Amazing, the story of the humble beginning of Congressman Shri Thanedar of Michigan @shrithanedar.bsky.social The only Pharmaceutics researcher in Congress. In him we have a huge champion for #rFSGS @rfsgsinitiative.bsky.social @kidneyomicsamps.bsky.social @genetickidneydoc.bsky.social
December 9, 2024 at 8:13 PM
Amazing, the story of the humble beginning of Congressman Shri Thanedar of Michigan @shrithanedar.bsky.social The only Pharmaceutics researcher in Congress. In him we have a huge champion for #rFSGS @rfsgsinitiative.bsky.social @kidneyomicsamps.bsky.social @genetickidneydoc.bsky.social
A few more days to register to the first ever, recurrent FSGS conference!
If you are not blown away by the program, come for the food :)
#rFSGS #FSGS #raredisease #nephsky #medsky #skyneph @gbadegesinlab.bsky.social @kidneyomicsamps.bsky.social @opeyemiolabisi.bsky.social @alessiafornoni.bsky.social
If you are not blown away by the program, come for the food :)
#rFSGS #FSGS #raredisease #nephsky #medsky #skyneph @gbadegesinlab.bsky.social @kidneyomicsamps.bsky.social @opeyemiolabisi.bsky.social @alessiafornoni.bsky.social
🚨 We are officially two weeks out from the #rFSGSConference! 🚨
Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: www.scgcorp.com/rFSGS2024/Re...
Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: www.scgcorp.com/rFSGS2024/Re...
November 26, 2024 at 2:14 AM
A few more days to register to the first ever, recurrent FSGS conference!
If you are not blown away by the program, come for the food :)
#rFSGS #FSGS #raredisease #nephsky #medsky #skyneph @gbadegesinlab.bsky.social @kidneyomicsamps.bsky.social @opeyemiolabisi.bsky.social @alessiafornoni.bsky.social
If you are not blown away by the program, come for the food :)
#rFSGS #FSGS #raredisease #nephsky #medsky #skyneph @gbadegesinlab.bsky.social @kidneyomicsamps.bsky.social @opeyemiolabisi.bsky.social @alessiafornoni.bsky.social
What a meeting! With my co-program director @alessiafornoni.bsky.social and co-organizers Elie and Gary Torgow we pulled together, in a short time, an amazing and diverse group of people united in the fight against #rFSGS.
@rfsgsinitiative.bsky.social #FSGS #raredisease #Nephsky #Medsky
@rfsgsinitiative.bsky.social #FSGS #raredisease #Nephsky #Medsky
December 11, 2024 at 11:43 AM
What a meeting! With my co-program director @alessiafornoni.bsky.social and co-organizers Elie and Gary Torgow we pulled together, in a short time, an amazing and diverse group of people united in the fight against #rFSGS.
@rfsgsinitiative.bsky.social #FSGS #raredisease #Nephsky #Medsky
@rfsgsinitiative.bsky.social #FSGS #raredisease #Nephsky #Medsky
📣REGISTRATION DEADLINE EXTENDED📣
There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...
#KidneyTransplant
#RareDisease
#nephsky
#skyneph
There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...
#KidneyTransplant
#RareDisease
#nephsky
#skyneph
December 5, 2024 at 2:40 PM
📣REGISTRATION DEADLINE EXTENDED📣
There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...
#KidneyTransplant
#RareDisease
#nephsky
#skyneph
There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...
#KidneyTransplant
#RareDisease
#nephsky
#skyneph
Despite tremendous advancement in the genetics and immunology of #nephroticsyndrome, #rFSGS mechanisms are still mostly elusive. Without mechanisms cures will lag behind.
Help us understanding rFSGS and participate in our World-Wide Task-Force to tackle this condition!
#RareDisease #Nephsky #Medsky
Help us understanding rFSGS and participate in our World-Wide Task-Force to tackle this condition!
#RareDisease #Nephsky #Medsky
Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS.
#KidneyMonth #rFSGS #rFSGSConference
#KidneyMonth #rFSGS #rFSGSConference
March 31, 2025 at 1:38 PM
Despite tremendous advancement in the genetics and immunology of #nephroticsyndrome, #rFSGS mechanisms are still mostly elusive. Without mechanisms cures will lag behind.
Help us understanding rFSGS and participate in our World-Wide Task-Force to tackle this condition!
#RareDisease #Nephsky #Medsky
Help us understanding rFSGS and participate in our World-Wide Task-Force to tackle this condition!
#RareDisease #Nephsky #Medsky
Our fearless leader @genetickidneydoc.bsky.social with a tour de force on the long term plans for discovery and implementation for rFSGS
@rfsgsinitiative.bsky.social
@rfsgsinitiative.bsky.social
December 9, 2024 at 9:48 PM
Our fearless leader @genetickidneydoc.bsky.social with a tour de force on the long term plans for discovery and implementation for rFSGS
@rfsgsinitiative.bsky.social
@rfsgsinitiative.bsky.social
Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS and you want to learn how you can help by providing a biosample, email mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
March 17, 2025 at 8:10 PM
Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS and you want to learn how you can help by providing a biosample, email mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
Fantastic Miami team at the #rFSGS conference!!
