Living with PSC can feel isolating, but you’re not alone.
🧑🤝🧑 Connect with others by joining our private FB group.
📧 Sign up for our newsletter to get the latest PSC news, webinars, and in-person Info Days.
ℹ️ pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport #PSCCommunity
🧑🤝🧑 Connect with others by joining our private FB group.
📧 Sign up for our newsletter to get the latest PSC news, webinars, and in-person Info Days.
ℹ️ pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport #PSCCommunity
November 10, 2025 at 9:01 AM
Living with PSC can feel isolating, but you’re not alone.
🧑🤝🧑 Connect with others by joining our private FB group.
📧 Sign up for our newsletter to get the latest PSC news, webinars, and in-person Info Days.
ℹ️ pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport #PSCCommunity
🧑🤝🧑 Connect with others by joining our private FB group.
📧 Sign up for our newsletter to get the latest PSC news, webinars, and in-person Info Days.
ℹ️ pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport #PSCCommunity
“Be prepared.” A motto not just for Scouts, but PSC-ers too! Keep your #PSCAlertCard handy (it’s credit-card sized or a digital download) to help your medical team act fast if acute cholangitis strikes.
Get yours free: buff.ly/6xAhRpd
#PSCSupport #PSCfamily #LetsBeatPSC
Get yours free: buff.ly/6xAhRpd
#PSCSupport #PSCfamily #LetsBeatPSC
November 8, 2025 at 8:43 AM
“Be prepared.” A motto not just for Scouts, but PSC-ers too! Keep your #PSCAlertCard handy (it’s credit-card sized or a digital download) to help your medical team act fast if acute cholangitis strikes.
Get yours free: buff.ly/6xAhRpd
#PSCSupport #PSCfamily #LetsBeatPSC
Get yours free: buff.ly/6xAhRpd
#PSCSupport #PSCfamily #LetsBeatPSC
🎁 Save the Date! We’re joining #TheBigGive #ChristmasChallenge 💚
From 2–9 Dec, your donation will be doubled:
£5→£10, £20→£40, £100→£200! You get the idea 😊
Together we can double the impact for people with PSC.
🔗 pscsupport.org.uk/biggive
#PSCSupport #LetsBeatPSC
From 2–9 Dec, your donation will be doubled:
£5→£10, £20→£40, £100→£200! You get the idea 😊
Together we can double the impact for people with PSC.
🔗 pscsupport.org.uk/biggive
#PSCSupport #LetsBeatPSC
November 4, 2025 at 2:29 PM
🎁 Save the Date! We’re joining #TheBigGive #ChristmasChallenge 💚
From 2–9 Dec, your donation will be doubled:
£5→£10, £20→£40, £100→£200! You get the idea 😊
Together we can double the impact for people with PSC.
🔗 pscsupport.org.uk/biggive
#PSCSupport #LetsBeatPSC
From 2–9 Dec, your donation will be doubled:
£5→£10, £20→£40, £100→£200! You get the idea 😊
Together we can double the impact for people with PSC.
🔗 pscsupport.org.uk/biggive
#PSCSupport #LetsBeatPSC
Have you seen the Government's new campaign featuring suits of armour? Everyone with long-term health conditions, like PSC, should consider protecting themselves this winter by getting the flu jab. ℹ️ pscsupport.org.uk/flu-vaccines...
#FluJab #StayWell #PSCSupport #LestBeatPSC
#FluJab #StayWell #PSCSupport #LestBeatPSC
October 31, 2025 at 9:01 AM
Have you seen the Government's new campaign featuring suits of armour? Everyone with long-term health conditions, like PSC, should consider protecting themselves this winter by getting the flu jab. ℹ️ pscsupport.org.uk/flu-vaccines...
#FluJab #StayWell #PSCSupport #LestBeatPSC
#FluJab #StayWell #PSCSupport #LestBeatPSC
What's the most helpful thing someone has said to you?
Or what's the most helpful thing you've said or done to support someone with PSC?
#LetsBeatPSC #PSCFatigue #Fatigue #ChronicIllness #Support #PSCSupport
Or what's the most helpful thing you've said or done to support someone with PSC?
#LetsBeatPSC #PSCFatigue #Fatigue #ChronicIllness #Support #PSCSupport
October 22, 2025 at 9:02 AM
What's the most helpful thing someone has said to you?
