Yes and…here’s well evidenced high value work with people living with MLTcs that reduces cost and treatment burden and improves QOL: patientprioritiescare.org
Home - Patient Priorities Care
Choosing what matters. Doing what works.
patientprioritiescare.org
October 8, 2025 at 7:29 PM
Yes and…here’s well evidenced high value work with people living with MLTcs that reduces cost and treatment burden and improves QOL: patientprioritiescare.org
“People with multiple long-term conditions and their carers want equitable care, not equal care.” — Public Advisor, DynAIRx.
A powerful reminder that fairness means meeting people where they are, not treating everyone the same. #HealthEquity #PPIE #MLTCs
A powerful reminder that fairness means meeting people where they are, not treating everyone the same. #HealthEquity #PPIE #MLTCs
September 23, 2025 at 8:36 AM
“People with multiple long-term conditions and their carers want equitable care, not equal care.” — Public Advisor, DynAIRx.
A powerful reminder that fairness means meeting people where they are, not treating everyone the same. #HealthEquity #PPIE #MLTCs
A powerful reminder that fairness means meeting people where they are, not treating everyone the same. #HealthEquity #PPIE #MLTCs
Congrats @jobutterworth.bsky.social et al. on winning the 'Highly Commended Best Poster Prize' at #SAPC2025 for their project 'Ensuring equality, diversity and inclusivity in the coproduction and planning for the evaluation of a shared decision-making intervention for people living with MLTCs'
July 17, 2025 at 12:16 PM
Congrats @jobutterworth.bsky.social et al. on winning the 'Highly Commended Best Poster Prize' at #SAPC2025 for their project 'Ensuring equality, diversity and inclusivity in the coproduction and planning for the evaluation of a shared decision-making intervention for people living with MLTCs'
Overall, the plans sets out a vision that aligns with what many have said years when it comes to the care of people with MLTCs. That said, details are both crucial and absent.
Enablers are identified, with a significant bet on tech. Cultural silos and attitudes must continue to shift for impact.
Enablers are identified, with a significant bet on tech. Cultural silos and attitudes must continue to shift for impact.
July 8, 2025 at 10:31 AM
Overall, the plans sets out a vision that aligns with what many have said years when it comes to the care of people with MLTCs. That said, details are both crucial and absent.
Enablers are identified, with a significant bet on tech. Cultural silos and attitudes must continue to shift for impact.
Enablers are identified, with a significant bet on tech. Cultural silos and attitudes must continue to shift for impact.
The state of care for people with multiple long-term conditions (MLTCs) is poor.
A holistic approach is often lacking, with poor communication and limited or non-existent coordination that often falls on the individual.
The 10 year health plan acknowledges this. What solutions does it offer?
A holistic approach is often lacking, with poor communication and limited or non-existent coordination that often falls on the individual.
The 10 year health plan acknowledges this. What solutions does it offer?
July 8, 2025 at 10:31 AM
The state of care for people with multiple long-term conditions (MLTCs) is poor.
A holistic approach is often lacking, with poor communication and limited or non-existent coordination that often falls on the individual.
The 10 year health plan acknowledges this. What solutions does it offer?
A holistic approach is often lacking, with poor communication and limited or non-existent coordination that often falls on the individual.
The 10 year health plan acknowledges this. What solutions does it offer?
When thinking about people on the WL the default mental model is people waiting for a specific intervention- often surgery. I’m convinced that choice of provider can be helpful here. But for people with MLTCs? Seems a surefire way of further fragmenting care.
June 26, 2025 at 9:56 AM
When thinking about people on the WL the default mental model is people waiting for a specific intervention- often surgery. I’m convinced that choice of provider can be helpful here. But for people with MLTCs? Seems a surefire way of further fragmenting care.
Thanks. Whilst I applaud ‘payment for outcomes not activity’, it has its drawbacks re: LTCs and MLTCs. Eg, what is a good outcome (from any treatment) for people living with multimorbidity? My personal view is we need to think much more about PROMs- but I’ve not seen that debate anywhere recently.
