#CFS/ME
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theyareallcowards.bsky.social
Explain to me how this could be done by trump regime when trump and his sycophants are always stating ‘he’s not racist’…
We know the bigots, racists & haters voted for this man but for cfs how did the others??
November 12, 2025 at 12:03 AM
tomkindlon.bsky.social
3/
Extract from:
Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome

www.sciencedirect.com/science/arti...

#SevereME #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Although previous studies have documented ME/CFS illness experience (Ma et al., 2025; D. Roberts, 2018), few have focused on those in the severe category. Without attention to illness severity, research risks underrepresenting the most debilitating aspects of the condition and those who may suffer the worst societal consequences. People with severe ME/CFS are particularly likely to be excluded from research due to their near-complete absence from public life, making them hard-to-reach in research and leading to a partial understanding of the illness (Montoya et al., 2021),
November 12, 2025 at 12:02 AM
moritherapy.bsky.social
#LongCovid #ME/CFS #invisibleillness
November 11, 2025 at 11:52 PM
glitch4oh4.bsky.social
Haven't had much luck with this mutual aid request. Being disabled (ME/CFS), I can't get out as much as I would like to get things I need. Help is very much needed and appreciated.

#MutualAid #HelpSky #HelpFolksLive2025 💸💞
glitch4oh4.bsky.social Glitch @glitch4oh4.bsky.social · 4d
Queer, neurodivergent and disabled. With snap currently unfunded even though they have been told to pay full benefits out, I am stressing because I need groceries, cat food/litter and personal care items. Help appreciated!

$0/300

#MutualAid #HelpSky #HelpFolksLive2025 💸💞

ko-fi.com/glitch4oh4
Support Glitch
Support Glitch
ko-fi.com
November 11, 2025 at 11:47 PM
sylthfarn.bsky.social
me, any day where i take my adderall and manage to stay awake and be productive: wow maybe i don't have cfs
my cfs the second i have a day off: the fuck you don't
November 11, 2025 at 11:26 PM
healthylabyrinth.bsky.social
This isn't the real me. The real me is the one that existed before me/cfs or fibromyalgia. As if a mutation had happened.
November 11, 2025 at 11:11 PM
catroverted.com
I request that everyone takes a minute to search up what an "Ambulatory Wheelchair User"

I am one. I use it because I have POTS, RA (in my feet, knees, and shoulders), fibromyalgia, hypermobility, and ME/CFS. All of these make it hard to walk most distances without putting myself in danger.
November 11, 2025 at 10:48 PM
healthylabyrinth.bsky.social
Just buy one or none unhealthy product when you order or go to buy your food. Life is often too difficult to stop yourself from eating all unhealthy food in one go at home ;) ♡ me/cfs fibromyalgia long covid etc
November 11, 2025 at 10:38 PM
missmalingerer.bsky.social
I’m so sorry. Thank you for trying to warn people. I’m also a writer, but me/cfs and long covid have pretty much stolen that from me.
November 11, 2025 at 10:17 PM
flashmaggie.bsky.social
Been ill with ME/CFS since 1986 and used to run a support group when
I still had the energy.
Members wasted a lot of money on quack treatments, sadly.
November 11, 2025 at 9:26 PM
dgspsoa.bsky.social
Kennt ihr diese Spenden-Aktion der Lost Voices Stiftung schon?

"Ihr unterstützt mit Eurer Spende den Ausbau der Ambulanz für postakute Infektionssyndrome inkl. Post-Covid und ME/CFS am Universitätsklinikum für Kinder- und Jugendmedizin OWL am Kinderzentrum Bethel in Bielefeld."

Please Repost.
Paedriatische Post-Covid Ambulanz in Bethel
Ihr unterstützt mit Eurer Spende den Ausbau der Ambulanz für postakute Infektionssyndrome inkl. Post-Covid und ME/CFS am Universitätsklinikum für Kinder- und Jugendmedizin OWL am Kinderzentrum Bethel ...
www.betterplace.org
November 11, 2025 at 8:48 PM
dgspsoa.bsky.social
#MEcfs Spendenlink der

mecfs-research.org
QR Code der ME/CFS Research Foundation - Spendenlink.
November 11, 2025 at 8:26 PM
marriemar.bsky.social
Wie geht es Deinem Kind damit? Ist zwischen Euch alles soweit ok?

Kommt er mit Deinem ME/CFS klar?
November 11, 2025 at 8:13 PM
susscrofa.bsky.social
Es geschehen noch Zeichen und Wunder… An der DGN findet eine Podiumsdiskussion über ME statt, an der Prof. Scheibenbogen (Immunologin, führende Expertin in ME), Prof. Schomerus (Psychiater, kritisiert Psychiatrisierung von ME) und der Neuroimmunologe Prof. Geis teilnehmen.
Screenshot des Programms der Jahrestagung der Deutschen Gesellschaft für Neurologie, mit Ankündigung „ME/CFS: ein Statement mit Folgen“ Screenshot des Programms der Jahrestagung der Deutschen Gesellschaft für Neurologie, mit Ankündigung „ME/CFS: ein Statement mit Folgen“ Screenshot des Programms der Jahrestagung der Deutschen Gesellschaft für Neurologie, mit Ankündigung „ME/CFS: ein Statement mit Folgen“
November 11, 2025 at 8:00 PM
evenicholls.bsky.social
Sorry to hear that! ME/CFS for me, so there went any chance at a normal life.
November 11, 2025 at 7:57 PM
irishmecfsassoc.bsky.social
From the Irish ME Trust:

2026 ME Therapy Retreat.

Their email address is info at imet dot ie.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
ME Therapy Retreat A Chara, We are holding our 2026 ME Therapy Retreat next May for people with ME in the Woodlands Hotel, in Adare, Co Limerick. The dates are for the nights of 11th, 12th & 13th May 2026 and we have secured a package from the hotel for half board, which will comprise the following: - Monday 11th May – Evening Meal Tuesday 12th May – Breakfast & Evening Meal Wednesday 13th May – Breakfast & Evening Meal Thursday 14th May – Breakfast Dinner times as follows: Monday 11th May – 6.00pm Tuesday 12th May – 5.30pm Wednesday 13th May – 5.30pm The cost of this retreat will be €220.00 per person sharing. In this instance, you are invited to bring a guest with you for the duration. For those who do not wish to share a room, the cost for single occupancy will be €390.00. For those travelling by train, we will have a coach pick up at Limerick Railway station (Colbert). There is no charge for those availing of the coach transfer. For those wishing to book for this ME Therapy Retreat, you will need to contact the hotel directly. The details are: Woodlands Hotel, Adare, Co. Limerick Tel: 061-605100. Website: www.woodlands-hotel.ie. Please quote the ME Therapy Retreat package when booking. Please also ensure that you will be booked into a ground floor room as there is no elevator to the upper floor. Also, please let the hotel know of any dietary requirements, whether you are vegan, vegetarian or gluten intolerant, etc.
November 11, 2025 at 7:56 PM
chronicmum.bsky.social
Sorry, muss mich mal auskotzen!
Könnten mal bitte alle aufhören auf der Medienzeit vom Kind rumzuhacken.
1. Es ist nicht 24/7 online
2. Ich würde auch voll gern Sachen mit dem Kind unternehmen, so wie früher, aber ich hab ME/CFS und das ist Kind Autist mit Angststörung

WAS ZUM F*** SOLL ICH MACHEN?
November 11, 2025 at 7:54 PM
silkabelli.bsky.social
Das ist keine Ausrede. Er war der Berater und wurde gezielt gepusht, er hatte sehr viel Verantwortung. Ich danke ihm überhaupt nicht, im Gegenteil, halte ihn verantwortlich für viele Tote und Me/CFS Fälle.
November 11, 2025 at 7:33 PM
tvsadam.bsky.social
i don't want to repost this because it's from a serious account about ME/CFS and i don't want to seem like i'm making light of it, but i did enjoy my initial interpretation of this article as a call by a man named Jerry Hayes to end discrimination against Jerry Hayes
small article with the headline "Call to end ME discrimination" with a photo of a man named Jerry Hayes it's actually an article about ending medical prejudice against ME, the health condition, and Hayes is an MP who participated in the launch of a group dedicated to this cause good on you, jerry
November 11, 2025 at 7:31 PM
justysnail.bsky.social
Yup! I’ve been diagnosed with EDS, POTS and ME/CFS - in that order. The latter being the most debilitating. My daughter also has EDS and POTS - hoping she doesn’t develop the last one.
November 11, 2025 at 7:20 PM
vidapop89.bsky.social
this is the story of my day today too... me/cfs sucks so bad
November 11, 2025 at 7:17 PM
kateviolette.com
one of these days someone is going to write a heck of an essay on how having ME/CFS is like being in an abusive relationship

this illness is like: oh, you think you're free to have a little joy in your day? well I'm gonna make you fucking pay for it you fucking loser
November 11, 2025 at 7:11 PM
tomkindlon.bsky.social
2/
From: "Patient-Reported Treatment Outcomes in ME/CFS and Long COVID"
www.medrxiv.org/content/10.1...
Patient-Reported Treatment Outcomes in ME/CFS and Long COVID
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID are persistent multi-system illnesses affecting many patients. With no known effective FDA-approved treatments for either con...
www.medrxiv.org
November 11, 2025 at 7:11 PM
tomkindlon.bsky.social
(Repeat from a few months ago)
"Most Troubling Symptoms"

#MEcfs #LongCovid

1/
Most Troubling Symptoms ME/CFS Long COVID Fatigue or low energy 95.62% 88.28% Feeling worse after normal exertion (PEM) 89.74% 79.39% Brain Fog 80.05% 72.33% Un-refreshing sleep 74.45% 55.28% Memory problems 54.07% 50.83% Fast, fluttering or pounding heartbeat 38.49% 47.11% Feeling of weakness 57.27% 43.61% Shortness of Breath 31.48% 40.44% Insomnia 47.29% 40.17% Headache or Migraine 45.32% 40.06% Postural Orthostatic Tachycardia (POTS) 41.04% 40.00% Lightheadedness or dizziness 42.64% 38.50% Sore/painful muscles 53.69% 34.11% Chest Pain 17.27% 31.39% Tinnitus 27.67% 31.11% Other digestive problems 44.00% 29.06% Numbness or tingling 25.36% 26.39% Joint pain or swelling 31.62% 24.44% Stiff or painful neck 38.45% 24.17% Cold or discolored hands/feet 28.89% 23.11% Balance problems or sense of room spinning 26.16% 22.56% Muscle twitches, spasms, or fasciculations 27.25% 20.39% External or internal tremors (\vibrations\) 20.71% 20.17% Nausea and/or Vomiting 25.55% 19.89% Sore throat, fever or flu-like symptoms 32.94% 19.72% Shooting, stabbing or burning pain 24.56% 19.06% Disordered taste / smell 9.04% 15.61%
November 11, 2025 at 7:09 PM
kateviolette.com
I was in a week-long semi-crash and then my first day feeling better I tried to do too much and now am back in the semi-crash: An ME/CFS Story
November 11, 2025 at 7:09 PM