Or what's the most helpful thing you've said or done to support someone with PSC?
#LetsBeatPSC #PSCFatigue #Fatigue #ChronicIllness #Support #PSCSupport
Or what's the most helpful thing you've said or done to support someone with PSC?
#LetsBeatPSC #PSCFatigue #Fatigue #ChronicIllness #Support #PSCSupport
Best of luck on your @great_run Kieran! We can't wait to hear which tunes made it on your playlist. You can choose a song for Kieran here:
➡️ www.justgiving.com/page/kieran-... #LetsBeatPSC #PSCSupport #GreatSouthRun
➡️ www.justgiving.com/page/kieran-... #LetsBeatPSC #PSCSupport #GreatSouthRun
October 18, 2025 at 8:01 AM
Best of luck on your @great_run Kieran! We can't wait to hear which tunes made it on your playlist. You can choose a song for Kieran here:
➡️ www.justgiving.com/page/kieran-... #LetsBeatPSC #PSCSupport #GreatSouthRun
➡️ www.justgiving.com/page/kieran-... #LetsBeatPSC #PSCSupport #GreatSouthRun
A gift in your Will costs nothing now, but can change lives for years to come.
Learn more: pscsupport.org.uk/wills/
#LetsBeatPSC #LegacyGiving #PSCSupport #FreeWillsNetwork
Learn more: pscsupport.org.uk/wills/
#LetsBeatPSC #LegacyGiving #PSCSupport #FreeWillsNetwork
October 14, 2025 at 8:17 AM
A gift in your Will costs nothing now, but can change lives for years to come.
Learn more: pscsupport.org.uk/wills/
#LetsBeatPSC #LegacyGiving #PSCSupport #FreeWillsNetwork
Learn more: pscsupport.org.uk/wills/
#LetsBeatPSC #LegacyGiving #PSCSupport #FreeWillsNetwork
1000 miles in 10 days!!! 😮"The tour proved much harder than expected! By the end, I climbed 56,000 feet, and spent 10 long days in the saddle. I've now raised over £7000!" What an absolute legend! #LetsBeatPSC #LEJOG #PSCSupport
👉 www.justgiving.com/page/richard...
👉 www.justgiving.com/page/richard...
October 11, 2025 at 9:00 AM
1000 miles in 10 days!!! 😮"The tour proved much harder than expected! By the end, I climbed 56,000 feet, and spent 10 long days in the saddle. I've now raised over £7000!" What an absolute legend! #LetsBeatPSC #LEJOG #PSCSupport
👉 www.justgiving.com/page/richard...
👉 www.justgiving.com/page/richard...
🛍️ Amazon Prime Days are here (7–8 Oct)!
Shop amazing deals & raise FREE donations for PSC Support through @easyuk. It costs you nothing! Every purchase funds vital research & support.
👉 Join here: www.easyfundraising.org.uk/causes/pscsu...
#AmazonPrimeDay #PSCSupport #LetsBeatPSC
Shop amazing deals & raise FREE donations for PSC Support through @easyuk. It costs you nothing! Every purchase funds vital research & support.
👉 Join here: www.easyfundraising.org.uk/causes/pscsu...
#AmazonPrimeDay #PSCSupport #LetsBeatPSC
October 7, 2025 at 6:00 AM
🛍️ Amazon Prime Days are here (7–8 Oct)!
Shop amazing deals & raise FREE donations for PSC Support through @easyuk. It costs you nothing! Every purchase funds vital research & support.
👉 Join here: www.easyfundraising.org.uk/causes/pscsu...
#AmazonPrimeDay #PSCSupport #LetsBeatPSC
Shop amazing deals & raise FREE donations for PSC Support through @easyuk. It costs you nothing! Every purchase funds vital research & support.
👉 Join here: www.easyfundraising.org.uk/causes/pscsu...
#AmazonPrimeDay #PSCSupport #LetsBeatPSC
The big day is nearly here! Katie's taking part in the @great_run Scottish Half Marathon, raising funds for #PSCSupport. 'This rare autoimmune condition has no cure or treatment as very little is known about it. PSC has had a massive impact on Ella.'
➡️ buff.ly/4fMsH51
➡️ buff.ly/4fMsH51
October 4, 2025 at 9:01 AM
The big day is nearly here! Katie's taking part in the @great_run Scottish Half Marathon, raising funds for #PSCSupport. 'This rare autoimmune condition has no cure or treatment as very little is known about it. PSC has had a massive impact on Ella.'
