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unrealarthur.bsky.social
Arthur
@unrealarthur.bsky.social
340 followers 850 following 60 posts
ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org
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unrealarthur.bsky.social
Sir Charlie Mayfield, author of the Keep Britain Working Review, endorses the BioPsychoSocial model (mispronounces it) and also says he thinks we should mainly focus on the Psycho and Social parts…
November 6, 2025 at 8:28 AM
unrealarthur.bsky.social
Update from Isla’s mother @swiftsandswallows.bsky.social , “We are very grateful for the overwhelming support from the ME community, it honestly means such a lot. For now though we need time to digest what's happened, to regroup and to catch up on sleep.”
Swiftsandswallows Isla’s mother post on Twitter, “We are very grateful for the overwhelming support from the ME community, it honestly means such a lot. For now though we need time to digest what's happened, to regroup and to catch up on sleep.”
August 1, 2025 at 4:57 AM
unrealarthur.bsky.social
It is a referral link so I will get £15 too
February 11, 2025 at 8:29 PM
unrealarthur.bsky.social
Visible 2.0 referral link page showing discount of £15
February 11, 2025 at 8:24 PM
unrealarthur.bsky.social
It’s on the “Profile” tab for me
January 23, 2025 at 7:08 PM
unrealarthur.bsky.social
This is what my app is showing. £65 if you’re an existing member
January 23, 2025 at 8:33 AM
unrealarthur.bsky.social
9/9 Finally, the most shocking part is that the old document, which was active in 2022 had this following passage from, "Professor Simon Wessely":
10 Professor Simon Wessely's observations on CFS: 'Those who have fully recovered and been symptom free for 6 months to a year - in other words regard this as something that they have had, recovered from and put behind them, tend to do well. This may be due to simple passage of time, or receiving treatment such as cognitive behaviour therapy or antidepressants. Of more concern are those who are still symptomatic and/or consider themselves still to be particularly vulnerable to the effects of viral infections/stress or other precipitants. The key, therefore, should be first whether or not they have recovered, and second, whether or not they consider themselves still vulnerable to relapse' - personal communication 11 Dec 06. Also see Cairns R, Hotopf. M. (2005): "A systematic review describing the prognosis of chronic fatigue syndrome." Occupational Medicine; 55: p2 0-31.
December 10, 2024 at 5:30 PM
unrealarthur.bsky.social
7/9 This is the shocking part! Both the old and new versions contain this text under 'in-service', "Cognitive behavioural therapy and graded exercise therapy have been shown to be of definite benefit, with pacing of possible benefit."
Fatigue syndrome(s) OLD v2.4 Oct 22 11. The diagnosis of the group of conditions known as chronic fatigue syndrome, fibromyalgia, myalgic encephalomyelitis, and post-viral fatigue syndrome, is often made by exclusion of somatic pathology. All have similar poorly defined symptoms with variable somatic (i.e. variable and flitting muscle and joint pains, trigger points etc), and psychological (i.e. anxiety and, or depression etc) manifestations. Each should be dealt with on an individual basis, and they should be graded in accordance with functional capacity taking appropriate occupational medicine advice. Cognitive behavioural therapy and graded exercise therapy have been shown to be of definite benefit, with pacing of possible benefit and so early referral for such interventions should be considered; guidance has been published by NHS Plus with the support of the Faculty of Occupational Medicine? Grading should reflect the functional level during this rehabilitation phase. Final outcomes are variable and consideration may have to be given to medical discharge. Fatigue syndrome(s) NEW v3.0 Aug 24 11. The diagnosis of the group of conditions known as chronic fatigue syndrome, fibromyalgia, myalgic encephalomyelitis, and post-viral fatigue syndrome, is often made by exclusion of somatic pathology. All have similar poorly defined symptoms with variable somatic (i.e. variable and flitting muscle and joint pains, trigger points etc), and psychological (i.e. anxiety and, or depression etc) manifestations. Each should be dealt with on an individual basis, and they should be graded in accordance with functional capacity taking appropriate occupational medicine advice. Cognitive behavioural therapy and graded exercise therapy have been shown to be of definite benefit, with pacing of possible benefit and so early referral for such interventions should be considered; guidance has been published by NHS Plus with the support of the Faculty of Occupational Medicine®. Grading should reflect the functional level during this rehabilitation phase. Final outcomes are variable and consideration may have to be given to medical discharge.
December 10, 2024 at 5:30 PM
unrealarthur.bsky.social
5/9 These are the main changes, the old version states 'pre-entry', "Candidates diagnosed as suffering from [CFS] or the group of associated disorders e.g. (FM), (ME), (PVFS), are UNFIT." The new version states "Candidates are FIT provided they meet all the following criteria..."
Chronic fatigue syndrome and associated disorders OLD v2.4 Oct 22 Candidates diagnosed as suffering from chronic fatigue syndrome or the group of associated disorders e.g. fibromyalgia (FM), myalgic encephalomyelitis (ME), or post-viral fatigue syndrome (PVFS), are UNFIT. Those with a history of this disorder lasting no more than 6 months, who have been certified by their GP or specialist to have had no further symptoms and have been undertaking activities compatible with military training and service for more than two years, should be referred to the single-Service Occupational Physician responsible for the selection of recruits before acceptance. 22. Other chronic fatigue syndrome and associated conditions. This includes the following conditions: chronic fatigue syndrome, fibromyalgia (FM), myalgic encephalomyelitis (ME), long-COVID, or post-viral fatigue syndrome (PVFS). Candidates are FIT provided they meet all the following criteria: a. The condition lasted no longer than twelve months and symptoms have resolved for at least two years, b. There are no ongoing symptoms (including breathlessness, muscle aches, enduring tiredness, chest pain), C. They are undertaking activities compatible with military training and service for more than three months. 23. All other candidates with active chronic fatigue syndrome or the group of associated disorders stated above are UNFIT. High levels of physical and / or psychological demand are associated with relapse or recurrence of symptoms. A candidate must have the physical function, in all military environments, to safely and effectively perform their military Return to Contents Page JSP 950 Lft 6-7-7 (V3.0 Aug 24) NEW v3.0 Aug 24 Page 4-N-7 of 15
December 10, 2024 at 5:30 PM
unrealarthur.bsky.social
@nickyproctor.bsky.social “This is the notice of the @meassociation.bsky.social AGM. If you want the Teams link to attend them you are advised to email admin@meassociation.org.uk For further details.” AGM on 9 Dec at 2pm
November 30, 2024 at 7:42 PM
unrealarthur.bsky.social
Honestly I’m not too sure. Action for ME used this to update their templates on asking your GP for COVID and Flu vaccinations which is good. www.actionforme.org.uk/get-support-...
October 17, 2024 at 1:02 PM
unrealarthur.bsky.social
😅 I just found this! “The movement in 2024 of Chronic fatigue syndrome (CFS) to the Neurological disease category / Other neurological disorders subgroup (formerly in Musculoskeletal disease (general) category / Chronic pain syndromes subgroup)”

stat-xplore.dwp.gov.uk/webapi/metad...
October 17, 2024 at 9:00 AM