@wtflerosis.bsky.social
he replied “I’ve never been more excited than I am right now.”
“They” are the do-ers of the Utopia we used to imagine. We’d witness suffering and say “one day they are gonna find a cure for this”
“They” are the do-ers of the Utopia we used to imagine. We’d witness suffering and say “one day they are gonna find a cure for this”
February 23, 2025 at 4:12 AM
he replied “I’ve never been more excited than I am right now.”
“They” are the do-ers of the Utopia we used to imagine. We’d witness suffering and say “one day they are gonna find a cure for this”
“They” are the do-ers of the Utopia we used to imagine. We’d witness suffering and say “one day they are gonna find a cure for this”
I was corresponding with a knight of ALS research last week. 30 years, so much incredible work, he’s involved in different stages of, I think, seven trials right now. I thanked him for all his work and said “here’s hoping something’s got you excited in one of these trials” and…
February 23, 2025 at 4:12 AM
I was corresponding with a knight of ALS research last week. 30 years, so much incredible work, he’s involved in different stages of, I think, seven trials right now. I thanked him for all his work and said “here’s hoping something’s got you excited in one of these trials” and…
If funding and cooperation are withdrawn, if trials get paused, if we let the sloth train stop? These diseases are not going to cure themselves. Let’s keep the train moving. “They” are soooo close on some terrible diseases.
February 23, 2025 at 4:12 AM
If funding and cooperation are withdrawn, if trials get paused, if we let the sloth train stop? These diseases are not going to cure themselves. Let’s keep the train moving. “They” are soooo close on some terrible diseases.
Maybe this is an opportunity for everyone to spend 15 minutes reading about what the NIH is, what the WHO is and how the health of those and other entities like them around the world can have a real life-changing impact on people you love, with diseases rare and common.
February 23, 2025 at 4:12 AM
Maybe this is an opportunity for everyone to spend 15 minutes reading about what the NIH is, what the WHO is and how the health of those and other entities like them around the world can have a real life-changing impact on people you love, with diseases rare and common.
it gets reviewed and published and then repeated and…years from inception of a hypothesis, one aspect of an awful disease gets some alleviation. In 2020, massive resources and global scale showed how fast this sloth train CAN go.
February 23, 2025 at 4:12 AM
it gets reviewed and published and then repeated and…years from inception of a hypothesis, one aspect of an awful disease gets some alleviation. In 2020, massive resources and global scale showed how fast this sloth train CAN go.
“They”, the doctors and research scientists poring over data, developing hypotheses, applying for grant after grant after grant, conducting studies, phase I’s of trials, failures, drawing board return trips, hoping one day to get to a phase II and maybe a successful phase III and maybe…
February 23, 2025 at 4:12 AM
“They”, the doctors and research scientists poring over data, developing hypotheses, applying for grant after grant after grant, conducting studies, phase I’s of trials, failures, drawing board return trips, hoping one day to get to a phase II and maybe a successful phase III and maybe…
and to think about how “they” actually do what “they” do.
February 23, 2025 at 4:12 AM
and to think about how “they” actually do what “they” do.
It gives us all an opportunity to a) of course, join in spirit as we imagine the plight of our fellow humans in this club no-one-wants-to-join, b) understand the scope of humanity in this umbrella and c) most importantly to me, think about who “they” are, “they” of the cure-finders…
February 23, 2025 at 4:12 AM
It gives us all an opportunity to a) of course, join in spirit as we imagine the plight of our fellow humans in this club no-one-wants-to-join, b) understand the scope of humanity in this umbrella and c) most importantly to me, think about who “they” are, “they” of the cure-finders…
And now that I’m on this side of it, I can confirm. All those things? True. Terrible, sucks, can’t imagine, more rare=less likely they find a cure. So, friends, what is the ask? What does Raising Awareness do?
February 23, 2025 at 4:12 AM
And now that I’m on this side of it, I can confirm. All those things? True. Terrible, sucks, can’t imagine, more rare=less likely they find a cure. So, friends, what is the ask? What does Raising Awareness do?
If you’re reading this, thinking “Ah Jeez, poor guy. Terrible. That would absolutely suck…I can’t even imagine…seems like, the more rare it is, the less likely they find a cure! Damn…” I used to think the same. exact. thing.
February 23, 2025 at 4:12 AM
If you’re reading this, thinking “Ah Jeez, poor guy. Terrible. That would absolutely suck…I can’t even imagine…seems like, the more rare it is, the less likely they find a cure! Damn…” I used to think the same. exact. thing.