every incredible haunted hottie who donated — thank you for sharing your kindness, your stories, and your hearts.
Here’s to making sure no one feels alone in their battles. 🤟
#HauntedHotties #StrongerTogether #SclerodermaAwareness
Here’s to making sure no one feels alone in their battles. 🤟
#HauntedHotties #StrongerTogether #SclerodermaAwareness
July 3, 2025 at 1:00 AM
This graphic holds the names of every incredible haunted hottie who donated — thank you for sharing your kindness, your stories, and your hearts.
Here’s to making sure no one feels alone in their battles. 🤟
#HauntedHotties #StrongerTogether #SclerodermaAwareness
Here’s to making sure no one feels alone in their battles. 🤟
#HauntedHotties #StrongerTogether #SclerodermaAwareness
#SclerodermaAwareness Month is ending but that doesn’t mean the fight for awareness should end. It needs to continue. Rheumatologists are responsible for diagnosing this systemic disease, and at the recent Canadian conference, only 25 of 250 of them knew about this disease.
#SclerodermaWarrior
#SclerodermaWarrior
June 30, 2025 at 2:41 PM
#SclerodermaAwareness Month is ending but that doesn’t mean the fight for awareness should end. It needs to continue. Rheumatologists are responsible for diagnosing this systemic disease, and at the recent Canadian conference, only 25 of 250 of them knew about this disease.
#SclerodermaWarrior
#SclerodermaWarrior
June 29 is recognized globally as World Scleroderma Day
Scleroderma is a rare, progressive and chronic autoimmune connective tissue disorder that causes excess collagen accumulation.
#Scleroderma #SclerodermaAwareness #AutoimmuneDisease #CAPA #CanadianArthritisPatientAlliance
Scleroderma is a rare, progressive and chronic autoimmune connective tissue disorder that causes excess collagen accumulation.
#Scleroderma #SclerodermaAwareness #AutoimmuneDisease #CAPA #CanadianArthritisPatientAlliance
June 29, 2025 at 4:03 PM
June 29 is recognized globally as World Scleroderma Day
Scleroderma is a rare, progressive and chronic autoimmune connective tissue disorder that causes excess collagen accumulation.
#Scleroderma #SclerodermaAwareness #AutoimmuneDisease #CAPA #CanadianArthritisPatientAlliance
Scleroderma is a rare, progressive and chronic autoimmune connective tissue disorder that causes excess collagen accumulation.
#Scleroderma #SclerodermaAwareness #AutoimmuneDisease #CAPA #CanadianArthritisPatientAlliance
💙 June 29 is World Systemic Sclerosis Day—a day to raise awareness, support those living with this rare autoimmune disease. Read more: www.aiarthritis.org/scleroderma-....
#WorldSystemicSclerosisDay #SclerodermaAwareness #AiArthritis
#WorldSystemicSclerosisDay #SclerodermaAwareness #AiArthritis
June 29, 2025 at 1:02 PM
💙 June 29 is World Systemic Sclerosis Day—a day to raise awareness, support those living with this rare autoimmune disease. Read more: www.aiarthritis.org/scleroderma-....
#WorldSystemicSclerosisDay #SclerodermaAwareness #AiArthritis
#WorldSystemicSclerosisDay #SclerodermaAwareness #AiArthritis
For World Scleroderma Day, we’re sharing how to lower the cost of Orencia. Our blog explains copay support, Medicare savings, and free medication programs.
#scleroderma #autoimmune #SclerodermaAwareness #SclerodermaAwarenessMonth #WorldSclerodermaDay
#scleroderma #autoimmune #SclerodermaAwareness #SclerodermaAwarenessMonth #WorldSclerodermaDay
3 Ways To Save On Orencia: Coupons, Discounts & More
You may be eligible to pay $5 or less for Orencia, whether you're uninsured or not. NeedyMeds can help connect you to programs that can help.
blog.needymeds.org
June 29, 2025 at 12:01 PM
For World Scleroderma Day, we’re sharing how to lower the cost of Orencia. Our blog explains copay support, Medicare savings, and free medication programs.
#scleroderma #autoimmune #SclerodermaAwareness #SclerodermaAwarenessMonth #WorldSclerodermaDay
#scleroderma #autoimmune #SclerodermaAwareness #SclerodermaAwarenessMonth #WorldSclerodermaDay
Great to see the people out today walking with me in #Scarborough today to raise awareness of #Scleroderma and fund medical resources and one day, possibly a cure.