➡️ buff.ly/4fMsH51
➡️ buff.ly/4fMsH51
Next week we’re heading to Belfast for the @basl_events Annual Conference. We’ll represent patient voices, build partnerships & share insights to shape future research. Updates to follow! #BASL2025 #PSCsupport #LiverDisease @mirumpharma @LiverTrust
📸 #TBT Last year in Harrogate
📸 #TBT Last year in Harrogate
October 2, 2025 at 3:03 PM
Next week we’re heading to Belfast for the @basl_events Annual Conference. We’ll represent patient voices, build partnerships & share insights to shape future research. Updates to follow! #BASL2025 #PSCsupport #LiverDisease @mirumpharma @LiverTrust
📸 #TBT Last year in Harrogate
📸 #TBT Last year in Harrogate
A glimpse of our #PSCSupport #InformationDay in Leeds. These free events are held throughout the year to bring together patients, families, and hcps. They're a space to share experiences and learn from leading voices in PSC care and research. Up next...Belfast! buff.ly/XHovfcH #LetsBeatPSC #PSCInfo
September 15, 2025 at 11:00 AM
A glimpse of our #PSCSupport #InformationDay in Leeds. These free events are held throughout the year to bring together patients, families, and hcps. They're a space to share experiences and learn from leading voices in PSC care and research. Up next...Belfast! buff.ly/XHovfcH #LetsBeatPSC #PSCInfo
This #PBCAwarenessDay we’re shining a light on the differences between PBC and PSC and available support. Both affect the liver but they are distinct diseases. In the UK @PBCFoundation and @PSCSupport are here to help. You're not alone.
➡️ pscsupport.org.uk/psc-and-othe...
#PBCAwareness #PSCAwareness
➡️ pscsupport.org.uk/psc-and-othe...
#PBCAwareness #PSCAwareness
September 14, 2025 at 9:00 AM
This #PBCAwarenessDay we’re shining a light on the differences between PBC and PSC and available support. Both affect the liver but they are distinct diseases. In the UK @PBCFoundation and @PSCSupport are here to help. You're not alone.
➡️ pscsupport.org.uk/psc-and-othe...
#PBCAwareness #PSCAwareness
➡️ pscsupport.org.uk/psc-and-othe...
#PBCAwareness #PSCAwareness
Best of luck Dave! We know how hard you've been training for this amazing event while also managing your health journey. One stroke, one step, one pedal at a time. You got this! 🏃 🏊♂️ 🚴♂️ #LetsBeatPSC #PSCSupport #PSCFundraiser #FundraisingChamp @ironmantri
September 13, 2025 at 8:00 AM
Best of luck Dave! We know how hard you've been training for this amazing event while also managing your health journey. One stroke, one step, one pedal at a time. You got this! 🏃 🏊♂️ 🚴♂️ #LetsBeatPSC #PSCSupport #PSCFundraiser #FundraisingChamp @ironmantri
That means faster answers, less anxiety, and earlier support for people living with PSC.
If you can, please consider becoming a regular donor or fundraising for #PSCSupport.
➡️ pscsupport.org.uk/donate/ #PSCDiagnosis #LetsBeatPSC (3/3)
If you can, please consider becoming a regular donor or fundraising for #PSCSupport.
➡️ pscsupport.org.uk/donate/ #PSCDiagnosis #LetsBeatPSC (3/3)
Donate – PSC Support
Donate
buff.ly
September 11, 2025 at 8:00 AM
That means faster answers, less anxiety, and earlier support for people living with PSC.
If you can, please consider becoming a regular donor or fundraising for #PSCSupport.
➡️ pscsupport.org.uk/donate/ #PSCDiagnosis #LetsBeatPSC (3/3)
If you can, please consider becoming a regular donor or fundraising for #PSCSupport.
➡️ pscsupport.org.uk/donate/ #PSCDiagnosis #LetsBeatPSC (3/3)
Just 1 week to go! Ever wondered about the different types of PSC? What is small-duct PSC and how is it different? There’s still time to register join us for our next live Ask the Expert session ⬇️
us06web.zoom.us/webinar/regi...