June 13, 2025 at 1:13 PM
Thanks. Whilst I applaud ‘payment for outcomes not activity’, it has its drawbacks re: LTCs and MLTCs. Eg, what is a good outcome (from any treatment) for people living with multimorbidity? My personal view is we need to think much more about PROMs- but I’ve not seen that debate anywhere recently.
I am so proud to have contributed to this animation as part of the SysteMatic project, exploring the experiences of marginalised individuals living with multiple long-term health conditions (MLTCs) (lnkd.in/ev2nYPSm).
Exhibition of the arts-based approaches informing the work @byreshub.bsky.social
Exhibition of the arts-based approaches informing the work @byreshub.bsky.social
May 31, 2025 at 11:39 AM
I am so proud to have contributed to this animation as part of the SysteMatic project, exploring the experiences of marginalised individuals living with multiple long-term health conditions (MLTCs) (lnkd.in/ev2nYPSm).
Exhibition of the arts-based approaches informing the work @byreshub.bsky.social
Exhibition of the arts-based approaches informing the work @byreshub.bsky.social
Looking for a full-time post doc to join the PCPH team 🙌 leading on co-design and a feasibility study for management of MLTCs in people experiencing socioeconomic deprivation. Please share 🙏
www.ucl.ac.uk/work-at-ucl/...
www.ucl.ac.uk/work-at-ucl/...
UCL – University College London
UCL is consistently ranked as one of the top ten universities in the world (QS World University Rankings 2010-2022) and is No.2 in the UK for research power (Research Excellence Framework 2021).
www.ucl.ac.uk
May 29, 2025 at 1:31 PM
Looking for a full-time post doc to join the PCPH team 🙌 leading on co-design and a feasibility study for management of MLTCs in people experiencing socioeconomic deprivation. Please share 🙏
www.ucl.ac.uk/work-at-ucl/...
www.ucl.ac.uk/work-at-ucl/...
Looking for a part-time research assistant to join my amazing team at UCL to develop and test a digital intervention for MLTCs in people experiencing socioeconomic deprivation. Someone with mixed-methods experience would be ideal!
www.ucl.ac.uk/work-at-ucl/...
www.ucl.ac.uk/work-at-ucl/...
UCL – University College London
UCL is consistently ranked as one of the top ten universities in the world (QS World University Rankings 2010-2022) and is No.2 in the UK for research power (Research Excellence Framework 2021).
www.ucl.ac.uk
May 23, 2025 at 7:43 AM
Looking for a part-time research assistant to join my amazing team at UCL to develop and test a digital intervention for MLTCs in people experiencing socioeconomic deprivation. Someone with mixed-methods experience would be ideal!
www.ucl.ac.uk/work-at-ucl/...
www.ucl.ac.uk/work-at-ucl/...
Day 2 of the #MLTC From Research to Reality conference kicks off the #carepathways session with the #ADMISSION project from @nihrnewcastlebrc.bsky.social @newcastleuni.bsky.social with transforming understanding of MLTCs in a hospital setting. Looking forward to the day ahead!
May 8, 2025 at 8:48 AM
Day 2 of the #MLTC From Research to Reality conference kicks off the #carepathways session with the #ADMISSION project from @nihrnewcastlebrc.bsky.social @newcastleuni.bsky.social with transforming understanding of MLTCs in a hospital setting. Looking forward to the day ahead!
Exciting 1st day of the Short Course on Health Data Science & Economic Evaluation in the Context of Multiple Long-Term Conditions, organized by the NIHR Global Health Research Centre for MLTCs #HealthEconomics #multimorbidity @nihr.bsky.social
March 3, 2025 at 3:25 PM
Exciting 1st day of the Short Course on Health Data Science & Economic Evaluation in the Context of Multiple Long-Term Conditions, organized by the NIHR Global Health Research Centre for MLTCs #HealthEconomics #multimorbidity @nihr.bsky.social
🏥 Living with Multiple Long-Term Conditions (MLTCs) comes with financial strain. Our MELD-B research highlights key gaps in income support, medication, & appointment costs. We call for policy reforms to ease these burdens & improve access.