#AutoimmuneDisease
#SclerodermaAwareness
#SclerodermaWarrior
#AutoimmuneDisease
#SclerodermaAwareness
#SclerodermaWarrior
It’s not long COVID, it is the incurable, life threatening, constantly painful, will forever worsen, taking-low-dose-chemo, over-producing-collagen-for-the-rest-of-my-life #Scleroderma, and it sucks!
June 28, 2025 at 4:08 PM
Great to see the people out today walking with me in #Scarborough today to raise awareness of #Scleroderma and fund medical resources and one day, possibly a cure.
#AutoimmuneDisease
#SclerodermaAwareness
#SclerodermaWarrior
#AutoimmuneDisease
#SclerodermaAwareness
#SclerodermaWarrior
🌻 This Sunday is World Scleroderma Day.
Scleroderma (systemic sclerosis) is a rare, serious disease that can cause life-threatening complications in the lungs, kidneys and gut.
#WorldSclerodermaDay #SclerodermaAwareness
Scleroderma (systemic sclerosis) is a rare, serious disease that can cause life-threatening complications in the lungs, kidneys and gut.
#WorldSclerodermaDay #SclerodermaAwareness
June 27, 2025 at 12:40 PM
🌻 This Sunday is World Scleroderma Day.
Scleroderma (systemic sclerosis) is a rare, serious disease that can cause life-threatening complications in the lungs, kidneys and gut.
#WorldSclerodermaDay #SclerodermaAwareness
Scleroderma (systemic sclerosis) is a rare, serious disease that can cause life-threatening complications in the lungs, kidneys and gut.
#WorldSclerodermaDay #SclerodermaAwareness
Once again I will be participating in the Aurora Walk To Cure Scleroderma!
#Scleroderma #Awareness #SclerodermaAwareness
secure.qgiv.com/event/2025au...
#Scleroderma #Awareness #SclerodermaAwareness
secure.qgiv.com/event/2025au...
2025 Aurora Walk to Cure Scleroderma
secure.qgiv.com
June 26, 2025 at 6:04 AM
Once again I will be participating in the Aurora Walk To Cure Scleroderma!
#Scleroderma #Awareness #SclerodermaAwareness
secure.qgiv.com/event/2025au...
#Scleroderma #Awareness #SclerodermaAwareness
secure.qgiv.com/event/2025au...
That's great! #SclerodermaAwareness
I'm glad your brother was able to get a stem cell transplant! They are life saving!
I'm glad your brother was able to get a stem cell transplant! They are life saving!
June 21, 2025 at 6:08 AM
That's great! #SclerodermaAwareness
I'm glad your brother was able to get a stem cell transplant! They are life saving!
I'm glad your brother was able to get a stem cell transplant! They are life saving!
Happy Juneteenth! 🖤 Today we're doing Palia questing + plushie giveaways on stream! 💫
Come hang out, celebrate, and maybe win a cute plushie while we continue fundraising for the National Scleroderma Foundation 💙
🎮 twitch.tv/Saelysss
#Juneteenth #Palia #SclerodermaAwareness
Come hang out, celebrate, and maybe win a cute plushie while we continue fundraising for the National Scleroderma Foundation 💙
🎮 twitch.tv/Saelysss
#Juneteenth #Palia #SclerodermaAwareness
saelysss - Twitch
✨DROPS✨ Charity Stream 🧸 Plushie Giveaways 🎉 Juneteenth Celebration 💙 !NSF !scar !scleroderma !pumpkinroll #togetherforpride
twitch.tv
June 19, 2025 at 4:04 PM
Happy Juneteenth! 🖤 Today we're doing Palia questing + plushie giveaways on stream! 💫
Come hang out, celebrate, and maybe win a cute plushie while we continue fundraising for the National Scleroderma Foundation 💙
🎮 twitch.tv/Saelysss
#Juneteenth #Palia #SclerodermaAwareness
Come hang out, celebrate, and maybe win a cute plushie while we continue fundraising for the National Scleroderma Foundation 💙
🎮 twitch.tv/Saelysss
#Juneteenth #Palia #SclerodermaAwareness
Healthcare Headlines: 🦠June is Scleroderma Awareness Month. Scleroderma is a rare autoimmune disease that affects the skin and internal organs. Early diagnosis and treatment can greatly improve quality of life. Learn more: scleroderma.org/understandin... #RIBGH #SclerodermaAwareness #RareDisease
Understanding Scleroderma
scleroderma.org
June 17, 2025 at 1:57 PM
Healthcare Headlines: 🦠June is Scleroderma Awareness Month. Scleroderma is a rare autoimmune disease that affects the skin and internal organs. Early diagnosis and treatment can greatly improve quality of life. Learn more: scleroderma.org/understandin... #RIBGH #SclerodermaAwareness #RareDisease
Cooking up cozy vibes in Palia today while fundraising for the National Scleroderma Foundation 💙 Join the party, help raise awareness, and support a cause close to my heart! 🧡
🎮 twitch.tv/SaeLysss
#HauntedHeartsForHope #SclerodermaAwareness #Palia
🎮 twitch.tv/SaeLysss
#HauntedHeartsForHope #SclerodermaAwareness #Palia
Twitch
Twitch is the world
twitch.tv
June 16, 2025 at 4:03 PM
Cooking up cozy vibes in Palia today while fundraising for the National Scleroderma Foundation 💙 Join the party, help raise awareness, and support a cause close to my heart! 🧡
🎮 twitch.tv/SaeLysss
#HauntedHeartsForHope #SclerodermaAwareness #Palia
🎮 twitch.tv/SaeLysss
#HauntedHeartsForHope #SclerodermaAwareness #Palia
We're heading deeper into the Elderwood today for Day 5 of Haunted Hearts for Hope! 💙
Fundraising for the National Scleroderma Foundation
Any raids really help me bring awareness and are very appreciated!
