Sam Ⓥolchenboum
@volcs0.bsky.social
Pediatric oncologist, informatician, Director of Data for the Common Good, vegan
Pinned
Sam Ⓥolchenboum
@volcs0.bsky.social
· Feb 8
@d4cg.bsky.social is excited to be running a workshop with peds oncologists from all over India to democratize access to rare disease data through community building and data aggregation and harmonization. Thanks to the UChicago Delhi Ctr, Tata Mem. Hosp, Wadia Children's, Rajiv Ghandi Cancer Ctr
The Children's Cancer Data Initiative symposium, scheduled for next week at the NCI, has been cancelled because of the shutdown. This is unfortunate. I was looking forward to hearing all the amazing progress made by so many working to leverage data for pediatric cancer research.
October 2, 2025 at 4:11 PM
The Children's Cancer Data Initiative symposium, scheduled for next week at the NCI, has been cancelled because of the shutdown. This is unfortunate. I was looking forward to hearing all the amazing progress made by so many working to leverage data for pediatric cancer research.
Wow - this is awful and will affect a lot of project and studies. Please spread the word.
smartirb.org/stop-work-or...
smartirb.org/stop-work-or...
Stop Work Order for SMART IRB - SMART IRB | National IRB Reliance Initiative
Important Update: April 22, 2025On April 14, the NIH sent Harvard University a Stop Work Order for the SMART IRB federal funding contract. We were told to cease all work on the SMART IRB federal contr...
smartirb.org
April 23, 2025 at 1:20 AM
Wow - this is awful and will affect a lot of project and studies. Please spread the word.
smartirb.org/stop-work-or...
smartirb.org/stop-work-or...
I want to get this amplified. One of my data engineers @hhickman.bsky.social y.social part of my @d4cg.bsky.social team created this amazing tool to show the potential losses due to the change in indirect costs proposed by the current administration. It's shocking - please share. sam.am/IDC
February 10, 2025 at 9:03 PM
I want to get this amplified. One of my data engineers @hhickman.bsky.social y.social part of my @d4cg.bsky.social team created this amazing tool to show the potential losses due to the change in indirect costs proposed by the current administration. It's shocking - please share. sam.am/IDC
@d4cg.bsky.social is excited to be running a workshop with peds oncologists from all over India to democratize access to rare disease data through community building and data aggregation and harmonization. Thanks to the UChicago Delhi Ctr, Tata Mem. Hosp, Wadia Children's, Rajiv Ghandi Cancer Ctr
February 8, 2025 at 8:41 AM
@d4cg.bsky.social is excited to be running a workshop with peds oncologists from all over India to democratize access to rare disease data through community building and data aggregation and harmonization. Thanks to the UChicago Delhi Ctr, Tata Mem. Hosp, Wadia Children's, Rajiv Ghandi Cancer Ctr
It is so exciting to be at the NCI today at the BSA committee meeting. While it wasn't "business as usual," it was very heartening to see most everyone excited about a solid future, where we can continue to improve cancer prevention, morbidity, and mortality.
December 3, 2024 at 5:57 PM
It is so exciting to be at the NCI today at the BSA committee meeting. While it wasn't "business as usual," it was very heartening to see most everyone excited about a solid future, where we can continue to improve cancer prevention, morbidity, and mortality.
I am super excited about this new leadership role in my research group, @d4cg.bsky.social. Help build novel methods for getting patient data directly from the EHR. Please apply! sam.am/PD2024
This will help our cancer survivorship work as well as other projects like our monogenic epilepsy commons.
This will help our cancer survivorship work as well as other projects like our monogenic epilepsy commons.
December 3, 2024 at 5:48 PM
I am super excited about this new leadership role in my research group, @d4cg.bsky.social. Help build novel methods for getting patient data directly from the EHR. Please apply! sam.am/PD2024
This will help our cancer survivorship work as well as other projects like our monogenic epilepsy commons.
This will help our cancer survivorship work as well as other projects like our monogenic epilepsy commons.
So much for the "crown jewel" status for the NIH. Putting these clowns in charge is not going to help anyone. www.nytimes.com/2024/12/01/h...
Could anyone ever imagine a vaccine denier in charge of US healthcare? I can't think of a worse outcome.
Could anyone ever imagine a vaccine denier in charge of US healthcare? I can't think of a worse outcome.
