Dans Biomaterials, Sofie Dhondt, Philippe Delbreil, Xavier Banquy et Davide Brambilla une étude présentant un hydrogel ultraporeux capable de protéger cette enzyme prometteuse dans l’intestin. Cette avancée ouvre la voie à une administration orale plus simple pour la phénylcétonurie bit.ly/4qlT28n

It's been a while, but I've finished my Magnus Opus

#blood #bloodspot #bloodtest #nhs #health #pku #phenylketonuria #pcu #phenylcetonurie

Utiliser le mot défiance c'est un choix assez vomitif quand on parle trisomie ou autre maladies génétique (la trisomie est anomalie chromosomique et non génétique d ailleurs).
Question : la phenylcetonurie maladie génétique empêche le développement cérébral.

𝐵𝑜𝓃𝒿𝑜𝓊𝓇 ! En ce 28 juin :

👼🏼 Irénée

🌍 Journée internationale de la phénylcétonurie (PCU)
🌍 Caps Lock Day (Journée mondiale de la majuscule)

🌒 1er croissant (nvelle dans 26j)

🌞179 | 🗓️S26 |🫡1220🇺🇦

Made this last night, but used 2 OXO cubes instead of the veg stock in the recipe, and OH WOW was it delicious!

www.vitafriendspku.co.uk/pku/recipe/vegetable-medley-pilau-rice

#pku #phenylketonuria #pcu #phenylcetonurie #food #cooking

My latest blood test results was 676umol/L! (My last one was 950+ umol/L, so this is great news) 🥳

(I've only now realised I've completely forgot to provide blood spot samples as usual, but you know what to expect by now 😂)

#blood #bloodspot #pku #phenylketonuria #pcu #phenylcetonurie

Did my blood test but completely forgot to take pictures of the sheet.

Just imagine a complete disarray of blood spots. Meanwhile, you'll have to settle on my finger instead.

#blood #bloodtest #pku #phebylketonuria #pcu #phenylcetonurie

A new blog by @pcublogue which adequately explains the trouble of not managing the diet well with PKU

www.phenylcetonurie.ca/p/phenylceto...

#pku #pcu #phenylketonuria #phenylcetonurie #health #healthcare #genetherapy

Honestly, what did you expect?

#bloodtest #phenylketonuria #pku #phenylcetonurie #pcu #blood

The fantastic @poconnor has released a new newsletter about the origins of PKU. You can read it here:

www.pigpen.page/origins-of-p...

#pku #phenylketonuria #pcu #phenylcetonurie #health #nhs #birmingham #sheilajones #uk

Our workplace has moved to a new location. It's lovely, but it's also equally frustrating to someone like me who has PKU.

#pku #phenylketonuria #pcu #phenylcetonurie

Mogo chips with normal chips and vegan mayonnaise.

2 PKU exchanges and utterly delicious 😋

#pku #phenyketonuria #pcu #phenylcetonurie #lowprotein #lowproteinfood