Vanessa Scanlon, PhD
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vanessascanlon.bsky.social
Vanessa Scanlon, PhD
@vanessascanlon.bsky.social
Assistant Professor at UConn Health in the Center for Regenerative Medicine and Skeletal Development leading research into microevironmental factors influencing hematopoiesis. Working mom of two boys and a gaggle of pets. #MentorFirst #Momademia #FirstGen
I’m honored that I was asked to attend these advocacy meetings, and so proud to have participated in our democratic process.
May 22, 2025 at 11:25 PM
I really hope people move past the two-party mindset because I genuinely worry, as our first president George Washington warned, that it will cause the collapse of what I still believe can be a great nation.
May 22, 2025 at 11:25 PM
After my experience today meeting with Congressmen across the aisle, I know that we the people are polarized, it shows in who we elected.
May 22, 2025 at 11:25 PM
I took for granted my whole life that the newest, safest, most effective medical treatments in the world were accessible to me. That is no longer a given when we bow out of our leadership role and allow other countries to become potential gate keepers of innovation and regulatory standards.
May 22, 2025 at 11:25 PM
but in reality will unleash predatory clinics that omit necessary data that patients need to make their own informed decisions.
May 22, 2025 at 11:25 PM
Because publicly available documentation on this meeting is conspicuously missing, we are concerned that the discussion that ensued is attempting to spin deregulation as an attempt to “increase access to healthcare”
May 22, 2025 at 11:25 PM
with invited representatives from unproven stem cell therapy clinics that intentionally excluded community-respected experts on stem cell biology and their therapeutic use.
May 22, 2025 at 11:25 PM
Distressingly, I learned that Secretary Kennedy (😖) has conducted at least one private round table discussion (which are required to be publicly announced and documented)
May 22, 2025 at 11:25 PM
because most people don’t understand a whole lot about the differences between tissue-derived adult stem cells and how they work.
May 22, 2025 at 11:25 PM
As more adverse events from unproven stem cell therapies are uncovered (because without regulatory oversight the clinics are under no obligation to report them), I am concerned that people will lose trust in life-saving scientifically tested stem cell therapies such as bone marrow transplantation
May 22, 2025 at 11:25 PM
and also deter people from receiving rigorously tested gold standard treatments that have demonstrated safety and efficacy.
May 22, 2025 at 11:25 PM
I expressed concern that deregulation of stem cell therapies by the FDA would allow for more snake oil on the market which would precipitously increase the adverse events already being seen in many patients,
May 22, 2025 at 11:25 PM
But they pose significant safety risks because they are collected and injected in unsafe labs that have high risks of contamination, which has resulted in patient harm including sepsis, blindness, paralysis, and even death (these are adjudicated cases by the department of justice).
May 22, 2025 at 11:25 PM
On the second point, I shared anecdotes of vulnerable people like my grandparents being swindled by businessmen who claim to have the ability to cure their illnesses with “stem cell injections” that neither contain stem cells, nor effectively cure their disease.
May 22, 2025 at 11:25 PM
I talked about the 250% return on investment that NIH-funded research has historically yielded for the American public, and emphasized the economic cost of losing that kind of investment. The ultimate consequence of all of this is our abdication of global leadership in science and technology.
May 22, 2025 at 11:25 PM
I shared stories from the senior grad students whose thesis committees I sit on who are no longer expecting to stay in the U.S. but instead are seeking more stable training opportunities and finding more job prospects and security abroad.
May 22, 2025 at 11:25 PM
because we don’t have the confidence that the awards will resume and we won’t be able to pay them for all 5 years of training (on average) without grant money.
May 22, 2025 at 11:25 PM
This next generation of scientists (most of whom were going to work in the private sector after training) have now lost their training opportunities because PhD programs reduced or eliminated this next year’s training slots
May 22, 2025 at 11:25 PM
the broken workforce pipeline due to the fact that the vast majority of NIH funding was actually supporting the costs of living for the graduate students, postdocs, and staff scientists who are receiving training and actively generating new knowledge in the biotech and medical fields.
May 22, 2025 at 11:25 PM
I talked about the active brain drain occurring and the incentives other countries are offering to American research labs if they move there;
May 22, 2025 at 11:25 PM