Thank you! I'm on meds for POTS and they honestly help SO much. Currently it is just a beta blocker and the occasional salt tablet but I used to be on midodrine too when I was passing out frequently

Reading ❤️

Do you wear the visible band or just use the app? I have hEDS and POTS and was considering using the app but didn't know how well the wearable band worked

So I try to get them to understand by having them relive an experience where they were legitimately TERRIFIED. How it felt to have the racing heart, sweaty palms, dizziness etc and explain that is how I feel every single day. It seems to help some

I actually kind of agree with you. I know the technology isn't there yet but I feel like that is probably the "best" way to understand how it feels. Lived experience is a great teacher. I've tried explaining it in terms they would understand. I have POTS so basically I'm stuck in flight/fight mode

THIS is it! I am 37, chronically ill and disabled. I have hypermobile Ehlers Danlos, POTS, and endometriosis. I lost the vast majority of my non chronically ill friends 2 years ago when my health started to decline bc they simply don't understand and won't understand until it happens to them