#KnowYourNormal
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sarcomapatients.bsky.social
We asked #sarcoma patients worldwide what first tipped them off, and two answers stood out: PAIN, and an unexplained, fast-growing lump or swelling. Don't downplay the discomfort. Listen to your body and #KnowYourNormal.
A graphic featuring a word cloud with common symptoms of sarcoma. The largest words are: PAIN, Fatigue, Lump or swelling, followed by Loss of mobility, Weight loss, Bladder or bowel problems, then Nausea, Fever, Paralysis / numbness, Headaches, problems with vision, fracture. The caption reads: "Most common initial symptoms reported by sarcoma patients are pain and/or unexplained lump or swelling. The data comes from the Global Sarcoma Diagnosis Pathway Survey."
July 22, 2025 at 9:01 AM
sarcomapatients.bsky.social
Angelika Sandakly of INFO SARCOMES shares the story of her son's first symptom that led to his sarcoma diagnosis.

hashtag#KnowYourNormal
hashtag#SarcomaSignsAndSymptoms
hashtag#SarcomaAwarenessMonth
July 28, 2025 at 11:24 AM
sarcomapatients.bsky.social
In our final video from the #KnowYourNormal series: Maggie Cameron of The EHE Foundation tells her story of how her sarcoma diagnosis was discovered while undergoing routine scans for a different medical condition!

#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth
July 30, 2025 at 10:01 AM
sarcomapatients.bsky.social
Marloes found a lump in her breast and expected breast cancer. A quick referral and specialized testing identified that she was in fact a Phyllodes sarcoma patient. Hear her story.

#KnowYourNormal #SarcomaAwarenessMonth2025
July 23, 2025 at 10:01 AM
craeioe.bsky.social
This #MentalHealthAwarenessWeek, may we steer you towards the #KnowYourNormal toolkit. 8 years back, CRAE helped write a report about autism and MH.

The toolkit helps us work out a baseline when well - which helps communication when not.

bit.ly/know_your_normal
#knowyournormal
May 12, 2025 at 2:08 PM
bcrt-uk.bsky.social
In Sarcoma Awareness Month, we're encouraging you to #KnowYourNormal.

In the video below, real patients outline the signs and symptoms of primary bone cancer to look out for.

Please share this post to raise awareness and save lives 🧡

#SarcomaAwarenessMonth #SAM2025 #Awareness #UntilTheresACure
July 1, 2025 at 2:02 PM
sarcomapatients.bsky.social
Share the moment you first thought, “This isn’t normal.”

Maybe you found a painless lump, noticed night‑time bone pain, or something was simply *off*. What made you trust your instincts & seek answers. Your story could save others months of uncertainty.

#SarcomaAwarenessMonth2025 #KnowYourNormal
A graphic with an image of a man clutching the side of his abdomen in pain. The caption reads: "Know YOUR normal. When something feels off, get it checked!"
July 3, 2025 at 5:36 AM
sarcomapatients.bsky.social
Brazil still faces serious challenges in sarcoma care. But global collaboration is helping close the gap.

For patients and families, it’s also a reminder:
Sarcoma may be rare, but you are not alone.

Our latest blog: bit.ly/SPAGNblog_Br...
#SarcomaAwarenessMonth #KnowYourNormal
A view from Brazil: Being part of international networks helps improve sarcoma care - SPAGN - Sarcoma Patient Advocacy Global Network
Global cooperation is not an abstract ideal, says Dr. Fernando Campos, medical oncologist from Brazil. He describes the positive impact of international exchange projects on the daily practice of…
bit.ly
July 23, 2025 at 8:00 AM
sarcomapatients.bsky.social
Most of these signs have many possible causes but if they don’t go away, get checked out. Early diagnosis is key. #PEComa is rare. But people living with it deserve answers, treatment, and support. Don’t ignore strange symptoms. You deserve to be heard.

#KnowYourNormal #SarcomaAwarenessMonth
July 12, 2025 at 1:36 PM
sarcomapatients.bsky.social
Annie of the National Leiomyosarcoma Foundation (NLMSF) shares her experience as a caregiver to an LMS patient, her husband, Dr. Mitch Achee.

#KnowYourNormal #SarcomaAwarenessMonth2025
July 23, 2025 at 2:02 PM
sarcomapatients.bsky.social
Wilker is an #LMS patient from Brazil, an oncology pharmacist and an advocate w/Sarcomunicandonos America Latina. Today he shares the story of his journey to his diagnosis and the emotional toll that led him into patient advocacy.

#SarcomaAwarenessMonth2025 #KnowYourNormal #LMSawarenessday
July 15, 2025 at 1:32 PM
lydiantoinette.bsky.social
Loved the reminder to #knowyournormal 💜

https://x.com/i/spaces/1gqxvlpVXYnGB
April 20, 2025 at 12:59 AM
therapyonwheels.bsky.social
Tip #1: Know your normal.
We’re not doctors - but we do know that too many people ignore the early signs.
If something feels off, don’t wait.
Get it checked. Talk to your GP.
Early detection isn’t just a slogan - it’s survival.
#CheckYourself #BreastCancerAwareness #TherapyOnWheels #KnowYourNormal
October 31, 2025 at 11:00 AM
sarcomapatients.bsky.social
Kamil of the Polish Sarcoma and Melanoma Patients Association was lucky. His doctor immediately recognized the warning signs in his x-ray, and referred him to an oncologist straight away. He was diagnosed with sarcoma 2 weeks later.