🔗 Read more: https://buff.ly/3DjEkvk
🔗 Read more: https://buff.ly/3DjEkvk
February 25, 2025 at 5:52 PM
🏥 Living with Multiple Long-Term Conditions (MLTCs) comes with financial strain. Our MELD-B research highlights key gaps in income support, medication, & appointment costs. We call for policy reforms to ease these burdens & improve access.
🔗 Read more: https://buff.ly/3DjEkvk
🔗 Read more: https://buff.ly/3DjEkvk
Our piece in @bmj.com about the prevention of multiple long term conditions - what do we actually mean by it?
Is it primordial, primary, secondary or tertiary? and what do all of those mean in the context of MLTCs as outcomes?
www.bmj.com/content/388/...
@arcwessex.bsky.social
#PublicHealth
Is it primordial, primary, secondary or tertiary? and what do all of those mean in the context of MLTCs as outcomes?
www.bmj.com/content/388/...
@arcwessex.bsky.social
#PublicHealth
If we want to take prevention of multiple long term conditions seriously, then we need to know what we mean by that
The prevention of multiple long term conditions needs to be higher up the healthcare agenda and for this to happen we need to be more precise about what we mean when talking about it.
As populations ...
www.bmj.com
February 20, 2025 at 5:18 PM
Our piece in @bmj.com about the prevention of multiple long term conditions - what do we actually mean by it?
Is it primordial, primary, secondary or tertiary? and what do all of those mean in the context of MLTCs as outcomes?
www.bmj.com/content/388/...
@arcwessex.bsky.social
#PublicHealth
Is it primordial, primary, secondary or tertiary? and what do all of those mean in the context of MLTCs as outcomes?
www.bmj.com/content/388/...
@arcwessex.bsky.social
#PublicHealth
Official launch of ‘SysteMatic’ animation ‘Juggling multiple health conditions: Roberts story’ youtu.be/uJiVUPFFXBw?si… @byreshub.bsky.social. We co-created this with people with lived experience, to show the impacts of MLTCs on marginalised communities. Amazing production @mediaco-op.bsky.social 👏
Juggling multiple health conditions: Roberts story
YouTube video by SysteMatic
https://youtu.be/uJiVUPFFXBw?si…
February 20, 2025 at 3:21 PM
Official launch of ‘SysteMatic’ animation ‘Juggling multiple health conditions: Roberts story’ youtu.be/uJiVUPFFXBw?si… @byreshub.bsky.social. We co-created this with people with lived experience, to show the impacts of MLTCs on marginalised communities. Amazing production @mediaco-op.bsky.social 👏
🚨Session 2 of our bite-size research impact showcases is next week!
Join us to learn about research exploring #endometriosis, smoking reduction in pregnancy and #MLTCs & ask your qs!
Sign-up 👉 bit.ly/3QqarwE
@oxprimarycare.bsky.social @uniofnottingham.bsky.social @ucl-primarycare.bsky.social
Join us to learn about research exploring #endometriosis, smoking reduction in pregnancy and #MLTCs & ask your qs!
Sign-up 👉 bit.ly/3QqarwE
@oxprimarycare.bsky.social @uniofnottingham.bsky.social @ucl-primarycare.bsky.social
We cover a range of different subjects in our 2nd SPCR Bitesized Impact Showcase session
📅 26 Feb, 12noon - 1pm
📷Register here: bit.ly/Register-SPC...
All sessions: bit.ly/spcr-bitesiz...
#PrimaryCare #Research
@georginaspcr.bsky.social
@ashmore1973.bsky.social
@nihr.bsky.social
@sapc.ac.uk
📅 26 Feb, 12noon - 1pm
📷Register here: bit.ly/Register-SPC...
All sessions: bit.ly/spcr-bitesiz...