@rfsgsinitiative.bsky.social @kidneyomicsamps.bsky.social @gbadegesinlab.bsky.social @opeyemiolabisi.bsky.social
@rfsgsinitiative.bsky.social @kidneyomicsamps.bsky.social @gbadegesinlab.bsky.social @opeyemiolabisi.bsky.social
Some of our awesome Miami team (including @alessiafornoni.bsky.social ) at the @rfsgsinitiative.bsky.social conference!!
December 10, 2024 at 9:39 PM
Fantastic Miami team at the #rFSGS conference!!
@rfsgsinitiative.bsky.social @kidneyomicsamps.bsky.social @gbadegesinlab.bsky.social @opeyemiolabisi.bsky.social
@rfsgsinitiative.bsky.social @kidneyomicsamps.bsky.social @gbadegesinlab.bsky.social @opeyemiolabisi.bsky.social
Simone @genetickidneydoc.bsky.social is a visionary and alliance-building, result-oriented scientist. His #rFSGS biobank will help the whole community. Refer your rFSGS patients to his registry. Together, we can conquer the #rFSGS menace.
Our #rFSGS biobank is growing and we welcome patients from all over the world! Please reach out to us if you are a patient or a physician caring for one. We are creating a resource for everyone to use with the goal of resolving this disease and find new cures.
#KidneyMonth2025 #RareDisease #genetics
#KidneyMonth2025 #RareDisease #genetics
Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS and you want to learn how you can help by providing a biosample, email mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
March 22, 2025 at 2:17 PM
Simone @genetickidneydoc.bsky.social is a visionary and alliance-building, result-oriented scientist. His #rFSGS biobank will help the whole community. Refer your rFSGS patients to his registry. Together, we can conquer the #rFSGS menace.
Thank you @opeyemiolabisi.bsky.social and the whole @dukekidney.bsky.social , @gbadegesinlab.bsky.social , Laura Barisoni et al!
It was a great couple of days of scientific excellence mixed with pleasant company and nice weather.
#APOL1 #FSGS #rFSGS #genetics #pediatrics #NephSky #SkyNeph #Medsky
It was a great couple of days of scientific excellence mixed with pleasant company and nice weather.
#APOL1 #FSGS #rFSGS #genetics #pediatrics #NephSky #SkyNeph #Medsky
It was a pleasure to have Dr. Sanna-Cherchi @genetickidneydoc.bsky.social give an excellent, well-attended, Renal Grand Rounds at @dukekidney.bsky.social He is an embodiment of collaborative excellence💪🏾 @columbiakidney.bsky.social
August 18, 2025 at 9:38 PM
Thank you @opeyemiolabisi.bsky.social and the whole @dukekidney.bsky.social , @gbadegesinlab.bsky.social , Laura Barisoni et al!
It was a great couple of days of scientific excellence mixed with pleasant company and nice weather.
#APOL1 #FSGS #rFSGS #genetics #pediatrics #NephSky #SkyNeph #Medsky
It was a great couple of days of scientific excellence mixed with pleasant company and nice weather.
#APOL1 #FSGS #rFSGS #genetics #pediatrics #NephSky #SkyNeph #Medsky
Great to see a conference like this. Experienced rFSGS twice. Now doing well on nocturnal HHD.👍
December 1, 2024 at 7:29 PM
Great to see a conference like this. Experienced rFSGS twice. Now doing well on nocturnal HHD.👍
Thank you for the welcome invitation @glomcon.org !
It was a pleasure, and looking forward to more interactions!
#FSGS #rFSGS #APOL1 #genetics #humangenetics
@isgd.bsky.social @asnkidney.bsky.social @cuimcglomcenter.bsky.social #Nephsky #Medsky
It was a pleasure, and looking forward to more interactions!
#FSGS #rFSGS #APOL1 #genetics #humangenetics
@isgd.bsky.social @asnkidney.bsky.social @cuimcglomcenter.bsky.social #Nephsky #Medsky
Fantastic overview of the latest in APOL-1 kidney disease by @genetickidneydoc.bsky.social @glomcon.org today!!
Highlighted work from various labs @gbadegesinlab.bsky.social.
Highlighted work from various labs @gbadegesinlab.bsky.social.
March 9, 2025 at 6:43 PM
Thank you for the welcome invitation @glomcon.org !
It was a pleasure, and looking forward to more interactions!
#FSGS #rFSGS #APOL1 #genetics #humangenetics
@isgd.bsky.social @asnkidney.bsky.social @cuimcglomcenter.bsky.social #Nephsky #Medsky
It was a pleasure, and looking forward to more interactions!
#FSGS #rFSGS #APOL1 #genetics #humangenetics
@isgd.bsky.social @asnkidney.bsky.social @cuimcglomcenter.bsky.social #Nephsky #Medsky
Help us understand why!
If you or someone you know has #rFSGS and you are interested in learning how you can help and provide a biosample, email us at mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
If you or someone you know has #rFSGS and you are interested in learning how you can help and provide a biosample, email us at mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
March 27, 2025 at 7:06 PM
Help us understand why!