#LetsBeatPSC #LiverHealth #PSCSupport #AskTheExpert
us06web.zoom.us/webinar/regi...
#LetsBeatPSC #LiverHealth #PSCSupport #AskTheExpert
September 9, 2025 at 6:03 PM
Just 1 week to go! Ever wondered about the different types of PSC? What is small-duct PSC and how is it different? There’s still time to register join us for our next live Ask the Expert session ⬇️
us06web.zoom.us/webinar/regi...
#LetsBeatPSC #LiverHealth #PSCSupport #AskTheExpert
us06web.zoom.us/webinar/regi...
#LetsBeatPSC #LiverHealth #PSCSupport #AskTheExpert
We've become aware that of a national shortage of #Rifampicin. If you take Rifampicin for #PSCitch, contact your liver specialist to discuss options.
👉 buff.ly/Lya4eGR
#PSCSupport #MedicationUpdate #LetsBeatPSC
👉 buff.ly/Lya4eGR
#PSCSupport #MedicationUpdate #LetsBeatPSC
September 4, 2025 at 6:30 PM
We've become aware that of a national shortage of #Rifampicin. If you take Rifampicin for #PSCitch, contact your liver specialist to discuss options.
👉 buff.ly/Lya4eGR
#PSCSupport #MedicationUpdate #LetsBeatPSC
👉 buff.ly/Lya4eGR
#PSCSupport #MedicationUpdate #LetsBeatPSC
Who can donate? 🤔
#OrganDonationWeek (22–28 Sept) is coming soon! We'll be turning pink and sharing your PSC or transplant story to highlight the impact of organ donation. See how you can help and consider sharing your story.
➡️ pscsupport.org.uk/organ-donati... #PSCSupport #LetsBeatPSC #DonateLife
#OrganDonationWeek (22–28 Sept) is coming soon! We'll be turning pink and sharing your PSC or transplant story to highlight the impact of organ donation. See how you can help and consider sharing your story.
➡️ pscsupport.org.uk/organ-donati... #PSCSupport #LetsBeatPSC #DonateLife
September 3, 2025 at 6:01 PM
Who can donate? 🤔
#OrganDonationWeek (22–28 Sept) is coming soon! We'll be turning pink and sharing your PSC or transplant story to highlight the impact of organ donation. See how you can help and consider sharing your story.
➡️ pscsupport.org.uk/organ-donati... #PSCSupport #LetsBeatPSC #DonateLife
#OrganDonationWeek (22–28 Sept) is coming soon! We'll be turning pink and sharing your PSC or transplant story to highlight the impact of organ donation. See how you can help and consider sharing your story.
➡️ pscsupport.org.uk/organ-donati... #PSCSupport #LetsBeatPSC #DonateLife
Summer is almost over and before we know it, the leaves will be crunching beneath our feet! Ready for chilly weather, cosy jumpers, and pumpkin spice everything?☕🍁Thinking about autumn or winter activities to raise awareness and funds for #PSCSupport, get in touch! fundraising@pscsupport.org.uk
September 2, 2025 at 8:07 AM
Summer is almost over and before we know it, the leaves will be crunching beneath our feet! Ready for chilly weather, cosy jumpers, and pumpkin spice everything?☕🍁Thinking about autumn or winter activities to raise awareness and funds for #PSCSupport, get in touch! fundraising@pscsupport.org.uk
Swing into action… in a kilt! 🕸️ Sign up for the Edinburgh KiltWalk and help us get closer to finding effective treatments, and a cure, for PSC by raising vital funds for #PSCSupport.
➡️ www.thekiltwalk.co.uk/events/edinb...
#LetsBeatPSC #TeamPSCSupport #KiltUpForCharity #WalkLikeAHero
➡️ www.thekiltwalk.co.uk/events/edinb...
#LetsBeatPSC #TeamPSCSupport #KiltUpForCharity #WalkLikeAHero
August 31, 2025 at 9:00 AM
Swing into action… in a kilt! 🕸️ Sign up for the Edinburgh KiltWalk and help us get closer to finding effective treatments, and a cure, for PSC by raising vital funds for #PSCSupport.
➡️ www.thekiltwalk.co.uk/events/edinb...
#LetsBeatPSC #TeamPSCSupport #KiltUpForCharity #WalkLikeAHero
➡️ www.thekiltwalk.co.uk/events/edinb...
