We have long campaigned for a truly National Health Record to:
✅give us personal access to our own health record and
✅enable the use of our anonymised data in research to identify better approaches to prevention & diagnosis of disease & to support smarter, more personalised
treatment
bit.ly/3Een6QG

Commenting on the plan for "a secure single access point to national-scale datasets" use MY data Chair Richard Stephens said:

"This is excellent news for current and future patients, and for our health services. It also shows that the voices of use MY data's Members are being heard and heeded."

#NPaDD speakers include:

🎤@rorycj.bsky.social & use MY data Member

🎤Professor Pearse Keane of @ucleye.bsky.social

🎤Dr Nicola Byrne, National Data Guardian

🎤Ming Tang, Chief Data and Analytics Officer for NHS England

🎤Emma Kinloch
Founder, Salivary Gland Cancer UK & use MY data Member

On the agenda:

🔦 Achieving a National Health Data Service for the UK
🔦Establishing a UK-wide research data environment for rare diseases
🔦Data & inequalities
🔦Big data for complex disease
🔦Involving people in their data choices
🔦Health data literacy in younger people
🔦Me, my data and (A)I

#NPaDD