🔴 www.twitch.tv/saelysss
#SclerodermaAwareness #Palia #CharityStream
Fundraising for the National Scleroderma Foundation
Any raids really help me bring awareness and are very appreciated!
🔴 www.twitch.tv/saelysss
#SclerodermaAwareness #Palia #CharityStream
saelysss - Twitch
(SAY-LESS) she/her • Live Monday - Friday • Palia Partner ♡ Business Inquiries 💌 saelysss6@gmail.com
www.twitch.tv
June 6, 2025 at 4:02 PM
We're heading deeper into the Elderwood today for Day 5 of Haunted Hearts for Hope! 💙
Fundraising for the National Scleroderma Foundation
Any raids really help me bring awareness and are very appreciated!
🔴 www.twitch.tv/saelysss
#SclerodermaAwareness #Palia #CharityStream
Fundraising for the National Scleroderma Foundation
Any raids really help me bring awareness and are very appreciated!
🔴 www.twitch.tv/saelysss
#SclerodermaAwareness #Palia #CharityStream
Day 4 of Haunted Hearts for Hope is live! 💙
We’re back in @playPalia doing some cozy decorating and continuing our charity fundraiser for the National Scleroderma Foundation. Come hang out, support, or just vibe! 🧡
🔴 www.twitch.tv/saelysss
#SclerodermaAwareness #Palia #HauntedHotties
We’re back in @playPalia doing some cozy decorating and continuing our charity fundraiser for the National Scleroderma Foundation. Come hang out, support, or just vibe! 🧡
🔴 www.twitch.tv/saelysss
#SclerodermaAwareness #Palia #HauntedHotties
saelysss - Twitch
(SAY-LESS) she/her • Live Monday - Friday • Palia Partner ♡ Business Inquiries 💌 saelysss6@gmail.com
www.twitch.tv
June 5, 2025 at 4:59 PM
Day 4 of Haunted Hearts for Hope is live! 💙
We’re back in @playPalia doing some cozy decorating and continuing our charity fundraiser for the National Scleroderma Foundation. Come hang out, support, or just vibe! 🧡
🔴 www.twitch.tv/saelysss
#SclerodermaAwareness #Palia #HauntedHotties
We’re back in @playPalia doing some cozy decorating and continuing our charity fundraiser for the National Scleroderma Foundation. Come hang out, support, or just vibe! 🧡
🔴 www.twitch.tv/saelysss
#SclerodermaAwareness #Palia #HauntedHotties
CellCept is part of treatment for some people with #scleroderma, but it isn't always easy to afford. This new blog outlines ways to reduce costs through copay help, free medication programs, and Medicare support.
#SclerodermaAwareness #autoimmunedisease #lupus #chronicillness #medicare #uninsured
#SclerodermaAwareness #autoimmunedisease #lupus #chronicillness #medicare #uninsured
3 Ways to Save on CellCept: Coupons, Discounts, & More
Get CellCept for $15 or less! NeedyMeds can connect you with programs if you're insured, uninsured, or on medicare. Start saving today!
blog.needymeds.org
June 5, 2025 at 3:38 PM
CellCept is part of treatment for some people with #scleroderma, but it isn't always easy to afford. This new blog outlines ways to reduce costs through copay help, free medication programs, and Medicare support.