#PrimaryCare #Research
@georginaspcr.bsky.social
@ashmore1973.bsky.social
@nihr.bsky.social
@sapc.ac.uk
February 19, 2025 at 11:22 AM
🚨Session 2 of our bite-size research impact showcases is next week!
Join us to learn about research exploring #endometriosis, smoking reduction in pregnancy and #MLTCs & ask your qs!
Sign-up 👉 bit.ly/3QqarwE
@oxprimarycare.bsky.social @uniofnottingham.bsky.social @ucl-primarycare.bsky.social
Join us to learn about research exploring #endometriosis, smoking reduction in pregnancy and #MLTCs & ask your qs!
Sign-up 👉 bit.ly/3QqarwE
@oxprimarycare.bsky.social @uniofnottingham.bsky.social @ucl-primarycare.bsky.social
@caringmrising.bsky.social Eric Linzer, pres of the MLTCs assn, said could be a “reasonable” postponement of CDPAP transition.He shared how PPL is squeezing MLTCs for more $. MLTCs not used to being squeezed by a monopoly which PPL is.Corporate welfare at corporate warfare! May they all go down.
February 11, 2025 at 8:01 PM
@caringmrising.bsky.social Eric Linzer, pres of the MLTCs assn, said could be a “reasonable” postponement of CDPAP transition.He shared how PPL is squeezing MLTCs for more $. MLTCs not used to being squeezed by a monopoly which PPL is.Corporate welfare at corporate warfare! May they all go down.
#StateofTheState @kathyhochul.bsky.socialEnd private equity in Medicaid MLTCs, ins co sucking $3 billion/yr profits. HC Savings & Reinvestment Act, S7800/A8470 Stop disastrous private equity PPL #CDPAP Medicaid is not meant to be entrepreunerial according to @speakercarlheastie.bsky.social We agree!
January 14, 2025 at 7:35 PM
#StateofTheState @kathyhochul.bsky.socialEnd private equity in Medicaid MLTCs, ins co sucking $3 billion/yr profits. HC Savings & Reinvestment Act, S7800/A8470 Stop disastrous private equity PPL #CDPAP Medicaid is not meant to be entrepreunerial according to @speakercarlheastie.bsky.social We agree!
1) "This will rein in the runaway costs & fraud that prev. harmed the program & taxpayers, while also protecting CDPAP for the longterm”
FALSE: Fraud incidence in CDPAP is VERY low (&way lower than in MLTCs—the #privateinsurance middlemen to which NYS gave control of the #Medicaid homecare program)
FALSE: Fraud incidence in CDPAP is VERY low (&way lower than in MLTCs—the #privateinsurance middlemen to which NYS gave control of the #Medicaid homecare program)
![The image is all text: Claim: CDPAP is rife with fraud.
Fact: The data makes clear there is very low fraud incidence in CDPAP.
In 2022, the Medicaid Inspector General "review[ed] a claims universe of over $37 million, identifying overpayments of more than $46,000 representing a 99 percent claiming accuracy."
7 out of about 350,000 PAs were referred to AG Medicaid Fraud Control Unit, or 0.002% of CDPAP workers
In contrast, in 2022 the Medicaid Inspector General identified $19.1 million in MLTC fraud–and in 2022, the state comptroller found that over the previous six years, MLTC plans had received $700 million in improper payments for individuals who were not enrolled in the program and another $2.8 billion for individuals who received virtually no care. In a program that spends tens of billions of dollars a year, this figure is significant.
The Governor has not presented evidence of widespread fraud — nor has she proposed any policy solutions to the alleged fraud problem. Instead, they would place enormous burdens on tens of thousands of people who use the program as intended.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:56lqr2bduglc3c63wak66b5a/bafkreidert2newogfh3yblrpnwwesqppqaj3y5hwvmyt77bsifnjbh7nxi@jpeg)
January 13, 2025 at 10:52 PM
1) "This will rein in the runaway costs & fraud that prev. harmed the program & taxpayers, while also protecting CDPAP for the longterm”
FALSE: Fraud incidence in CDPAP is VERY low (&way lower than in MLTCs—the #privateinsurance middlemen to which NYS gave control of the #Medicaid homecare program)
FALSE: Fraud incidence in CDPAP is VERY low (&way lower than in MLTCs—the #privateinsurance middlemen to which NYS gave control of the #Medicaid homecare program)
@kathyhochul.bsky.social PPL's record isn't misinformation. Pushback is coming from scared older adults/PWD. End real racket, MLTCs profits of $3 billion year-use $ for HC & caregiver wages & adequate hrs of care. Governor, NYers look to you for protection, not tumult, as Trump/GOP upend everything.
