Of course everything has to match the pinstripe pattern – even my coffee cup!
~🦋
#InfusionDay #ALEXandANI #KedsStyle #NYYankees #WearPair #IVIGinStyle #AlwaysCoordinated😘

#NerveConductionTest & #EMG today: electric shocks & needles in my arm & legs to monitor nerve activity.
Good news: no large fiber neuropathy.
Not so good: chronic cervical & lumbosacral polyradiculopathy (pinched nerves).
Best: even with paper gown & mask, I'm #AlwaysCoordinated😘
~🦋
#SpoonieSky

When I ordered these top frames (with donation to Ukraine relief efforts) with shirt & mask to match, I never thought that 3 years later, we'd still need to carry that message of support. Seems like they need it more than ever.
~🦋🌻
#SlavaUkraini🇺🇦 #WearPair🤓 #AlwaysCoordinated😘

Oops! Posted yesterday w/I the pic!

Wearing my new #HellsKitchenBroadway NY hoodie & fave patchwork jeans, and all the accessories to match!
Feelin' the 💙🩵💙 head to toe with blue/butterfly glasses, mask, bracelets, & shoes
~🦋
#ALEXandANI #KedsStyle #WearPair #ImStillMasking😷 #AlwaysCoordinated😘

Respect.
~🦋
#AlwaysCoordinated😘

Watching #Wicked at the hospital, & had to dress the part: "Positively Elphaba" shirt; "Wicked Witch of the West" glasses & bracelet; Elphie-inspired nails; green & black everything else - including Gram's kaleidoscope, and even my coffee!
~🦋💚🧹
#ALEXandANI #WearPair #IVIGinStyle #AlwaysCoordinated😘

My favorite fuzzy boots, which match the pants, which match the shirt, which matches my awesome new super comfy #IVhoodie, which matches the mask, which matches the stacked glasses, which match the watch & all the jewelry!
~🦋
#InfusionInStyle #ALEXandANI #WearPair #SpoonieSky #AlwaysCoordinated😘

After a busy day, @obiwongkenobi.bsky.social & I went to our first #NYLiberty member event w/ the #TimelessTorches last night.
So much fun, & they loved my Liberty-colored 🩵✨ glasses!
~🦋
#WNBA #ALEXandANI #WearPair #AlwaysCoordinated😘

Even when I didn't plan it: hospital socks & highlighted forms match my #GoodTrouble mask! (I did plan the glasses to go with it, though!)
~🦋
#ChronicIllness #ChronicLife #spoonie #SpoonieSky #WearPair #AlwaysCoordinated😘

Today’s ensemble is working with my new #ShizUniversity t-shirt – can you guess what I’m watching?

Otherwise, it’s the navy sparkle ✨ glasses, navy/butterfly mask, 💙🩶 clothes, shoes, & jewelry. And check it out – even the BP cuff and my giant coffee cup match!
~🦋
(2/2)
#Wicked #AlwaysCoordinated😘

When hubby gets a tiara for your big birthday, of course you accessorize to match!
💜🦋✨
#AlwaysCoordinated😘

(which goes with the sparkly green nails, of course) – Never let anything dull your sparkle)! 💚✨
~🦋
#infusion #ANSdysfunction #dysautonomia #neuropathy #POTS #RareDisease #sarcoidosis #SmallFiberNeuropathy #SarcStrong #ZebraStrong🦓 #KedsStyle #WearPair #IVIGinStyle #AlwaysCoordinated😘

Back-to-back(-to-back) appointments for my wrist today, with OT, radiology, & orthopedics.

You see that brighter line across my wrist? That is a *healed* #DistalRadialFracture,! Now, I'll do OT for another 1-2 months, wear a compression sleeve, and do the exercises. Yay!!
~🦋
#AlwaysCoordinated😘

Repping my #NYYankees today w/ glasses, mask, shirt, & bracelet. And of course I've got accessories to match:
#IVhoodie, jewelry, shoes, hair clip - and even my giant coffee cup!🧵
~🦋
#infusion #dysautonomia #neuropathy #RareDisease #sarcoidosis #SmallFiberNeuropathy #BeWell #AlwaysCoordinated😘
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