#SclerodermaAwareness #autoimmunedisease #lupus #chronicillness #medicare #uninsured
#SclerodermaAwareness #autoimmunedisease #lupus #chronicillness #medicare #uninsured
Day 3 of charity fundraising is complete and we’re now at $705 raised!💙 So grateful for the Haunted Hotties who continue to show up, share their stories, and support this cause so close to my heart. You are everything.🤟 #HauntedHeartsForHope #SclerodermaAwareness #autoimmune
June 5, 2025 at 1:16 AM
Day 3 of charity fundraising is complete and we’re now at $705 raised!💙 So grateful for the Haunted Hotties who continue to show up, share their stories, and support this cause so close to my heart. You are everything.🤟 #HauntedHeartsForHope #SclerodermaAwareness #autoimmune
During Scleroderma Awareness Month, we’re sharing how to lower the cost of Orencia. Our blog explains copay support, Medicare savings, and free medication programs.
#scleroderma #autoimmune #SclerodermaAwareness #SclerodermaAwarenessMonth
#scleroderma #autoimmune #SclerodermaAwareness #SclerodermaAwarenessMonth
3 Ways To Save On Orencia: Coupons, Discounts & More
You may be eligible to pay $5 or less for Orencia, whether you're uninsured or not. NeedyMeds can help connect you to programs that can help.
blog.needymeds.org
June 4, 2025 at 12:02 PM
During Scleroderma Awareness Month, we’re sharing how to lower the cost of Orencia. Our blog explains copay support, Medicare savings, and free medication programs.
#scleroderma #autoimmune #SclerodermaAwareness #SclerodermaAwarenessMonth
#scleroderma #autoimmune #SclerodermaAwareness #SclerodermaAwarenessMonth
Going live for a cozy Palia cooking party! 🥘✨
We’re also fundraising for The National Scleroderma Foundation 💙
Come chill, cook, and support a cause close to my heart:
🔗 tilt.fyi/crhOQmgvcX
📺 twitch.tv/SaeLysss
#SclerodermaAwareness #Palia #CharityStream
We’re also fundraising for The National Scleroderma Foundation 💙
Come chill, cook, and support a cause close to my heart:
🔗 tilt.fyi/crhOQmgvcX
📺 twitch.tv/SaeLysss
#SclerodermaAwareness #Palia #CharityStream
Tiltify
tilt.fyi
June 3, 2025 at 5:21 PM
Going live for a cozy Palia cooking party! 🥘✨
We’re also fundraising for The National Scleroderma Foundation 💙
Come chill, cook, and support a cause close to my heart:
🔗 tilt.fyi/crhOQmgvcX
📺 twitch.tv/SaeLysss
#SclerodermaAwareness #Palia #CharityStream
We’re also fundraising for The National Scleroderma Foundation 💙
Come chill, cook, and support a cause close to my heart:
🔗 tilt.fyi/crhOQmgvcX
📺 twitch.tv/SaeLysss
#SclerodermaAwareness #Palia #CharityStream
Our first charity stream is done & I’m overwhelmed with gratitude 💙 Thank you for lurking, chatting, sharing stories, raiding & donating.
We’ve unlocked the Palia Hide N Seek event! 🎉 Let’s keep the love going all month long #HauntedHeartsForHope #SclerodermaAwareness #CharityStream
We’ve unlocked the Palia Hide N Seek event! 🎉 Let’s keep the love going all month long #HauntedHeartsForHope #SclerodermaAwareness #CharityStream
June 2, 2025 at 10:22 PM
Our first charity stream is done & I’m overwhelmed with gratitude 💙 Thank you for lurking, chatting, sharing stories, raiding & donating.
We’ve unlocked the Palia Hide N Seek event! 🎉 Let’s keep the love going all month long #HauntedHeartsForHope #SclerodermaAwareness #CharityStream
We’ve unlocked the Palia Hide N Seek event! 🎉 Let’s keep the love going all month long #HauntedHeartsForHope #SclerodermaAwareness #CharityStream
To qualify for benefits for Scleroderma, in addition to meeting the SSA’s financial requirements, applicants must provide medical evidence confirming their diagnosis and demonstrate involvement of multiple organs. #sclerodermawarrior #sclerodermaawareness www.brrlaw.com/systemic-scl...
Systemic Sclerosis - Secrets for getting disability in 2025
The SSA recognizes scleroderma as an impairment but qualifying can be difficult. A disability lawyer with 30 years experience tells you what you need to do
www.brrlaw.com
March 20, 2025 at 9:27 PM
To qualify for benefits for Scleroderma, in addition to meeting the SSA’s financial requirements, applicants must provide medical evidence confirming their diagnosis and demonstrate involvement of multiple organs. #sclerodermawarrior #sclerodermaawareness www.brrlaw.com/systemic-scl...