#PNHResearch
IPIG validiert derzeit den Fragebogen zur Lebensqualität QLQ AA/PNH-54, den ersten krankheitsspezifischen PROM für PNH und aplastische Anämie. Achten Sie darauf, falls Sie zur Teilnahme eingeladen werden.
#PNH #PatientReportedOutcome #PROM #PNHResearch
October 7, 2025 at 7:35 PM
𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰 Eculizumab is the only treatment for PNH currently licensed during pregnancy🤰? Research is exploring ravulizumab as another potential option. 🧪

#PNHAwareness2025 #LivingWithPNH #PregnancyCare #PatientSupport #PNHResearch #DidYouKnow
September 22, 2025 at 7:01 AM
𝐃𝐢𝐝 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰? IPIG is validating the QLQ AA/PNH-54 quality of life questionnaire, the first disease-specific PROM for PNH & Aplastic Anemia. Watch out in case you are invited to take part.

#PNH #PatientReportedOutcome #PROM #PNHResearch
October 7, 2025 at 1:02 PM
IPIG is validating the QLQ AA/PNH-54 quality of life questionnaire, the first disease-specific PROM for PNH & Aplastic Anemia. Watch out in case you are invited to take part.
#PNH #PatientReportedOutcome #PROM #PNHResearch #PNHAwareness2025 #DidYouKnow
October 7, 2025 at 12:50 PM