OK, gotta survive this stage 4 #ocularfuckingmelanoma for two more years at least
June 12, 2025 at 5:32 PM
OK, gotta survive this stage 4 #ocularfuckingmelanoma for two more years at least
Big news, platelets and blood levels still down so another weekend of being a shut in so I don’t really end up in hospital
Hopefully numbers look better tomorrow and start to see the light at the end of the tunnel and it’s not a train
#ocularfuckingmelanoma
Hopefully numbers look better tomorrow and start to see the light at the end of the tunnel and it’s not a train
#ocularfuckingmelanoma
May 16, 2025 at 1:31 PM
Big news, platelets and blood levels still down so another weekend of being a shut in so I don’t really end up in hospital
Hopefully numbers look better tomorrow and start to see the light at the end of the tunnel and it’s not a train
#ocularfuckingmelanoma
Hopefully numbers look better tomorrow and start to see the light at the end of the tunnel and it’s not a train
#ocularfuckingmelanoma
I appreciate @acesradio.bsky.social giving me a 3 hour episode to listen to on Monday afternoon while I’m lying flat on my back making sure I don’t get blood clots after #ocularfuckingmelanoma treatment. I should have enough of @andrewhickey.500songs.com stuff to fill the remainder of the time.
May 2, 2025 at 2:24 PM
I appreciate @acesradio.bsky.social giving me a 3 hour episode to listen to on Monday afternoon while I’m lying flat on my back making sure I don’t get blood clots after #ocularfuckingmelanoma treatment. I should have enough of @andrewhickey.500songs.com stuff to fill the remainder of the time.
Time for a #OcularFuckingMelanoma update
I’ve been on an immunotherapy drug called Kimmtrak for 66 weeks. Over those 66 weeks it’s basically been this guy
I’ve been on an immunotherapy drug called Kimmtrak for 66 weeks. Over those 66 weeks it’s basically been this guy
a man with a beard is standing in front of a frozen wall with the word hodor written on it .
Alt: a man with a beard is standing in front of a frozen wall with the word hodor written on it .
media.tenor.com
April 30, 2025 at 12:13 PM
Time for a #OcularFuckingMelanoma update
I’ve been on an immunotherapy drug called Kimmtrak for 66 weeks. Over those 66 weeks it’s basically been this guy
I’ve been on an immunotherapy drug called Kimmtrak for 66 weeks. Over those 66 weeks it’s basically been this guy
WE'RE STARTING A THING! A #OCULARFUCKINGMELANOMA REVOLUTION!
November 18, 2024 at 1:25 AM
WE'RE STARTING A THING! A #OCULARFUCKINGMELANOMA REVOLUTION!
@mcornell.bsky.social Another #OcularFuckingMelanoma person! FINALLY someone who calls it like it is hahaha.
November 18, 2024 at 12:19 AM
@mcornell.bsky.social Another #OcularFuckingMelanoma person! FINALLY someone who calls it like it is hahaha.
If you've got nothing better to do, and judging by the posts on here you probably don't, I'll be on a webinar talking about clinical trials and why I've done two of them for #OcularFuckingMelanoma in 45 minutes at noon ET
us02web.zoom.us/webinar/regi...
us02web.zoom.us/webinar/regi...
Welcome! You are invited to join a webinar: Why Clinical Trials?. After registering, you will receive a confirmation email about joining the webinar.
Tune in on September 28th to learn from a handful of valiant patients with ocular melanoma about their decision making process in choosing to do a clinical trial at some point in their diagnosis journ...
us02web.zoom.us
September 28, 2024 at 3:14 PM
If you've got nothing better to do, and judging by the posts on here you probably don't, I'll be on a webinar talking about clinical trials and why I've done two of them for #OcularFuckingMelanoma in 45 minutes at noon ET
us02web.zoom.us/webinar/regi...
us02web.zoom.us/webinar/regi...
#OcularFuckingMelanoma update:
I'm going to Philly.
The team at Jefferson called me at 4:30 with a crazy idea. What if...instead of getting my biopsy at OSU next Monday (which I was excited for at 10am)...What if I came to Philly on Wednesday, got a biopsy on Thursday and treatment Friday?
I'm going to Philly.
The team at Jefferson called me at 4:30 with a crazy idea. What if...instead of getting my biopsy at OSU next Monday (which I was excited for at 10am)...What if I came to Philly on Wednesday, got a biopsy on Thursday and treatment Friday?
October 17, 2023 at 1:00 AM
#OcularFuckingMelanoma update:
I'm going to Philly.
The team at Jefferson called me at 4:30 with a crazy idea. What if...instead of getting my biopsy at OSU next Monday (which I was excited for at 10am)...What if I came to Philly on Wednesday, got a biopsy on Thursday and treatment Friday?
I'm going to Philly.
The team at Jefferson called me at 4:30 with a crazy idea. What if...instead of getting my biopsy at OSU next Monday (which I was excited for at 10am)...What if I came to Philly on Wednesday, got a biopsy on Thursday and treatment Friday?
Also zero #OcularFuckingMelanoma content
Somehow we need to get Bayern Ryan over here so I can get my Munich and OFM fix
Somehow we need to get Bayern Ryan over here so I can get my Munich and OFM fix
July 1, 2023 at 4:42 PM
Also zero #OcularFuckingMelanoma content
Somehow we need to get Bayern Ryan over here so I can get my Munich and OFM fix
Somehow we need to get Bayern Ryan over here so I can get my Munich and OFM fix