#LetsBeatPSC #TeamPSCSupport #KiltUpForCharity #WalkLikeAHero
PSC is a rare, life-changing liver disease, but stories like Leanne’s show the strength and resilience behind the diagnosis. Read her PSC journey ➡️ buff.ly/tdOt89p and share this post to raise awareness.
#LetsBeatPSC #PSCSupport #InvisibleIllness #RareDisease #PSC
#LetsBeatPSC #PSCSupport #InvisibleIllness #RareDisease #PSC
August 25, 2025 at 9:01 AM
PSC is a rare, life-changing liver disease, but stories like Leanne’s show the strength and resilience behind the diagnosis. Read her PSC journey ➡️ buff.ly/tdOt89p and share this post to raise awareness.
#LetsBeatPSC #PSCSupport #InvisibleIllness #RareDisease #PSC
#LetsBeatPSC #PSCSupport #InvisibleIllness #RareDisease #PSC
Did you know today is International #StrangeMusicDay? A celebration of discovering & sharing new sounds! Music lifts us, calms us, energises us - whether training, resting, or cooking dinner. Share your favourite tracks in comments & help build a #PSCSupport playlist. #LetsBeatPSC
August 24, 2025 at 9:00 AM
Did you know today is International #StrangeMusicDay? A celebration of discovering & sharing new sounds! Music lifts us, calms us, energises us - whether training, resting, or cooking dinner. Share your favourite tracks in comments & help build a #PSCSupport playlist. #LetsBeatPSC
We’re celebrating 30 years as a charity with three PSC Information Days!
Next stop: Leeds, Sat 13 Sept
✅ Expert talks & Q&As
✅ Patient stories
✅ Connect with the PSC community
Free & open to all affected by PSC.
👉 buff.ly/B7exojL
#LetsBeatPSC #PSCSupport
Next stop: Leeds, Sat 13 Sept
✅ Expert talks & Q&As
✅ Patient stories
✅ Connect with the PSC community
Free & open to all affected by PSC.
👉 buff.ly/B7exojL
#LetsBeatPSC #PSCSupport
August 21, 2025 at 8:30 AM
We’re celebrating 30 years as a charity with three PSC Information Days!
Next stop: Leeds, Sat 13 Sept
✅ Expert talks & Q&As
✅ Patient stories
✅ Connect with the PSC community
Free & open to all affected by PSC.
👉 buff.ly/B7exojL
#LetsBeatPSC #PSCSupport
Next stop: Leeds, Sat 13 Sept
✅ Expert talks & Q&As
✅ Patient stories
✅ Connect with the PSC community
Free & open to all affected by PSC.
👉 buff.ly/B7exojL
#LetsBeatPSC #PSCSupport
Registration is open! Join us Sept 13 in Leeds for our PSC Support Information Day with keynote Dr. Simon Rushbrook. Talks, interactive sessions & community connections.
Save your spot today! buff.ly/2aZkPEc #LetsBeatPSC #PSCSupport
Save your spot today! buff.ly/2aZkPEc #LetsBeatPSC #PSCSupport
August 13, 2025 at 10:26 AM
Registration is open! Join us Sept 13 in Leeds for our PSC Support Information Day with keynote Dr. Simon Rushbrook. Talks, interactive sessions & community connections.
Save your spot today! buff.ly/2aZkPEc #LetsBeatPSC #PSCSupport
Save your spot today! buff.ly/2aZkPEc #LetsBeatPSC #PSCSupport
Did you hear the NorUrso clinical trial news we announced recently? This is the furthest a drug has progressed in PSC medicine development with positive results. Find out more: pscsupport.org.uk/clinical-tri...
#PSCSupport #LetsBeatPSC #ClinicalTrials #EASL2025 #NorUrso #PSC
#PSCSupport #LetsBeatPSC #ClinicalTrials #EASL2025 #NorUrso #PSC
August 4, 2025 at 8:19 AM
Did you hear the NorUrso clinical trial news we announced recently? This is the furthest a drug has progressed in PSC medicine development with positive results. Find out more: pscsupport.org.uk/clinical-tri...
#PSCSupport #LetsBeatPSC #ClinicalTrials #EASL2025 #NorUrso #PSC
#PSCSupport #LetsBeatPSC #ClinicalTrials #EASL2025 #NorUrso #PSC