Do you have a spare room to rent?
Please rent to Anna and you’ll be helping someone in need at the same time!
(see below)
#Neisvoid #MEcfs #LongCovid
#SevereME #DomesticAbuse
#ChronicIllness #JusticeForME #UnitedForME #MutualAid #HomeShare #HouseShare #Melbourne #Australia #SOS
Please rent to Anna and you’ll be helping someone in need at the same time!
(see below)
#Neisvoid #MEcfs #LongCovid
#SevereME #DomesticAbuse
#ChronicIllness #JusticeForME #UnitedForME #MutualAid #HomeShare #HouseShare #Melbourne #Australia #SOS
Won’t someone take me in to escape #abuse?
Can pay a small rent/board, but you could get Carer Pension &/or Allowance if you provide some care.
Can provide meals & have care hours.
I don’t know why this is such a horrible arrangement - to rent a spare room.
www.thecanary.co/global/world...
Can pay a small rent/board, but you could get Carer Pension &/or Allowance if you provide some care.
Can provide meals & have care hours.
I don’t know why this is such a horrible arrangement - to rent a spare room.
www.thecanary.co/global/world...
Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse
Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse from Canary on 1 April 2025
www.thecanary.co
November 12, 2025 at 1:41 PM
Do you have a spare room to rent?
Please rent to Anna and you’ll be helping someone in need at the same time!
(see below)
#Neisvoid #MEcfs #LongCovid
#SevereME #DomesticAbuse
#ChronicIllness #JusticeForME #UnitedForME #MutualAid #HomeShare #HouseShare #Melbourne #Australia #SOS
Please rent to Anna and you’ll be helping someone in need at the same time!
(see below)
#Neisvoid #MEcfs #LongCovid
#SevereME #DomesticAbuse
#ChronicIllness #JusticeForME #UnitedForME #MutualAid #HomeShare #HouseShare #Melbourne #Australia #SOS
Thank you #JusticeForME! Please see the update via the link for more:
“… it was the positive response we were asking for. Without making any promises, the need for seamless NHS provision fit for meeting the needs of all people living with ME, regardless of disease severity, was recognised.“
#MEcfs
“… it was the positive response we were asking for. Without making any promises, the need for seamless NHS provision fit for meeting the needs of all people living with ME, regardless of disease severity, was recognised.“
#MEcfs
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
www.crowdjustice.com
November 7, 2025 at 10:28 AM
Thank you #JusticeForME! Please see the update via the link for more:
“… it was the positive response we were asking for. Without making any promises, the need for seamless NHS provision fit for meeting the needs of all people living with ME, regardless of disease severity, was recognised.“
#MEcfs
“… it was the positive response we were asking for. Without making any promises, the need for seamless NHS provision fit for meeting the needs of all people living with ME, regardless of disease severity, was recognised.“
#MEcfs
Seems to be a theme for the current government; make a plan but don’t back it with any meaningful money for it to actually work…
People have been knowingly dying of ME for decades & nothing is being done. There isn’t one specialist service in the NHS
#SevereME #JusticeForME #FundThePlan #LongCovid
People have been knowingly dying of ME for decades & nothing is being done. There isn’t one specialist service in the NHS
#SevereME #JusticeForME #FundThePlan #LongCovid
That the UK - one of the architects of this fund, designed to save the world’s forests - is now refusing to put any money into it is frankly shameful. Starmer’s claim that he still continues to back the fund is meaningless without resources - so much for climate leadership
November 6, 2025 at 12:54 PM
Seems to be a theme for the current government; make a plan but don’t back it with any meaningful money for it to actually work…
People have been knowingly dying of ME for decades & nothing is being done. There isn’t one specialist service in the NHS
#SevereME #JusticeForME #FundThePlan #LongCovid
People have been knowingly dying of ME for decades & nothing is being done. There isn’t one specialist service in the NHS
#SevereME #JusticeForME #FundThePlan #LongCovid
Can you help in any way please:
@actionforme.bsky.social
@meassociation.org.uk
@thereforme.bsky.social
?
#DontletMEdie #SevereME #JusticeForME #UnitedForME
@actionforme.bsky.social
@meassociation.org.uk
@thereforme.bsky.social
?
#DontletMEdie #SevereME #JusticeForME #UnitedForME
1/N Nevra’s d3ath is preventable.
If the right people take action — by recognising ME/CFS, allowing safe home visits, and coordinating specialist care — she can survive.
What’s needed now isn’t sympathy. It’s intervention.
#MEcfs #pwME #MillionsMissing
If the right people take action — by recognising ME/CFS, allowing safe home visits, and coordinating specialist care — she can survive.