If you or someone you know has #rFSGS and you are interested in learning how you can help and provide a biosample, email us at mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
If you or someone you know has #rFSGS and you are interested in learning how you can help and provide a biosample, email us at mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
Happy Saturday posting :)
This amazing conference is about to happen, you and your #rFSGS patients, families, and friends are welcome
Register here
www.scgcorp.com/rFSGS2024/Re...
The program is mind-blowing: >140 in-person participants, >40% are patients/family members! #Nephsky #Medsky #FSGS
This amazing conference is about to happen, you and your #rFSGS patients, families, and friends are welcome
Register here
www.scgcorp.com/rFSGS2024/Re...
The program is mind-blowing: >140 in-person participants, >40% are patients/family members! #Nephsky #Medsky #FSGS
November 23, 2024 at 7:42 PM
Happy Saturday posting :)
This amazing conference is about to happen, you and your #rFSGS patients, families, and friends are welcome
Register here
www.scgcorp.com/rFSGS2024/Re...
The program is mind-blowing: >140 in-person participants, >40% are patients/family members! #Nephsky #Medsky #FSGS
This amazing conference is about to happen, you and your #rFSGS patients, families, and friends are welcome
Register here
www.scgcorp.com/rFSGS2024/Re...
The program is mind-blowing: >140 in-person participants, >40% are patients/family members! #Nephsky #Medsky #FSGS
Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS.
#KidneyMonth #rFSGS #rFSGSConference
#KidneyMonth #rFSGS #rFSGSConference
March 27, 2025 at 7:06 PM
Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS.
#KidneyMonth #rFSGS #rFSGSConference
#KidneyMonth #rFSGS #rFSGSConference
Recurrent FSGS Conference Count-Down: -13 Days!
Final program about to be published, stay tuned and register here
www.scgcorp.com/rFSGS2024/Re...
#rFSGS #FSGS #nephroticsyndrome #nephsky #skyneph #medsky #raredisease #pediatricnephrology
@asnkidney.bsky.social @isgd.bsky.social
Final program about to be published, stay tuned and register here
www.scgcorp.com/rFSGS2024/Re...
#rFSGS #FSGS #nephroticsyndrome #nephsky #skyneph #medsky #raredisease #pediatricnephrology
@asnkidney.bsky.social @isgd.bsky.social
November 27, 2024 at 1:31 AM
Recurrent FSGS Conference Count-Down: -13 Days!
Final program about to be published, stay tuned and register here
www.scgcorp.com/rFSGS2024/Re...
#rFSGS #FSGS #nephroticsyndrome #nephsky #skyneph #medsky #raredisease #pediatricnephrology
@asnkidney.bsky.social @isgd.bsky.social
Final program about to be published, stay tuned and register here
www.scgcorp.com/rFSGS2024/Re...
#rFSGS #FSGS #nephroticsyndrome #nephsky #skyneph #medsky #raredisease #pediatricnephrology
@asnkidney.bsky.social @isgd.bsky.social
Now, @opeyemiolabisi.bsky.social presenting about the role of kidney organoids in helping to study rFSGS @rfsgsinitiative.bsky.social @genetickidneydoc.bsky.social @gbadegesinlab.bsky.social
December 9, 2024 at 9:08 PM
Now, @opeyemiolabisi.bsky.social presenting about the role of kidney organoids in helping to study rFSGS @rfsgsinitiative.bsky.social @genetickidneydoc.bsky.social @gbadegesinlab.bsky.social
Days to rFSGS Conference: 11
Registration: still open! See ⬇️
@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@asnkidney.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#raredisease
#nephsky
#medsky
#skyneph
Registration: still open! See ⬇️
@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@asnkidney.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#raredisease
#nephsky
#medsky
#skyneph
Recurrent focal segmental glomerulosclerosis (rFSGS) is characterized by the reoccurrence of FSGS within the first few weeks after a #KidneyTransplant. If you've been impacted by #rFSGS, join patients, caregivers, & researchers at our #rFSGSConference: www.scgcorp.com/rFSGS2024/Re...
November 28, 2024 at 3:42 PM
Days to rFSGS Conference: 11
Registration: still open! See ⬇️
@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@asnkidney.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#raredisease
#nephsky
#medsky
#skyneph
Registration: still open! See ⬇️
@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@asnkidney.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#raredisease
#nephsky
#medsky
#skyneph
We are connecting the world with the common goal of resolving recurrent FSGS. Join the effort and help us populate the map !!
#FSGS #rFSGS #RareDisease #genetics #nephrology #pediatricnephrology #transplant #nephroticsyndrome
#FSGS #rFSGS #RareDisease #genetics #nephrology #pediatricnephrology #transplant #nephroticsyndrome
It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure.
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
March 13, 2025 at 5:02 PM
We are connecting the world with the common goal of resolving recurrent FSGS. Join the effort and help us populate the map !!
#FSGS #rFSGS #RareDisease #genetics #nephrology #pediatricnephrology #transplant #nephroticsyndrome
#FSGS #rFSGS #RareDisease #genetics #nephrology #pediatricnephrology #transplant #nephroticsyndrome