#CancerRegistries2021
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arturomoncadatorres.com
I guess that's it, folks! Once again thanks to @GICR_IARC for a successful #CancerRegistries2021 and until next time!

(Sorry if I didn't get your best angle, it is hard to do nice captures of video presentations)
January 26, 2025 at 9:19 AM
arturomoncadatorres.com
The first day was a bit rough (I've never been a morning person), but what can you do. I definitely could have used a few more breaks between the #CancerRegistries2021 sessions
January 26, 2025 at 8:55 AM
arturomoncadatorres.com
Overall, I enjoyed my first participation at #CancerRegistries2021 very much. It is inspiring, as well as humbling, to see all the hard work that cancer registries around the world are doing to improve patients' lives.
January 26, 2025 at 8:48 AM
arturomoncadatorres.com
Time for the closure by Joanne Aitken (thank you for the shout out!). Kudos to the organizers, moderators, presenters, and everyone that made this (virtual) event possible

#CancerRegistries2021
January 26, 2025 at 8:41 AM
arturomoncadatorres.com
They also concluded that care should be taken when interpreting QoL scores

#CancerRegistries2021
January 26, 2025 at 8:34 AM
arturomoncadatorres.com
They used data from ~100 patients. They found 6 factors associated with QoL:

- Social functioning
- Role functioning
- Pain
- Education
- Health status perception
- Moderate urinary disorders

#CancerRegistries2021
January 26, 2025 at 8:27 AM
arturomoncadatorres.com
Now Remi Houpert with results on QoL of prostate cancer patients in Martinique

#CancerRegistries2021
January 26, 2025 at 8:19 AM
arturomoncadatorres.com
The plan is to roll out this type of portal to other types of cancer, as well as to the rest of Australia and New Zealand 🥝

#CancerRegistries2021
January 26, 2025 at 8:11 AM
arturomoncadatorres.com
They allowed patients to compare their symptoms and sequels with other patients with similar characteristics, based on PBCR PROM data.

#CancerRegistries2021
January 26, 2025 at 7:58 AM
arturomoncadatorres.com
Phase II (2021) consisted on piloting the portal. Privacy was fundamental.

#CancerRegistries2021
January 26, 2025 at 7:52 AM
arturomoncadatorres.com
In phase I (2020), they designed the portal with input from several stakeholders (clinicians, patients focus groups). They found men wanted to hear stories from peers, as well as have information presented in a mixture of formats

#CancerRegistries2021
January 26, 2025 at 7:45 AM
arturomoncadatorres.com
Now onto Ben Shemesh and the development of a prostate cancer support portal in Victoria: #BroSupPORT (cool name 🤘)

#CancerRegistries2021
January 26, 2025 at 7:38 AM
arturomoncadatorres.com
They got a tumor surveillance form and PBCR procedures manual approved by their Health Ministry (which is a great step). They will look into systematizing surveillance and optimizing data collection

#CancerRegistries2021
January 26, 2025 at 7:29 AM
arturomoncadatorres.com
Although a PBCR was established in Paraguay in 1987, there's still work to do on implementing international standards for it. They focused into the Central Department (i.e., central area), where ~40% of the population lives

#CancerRegistries2021
January 26, 2025 at 7:17 AM
arturomoncadatorres.com
Turn of @conutricionist and their work on implementing a PBCR in Paraguay

#CancerRegistries2021
January 26, 2025 at 7:11 AM
arturomoncadatorres.com
Their work shows the feasibility of including residential history into cancer research

#CancerRegistries2021
January 26, 2025 at 7:06 AM
arturomoncadatorres.com
Additionally, the used NATA data for pollution exposure, with a time-weighted assign exposure. This resulted in nice visualizations showing dynamic (excess) risk associated with residential history.

#CancerRegistries2021
January 26, 2025 at 7:00 AM
arturomoncadatorres.com
They looked at ~1000 patients from the NY State cancer registry. They did some clever mapping from different data sources to get a consolidated address of a patient.

#CancerRegistries2021
January 26, 2025 at 6:54 AM
arturomoncadatorres.com
Now Bian Liu and their work performed at @IcahnMountSinai.

#CancerRegistries2021
January 26, 2025 at 6:48 AM
arturomoncadatorres.com
They included quite a few countries in their analysis. In all types of cancer that they studied, they found that males had a higher incidence rate, as well as mortality rate

#CancerRegistries2021
January 26, 2025 at 6:43 AM
arturomoncadatorres.com
Last plenary session: "Registries, Research and Policy/Collaboration and Innovation". We'll be starting with @UTwente's and @IKNL's Joanke Van Helden and her work on association between SES and sex-disparities in cancer incidence and mortality

#CancerRegistries2021
January 26, 2025 at 6:38 AM
arturomoncadatorres.com
This is the current status of the NCCR. You can learn more about them right here https://cancercontrol.cancer.gov/research-emphasis/childhood-cancer-registry

#CancerRegistries2021
January 26, 2025 at 6:31 AM
arturomoncadatorres.com
Of course, linking and extending a dataset increases the risk of reidentification. They are working on mechanisms to reduce this, including a tier system of 5 levels

#CancerRegistries2021
January 26, 2025 at 6:23 AM
arturomoncadatorres.com
They're also starting to include information from digital pathology images. Leveraging #deeplearning/#ai, they intend to extend the type of data they can register

#CancerRegistries2021
January 26, 2025 at 6:16 AM
arturomoncadatorres.com
They're using #NLP for automated extraction of information from pathological reports (such as site, histology, laterality, etc.)

#CancerRegistries2021
January 26, 2025 at 6:07 AM