January 7, 2025 at 5:34 PM
@kathyhochul.bsky.social PPL's record isn't misinformation. Pushback is coming from scared older adults/PWD. End real racket, MLTCs profits of $3 billion year-use $ for HC & caregiver wages & adequate hrs of care. Governor, NYers look to you for protection, not tumult, as Trump/GOP upend everything.
Interesting paper on a prioritisation tool for #MLTCs #Multimorbidity
journals.plos.org/plosone/arti...
journals.plos.org/plosone/arti...
Health outcome priorities of people with multiple long-term conditions using the outcome prioritisation tool in the UK: A survey study and feasibility assessment
Background The outcome prioritisation tool (OPT) is a simple tool to ascertain the health outcome priorities of people with MLTC. Use of this tool in people aged under 65 years with MLTC has not previ...
journals.plos.org
January 4, 2025 at 9:34 PM
Interesting paper on a prioritisation tool for #MLTCs #Multimorbidity
journals.plos.org/plosone/arti...
journals.plos.org/plosone/arti...
NYS Managed Long Term Care companies - insurance companies-profit by up to 3 billion/yr-Medicaid $ for home care worker wages & adequate home care hours for older adults/PWD. More pressure put on family caregivers. Gov Hochul,end this corrupt practice. End MLTCs. Does this happen in your state?
December 22, 2024 at 1:24 AM
NYS Managed Long Term Care companies - insurance companies-profit by up to 3 billion/yr-Medicaid $ for home care worker wages & adequate home care hours for older adults/PWD. More pressure put on family caregivers. Gov Hochul,end this corrupt practice. End MLTCs. Does this happen in your state?
Governor Kathy Hochul must have our backs. Her job is to protect all NYers thru treacherous times. Upending CDPAP, failing to pay FairPay4HC, ignoring the bill to end MLTCs - insurance companies profit by $3 billion/yr from Medicaid instead of paying for adequate care & wages. Change direction.
December 20, 2024 at 8:09 PM
Governor Kathy Hochul must have our backs. Her job is to protect all NYers thru treacherous times. Upending CDPAP, failing to pay FairPay4HC, ignoring the bill to end MLTCs - insurance companies profit by $3 billion/yr from Medicaid instead of paying for adequate care & wages. Change direction.
📌 brilliant graphic and really interesting paper too. Most of the people we see in the emergency environment have MLTCs so this is really essential to our practice
December 20, 2024 at 6:49 AM
📌 brilliant graphic and really interesting paper too. Most of the people we see in the emergency environment have MLTCs so this is really essential to our practice
‚The impact of living with MLTCs was experienced as a multifaceted and complex workload involving multiple types of work, many of which are reciprocally linked. Much of this work, and the associated impact on people, may not be apparent to healthcare staff‘
Living with chronic illness is hard work!
Living with chronic illness is hard work!
Our paper on the impact of living with multiple long-term conditions on everyday life: a qualitative evidence synthesis. The 'work' is not only around medications and healthcare use, it is also emotional & financial with lots of learning & adaptation
bmcpublichealth.biomedcentral.com/articles/10....
bmcpublichealth.biomedcentral.com/articles/10....
December 18, 2024 at 2:29 PM
‚The impact of living with MLTCs was experienced as a multifaceted and complex workload involving multiple types of work, many of which are reciprocally linked. Much of this work, and the associated impact on people, may not be apparent to healthcare staff‘
Living with chronic illness is hard work!
Living with chronic illness is hard work!