#RaisingYouthVoices2026
We out here working on the #RaisingYouthVoices2026 project with the Doctor Who soundtrack on blast @nordrare.bsky.social @eurordis.bsky.social @rarediseasesint.bsky.social
January 22, 2026 at 4:24 PM
Not attending in person?

🔔 Not to worry, the panel discussion will be livestreamed on YouTube: https://go.rarediseaseday.org/livestream

#RaisingYouthVoices2026 #RareDiseaseDay
January 22, 2026 at 1:01 PM
📣 The Raising Youth Voices is a panel + networking session discussion designed to ensure that young people are included in the discussions shaping the future of rare disease policy.

👉 Register to attend in Barcelona here: https://go.rarediseaseday.org/voices

#RaisingYouthVoices2026
December 20, 2025 at 1:00 PM
In-person registrations are now open for #RaisingYouthVoiceS2026 in Barcelona! 🎉

Join our Regional Representatives and other young leaders!

👉Register now: go.rarediseaseday.org/voices
🌍 Will also be livestreamed on YouTube.

@nordrare.bsky.social @rarediseasesint.bsky.social
December 11, 2025 at 1:18 PM
Meet our 6 Regional Reps for Raising Youth Voices 2026! These young leaders are joining us in Barcelona to help shape the future of the rare disease community!

Follow their organisations and stay tuned for event registrations. #RaisingYouthVoices2026

Pablo Ramirez Uribe
December 5, 2025 at 1:01 PM