What’s needed now isn’t sympathy. It’s intervention.
#MEcfs #pwME #MillionsMissing
October 25, 2025 at 11:32 PM
Can you help in any way please:
@actionforme.bsky.social
@meassociation.org.uk
@thereforme.bsky.social
?
#DontletMEdie #SevereME #JusticeForME #UnitedForME
@actionforme.bsky.social
@meassociation.org.uk
@thereforme.bsky.social
?
#DontletMEdie #SevereME #JusticeForME #UnitedForME
@ashleydaltonmp.bsky.social Please help people with #MEcfs – it’s one of the most serious, debilitating illnesses in the world
I’m not even the worst affected and I’m mostly bedbound and haven’t been able to go downstairs in my home for 2.5 years
You have the power to help
#JusticeForME #SevereME
I’m not even the worst affected and I’m mostly bedbound and haven’t been able to go downstairs in my home for 2.5 years
You have the power to help
#JusticeForME #SevereME
October 22, 2025 at 1:53 AM
@ashleydaltonmp.bsky.social Please help people with #MEcfs – it’s one of the most serious, debilitating illnesses in the world
I’m not even the worst affected and I’m mostly bedbound and haven’t been able to go downstairs in my home for 2.5 years
You have the power to help
#JusticeForME #SevereME
I’m not even the worst affected and I’m mostly bedbound and haven’t been able to go downstairs in my home for 2.5 years
You have the power to help
#JusticeForME #SevereME
October 21, 2025 at 8:25 PM
@ris-law.bsky.social is there anything the #MEcfs community can do to help besides fundraising to help the #JusticeForME campaign please?
Many of us could share links to info or videos etc that may be helpful. If you tell us what you need, we will no doubt try to provide!
#ThereForME #UnitedForME
Many of us could share links to info or videos etc that may be helpful. If you tell us what you need, we will no doubt try to provide!
#ThereForME #UnitedForME
Our client, supported by #JusticeforME, is crowdfunding for legal advice with the aim of ensuring that specialist health services needed by everyone living with ME/cfs are made available – find out more here: www.crowdjustice.com/case/justice... #MyalgicEncephalomyelitis @swastrosarah.bsky.social
October 21, 2025 at 7:20 PM
@ris-law.bsky.social is there anything the #MEcfs community can do to help besides fundraising to help the #JusticeForME campaign please?
Many of us could share links to info or videos etc that may be helpful. If you tell us what you need, we will no doubt try to provide!
#ThereForME #UnitedForME
Many of us could share links to info or videos etc that may be helpful. If you tell us what you need, we will no doubt try to provide!
#ThereForME #UnitedForME
This brilliant video about the #GreatestMEdicalScandal has been out for a while but it’s worth reposting in case you haven’t seen it…
If you don’t know much about #MEcfs or #LongCovid, or aren’t aware of the shocking treatment of people, please watch & help advocate for us!
#JusticeForME #SevereME
If you don’t know much about #MEcfs or #LongCovid, or aren’t aware of the shocking treatment of people, please watch & help advocate for us!
#JusticeForME #SevereME
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
m.youtube.com
October 21, 2025 at 7:07 PM
This brilliant video about the #GreatestMEdicalScandal has been out for a while but it’s worth reposting in case you haven’t seen it…
If you don’t know much about #MEcfs or #LongCovid, or aren’t aware of the shocking treatment of people, please watch & help advocate for us!
#JusticeForME #SevereME
If you don’t know much about #MEcfs or #LongCovid, or aren’t aware of the shocking treatment of people, please watch & help advocate for us!
#JusticeForME #SevereME
Just had to reschedule an important medical appt because the energy required to prep for it (even with help) has worsened me too much.
#SevereME #JusticeForME
#SevereME #JusticeForME
October 21, 2025 at 3:57 PM
Just had to reschedule an important medical appt because the energy required to prep for it (even with help) has worsened me too much.
#SevereME #JusticeForME
#SevereME #JusticeForME
October 13, 2025 at 6:59 PM
“… how systems keep people poor while pretending it’s their own fault”
This is the epitome of how disabled people are treated by the UK government.
#TakingThePIP #Disability #SevereME #ME/CFS #LongCovid #PACEtrial #JusticeForME #GreatestMEdicalScandal
This is the epitome of how disabled people are treated by the UK government.
#TakingThePIP #Disability #SevereME #ME/CFS #LongCovid #PACEtrial #JusticeForME #GreatestMEdicalScandal
Dad’s books are full of empathy, common sense, and a healthy suspicion of the powerful. But at its heart his work is also about how systems keep people poor while pretending it’s their own fault. So I hope Kemi’s taking notes as well as reading the jokes.