#KnowYourNormal
#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth
July 28, 2025 at 11:36 AM
sam1e.bsky.social
I can totally understand what you're saying here. Im coming up to 4 years post diagnosis. It felt like an outer body experience, yet the most deeply personal, crazy roller coaster ride ive ever had too. Hope things are better for you and staying better. 💖

#fuckcancer #knowyournormal
April 25, 2025 at 12:21 AM
sarcomapatients.bsky.social
We have lots of stories to share this month! Here's a sneak peek of what's to come. Hear their stories, share your own, and spread the word!

#SarcomaAwarenessMonth2025
#KnowYourNormal
#SarcomaSignsAndSymptoms
July 2, 2025 at 2:45 AM
sarcomapatients.bsky.social
LMS begins in smooth-muscle tissue, often in the uterus, abdomen, or limbs. Common symptoms include vague pain/fullness, a lump, heavy menstrual flow or other bleeding. #KnowYourNormal: If something feels off, ask for imaging + a referral to a sarcoma specialist.
#LMSAwarenessDay
A graphic promoting LMS Awareness Day, July 15th. The image includes a large purple ribbon, the color of LMS. The caption reads: "Sarcoma Awareness Month 2025" and the website awareness.sarcoma-patients.org.
July 15, 2025 at 12:35 PM
sarcomapatients.bsky.social
Tasha of @curesarcoma.bsky.social had a sore throat that refused to go away. They ruled out COVID and strep before a lump began to grow. Guess how many doctors she had to see before she got a diagnosis? Watch and find out.

#SarcomaAwarenessMonth2025 #KnowYourNormal #rhabdomyosarcoma
July 14, 2025 at 12:32 PM
sarcomapatients.bsky.social
Namuwonge's first symptom was an unexplained swelling on her right leg. She had never heard of sarcoma before her diagnosis. Hear her story and follow the Uganda Alliance of Patients’ Organizations(UAPO) for more!

#KnowYourNormal
#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth
July 29, 2025 at 8:02 AM
sarcomapatients.bsky.social
#SarcomaAwarenessMonth ends today. Thank you to all who participated in this year's #KnowYourNormal campaign! Making videos, sharing graphics, telling your story, and sharing your knowledge brings our global sarcoma community together. We look forward to planning for next year!
- The team at SPAGN
A collage of 9 photos of members of the SPAGN board and team wearing yellow for sarcoma. In the center is a blue square that says "Thank you!" The caption at the bottom says "Sarcoma Awareness Month 2025" with the SPAGN logo.
July 31, 2025 at 8:00 AM
sarcomapatients.bsky.social
The first place you go when something isn't "normal" is usually your family doctor. But few Primary Care Providers can recognize the signs of sarcomas. #KnowYourNormal: Even if your doctor doesn’t suspect a serious illness, listen to your body & insist on clear answers.

#SarcomaAwarenessMonth2025
A graphic promoting statistics from a recent survey. 57% of patients see their general physician FIRST for initial symptoms. However only 7.7% of general physicians were the first doctor to suspect sarcoma for the concerned patient.
July 2, 2025 at 2:51 AM
sarcomapatients.bsky.social
Dr. Mitch of National Leiomyosarcoma Foundation was having a normal day until the sudden onset of his symptoms after working out. A rush to the ER led to a biopsy that revealed #leiomyosarcoma. You #KnowYourNormal, if something is wrong don't brush it off. Get it checked!

#SarcomaAwarenessMonth2025
July 2, 2025 at 6:33 AM
craeioe.bsky.social
This #WorldMentalHeathDay, take a moment to #KnowYourNormal. Follow below to an impressive co-designed resource produced to help us each work out what our normal is.

bit.ly/whatsyournormal
Know Your Normal | Ambitious about Autism
What is Know Your Normal? In 2017 the Youth Council and myVoice volunteers unanimously decided that they wanted to run a campaign around mental health. The Know Your Normal campaign aims to reduce the stigma around mental health and create resources for autistic young people to work out and understand what their normal is.  
bit.ly
October 10, 2023 at 7:25 AM
sarcomapatients.bsky.social
Christina's son Dylan told her his shoulder hurt after falling down at school. They went straight to the ER for an evaluation. That evening, she got a really unusual call from the doctor. Hear her story.

#SarcomaAwarenessMonth2025 #KnowYourNormal #osteosarcoma
July 14, 2025 at 3:32 PM
sarcomapatients.bsky.social
💜 LMS patients, share your story:

When did you first sense something was wrong?
Who helped you keep pushing for answers?
What do you wish every newly diagnosed patient knew about LMS?

#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms #KnowYourNormal #PatientAdvocate #Sarcoma
July 15, 2025 at 12:35 PM