Long a ‘Crown Jewel’ of Government, N.I.H. Is Now a Target
The agency long benefited from broad bipartisan support. But Republican criticism has intensified, and new choices for top health posts hope to upend the organization.
www.nytimes.com
December 2, 2024 at 12:47 AM
So much for the "crown jewel" status for the NIH. Putting these clowns in charge is not going to help anyone. www.nytimes.com/2024/12/01/h...
Could anyone ever imagine a vaccine denier in charge of US healthcare? I can't think of a worse outcome.
Could anyone ever imagine a vaccine denier in charge of US healthcare? I can't think of a worse outcome.
We need to leverage new and innovative ways to get better clinical data. Check out this review by Kirk Wyatt and me. @d4cg.bsky.social
A new editorial from D4CG’s Kirk Wyatt, Brian Furner, and @volcs0.bsky.social suggests it’s time to rethink the “gold standard” of manual data extraction and entry in #ClinicalResearch. ascopubs.org/doi/10.1200/...
ASCO Publications
ascopubs.org
November 27, 2024 at 11:07 PM
We need to leverage new and innovative ways to get better clinical data. Check out this review by Kirk Wyatt and me. @d4cg.bsky.social
Check out our Masters program offerings at University of Chicago - programs.bsd.uchicago.edu . Reach out if you want information on any of our programs. We are looking to train the next generation of leaders, and we offer concentrations in science communications, data science, and other fields.
Biological Sciences Programs – Masters and certificate programs in biological sciences at UChicago
programs.bsd.uchicago.edu
November 27, 2024 at 3:35 AM
Check out our Masters program offerings at University of Chicago - programs.bsd.uchicago.edu . Reach out if you want information on any of our programs. We are looking to train the next generation of leaders, and we offer concentrations in science communications, data science, and other fields.
When you get a piano from your landscaper, don't be surprised at the delivery mechanism. #concordelandscaping
November 24, 2024 at 2:53 PM
When you get a piano from your landscaper, don't be surprised at the delivery mechanism. #concordelandscaping
November 24, 2024 at 2:49 PM
Nacho wants up see what his big brother is eating. Thankfully, Rocco is very patient and gentle. #greatdane #kitten
November 24, 2024 at 2:43 PM
Nacho wants up see what his big brother is eating. Thankfully, Rocco is very patient and gentle. #greatdane #kitten
Pro tip: Don't go to Costco on the Saturday before Thanksgiving. The checkout line stretched to the back of the store. The staff was amazing, but it was a madhouse. #costco
November 24, 2024 at 2:38 PM
Pro tip: Don't go to Costco on the Saturday before Thanksgiving. The checkout line stretched to the back of the store. The staff was amazing, but it was a madhouse. #costco
We at @d4cg.bsky.social had a wonderful webinar yesterday discussing our data commons work in rare diseases and our @chanzuckerberg.bsky.social monogenic epilepsy commons. @fda.gov commissioner Dr. Califf joined us for a fun discussion. Watch below and reach out if you want to get involved!
Thrilled to share yesterday's #Epilepsy #RareDisease webinar! Our speakers were FDA commissioner Dr. Robert Califf, parent & advocate Dr. Justin West, epilepsy expert Dr. Doug Nordli, data scientist @proflhunter.bsky.social, and our D4CG director @volcs0.bsky.social. www.youtube.com/watch?v=XVWt...
Advancing Data Collaboration in Rare Disease and Epilepsy Research
YouTube video by Data for the Common Good
www.youtube.com
November 20, 2024 at 10:43 PM
We at @d4cg.bsky.social had a wonderful webinar yesterday discussing our data commons work in rare diseases and our @chanzuckerberg.bsky.social monogenic epilepsy commons. @fda.gov commissioner Dr. Califf joined us for a fun discussion. Watch below and reach out if you want to get involved!
Rocco is not sure of his new bed mate...
November 17, 2024 at 7:36 PM
Rocco is not sure of his new bed mate...
Look who was hiding in the wood pile. #salamander
November 17, 2024 at 7:56 PM
Look who was hiding in the wood pile. #salamander
Rocco and Rhoda - lazing around. #greatdane #australianshepherd
November 17, 2024 at 7:56 PM
Rocco and Rhoda - lazing around. #greatdane #australianshepherd