#VASCAPA
Learning of complex regulatory affairs in rare disease field at World Orphan Drug Congress Amsterdam. Great to see #EMA discussing with clinicians, patients and industry. But a lot to be done to accelerate development of drugs for orphan diseases. #vascapa #welbio #hevas #cmtc #eshg #vascern #esl
October 29, 2025 at 9:46 AM
Happy to be part of the annual pediatric hemato-Oncology meeting of Czechia and Slovakia. #vascern #vascapa #hevas #cmtc #issva
October 3, 2025 at 10:19 AM
I hope these pathways will help both junior and senior physicians to manage these patients , and to those affected by these vascular diseases to obtain faster a definite diagnosis. #vascapa #vascern #cmtc #hevas #vascern #capillary #malformation #evbo #navbo #issva #leducq #theralymph
March 5, 2025 at 7:13 AM
International Conference on Vascular Anomalies: Translating basic research into new therapies (VAC 2025)! : lnkd.in/e6_BbzQF. Don't miss the event. The congress networking dinner nearly sold out! A few seats left for congress participation. lnkd.in/dzTfFVej
#VASCAPA #HEVAS #CMTC #EVBO #ISSVA
February 6, 2025 at 5:23 PM
4 days left before we the International Conference on Vascular Anomalies: Translating basic research into new therapies (VAC 2025)! Exciting program on novel preclinical models, drugs and results from clinical trials! lnkd.in/e6_BbzQF. Register at: lnkd.in/dzTfFVej #VASCAPA #HEVAS #CMTC #EVBO #ISSVA
February 6, 2025 at 5:20 PM
International Conference on Vascular Anomalies: Translating basic research into new therapies (VAC 2025)! : Exciting program, including novel preclinical models, drugs, and most recent results from clinical trials! lnkd.in/e6_BbzQF. Registrations: lnkd.in/dzTfFVej
#VASCAPA #HEVAS #CMTC #EVBO #ISSVA
January 23, 2025 at 4:07 PM
#VASCERN participating in discussions on lymphatic diseases at the biannual Polish Lymphatic Meeting in Wroclaw. VASCERN has been referred to by several Polish speakers as well. 🤩 #vascapa #hevas #lymph #cmtc
April 26, 2025 at 10:39 AM
Thank you #EURORDIS for the 2025 Black Pearl Scientific Award. It is so gratifying to witness the vigour exhibited by the rare disease community. Congratulations EURORDIS for your commitment to providing support to those affected by a rare disease. #VASCAPA #HEVAS VASCERN, @vascern.bsky.social ERN
February 25, 2025 at 11:00 AM
Great WCPD with several sessions on vascular anomalies. Launch of the Vascular Anomaly book with M. Cordisco, D. Teplisky and N. Torres as Editors. Happy to meet again the Garrahan Hospital VA-team and many other colleagues, to make progress the care of VAs. #VASCAPA, #HEVAS, #CMTC, #VASCERN, #LE&RN
April 10, 2025 at 6:19 PM
It was great to be able to add a small human bit to the story. # VASCAPA #vascern #cmtc #Hevas #vascapa #evbo #navbo
We hope these findings bring us closer to better treatments for this challenging condition. #vascularbiology #PIK3CA #venousmalformation

Huge thanks to our fantastic collaborators Michael Potente, René Hägerling, Friedrich Kapp, @mvikkula.bsky.social, Laurence Boon, @ruibenedito.bsky.social
May 25, 2025 at 6:01 PM
#VAC2025 is now over. Fantastic presentations with lively discussions from basic science to clinical applications. Congratulations to the poster award winners: Antonio Queiro Palou, Maya Alvared-Harmon, Apeksha Shapeti and Favour Onyeogaziri! See you in Barcelona 2027! #VASCERN #vascapa #HEVAS #cmtc
February 17, 2025 at 12:09 PM
The great #ISSVA debates meeting 2025 meeting has come to an end. Nothing compares to F2F discussions and networking. Looking forward to the ISSVA World Congress 2026 in #Philadelphia #vascapa #hevas #CMTC #VASCERN #LE&RN #ESL #ISL #vascular #lymphatic #syndrome #hemangioma #theranostic #repurposing
April 26, 2025 at 11:00 AM
The final, detailed program for VAC 2025, the International Conference on Vascular Anomalies: Translating basic research into new therapies, is now online :
vacure-conference.net/index.php/pr...

#VASCAPA #HEVAS #CMTC #EVBO #ISSVA #NAVBO #lymph
February 7, 2025 at 4:59 PM