Kayli Jamieson
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wanderingkayli.bsky.social
Kayli Jamieson
@wanderingkayli.bsky.social
4.9K followers 380 following 42 posts
@wandering on Instagram ✍🏻
Disabled with Long Covid 44+ months
Long COVID Researcher @sfu-fhs.bsky.social
Master’s Student @sfucmns.bsky.social writing on biopolitics & Long COVID

kaylijamieson.notion.site/research
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wanderingkayli.bsky.social
It’s not too late to complete your submission for our #LongCOVID photovoice exhibit at the Museum of #Vancouver, debuting this fall! Open Canada-wide to any self-identified #longhauler 18+. Upload your photos by June 1 here: www.surveymonkey.ca/r/YourPhotos
Poster with black and yellow text against blue background and a photo-film-like strip displaying examples of submissions such as medication, an Apple Watch of high heart rate, flowers, and a symptom crash. Submission prompt titles are: starting the day, middle of the day, lowlight, healthcare moment, end of the day, and highlight. Poster text with camera icon says: Your Life, Your Photos, Your Story. A Day in the Life of a Longhauler. Share your Long COVID story at the museum of Vancouver! "A Day in the Life of a Longhauler" is a photography project that captures the daily life of individuals living with Long COVID to enhance visibility, reduce stigma, and advocate for improved support. Whether you have a Long COVID diagnosis or are dealing with long-term symptoms following a COVID-19 infection, we invite you to share up to six photos from your everyday life which will be showcased at the Museum of Vancouver in the Fall of 2025.QR code for submission. Logos from Simon Fraser University, OH-HI Science CoLab, Museum of Vancouver, Post-COVID-19 Interdisciplinary Clinical Care Network, and Michael Smith Health Research BC. French version of poster. See English alt-text (sorry) Punjabi version of poster. See English alt-text (sorry) Chinese (simplified) version of poster. See English alt-text (sorry)
May 20, 2025 at 8:59 PM
wanderingkayli.bsky.social
Incredibly drained after today, but it was fantastic being able to attend a local event for Long COVID Awareness Day! Thank you so much to the organizers at @longcovidcan-co.bsky.social & @cancovsoc.bsky.social 🩵💙 Pillowcases were laid out at Vancouver Art Gallery of longhauler stories. Emotional😭
6 photo collage of 200 pillowcases being laid out at Vancouver art gallery of handwritten patient stories. Attendees with umbrellas and a selfie of Kayli in a white N95, wearing teal and black and a long covid ribbon button. Poster reads: 5 years of long COVID. Cure long COVID now! 6 photo collage grid. One is of a tote bag that reads long covid is chronic masking is iconic with various long covid themed stickers. Another is a patient story handwritten onto a pillowcase. 2 photos are of an art piece, a gown of longhauler faces printed all over it and handwritten symptoms on the gown’s train, reading at the end “I’m sorry there’s nothing more we can do for you.” A poster reads: Living with Ongoing Neurological Gastrointestinal & Cardiovascular Issues. Very Incapacitating & Distressing. Acronym for Long COVID. A photo of the crowd watching a guest speaker.
March 15, 2025 at 11:16 PM
wanderingkayli.bsky.social
Big Announcement! Share Your Story & Be Part of an Exhibit at the Museum of Vancouver! 📸
My team is excited to announce the Fall 2025 launch of “A Day in the Life of a Longhauler,” a Photovoice project and exhibit.

Canadian longhaulers, submit by April 30: www.surveymonkey.ca/r/YourPhotos
Poster with black and yellow text against blue background and a photo-film-like strip displaying examples of submissions such as medication, an Apple Watch of high heart rate, flowers, and a symptom crash. Submission prompt titles are: starting the day, middle of the day, lowlight, healthcare moment, end of the day, and highlight. Poster text with camera icon says: Your Life, Your Photos, Your Story. A Day in the Life of a Longhauler. Share your Long COVID story at the museum of Vancouver! "A Day in the Life of a Longhauler" is a photography project that captures the daily life of individuals living with Long COVID to enhance visibility, reduce stigma, and advocate for improved support. Whether you have a Long COVID diagnosis or are dealing with long-term symptoms following a COVID-19 infection, we invite you to share up to six photos from your everyday life which will be showcased at the Museum of Vancouver in the Fall of 2025. Photo Submissions will remain open until April 30, 2025. Logos from Simon Fraser University, OH-HI Science CoLab, Museum of Vancouver, Post-COVID-19 Interdisciplinary Clinical Care Network, and Michael Smith Health Research BC.
February 24, 2025 at 6:14 PM
wanderingkayli.bsky.social
I almost wanted to announce to the whole maskless train car that if I get sick, I probably won’t be able to work again. That they don’t know what it took for me to even be here standing. But my Berlin Buyers Club tote bag “Long COVID is chronic, masking is iconic” hopefully said it for me.
Denim blue tote bag worn over a shoulder of a girl wearing a red plaid gingham blazer and red skirt. Tote bag embroidered message reads Long Covid is chronic, Masking is iconic.
November 24, 2024 at 12:34 AM
wanderingkayli.bsky.social
Reposting Dr. Mike Hoerger’s estimate here based off US wastewater data. Pertinent to think about in light of maskless academic (health!!) conferences occurring this week in B.C., & Taylor Swift’s Eras Tour in Toronto. Please please wear a mask. It is never too late to start again.
Screenshot of Dr. Mike Hoerger’s tweet, reading: if an in-person meeting has 320 people and no testing/isolation protocols, there’s currently an approximately 94.2% chance someone has COVID. The risk is literally off the chart. Attached is a chart titled how does risk increase with more social contacts? When number of people is 1, the risk is 0.9%. At 10 people, it’s 8.5%. At 20 people, it’s 16.3%. At 40 people, it’s 29.9%. At 100 people, it’s 58.9%. At 300 people it’s 93.1%. Pasted outside of the chart is 320 people at 94.2%. pmc19.com/data is referenced
November 15, 2024 at 12:36 AM
wanderingkayli.bsky.social
Bluesky intro post! Hello! I’m Kayli, a longhauler of almost 3 years, writing a MA Thesis on #LongCOVID & biopolitics. I also help conduct some studies on Long COVID in B.C.
Some of you may know me from IG, where I try to make learning about COVID science accessible via infographics.
#BCCOVID
Mixed Asian/White woman wearing a black respirator, red plaid blazer, white collared shirt, gray pleated skirt and red Mary Janes. Posing holding onto a sticker that reads Long COVID is chronic, masking is iconic, by Berlin Buyers Club. Background is of grassy park with trees and vendors of clean air festival.
November 12, 2024 at 1:21 AM