#polymyositis
Zondag a.s. is de dag dat ik exact 40 jaar ziek ben. Dankzij het Anti-synthetase syndroom kreeg ik polymyositis, raynaud, longfibrose, een longtransplantatie, huidkanker, kalkafzettingen in mijn weke delen, nierfalen, chronische blaasontstekingen, nierstenen, gordelroos, vele longontstekingen,
October 9, 2025 at 9:45 PM
Somebody asked me yesterday for a list of differential diagnoses for ME/CFS. Here's a second chart.

As some have argued, people can have these and still have ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

From:
mecfscliniciancoalition.org/wp-content/u...

1/
October 6, 2025 at 12:29 PM
Study found serum IFN-λ3 levels were significantly higher in PM/DM-associated ILD than in healthy controls

Levels were specifically increased in patients with anti-MDA5 antibody-positive DM-ILD and were associated with poor prognoses

In Arthritis & Rheumatology
loom.ly/6kGBYDo
January 4, 2024 at 3:45 PM
Apremilast in a cohort of patients with immune-checkpoint inhibitor psoriasis and/or psoriatic arthritis
doi.org/10.1002/acr....

Trends in dermato-polymyositis mortality relative to all-cause mortality in the US, 1999-2022
doi.org/10.1002/acr....
Trends in Dermato‐polymyositis Mortality, 1999‐2022: A Nationwide Population‐based Study, United States
Objective We evaluated trends in dermato-polymyositis (DPM) mortality relative to all-cause mortality in the United States, 1999-2022. Methods We used the Center for Disease Control and Prevention...
doi.org
July 19, 2025 at 1:12 PM
Metabolomic Analysis of Serum Reveals a Unique Metabolomic Profile in Patients With Myositis and Identified Several Potential Biomarkers in Polymyositis Versus Dermatomyositis Patients #BiomedChrom analyticalsciencejournals.onlinelibrary.wiley.com/doi/10.1002/...
Metabolomic Analysis of Serum Reveals a Unique Metabolomic Profile in Patients With Myositis and Identified Several Potential Biomarkers in Polymyositis Versus Dermatomyositis Patients
DM and PM were the two major subtypes in myositis; among which, a unique metabolomic and biomarker profile remains lacking. Serum from 36 diagnosed myositis patients (28 DM and 8 PM) and 29 healthy c...
analyticalsciencejournals.onlinelibrary.wiley.com
February 7, 2025 at 9:36 AM
I just saw this and I'm excited. I have antisynthetase, polymyositis, IPF, had lymphoma and now hypogammaglobulinemia. Would this work for me?
April 3, 2025 at 1:34 PM
If anyone is feeling generous and kind enough to donate Ethereum for Christmas, this is the address:

0x4BC93A72518dFB9CC830BcC7BE03616a0298E019

I'm physically disabled by a chronic, fatal disease with no known cure (for real). Began as Polymyositis, ended up with MCTD. Get less than $7500/yr SSDI.
December 18, 2024 at 7:30 PM
thank you for the kind words :( the things that it could be other than arthritis are pretty similar regardless at least in regards to joint pain/inflammation. its one or more of these they put on my chart: polymyositis, sjogrens, or scleroderma :(

ive got hEDS so things just keep coming for me
December 19, 2024 at 2:14 PM
This real-world study examined the clinical and economic impact of long-term (LT) oral glucocorticoid (OGC) use in patients with dermatomyositis (DM) and polymyositis (PM).
October 7, 2025 at 4:17 PM
Da steht ja Polymyositis. Wahrscheinlich gab es vorher andere schwere Erkrankungen, wie die Lungenentzündung. Das kommt nicht aus dem Nichts, da sind oft viele Krankheiten beteiligt.
April 1, 2024 at 12:13 PM
Yeah, I have SLE, RA, and Polymyositis. I’ve been in severe pain since my early 30s.
September 21, 2024 at 4:00 AM
COVID-19 Linked To Higher Risk Of Developing Autoimmune Inflammatory Rheumatic Diseases | forbes.com

Published study: www.acpjournals.org/doi/10.7326/...

