#RareNeurologicalDiseases
Get the latest news on #RareNeurologicalDiseases with our monthly newsletter - and don't miss our free webinars and many upcoming events: www.ern-rnd.eu?mailpoet_rou...

#RareDisease #RareDiseases #HSP #Dystonia #HutingtonDisease #Ataxia #FriedreichAtaxia #Leukodystrophy #FrontotemporalDementia
September 4, 2025 at 12:17 PM
📢 !NEW TIME!
👉 Our free webinar with Maria Judit Molnar on #GeneticCounselling for #RareNeurologicalDiseases next week will be at 1pm CET instead of the usual time at 3 pm.
If you haven't registered yet, don't miss out and join us next Tuesday: t1p.de/d825h
December 4, 2025 at 10:31 AM
Get your news on #RareNeurologicalDiseases with our #newsletter - this month: free #WinterSchool on "Challenges of Treating Rare Neurological Diseases", #RareDiseaseDay and many more events, new publications (Solve-RD, #NGS), a national workshop (France), free webinars
www.ern-rnd.eu?mailpoet_rou...
February 6, 2025 at 4:59 PM
#RareDiseaseDay is coming up! Join us for shaping the future on policy for #RareNeurologicalDiseases on February 19. Join the meeting with the #MEP Interest Group Brain Helath & Neurological Conditions together with our coordinator Holm Graessner. Participate online: www.efna.net/mep-february...
January 27, 2025 at 1:16 PM
Whether neurologist, patient, patient advocate or carer - if you are specialized in or affected by #RareNeurologicalDiseases and movement disorders, then you shouldn't miss our monthly newsletter with lots of news, disease knowledge, publications, webinars and events: tinyurl.com/383u46cz
July 8, 2025 at 3:14 PM
Are you a #neurologist, a #patient or a carer and are dealing with diseases like #Dystonia, #Leukodystrophy, #HuntingtonsDisease, #Ataxia or #HSP? Then follow us for news on #RareNeurologicalDiseases, free educational webinars, #PatientJourneys and cross-border #healthcare throughout the #EU.
January 20, 2025 at 6:11 PM
#WorldBrainDayJuly22: If you could change 1 thing in the health care system for #RareNeurologicalDiseases to improve something, what would you choose and why?

This is what our ERN-RND member Mika Martikainen would prioritize:

youtu.be/WOqs5kEdNPw

#WorldBrainDay2025 #WorldBrainDay25 #BrainHealth
Improving the health care system for RND - Mika Martikainen (ERN-RND clinician)
YouTube video by ERN-RND
youtu.be
July 2, 2025 at 11:25 AM