Alexis M.
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turnoftheshrew.bsky.social
Alexis M.
@turnoftheshrew.bsky.social
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
It does not make financial sense for everyone so you’ll need to check your personal circumstances & how it works in your state. You can save up to $100k w/o it affecting #SSI or #Medicaid & it grows tax free. Others can gift $ into it. The $ can be used in the following ways:
#pwME #chronicillness
October 31, 2025 at 4:26 PM
I’ve grown so weary of healthy people reminding sick people to have hope. How do they think we’ve survived it all, many of us alone? We are already far more resilient than they can understand. Hope is not a balm for the reality of pain, it is a witness to it. #pwME #LongCovid #chronicillness #MECFS
October 4, 2025 at 9:34 PM
Mood, for the last 5 years and hopefully forever.
July 17, 2025 at 5:02 PM
This is a multi cervical unit. Curious if anyone has used one? Seemingly hard to access. I don’t know much about it or see any actual studies on its effectiveness w/ CCI, but I didn’t search very hard. Anyone want to weigh in?
(Video: @elizabeth.rozet on TikTok)
#CCI #EDS #LongCovid #MEspine #pwME
July 13, 2025 at 12:48 PM
Keep going. 🌻
June 29, 2025 at 6:47 PM
#MillionsMissing 2025 is more dire than ever: tens of millions suffering horrifically w/o treatments, many w/o any meaningful healthcare at all, & a government that strips more funding, policy & protections away each day. #DisabilitySOS #MECFS #LongCovid #MyalgicEncephalomyelitis #pwME
May 12, 2025 at 4:22 PM
Ok so, when I saw these other two and the time period I immediately thought…
May 2, 2025 at 3:02 AM
May 2025 bring us joy, safety, comfort, rest… and clinical trials that correctly measure, analyze, and demonstrate the horror that is #PEM #postexertionalmalaise. Cheers! 🥂 🎉 🎆
#LongCovid #pwME
December 31, 2024 at 8:58 PM