Source: www.forbes.com/sites/anurad...
March 29, 2024 at 11:11 PM
First day back at work in @darkmatterlabs.org after months of hospitals & subsequent community physical rehab - this shiny new autoimmune issue makes even the familiar unfamiliar #polymyositis
June 11, 2025 at 1:13 PM
Or Fibromylagia, or polymyositis, or Ehler's Danlos Syndrome.
September 30, 2025 at 11:01 PM
In 2019–2020, Jessica Alva Piedra collaborated with Ana Estrada to photograph Estrada’s life with polymyositis and in palliative care.

I've written for @assistedlab.bsky.social about their photos – a testimony to Estrada’s agency to represent her own body while advocating for the right to die.
'Ana' photographs by Jessica Alva Piedra
The 'Ana' photos by Jessica Alva Piedra are a testimony to Ana Estrada's agency to represent her own body while advocating for the right to die.
assistedlab.ch
May 14, 2025 at 6:23 PM
Crying this morning because all my autoimmune test results came back negative.
Like, that's great! But I'm still in pain!
I guess I have to keep looking into more and more obscure things it can be?
Anyone know anything about Polymyositis?
November 14, 2024 at 5:20 PM
Alarming findings on long-term glucocorticoid use in dermatomyositis and polymyositis patients - higher risks of complications, hospitalizations, and soaring healthcare costs. Urgent need...

🧵 Thread below

Full analysis: https://helixbrief.com/article/114ba573-72c9-4f2e-b83a-1bea15608cdc
October 7, 2025 at 4:17 PM
Indirect immunofluorescence detects autoantibodies by binding them to tissue antigens and staining. EMA indicates celiac disease, while SMA suggests autoimmune hepatitis or polymyositis.
#science #skiart #medsky #edusky #academicsky #MedSky #MedEd #MedicalEducation #medschoolsky
January 27, 2025 at 1:39 PM
In April 2024, my husband ( #autoimmune #polymyositis) and I ( #ms #multiplesclerosis) started #weightwatchers and an exercise program ( #walking and #yoga). We have both lost 50lbs! Feel great and know it’ll help us as we age.
November 29, 2024 at 12:34 PM
Oh and a life update!

I left my high stress tech job working in VOD/OTT and am now back at the hotel I worked at in 2021/2022.

After almost having another mental break down because of work and finding out I likely have polymyositis, I just couldn't handle it anymore.

Will I leave again? Maybe.
November 6, 2025 at 8:35 PM
My sister has Celiac and I have polymyositis ugh nothing like a prednisone face
November 28, 2024 at 1:11 PM
This Cochrane review assessed the effects of targeted immunosuppressant and immunomodulatory treatments for idiopathic inflammatory myopathies (IIM), including dermatomyositis, immune-mediated necrotizing myopathy, and polymyositis.
August 6, 2025 at 3:25 PM
Another celiac study:

The avenin in oats caused an autoimmune response in 38% of celiacs. One in five maintains that response.

ddw.digitellinc.com/p/s/a-bispec...

All that cope about “no intestinal damage” ignores gluten ataxia, polymyositis, celiac eye disease, and dermatitis herpetiformis.
A BISPECIFIC ANTIBODY TARGETING HLA-DQ2.5-GLUTEN PEPTIDES POTENTLY BLOCKS GLUTEN-SPECIFIC T CELLS INDUCED BY GLUTEN INGESTION IN PATIENTS WITH CELIAC DISEASE
BACKGROUND: Contamination-free oats are considered safe for most patients with celiac disease (CeD)…
ddw.digitellinc.com
May 18, 2024 at 5:40 PM
I have MCTD to include Lupus, Scleroderma, Polymyositis, & Hashimoto's. Also Spondylitis & a few others that are associated w/overlap. Tomorrow I'm having a Katamine infusion because of the excruciating pain I'm in. I'd give anything for an immune system reset. Thank you for all you're doing.
November 21, 2024 at 7:32 AM