vdileo.bsky.social
@vdileo.bsky.social
Big thank you to all the professionals who helped us in making this weekend successful!
@helenwalkerncl.bsky.social @jwmdrc.bsky.social @jwmdrc-registries.bsky.social
May 19, 2025 at 9:39 AM
Our mission is to support people living with Myotonic Dystrophy. I really hope we can keep making a difference for all our delegates. It was such a pleasure to spend the time with you all!

💚Always close to my heart💚
May 19, 2025 at 9:35 AM
This weekend I was in Bristol for the 33rd Annual General Meeting and Conference of the Myotonic Dystrophy Support Group.

It’s been a year since I started working with them and it is an absolute honor for me having been elected as a *Trustee* of the charity on Friday night! 💚✨
May 19, 2025 at 9:30 AM
Thank you so much to all the charities who attended the event, it’s always great to meet some old and new friends!
April 25, 2025 at 9:37 PM
April 25, 2025 at 9:35 PM
Today I attended with some of my colleagues from the @mitonewcastle.bsky.social in @newcastleuni.bsky.social the Mitochondrial Patient Information Day. It was lovely to chat to so many patients and talk about some of the amazing research we are doing 💪🏻💚
April 25, 2025 at 9:31 PM