#WeAreNotWaiting
@ c0dec0dec0de @ JessTheUnstill @ Viss oh, yeah, there's that stuff as well. Fortunately WeAreNotWaiting movement reverse engineered a bunch of comms protocols, and some of them have been intentiionally left interoperable by manufacturers.

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social.hackerspace.pl
July 28, 2025 at 11:19 PM
#HiSciSky I am an nutrition researcher #NutSky and I live with #T1D. I do clinical trials looking at nutrition and chronic disease, especially type 2 diabetes and chronic kidney disease. I am a big fan of DIY closed loop insulin delivery systems. #wearenotwaiting
September 19, 2023 at 1:17 PM
#WeAreNotWaiting movement is rooted in patients wrestling access to their diabetes data from closed systems.

Small-scale RCTs have shown that the original oref1 algorithm is comparable to even the most advanced commercial algorithms currently on the market, and we are STILL not waiting, and…
December 30, 2024 at 6:47 AM
We can get to the cure faster.
We just need to be.
more smarter.
less political.
more focused.
less greedy.
More or less-we need a Jon Braxton
#Type1Diabetes #T1D #hope #type1diabetic #wearenotwaiting #type1lookslikeme #diabetessucks #beyondtype1 #t1d #t1diabetic #type1diabetesawareness #t1dstrong
January 1, 2025 at 7:45 PM
This is awful and why the #wearenotwaiting #diabetes movement is so important. They are saying that the data your body creates isn’t yours? That fair use isn’t fair? Fork and upload again and again. https://boingboing.net/2019/12/12/they-literally-own-you.html
November 18, 2024 at 2:23 AM
Diabetes tech marches on…and it makes life suck less https://www.tiktok.com/t/ZTR7RY5o3/ #WeAreNotWaiting #T1D #Diabetes
November 29, 2024 at 7:57 AM
t3n: Open-Source: Automatisierte Insulinzufuhr der Marke Eigenbau – und was die Medizin dazu sagt t3n.de/news/open-so...
#WeAreNotWaiting #GoodNews
Open-Source: Automatisierte Insulinzufuhr der Marke Eigenbau – und was die Medizin dazu sagt | t3n
Weil sie nicht auf die kommerzielle Medizintechnik warten wollten, entwickelten Diabetiker:innen selbst ein System zur automatisierten Insulinversorgung. Jetzt gibt es Feedback aus offiziellen…
t3n.de
August 5, 2025 at 2:38 PM
Reading about how people with #t1diabetes and ADHD typically have higher hba1c and worse glucose control than those without (having grown up as one of these people can confirm) and thinking about how much DIY looping #wearenotwaiting has made a normal life possible for me
February 27, 2025 at 10:44 PM
The #WeAreNotWaiting movement extremely pantsed the medical community & the FDA by making DIY APSes (outside of FDA's jurisdiction) a popular thing

I don't think there's been a better example of disability self-advocacy
July 16, 2024 at 9:55 PM
It was the summer of 2012 and Type 1 diabetes knew no cure -- but it had not yet faced off with Jonathon Braxton. #t1d #type1diabetes #wearenotwaiting #bigpharmasucks
February 4, 2025 at 5:26 AM
Thrilled to be attending #ATTD2025 this year in person as a #dedoc° voice. ❤️🦄I'll be tweeting live from the conference & will share what I learn through my blog & the #dedoc° blog. If you'll be there & would like to connect, pls reach out. @dedocORG #WeAreNotWaiting
March 7, 2025 at 10:08 PM
Today marks a decade of living with #Type1Diabetes

10 years in I remain thankful to my family, the #NHS and the amazing #WeAreNotWaiting gang who make it possible for me to use the open-source Hybrid Closed Loop called Trio to help keep my blood sugar levels mostly in range
January 12, 2025 at 10:36 PM
Bugfix Release 3.3.1
Thanks to all developers of #AndroidAPS #AAPS and the #wearenotwaiting community! #t1d #closedloop
January 9, 2025 at 6:11 AM
Bloody hell, y'all!

#t1d #aaps #openaps #wearenotwaiting
May 14, 2025 at 4:14 PM
Exciting news! Dana-i insulin pumps are now possible to get in #poland!
They're among the best supported by #androidaps. They're still Fucking Expensive (~16k PLN, about two average monthly salaries before taxes, you pay full price), but they're here!

#wearenotwaiting #diabetes #t1d #t1diabetes
October 30, 2025 at 1:54 PM
March 12, 2025 at 2:43 PM
#t1d #diabetes sucks but open-source artificial pancreases (and hard work) make it suck less. I’ve been diabetic over 30 years and will die of old age, not this. Thank you #wearenotwaiting community
August 30, 2024 at 9:45 AM
It should be.

#WeAreNotWaiting
December 2, 2024 at 9:26 AM
Katie DiSimone a force for good in the #diabetes #T1D community has Glioblastoma #GBM. If you've ever used #loop or worked with an open-source artificial pancreas or #nightscout, Katie was there at the start. Please donate. https://t.co/E0rZDiPkPY #WeAreNotWaiting
Donate to Support Katie DiSimone and her family, organized by Kate Farnsworth
Hi, my name is Kate Farnsworth, and I have created this go fund me to raise mone… Kate Farnsworth needs your support for Support Katie DiSimone and her family
www.gofundme.com
November 29, 2024 at 6:28 AM
I don’t speak in hyperbole very often, and I want to make sure that you all understand what a big deal this is for the diabetes DIY community. Everything that we’ve worked for for the last 20 years, it all changes now. #WeAreNotWaiting https://twitter.com/Tidepool_org/status/1137154580943216640
November 17, 2024 at 3:42 AM
Nova doba glede obvladovanja SB tip1 se začenja tudi pri nas. Končno smo dobil brezcevno črpalko, ki je gleda na klasične s cevko tako majhna, da sploh ne veš ali jo imaš na sebi. Prej s cevko je bilo res moteče. #wearenotwaiting
December 16, 2024 at 10:32 PM