Kemi Badenoch claiming Terry Pratchett as her favourite author is wild
October 7, 2025 at 2:14 PM
“… how systems keep people poor while pretending it’s their own fault”
This is the epitome of how disabled people are treated by the UK government.
#TakingThePIP #Disability #SevereME #ME/CFS #LongCovid #PACEtrial #JusticeForME #GreatestMEdicalScandal
This is the epitome of how disabled people are treated by the UK government.
#TakingThePIP #Disability #SevereME #ME/CFS #LongCovid #PACEtrial #JusticeForME #GreatestMEdicalScandal
2/2
➩ Imagine hospital being a dangerous place despite being ill enough to be in intensive care. This is how many of us live for years.
#ME/CFS #pwME #SevereME #JusticeForME #Justice4ME #LongCovid #MillionsMissing
➩ Imagine hospital being a dangerous place despite being ill enough to be in intensive care. This is how many of us live for years.
#ME/CFS #pwME #SevereME #JusticeForME #Justice4ME #LongCovid #MillionsMissing
September 28, 2025 at 11:37 AM
2/2
➩ Imagine hospital being a dangerous place despite being ill enough to be in intensive care. This is how many of us live for years.
#ME/CFS #pwME #SevereME #JusticeForME #Justice4ME #LongCovid #MillionsMissing
➩ Imagine hospital being a dangerous place despite being ill enough to be in intensive care. This is how many of us live for years.
#ME/CFS #pwME #SevereME #JusticeForME #Justice4ME #LongCovid #MillionsMissing
⚖️ The #JusticeforME crowdfunding campaign is closing today - over £10K raised! To find out more & support 👇
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
www.crowdjustice.com
September 28, 2025 at 9:30 AM
⚖️ The #JusticeforME crowdfunding campaign is closing today - over £10K raised! To find out more & support 👇
Will you be near London’s Southbank Sat/Sun? Last days for @jeremy-jeffs.bsky.social powerful exhibit ‘Lives we cannot live’ sharing photos and stories of people with the devastating disease #ME/CFS
Free
11am-6pm
Oxo Gallery, Oxo Tower Wharf, Barge House St, London SE1 9PH
#JusticeForME #LongCovid
Free
11am-6pm
Oxo Gallery, Oxo Tower Wharf, Barge House St, London SE1 9PH
#JusticeForME #LongCovid
Photo Exhibition: 'Lives We Cannot Live' by Jeremy Jeffs - The ME Association
Photo Exhibition: ‘Lives We Cannot Live' by Jeremy Jeffs ‘Lives […]
meassociation.org.uk
September 26, 2025 at 5:48 PM
Will you be near London’s Southbank Sat/Sun? Last days for @jeremy-jeffs.bsky.social powerful exhibit ‘Lives we cannot live’ sharing photos and stories of people with the devastating disease #ME/CFS
Free
11am-6pm
Oxo Gallery, Oxo Tower Wharf, Barge House St, London SE1 9PH
#JusticeForME #LongCovid
Free
11am-6pm
Oxo Gallery, Oxo Tower Wharf, Barge House St, London SE1 9PH
#JusticeForME #LongCovid
I think I am going to enjoy this new meme format.
Chotiner interviews Janeway
September 24, 2025 at 4:07 PM
September 24, 2025 at 4:06 PM
crowdjustice.com/case/justice4me/?fbclid=PAQ0xDSwM8hlBleHRuA2FlbQIxMQABp3K69xswtpaz7xWeQf5I3CYEcf-Uv8K6EzzMmECXCyfzN-E7ZY8V--nFMMJJ_aem_sM1RcVnPt3r8CBDZy8mP-w
#JusticeforME
#JusticeforME
NHS care for ME now
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
crowdjustice.com
September 21, 2025 at 7:23 AM
Public Accountability Bill
Gratitude to those who have stood together over years in this fight for us all.
A step towards making the process of uncovering injustice fair… will it work for #pwME ?
#JusticeforME
Gratitude to those who have stood together over years in this fight for us all.
A step towards making the process of uncovering injustice fair… will it work for #pwME ?
#JusticeforME
Statement from the Hillsborough Law Now campaugn regarding the news that the Hillsborough Law will be introduced to Parliament on Tuesday 16 September.
September 21, 2025 at 7:22 AM
Public Accountability Bill
Gratitude to those who have stood together over years in this fight for us all.
A step towards making the process of uncovering injustice fair… will it work for #pwME ?
#JusticeforME
Gratitude to those who have stood together over years in this fight for us all.
A step towards making the process of uncovering injustice fair… will it work for #pwME ?
