This quiz is wild. Some truly baffling choices to vote for Trump. Everyone who follows politics should check it out. www.americansurveycenter.org/results/Clcn...
My Quiz Result
I got 8 / 0 on this quiz from the Survey Center on American Life. Can you beat my score?
www.americansurveycenter.org
November 3, 2025 at 10:23 PM
This quiz is wild. Some truly baffling choices to vote for Trump. Everyone who follows politics should check it out. www.americansurveycenter.org/results/Clcn...
4 years ago I took my daughter to Germany - she tested positive for microclots. I brought the results back to Canada hoping our peds docs would help- no! they refused to even dabble into the unknown.
Time for change! Sign the CLCN petition - c.org/m9pRcrhMBX
Time for change! Sign the CLCN petition - c.org/m9pRcrhMBX
Have you seen this petition yet?
Demand Federal Action on Biomedical Care for Children Living with Long COVID
c.org
October 12, 2025 at 1:34 PM
4 years ago I took my daughter to Germany - she tested positive for microclots. I brought the results back to Canada hoping our peds docs would help- no! they refused to even dabble into the unknown.
Time for change! Sign the CLCN petition - c.org/m9pRcrhMBX
Time for change! Sign the CLCN petition - c.org/m9pRcrhMBX
How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
Sign the Petition
Demand Federal Action on Biomedical Care for Children Living with Long COVID
chng.it
October 6, 2025 at 2:50 PM
How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
October is #DysautonomiaAwarenessMonth💙
Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness.
The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada.
Sign & Share: chng.it/7ZSzLXnp5n
#CLCN #AdvocacyMeetsResearch
Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness.
The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada.
Sign & Share: chng.it/7ZSzLXnp5n
#CLCN #AdvocacyMeetsResearch
Sign the Petition
Demand Federal Action on Biomedical Care for Children Living with Long COVID
chng.it
October 2, 2025 at 8:50 PM
October is #DysautonomiaAwarenessMonth💙
Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness.
The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada.
Sign & Share: chng.it/7ZSzLXnp5n
#CLCN #AdvocacyMeetsResearch
Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness.
The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada.
Sign & Share: chng.it/7ZSzLXnp5n
#CLCN #AdvocacyMeetsResearch
The beginning of Fall is back to school – but children with long Covid face missed classes & ongoing symptoms. Their voices drive research & care. CLCN needs 500 signatures to bring this Petition to Parliament. Sign now: chng.it/7ZSzLXnp5n #LongCovidChildren #CLCN #ActNow
October 1, 2025 at 5:00 PM
The beginning of Fall is back to school – but children with long Covid face missed classes & ongoing symptoms. Their voices drive research & care. CLCN needs 500 signatures to bring this Petition to Parliament. Sign now: chng.it/7ZSzLXnp5n #LongCovidChildren #CLCN #ActNow
Fall brings kids back to school– but many with Long Covid are still fighting symptoms and missing out. Their voices shape research & care.
Sign and share to help CLCN reach 500 signatures and bring this petition to Parliament.
Sign now: chng.it/7ZSzLXnp5n
#LongCovidChildren #CLCN #ActNow
Sign and share to help CLCN reach 500 signatures and bring this petition to Parliament.
Sign now: chng.it/7ZSzLXnp5n
#LongCovidChildren #CLCN #ActNow
Sign the Petition
Demand Federal Action on Biomedical Care for Children Living with Long COVID
chng.it
October 1, 2025 at 4:01 PM
Fall brings kids back to school– but many with Long Covid are still fighting symptoms and missing out. Their voices shape research & care.
Sign and share to help CLCN reach 500 signatures and bring this petition to Parliament.
Sign now: chng.it/7ZSzLXnp5n
#LongCovidChildren #CLCN #ActNow
Sign and share to help CLCN reach 500 signatures and bring this petition to Parliament.
Sign now: chng.it/7ZSzLXnp5n
#LongCovidChildren #CLCN #ActNow
Megaman X2 - X-Hunters Stage 1 (Locrian)
#megamanx2 #xhunters #counterhunters #megamanx #megamanmusic #snes #music #rockma #rockmanx #vgm #bgm #ost #soundtrack #gaming #gamemusic #videogames #videogamemusic #locrian #locrianscale #locrianmode #ロックマンX2 #カウンターハンター #ロクリアン
youtube.com/watch?v=cLCn...
#megamanx2 #xhunters #counterhunters #megamanx #megamanmusic #snes #music #rockma #rockmanx #vgm #bgm #ost #soundtrack #gaming #gamemusic #videogames #videogamemusic #locrian #locrianscale #locrianmode #ロックマンX2 #カウンターハンター #ロクリアン
youtube.com/watch?v=cLCn...
Megaman X2 - X-Hunters Stage 1 (Locrian)
YouTube video by LocrianVGM (Locrian and Abstract)
youtube.com
August 15, 2025 at 5:29 AM
Megaman X2 - X-Hunters Stage 1 (Locrian)
#megamanx2 #xhunters #counterhunters #megamanx #megamanmusic #snes #music #rockma #rockmanx #vgm #bgm #ost #soundtrack #gaming #gamemusic #videogames #videogamemusic #locrian #locrianscale #locrianmode #ロックマンX2 #カウンターハンター #ロクリアン
youtube.com/watch?v=cLCn...
#megamanx2 #xhunters #counterhunters #megamanx #megamanmusic #snes #music #rockma #rockmanx #vgm #bgm #ost #soundtrack #gaming #gamemusic #videogames #videogamemusic #locrian #locrianscale #locrianmode #ロックマンX2 #カウンターハンター #ロクリアン
youtube.com/watch?v=cLCn...
