This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate

This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate

YouTube video by The Edge Prize

Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark

#edgeprize2023 #2023prize_community_resilience #2023prize_systems_and_governance #2023prize_storytelling_and_knowledge_weave This video was created as a part of a submission to “The Edge Prize” www.edgeprize.org 2023 cohort. View and contribute to this project on Hylo: https://www.hylo.com/all/projects/post/59493 About the video & creator: My name is Cynthia Johnson and I am an ME/CFS activist. I am also an advocate for health care, affordable housing and disability rights. And I am an Edgewalker. Please watch my video and hear my story. Any help lifting the significant financial burden of chronic illness will allow me to devote more of my limited time towards this important advocacy. I have suffered from ME/CFS since 2009. As the #MillionsMissing come out of the shadows, we are banding together to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. After decades of neglect, we are #StillSickStillFighting. I hope you will lend your voice and support to me/us in any way you can! I am happy to share what is working from the ME/CFS model of activism and could be replicated by other causes. We are building a model of how distributed organizing can move mountains. Through our collective storytelling, governmental advocacy work and transorganizational cooperation with a network of nonprofits, we are creating change. As ME/CFS activists and organizations, we work with a variety of stakeholders locally, regionally and globally. We continually share our knowledge and stories in new and creative ways. We are a resilient community and have learned to even advocate from our beds. ME/CFS stands for myalgic encephalomyelitis/chronic fatigue syndrome. Much of the world refers to it as just ME. To learn more, check out: MEAction Network (www.meaction.net), Open Medicine Foundation (www.omf.ngo), Solve M.E. (www.solvecfs.org) and the Bateman Horne Center (www.batemanhornecenter.org). – This video was created as a part of a submission to “The Edge Prize” www.edgeprize.org 2023 cohort. The Edge Prize is a bioregional community, accelerator, and prize challenge focused on Salmon Nation, a bioregion defined by the historic range of wild Pacific salmon, from the Salinas River in California, north to the Yukon River in Alaska. The goal of the Edge Prize is to: * Convene a group of extraordinary entrepreneurs, leaders, and innovators throughout Salmon Nation working on regenerative projects that benefit the lands, waters, and people of the bioregion — “The Edgewalkers.” * Invite them into a supportive community of reciprocity, mentorship, workshops, and collaboration. * Amplify their stories, in order to bring resources, collaboration, partnerships, and inspire others to start their own regenerative initiatives — in Salmon Nation and beyond. We are building a public-facing library of “what’s working” in Salmon Nation to help scale and accelerate regenerative practices worldwide.