Salty Beach (she/her)
@zierrazunset.bsky.social
Living life with POTS, dysautonomia, Long Covid, MCAS, and CFS/ME symptoms as best I can, guided by research, medication and exercise techniques adapted for chronic illness warriors whose biggest battle is against gravity.
Never forget that Hope is not a frail thing.
Hope is the refusal to accept our current reality as the only one we will ever know.
Never give up on Hope.
Hope is the refusal to accept our current reality as the only one we will ever know.
Never give up on Hope.
February 13, 2025 at 5:40 PM
Never forget that Hope is not a frail thing.
Hope is the refusal to accept our current reality as the only one we will ever know.
Never give up on Hope.
Hope is the refusal to accept our current reality as the only one we will ever know.
Never give up on Hope.
Dnd campaigns?
February 6, 2025 at 5:20 AM
Dnd campaigns?
The third who exercises in bed?? ☺️
February 2, 2025 at 7:37 PM
The third who exercises in bed?? ☺️
But that lack of belief is infuriating.
Why would I lie about this? What joy could be gained from faking this disability?
I loved my life. Why would I hide from it?
The truth is it’s always more revealing about the person disbelieving than about you or I.
Why would I lie about this? What joy could be gained from faking this disability?
I loved my life. Why would I hide from it?
The truth is it’s always more revealing about the person disbelieving than about you or I.
January 29, 2025 at 4:25 PM
But that lack of belief is infuriating.
Why would I lie about this? What joy could be gained from faking this disability?
I loved my life. Why would I hide from it?
The truth is it’s always more revealing about the person disbelieving than about you or I.
Why would I lie about this? What joy could be gained from faking this disability?
I loved my life. Why would I hide from it?
The truth is it’s always more revealing about the person disbelieving than about you or I.
Movement (gentle/supine) helped my CFS/PEM.
More so, it helps shut people up when they tell me I’ll feel better if I exercise.
I say: I endurance/strength train 3 hrs/day, drink 160oz/day and eat healthy but I’m still sick and there are times I’m bedridden for days.
It helps but it’s not a cure.
More so, it helps shut people up when they tell me I’ll feel better if I exercise.
I say: I endurance/strength train 3 hrs/day, drink 160oz/day and eat healthy but I’m still sick and there are times I’m bedridden for days.
It helps but it’s not a cure.
January 29, 2025 at 4:24 PM
Movement (gentle/supine) helped my CFS/PEM.
More so, it helps shut people up when they tell me I’ll feel better if I exercise.
I say: I endurance/strength train 3 hrs/day, drink 160oz/day and eat healthy but I’m still sick and there are times I’m bedridden for days.
It helps but it’s not a cure.
More so, it helps shut people up when they tell me I’ll feel better if I exercise.
I say: I endurance/strength train 3 hrs/day, drink 160oz/day and eat healthy but I’m still sick and there are times I’m bedridden for days.
It helps but it’s not a cure.