As a parent of a teen who has been living with LC for 4 years and the founder of the Children's LC Network (CLCN), I have been serving as their voice on national working groups, striving to ensure that their experiences are recognized and that meaningful actions are taken to support them. CLCN is:
June 3, 2025 at 6:37 PM
As a parent of a teen who has been living with LC for 4 years and the founder of the Children's LC Network (CLCN), I have been serving as their voice on national working groups, striving to ensure that their experiences are recognized and that meaningful actions are taken to support them. CLCN is:
If you are a Canadian parent of a child living with Long COVID, you are warmly invited to join the Children's LC Network.
Via CLCN FB group- www.facebook.com/share/g/15Mp...
LinkedIn- www.linkedin.com/in/nandini-raj-04628931
Via CLCN FB group- www.facebook.com/share/g/15Mp...
LinkedIn- www.linkedin.com/in/nandini-raj-04628931
June 3, 2025 at 6:37 PM
If you are a Canadian parent of a child living with Long COVID, you are warmly invited to join the Children's LC Network.
Via CLCN FB group- www.facebook.com/share/g/15Mp...
LinkedIn- www.linkedin.com/in/nandini-raj-04628931
Via CLCN FB group- www.facebook.com/share/g/15Mp...
LinkedIn- www.linkedin.com/in/nandini-raj-04628931
💸 Bolsonaro lidera ranking de governos que mais gastaram com viagens de servidores sob sigilo ➡ bdf.onl/b/CLCN
Bolsonaro lidera ranking de governos que mais gastaram com viagens de servidores sob sigilo
Desde 2014, o governo federal gastou ao menos R$ 3,5 bilhões em viagens oficiais de servidores com dados mantidos sob
bdf.onl
June 2, 2025 at 1:01 PM
💸 Bolsonaro lidera ranking de governos que mais gastaram com viagens de servidores sob sigilo ➡ bdf.onl/b/CLCN
Fuck this pig and any other enabler wearing a badge. Go do your job. Stop the masked up kidnappers. Or get off the street and let us, the American people fight back.
youtube.com/watch?v=ClCN...
youtube.com/watch?v=ClCN...
Worcester City Councilor Etel Haxhiaj speaks with police officer following ICE raid on Eureka St.
YouTube video by MassLive
youtube.com
May 10, 2025 at 11:20 PM
Fuck this pig and any other enabler wearing a badge. Go do your job. Stop the masked up kidnappers. Or get off the street and let us, the American people fight back.
youtube.com/watch?v=ClCN...
youtube.com/watch?v=ClCN...
guess who's listening to the Ladyhawke soundtrack RIGHT NOW
I'm tempted to get irate about them attributing this to the Alan Parsons Project when it says Andrew Powell RIGHT ON THE SCREEN
www.youtube.com/watch?v=CLCN...
I'm tempted to get irate about them attributing this to the Alan Parsons Project when it says Andrew Powell RIGHT ON THE SCREEN
www.youtube.com/watch?v=CLCN...
레이디호크 Alan Parsons Project - Ladyhawke Theme
YouTube video by xanadu6101
www.youtube.com
March 21, 2025 at 12:00 AM
guess who's listening to the Ladyhawke soundtrack RIGHT NOW
I'm tempted to get irate about them attributing this to the Alan Parsons Project when it says Andrew Powell RIGHT ON THE SCREEN
www.youtube.com/watch?v=CLCN...
I'm tempted to get irate about them attributing this to the Alan Parsons Project when it says Andrew Powell RIGHT ON THE SCREEN
www.youtube.com/watch?v=CLCN...
Today I am here to say that the Children's Long Covid Network (CLCN) group is formed.
March 15, 2025 at 4:52 PM
Today I am here to say that the Children's Long Covid Network (CLCN) group is formed.
We recently had the honor of being guests on the "Once Upon a Gene Podcast" with Effie Parks where we discussed our rare disease journey and creating Cure CLCN6 Inc. in our efforts to develop a gene therapy for CLCN6 gene mutations.
effieparks.com/podcast/clcn...
effieparks.com/podcast/clcn...
ONCE UPON A GENE - EPISODE 252- Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy — Once Upon A Gene
Hear how this family’s eight-year search led them to discover their son’s ultra-rare CLCN6 gene mutation.
effieparks.com
January 11, 2025 at 11:53 PM
We recently had the honor of being guests on the "Once Upon a Gene Podcast" with Effie Parks where we discussed our rare disease journey and creating Cure CLCN6 Inc. in our efforts to develop a gene therapy for CLCN6 gene mutations.
effieparks.com/podcast/clcn...
effieparks.com/podcast/clcn...
#pykälientakaa LIVE!
Tänään Kulttuurikasarmin Henry’s Barissa klo 17.30
Vieraina @juhajokela1.bsky.social , CLCn Tuuli Kaasinen sekö @atteharjanne.bsky.social !
Tänään Kulttuurikasarmin Henry’s Barissa klo 17.30
Vieraina @juhajokela1.bsky.social , CLCn Tuuli Kaasinen sekö @atteharjanne.bsky.social !
November 21, 2024 at 1:16 PM
#pykälientakaa LIVE!
Tänään Kulttuurikasarmin Henry’s Barissa klo 17.30
Vieraina @juhajokela1.bsky.social , CLCn Tuuli Kaasinen sekö @atteharjanne.bsky.social !
Tänään Kulttuurikasarmin Henry’s Barissa klo 17.30
Vieraina @juhajokela1.bsky.social , CLCn Tuuli Kaasinen sekö @atteharjanne.bsky.social !
November 27, 2024 at 4:02 PM