#JusticeforME
@swastrosarah.bsky.social Flagging this also in case it’s helpful #JusticeForME
September 21, 2025 at 3:25 AM
@swastrosarah.bsky.social Flagging this also in case it’s helpful #JusticeForME
👉 Please share & donate if you can!
Help crowdfund a legal case against the UK government for neglect of ME/cfs - only 8 days to go ✊
#MEcfs #LongCovid #JusticeforME
Help crowdfund a legal case against the UK government for neglect of ME/cfs - only 8 days to go ✊
#MEcfs #LongCovid #JusticeforME
Our client, supported by #JusticeforME, is crowdfunding for legal advice with the aim of ensuring that specialist health services needed by everyone living with ME/cfs are made available – find out more here: www.crowdjustice.com/case/justice... #MyalgicEncephalomyelitis @swastrosarah.bsky.social
September 20, 2025 at 9:42 AM
👉 Please share & donate if you can!
Help crowdfund a legal case against the UK government for neglect of ME/cfs - only 8 days to go ✊
#MEcfs #LongCovid #JusticeforME
Help crowdfund a legal case against the UK government for neglect of ME/cfs - only 8 days to go ✊
#MEcfs #LongCovid #JusticeforME
Reposting in case there’s some serendipity at work and the right person sees this at the right time…!
#Australia #Victoria #Melbourne #Homeshare #Carer #MECFS #LongCovid #Disability #JusticeforME #UniteForME
#Australia #Victoria #Melbourne #Homeshare #Carer #MECFS #LongCovid #Disability #JusticeforME #UniteForME
🚨 Are you in Melbourne, Victoria or even another state & able to help someone in desperate need?
Please see Anna’s post & article below!
You wouldn’t just be an angel, you’d get lots back too… a new loyal friend & housemate, rent, income for some caring.
#Melbourne #SOS #MECFS #Homeshare #Carers
Please see Anna’s post & article below!
You wouldn’t just be an angel, you’d get lots back too… a new loyal friend & housemate, rent, income for some caring.
#Melbourne #SOS #MECFS #Homeshare #Carers
Won’t someone take me in to escape #abuse?
Can pay a small rent/board, but you could get Carer Pension &/or Allowance if you provide some care.
Can provide meals & have care hours.
I don’t know why this is such a horrible arrangement - to rent a spare room.
www.thecanary.co/global/world...
Can pay a small rent/board, but you could get Carer Pension &/or Allowance if you provide some care.
Can provide meals & have care hours.
I don’t know why this is such a horrible arrangement - to rent a spare room.
www.thecanary.co/global/world...
September 18, 2025 at 12:17 AM
Reposting in case there’s some serendipity at work and the right person sees this at the right time…!
#Australia #Victoria #Melbourne #Homeshare #Carer #MECFS #LongCovid #Disability #JusticeforME #UniteForME
#Australia #Victoria #Melbourne #Homeshare #Carer #MECFS #LongCovid #Disability #JusticeforME #UniteForME
Today marks World Patient Safety Day 2025: a day annually which aims to drive global action to enhance patient safety and raise awareness. 🧵 (1/8) #patientsafetyday2025
September 17, 2025 at 12:45 PM
@zackpolanski.bsky.social @eddavey.libdems.org.uk @zarahsultana.bsky.social @jeremycorbyn.bsky.social
Tagging you so you’re aware another #SevereME patient is being harmed. For decades people have been disbelieved, forcibly sectioned and passed away due to medical neglect
#JusticeForME #LongCovid
Tagging you so you’re aware another #SevereME patient is being harmed. For decades people have been disbelieved, forcibly sectioned and passed away due to medical neglect
#JusticeForME #LongCovid
September 8, 2025 at 9:16 PM
@zackpolanski.bsky.social @eddavey.libdems.org.uk @zarahsultana.bsky.social @jeremycorbyn.bsky.social
Tagging you so you’re aware another #SevereME patient is being harmed. For decades people have been disbelieved, forcibly sectioned and passed away due to medical neglect
#JusticeForME #LongCovid
Tagging you so you’re aware another #SevereME patient is being harmed. For decades people have been disbelieved, forcibly sectioned and passed away due to medical neglect
#JusticeForME #LongCovid
@ris-law.bsky.social… flagging this thread in case it’s helpful for your #JusticeForME case
September 7, 2025 at 5:44 AM
@ris-law.bsky.social… flagging this thread in case it’s helpful for your #JusticeForME case
@ris-law.bsky.social… flagging this thread in case it’s helpful for your #JusticeForME case
September 7, 2025 at 5:28 AM
@ris-law.bsky.social… flagging this thread in case it’s helpful for your #JusticeForME case